Hello my friends,
I'm writing an article for The Independent about HPPD. I'd like to talk first-hand with sufferers of the disorder and document their stories. This article will spread awareness about the risks of psychedelic drug-taking and show what can go wrong.
If you're interested in having a short chat or sending a summary of your experience with HPPD, then please email me at firstname.lastname@example.org. You can be anonymous on request, don't worry.
During the last 3 months my symptoms increased a lot and I still thinking it’s because Sertraline. I’ve been taking Sertraline 100mg for 3 years now, same with Lorazepam 1g, every day during 3 years.
I talked to my med and he wants to take me off the Sertraline and change Lorazepam for Clonazepam some weeks / months. I am super afraid of withadrawl and also of still using benzodiazepines. My symptoms nowadays are: Severe VS, severe ghosting and palinopsia with afterimages, photophobia, photopsias, nyctalopia, flashes, color problems, apparent movement in objects, kind of bugs in vision, and really mild shaking vision (just on my periphery).
What I can do? Please I need help because my symptoms are so severe nowadays and I don’t want to get them worse, actually I would like they come back at least to last year were they weren’t so noticeable.
I get intrusive thoughts everyday and I need help. I’m 21 years old.
I’ve been suffering VSS for 2 years into mild and not too symptomatic way, but last month it became so several worse and I want to ask you something about my symptoms because I am super confused and afraid.
Let me explain my case.
About 2 - 3 years ago I tried hashis cigarette from some friends, I had a really bad trip with visual hallucinogens (something that got me super anxious and depressed, I didn’t like the effect).
After some weeks I got panic attacks and much anxiety, so my doctors prescribed me Sertraline 100mg and Lorazepam 1g per day. After some months of getting alright I started getting VS symptom, static dots in my vision like a TV. I went to the doctor but my vision was alright and my brain too, so as it didn’t bother me too much I lived with it for 2 years.
On Summer 2019 I felt so good so I stopped the medication gradually, I stopped the full medication on December 2019. Last month I got too anxious because a medical test. So my VS got worse and I started with flashes in the eyes, palinopsia and severe nyctalopia. I also had a kind of bad tinnitus so I went to the doctor and got treated with Dacortin (corticosteroids).
and also I had to start again with my psychiatrist medication because anxiety and obsessive compulsive intrusive thoughts.
Nowadays my VSS is super severe but I also have some weird, uncomfortable symptoms, and I get something new everyday, I am super afraid.
I have really severe symptoms: VS, palinopsia, nyctalopia, afterimages, really hard flashes at the edge of my vision, spontaneous and random black and bright dots that appear and disappear from the vision quickly, and also I have the perception of looking and object and the object moves so lengt but it only have a seconds duration.
Everyday from 1 month symptoms get worse and worse, I had to stop working because my world is so distorted.
Do you think it’s VSS, or HPPD??
What I can do and how I can be threated? I need help.
I saw a lot of success on Clonazepam and Clonidine or Lamotrigine. Should I go to the doctor to get a prescription of those? I am super afraid, anxious and desesperated.
I also have obsesive and intrusive thoughts about becoming schizophrenic, or suffering it for all the life. I can’t live with that, I feel like living into a psichedelic trip, and I NEVER tried LSD, cocaine, MDMA, or something like that, I have been always fear of these kind of drugs. So what do you think?
Looking for your answer, thanks for your time and attention.
In 2011, during a month, I developed a lot of neurological symptoms (I was 20 and then only marijuana several times in my life) - visual snow, palinopsia after images, floaters and tingling of the whole body (24/7), muscle fasciculations.
In 2011-2014 I was diagnosed comprehensively (MRI, cerebrospinal fluid, evoked visual potentials, blood etc.). It only turned out that I was infected with Bartonella. I treated myself for several weeks according to ILADS, but finally I gave up. I have learned to live with these symptoms since accepting treatment failure in 2014. Now some of the symptoms are gone, some are still present (like VS, body tingling).
Now to the point. A week ago I had the opportunity to take half a pill of ecstasy/mdma (it was my first time in my life, I only thought that LSD can cause permanent vision problems, so under the influence of alcohol I took half a pill). That night I also drunked a loooot of vodka and beer. And I don't remeber second half of the night.
The next day I sobered up and read that MDMA may also cause/worse with HPPD/ VS. I got stressed and think my visual symptoms have got a little worse. But I wonder if it's not that under stress and paying attention to visual snow, palinopsia - I just see them more...?
1. Is there anyone here who caused (or worsened) visual snow, palinopsia - after images by ONLY ONE (1st) USE ecstasy / mdma ? I took a half a pill and drink a lot of alcohol (Does alcohol weaken the effect of ecstasy in the brain?)
2. Does it pass someone or is it permanent forever?
By Loukas iliop
Hello to the hppd family. After having hppd, a form of visual snow and some dpdr from weed ive been on my worst days of my life. I was panicing, having panic attacks, checking in every minute pf an hour and basically living in some sort of paranoia. 7 months later i started ignoring it and felt immediatelly better. Im now on my month 8 doing no fap, cold showers, no sugar diet, 4 liters of water a day and listening to positive affirmations daily. Evem though all those thing i still experience a lot of nightmares where i also have dpdr hppd etc. Yesterday i saw a very scary realistic dream with some sort of a demon into it. I woke up sweating and being in a lot of discomfort. I closed my eyes and saw the demon appearing and next to him that star or whatever its called just like afterimages (which im used to them trust me :p). They lasted for about 20 seconds amd they were very scary. I have never had tryied amy psychedelics, i have done mri tests and they are perfectly fine , ive given a schizophrenic test (although) i didnt have any symptom(because i was worried) and o had nothing. Before that day i was on day 12 of nofap, doing cold showers, had sugar free diet, being better with my mental state and working out. The only problem i had with my sleep is that i couldn't sleep well last year when i had none of those things ironically. Also, i sometimes experience sleep paralysis but not this time . im a little worried . can anyone relate to this?