Hi there. I've had HPPD since I was about 19... so going on 16 years now. I won't get into all the details but what I'm wondering is if anyone has resolved, or read about someone who resolved their Blue Field Entoptic Phenomenon (BFEP)? This is probably one of my most annoying symptoms and is prevalent on any large bright surface. Central vision and peripheral.
Any feedback would be much appreciated.
I have engaged in many many binge drinking episodes over the last decade or so and began to suffer panic attacks during withdrawal as a result. Hypersensitive receptors? Maybe.
I developed HPPD with comorbid DP/DR in 2005 so have a feeling that all of the negative psychological symptoms are linked to this neurological disorder.
I have tried SSRIs which did naught to help my psychological problems whilst increasing my visual symptoms and am currently on lamictal (100mg) for five weeks which doesn't seem to be demonstrating much efficacy thus far.
I have been reading about the damage binge drinking can cause to our NMDA/R and am wondering if the NMDA/R might also be linked to my HPPD/DP/DR.
I also suffer from trichotillomania if that is relevant at all.
Would TMS be useful if the NMDA is implicated in what ails me? TMS on the PFC of perhaps another area of the brain?
I know positive thinking/acceptance/exercise etc. are very useful at helping on live with this conditions but really think I need the expertise of a neurologist/psychiatrist to truly make somewhat of a recovery from these disorders.
Thanks for all of your help and thank you for reading.
Im totally aware I do this but now my kids ( well, my youngest kid! ) has noticed and this has turned into family ' lets poke fun at Dad' thing - if only they knew the cause!! Hah! :-$
So, anyway, I have a really weird thing, and I quantify if my thinking, if I touch things 'they will be ok and won't start moving again', i.e., start tripping again! I mean, when I'm in the car, I regularly flick/tap the windscreen with my nail on my middle finger, sitting at home I do the same on tables if I'm walking past a wall to the wall, even lying in bed, ill often reach out and trap the wall, also to make sure its all still 'there'!!! My daughter says I often tap my self too, usually on the forehead, I mean, wtf!!! LOL
Sometime I STILL have that sinking feeling when you are falling deep into trip, that horrible feeling in your mouth too, and wake up sweating and tap the wall to make sure everything is all right!
Crazy I know, and note, I'm 27 years into living with HPPD so am pretty long in the tooth, and honestly, since joining this forum, completely at terms with it knowing I am not insane, or crazy, or on an endless trip ( even tho I think I am to an extent ) or the only guy in the world to have had 'this' happen to him!
Anyway, just one of my MANY brain bending quirks I have after many years of abuse! Double note, 8 years drug ( coke ) free, 20 years Acid and 'E' free. Still enjoy alcohol, and caffeine, and I must confess, taking Vallium on a few long haul flights recently was pure bliss, although also reminded me of some dark times during the 'downers years'!!!
Anyway, anyway. maybe its just me, thought id throw it our there anyways!