I’ve been suffering VSS for 2 years into mild and not too symptomatic way, but last month it became so several worse and I want to ask you something about my symptoms because I am super confused and afraid.
Let me explain my case.
About 2 - 3 years ago I tried hashis cigarette from some friends, I had a really bad trip with visual hallucinogens (something that got me super anxious and depressed, I didn’t like the effect).
After some weeks I got panic attacks and much anxiety, so my doctors prescribed me Sertraline 100mg and Lorazepam 1g per day. After some months of getting alright I started getting VS symptom, static dots in my vision like a TV. I went to the doctor but my vision was alright and my brain too, so as it didn’t bother me too much I lived with it for 2 years.
On Summer 2019 I felt so good so I stopped the medication gradually, I stopped the full medication on December 2019. Last month I got too anxious because a medical test. So my VS got worse and I started with flashes in the eyes, palinopsia and severe nyctalopia. I also had a kind of bad tinnitus so I went to the doctor and got treated with Dacortin (corticosteroids).
and also I had to start again with my psychiatrist medication because anxiety and obsessive compulsive intrusive thoughts.
Nowadays my VSS is super severe but I also have some weird, uncomfortable symptoms, and I get something new everyday, I am super afraid.
I have really severe symptoms: VS, palinopsia, nyctalopia, afterimages, really hard flashes at the edge of my vision, spontaneous and random black and bright dots that appear and disappear from the vision quickly, and also I have the perception of looking and object and the object moves so lengt but it only have a seconds duration.
Everyday from 1 month symptoms get worse and worse, I had to stop working because my world is so distorted.
Do you think it’s VSS, or HPPD??
What I can do and how I can be threated? I need help.
I saw a lot of success on Clonazepam and Clonidine or Lamotrigine. Should I go to the doctor to get a prescription of those? I am super afraid, anxious and desesperated.
I also have obsesive and intrusive thoughts about becoming schizophrenic, or suffering it for all the life. I can’t live with that, I feel like living into a psichedelic trip, and I NEVER tried LSD, cocaine, MDMA, or something like that, I have been always fear of these kind of drugs. So what do you think?
Looking for your answer, thanks for your time and attention.
Im 19yo, I developed hppd a year and a half ago and always checked this forum, but never had an account.
at the age of 12, I was diagnosed with anxiety/depression and since I was a kid I felt what we call dp/dr, visual snow and tinnitus. I used to treat anxiety taking sertraline, but stopped before drugs.
After starting smoking weed and doing some ecstasy, mdma, mda and cocaine accidentally (who gave it to me told it was mdma), I noticed a lot of worsening in my symptoms, I noticed that I had palinopsia too, I freaked out and got really bad, for like 9 or 10 months.
I did everything to get better (really everything). Took some benzos to chill out (Clonazepam, Alprazolam and Diazepam), did acupuncture (I think that helped), started eating better, exercise, treated my spirit with a sensitive woman, a lot of things.
Nowadays, I think my symptoms are like they were before drugs (?) but they definitely got better and some vanished, but now I know that I have palinopsia too.
I drink alcohol, I roll my own tobacco and sometimes take a good amount of xanax. None of these make me feel worse.
My question is, these days my anxiety is on maximum state, my doctor recommended me taking wellbutrin, because he knows I will never touch ssri's and I don't want to get addicted to benzo s, do you guys think taking it has a chance to bring back my old symptoms and worsen the ones that I already have?
ps. Once, when I was "recovered", I gave weed a try and it didn't increased my visuals symptoms in a way that I noticed, but gave me a trigger on my anxiety in the next days.
Thx and greetings from Brazil (Is my english that bad?)
I hope all of you guys recover from this thing that we suffer.
Hello All, My name is Allen. I've browsed this site randomly over the past couple years but was afraid share. I'm in my 30's and have had HPPD 2 for 18 years. I was diagnosed 5 years ago after a seeing countless doctors through the years. Recently I found out my wife was pregnant and I became determined to find a treatment or, god willing, a cure. When I was in my mid teens I took lsd about 5 times and I was a chronic marijuana smoker. The last time I took lsd I smoked weed at the same time and I had the worst experience of my life: My heart began to race uncontrollably, my arms and face became numb; I saw long blury trails on everything and I felt hot and cold all at once. It was so intense that I thought for sure I was going to die. In desperation, I curled up in a ball on my couch, closed my eyes, and began to pray to god repeatedly to make it stop and let me live, until eventually I fell asleep. I woke up the next morning and thanked god I was alive. I swore of lsd forever. Unfortunately that didn't stop me from trying to party with my friends as usual. Every time I smoked weed after that I would have severe panic attacks and almost black out. When I'd drink alcohol I felt like I had a lump in my throat and couldn't breathe. A couple weeks after that horrible trip I woke up to a dull version of the same type of visuals I had the night of my bad trip, I was petrified and began having random panic attacks. I finally told my mother what I did and what happened since and she took me to the doctor. The doctor swore it was depression with anxiety and completely dismissed any lsd involvement. She prescribed me Effexor and xanax. The effexor didn't help at all and it made my heart race. The symptoms were not going away. I was afraid I damaged my brain beyond repair. Shortly after I withdrew from school and became a hermit. The xanax helped a lot with anxiety but the visuals remained. Through the years I saw about a dozen different psychiatrists and none of them knew what was wrong with me and continued me on benzodiazepines and ssri's. I lost my insurance and couldn't afford all the doctor appointments and medicine, so I began getting zoloft and Vicodin off the streets to self medicate. Eventually the visuals became less intense and my panic attacks were less frequent. Although the visuals and anxiety are a part of my daily life, I still manage to function. Some days are worse than others but I forced myself back into society and I got a good job in construction, and married my girlfriend who has been with me through this whole experience. I got off the vicodin with suboxone and continued the zoloft. With the news of our first child, I found a new determination to get rid of this horrible disease for good. I told my doctor that I wanted to try anything we can to make this stop and she agreed to start prescribing me different medications to see what, if anything, will work. She prescribed clonidine last visit and I started it 6 days ago. Unfortunately it hasn't helped my visuals at all and last night I began having strange thoughts and seeing weird images when I closed my eyes. I'll keep everyone updated on how it goes. I'm really hopeful that something will get rid of this for good. Wish me luck and good luck to all of you.
P.s. I am thankful to whomever started and maintains this site. I hope we can get this horrible disease more attention and find a real treatment for it.
I wanted to share some information that may help visual snow sufferers. My son (who has lived with HPPD for 5 years now) had standard blood lab work done which revealed he had a low count for testosterone. This, of course, has various medical implications and treating it is important. He was placed on a bi-weekly treatment of intravenous testosterone to increase the count.
An unexpected outcome was discovered.... within hours of getting the testosterone, his visual snow cleared to a significant degree. It lasted for weeks.
There is currently no research on testosterone and its effect on visual snow. Not sure if what happened to Kevin is an anomalie, or there is something here worthy of further study. Just thinking it might be worthwhile for others to check their blood levels and, if low, ask the doctor for supplementation and see if visual snow symptoms improve.
Hope this information helps someone!
Doreen Lewis, PhD