June 11, 2019
SUBJ: Faces of HPPD Survey/Research Published – RESULTS!
Dear HPPD Online Community:
As a mom with a grown son with HPPD, I was so fortunate to come across this forum several years ago for information and support. David Kozin, who runs this board, is an amazing man to have created and maintained this website and kept up his work/studies over the years – all the while suffering with HPPD. I would like to thank him for this platform, and well as thank those of you who participated in the survey that I launched four years ago to collect data about individuals who had received an official diagnosis of the disorder.
Fast forward…. Here it is June 2019. Long overdue for the published report, however, I lingered – always hoping to gain a larger sample of subjects.
I am fortunate to have a PhD in psychology, experience in research, and a heart to try to make a difference. Instead of publishing a book, it only made sense to get the results in the hands of the scientists and medical professionals through scientific writing. I am so happy to tell you… the peer-reviewed medical journal, Addictive Disorders & Their Treatment, published by Wolters Kluwer publishers, has reviewed and accepted my manuscript for publication in an upcoming issue. Last week the article completed rounds of publication editing and formatting. The article is posted at their website for advance release.
Lewis, DM, Faces of HPPD: Hallucinogen Persisting Perception Disorder Patient Survey Results and a Descriptive Analysis of Patient Demographics, Medical Background, Drug Use History, Symptoms, and Treatments. Addictive Disorders and their Treatments. Forthcoming 2019.
The link is here: https://journals.lww.com/addictiondisorders/Abstract/publishahead/FACES_OF_HPPD__Hallucinogen_Persisting_Perception.99733.aspx
(NOTE: This direct link will change probably in a month or two when the article is given a print-issue date – right now, it is advance copy, undated. In the future, you can search the article at https://journals.lww.com/addictiondisorders/ .
While the article is available for immediate download, many of you know that publishers charge money for copy downloads (this one is $49), and authors cannot give away their copy. This, I know, is not a good thing for some within the community who do not have the funds.
However (here’s the good news 😉), I contacted the publisher and obtained permission to publish a summary of the results (the important data!) and I created an infographic that provides you all the results. I am including it here as a .pdf file, attached. It’s reader-friendly, and I hope it provides insight.
I want to mention some findings that particularly concern me: the high rate of suicide ideation (among other co-morbid psychological/psychiatric symptoms reported), and the significant number of individuals who reported being unable to work due to HPPD. I feel strongly that HPPD needs recognition as potentially disabling – and I believe there are some individuals who may need government assistance (eg, Social Security Disability benefits). My future work leads me in the direction of carving a path for HPPD as a qualifying mental disorder for eligibility for assistance. I will keep you posted on that.
Again, thank you so very much for those who partook in the survey.
My best wishes to each of you for good health and peace of mind,
Doreen M. Lewis, PhD
Faces of HPPD Infographic - LEWIS.pdf
Hi, I'm new to this forum
My condition started 1 year ago when I snorted 60mg of 2C-B, that night I had a horrible bad trip that ended in a panic attack and a visit to the hospital
since that day I have anxiety problems, but I never had HPPD, visual snow, depersonalization / derealization, so I consider myself lucky !!!
my symptoms have been more like traditional anxiety: chest pain, insomnia, fear of dying, muscle twitching, racing thoughts, nightmares, myoclonus (jerking when trying to sleep), shortness of breath, panic attacks the first few months...I think I have some form of PTSD caused by this bad trip
I've been sober for almost 9 months and the only symptom I have now is muscle twitching (like fasciculations)... it's not a big deal, so I have a pretty normal life to be honest, I cannot complain.
but if I drink alcohol/caffeine my anxiety increases the following days, and some old symptoms return.
So I was wondering how bad it would be get drunk once a month and cut the anxiety of the following days with clonazepam?
(I can handle 2 beers without problem, but if I took more I may have some anxiety problems the following days)
What do you guys think, is not worth it?
Can my condition evolve into HPPD just because of alcohol?
Hello guys, it's been a year since i had the same problem as you. Always exactly 1 year I took 150ug of LSD and had a terrible bad trip that traumatized me and left me sequels. I had flashbacks and I missed a lot because of it. Distorted visions in my peripheral field. All this was cured with antipsychotics, especially risperidone (I can not remember the dosage). But what it took to be cured was the emotional sequel that caused me. Psychedelic experiences transform you radically and unfortunately if you are not prepared for them it may take a long time for you to get back on track and I confess that I am not yet 100% healed of this trauma. But what I can say to you is that the worst of all this is not the visions, but the horrible thoughts that go through our heads thanks to the anxiety that causes us. And what I want to know about this post is just that. What are the thoughts that torment you because of this anxiety? Write them in the comments and we'll help each other by talking about them. For example, I used to think all the time that I was getting schizophrenic, that there would be some outbreak, over time this evolved into existential crises where I thought my soul was lost in space time and I was not living reality, just watching it (depersonalization and derealization helped in this).
Hey guys, so recently I have been feeling very bad about where my life is at so I figured I would share my story, maybe I will feel better if I talk about it and in this day and age this is talking. Anyway, I have been a psychedelic user since the 11th grade, started with some gummy bears that had "LSD" dripped on them, they tasted like battery acid but I knew very little about the drug at the time. I ate about 10-12 of those in all on 3 separate occasions before I actually tripped, and to this day I can truthfully say it was the weirdest trip that I have ever experienced in my life, the feeling that I describe as synthetic. I then did LSD about 15 times and mushrooms about 20 different occasions. The last occasion that I tripped I ate mushrooms, i was at my friends house and we decided to eat 2 grams each, and we were gonna hangout there and smoke all night and just trip, and about 15 minutes after we ate them before we started tripping a group of my friends show up maybe 6-7 of them all telling us to come over to the one kids house to trip with them and party. I myself didn't want to go because i didn't like tripping with more than one or two people at a time, so I was already out of my comfort zone, but I ended up going. We got there and I knew every single person there but I was feeling a little social awkwardness due to the fact that maybe five out of the fifteen people there were tripping, at one point I had a friend come up to me and another kid and asked us if we just wanted to go down and smoke in his house, so we went and I started feeling a lot better. We will call the two friends i was with J and G, me and J get along very well and J was the friend i was with at the beginning of the night, G and I on the other hand don't get along as well but are still friends. We started watching Family Guy and G pulled out his dab rig and took a dab then proceeded to offer both me and J a dab, I of course accepted and this is where my night really started to go south, I started tripping really hard, and none of us were talking we were just watching an extremely old family guy episode, one of the ones where only one character moves at a time, and if they speak only their mouths move, and it just kinda weirded me out watching that, in fact it weirded us all out so we decided to go for a walk, G went back up to the party and me and J accompanied by two more friends who were NOT tripping, and started walking, we will call this friends B and A, so me J B and A were all walking down this back road in some Pennsylvania woods at 3 am. We started walking and B and A started asking me about my life overseas, as I started trying to explain what life was like i began to get stuck, I was trying to describe to them the feeling of being overseas and obviously they weren't able to perceive the depiction that I was providing, I got a little anxious and stopped talking about it, we continued to walk when me and J ended up being about 13 feet behind them, I felt some sort of psychological connection with J, we couldn't telepathically read each others minds or anything but we just felt the fact that we were both perceiving on a completely different level than the others. All the sudden I hear A and B talking, saying things like, "I feel like they are retarded, I feel like im talking to a third grader." and then laughing, I didn't take this lightly and said something like "hey how about you keep your mouth shut and quit talking shit", I really made things awkward now, and there was no talking. When we got back from our walk we were sitting on a few big rocks just hanging out, I had already apologized for my first out lash and everything is back to normal, as we are sitting there B says something very slightly provocative (i cannot remember verbatim what was said" and I snapped out, I couldn't control what I was doing or saying, but I was standing up pointing my finger at B and cussing at him telling him to shut the fuck up or fight me, what was really weird was the fact that I had no control over what I was doing, the whole time I was thinking in my head "what am I doing? Why am I doing this? I need to stop yelling at him and let it go. Whats happening to me. I'm never gonna stop tripping. After that night I was kinda weirded out by the whole incident so I stopped taking any type of psychedelic, after a few months I started noticing that I was tripping constantly, especially in situations that made me nervous, like going to a court hearing, i was looking at the floor and i was seeing waves everywhere and books sliding in and out of the shelves. This constant tripping lasted for a while, I became a different person, It was like i developed ADD and anxiety, and my depression had worsened a lot. Me and my girlfriend broke up while i was going through this as well and it was extremely hard for me, I plummeted into a deep depression and didn't think I had ever truly loved myself. I was a big time party freak before I met my girlfriend and kinda mellowed out the year we were together, so after we broke up I kinda jumped right back into it, I started doing a lot of benzos because they made me feel numb, in the HPPD state I feel everything and the feeling is multiplied, so these were a quick addiction for me, although my HPPD subsided. I continued partying and doing drugs until I went to my freshman semester of college at, you guessed it WVU. As soon as I got down there I made some bad friends and was robbing people and doing pills and smoking like never before, I eventually had a close call and dropped out and returned home, when I got home I did the same old thing, robbed people and did pills, and I really needed something to change my life around quick. Then one night I was staying in a motel with a friend when he pulls out an ounce of mushrooms, Ahhhhh my friends at last. He asked me if he cared if he ate some, and i said as long as I can eat some with you. It had been really long since i tripped and this friend was my best friend for the past two years so I decided i was in a good environment with one friend, fuck it. We started tripping, and it was a trip like I had never had before, I ate 4.3 grams of caps and we blasted off into the unknown, after a while of tripping and happy laughs good visuals, we had to go sell a half ounce to someone about 20 minutes away, so we drove there just talking, no music the whole time. We talked about life and about where we were at and if we were happy. On the way back i started to notice that my eyes were going lazy and i was seeing one road for each eye that I had, So I was double visioned basically. I found it extremely hard to fight this so I just focused on one road and drove perfectly all the way back, when we got there we were still conversing and heading to get food, all the sudden, epiphany after epiphany, my vision closed in and formed one extremely clear picture, like I have never seen anything before and It was while I was saying how I needed to quit doing drugs and focus on my body and spiritual health, My friend says we opened our third eye, and I believed it, my whole life changed that day and i started loving psychedelics again, buying and using daily, I would micro-dose, i would take .5 in the morning and .5 around 3-6 pm, even though i wasn't doing it right i thought i was okay because i was only micro-dosing. I started getting into meditation and yoga and all these spiritual things, I had a few epiphanies while meditating that were very radical, like one was I felt a telepathic connection with the universe and was thinking with consciousness, I say consciousness because the image that came along with the thought was telling me that consciousness is one, we are all the same, so the first thing i thought to ask was whats the point of life? The response; Love, the point of life is to love everything and everyone, because no matter if I am human and dog is dog, we are both alive, thriving on this planet together, so If i have the knowledge to care for life on this planet I must. This short lived high point in my life quickly faded weeks after when I noticed that I was tripping all the time again... It has been about 4 months since then and I am in the worst place ever, I cannot get myself to work, I cannot eat, I sleep surprisingly well though still. I have had crazy thoughts that pop into my head along with my visuals, like i saw visual snow, and i thought "well what if it is really something out there that I can see but nobody else can.." or "well if i believe that this room is moving then in my reality.. it really is moving.." And i become scared of these thoughts even though I don't believe them, It scares me to know that my brain is thinking them. I have debated suicide many nights, I consider myself a fuck up and a failure for all these evens that have happened, and now that Im thinking so much i begin to debate whether or not I am going crazy, I used to be such a smart kid, being able to off any teacher because I would find ways to prove them wrong, or being able to win any debate with friends because I knew more about the subject, I went from that to being the awkward kid who doesn't really talk a lot and has been sick twice in two weeks so he missed four days of work. I am beginning to fear that I can no longer do this. Hope this story was put together decently for you, I tend to get off topic sometimes, any thoughts comments would be appreciated dearly.
Im 19 and last weekend (4 days ago) i used ecstasy for the first time. I took less then 1/4 of a pill and 3 hours later 1/4 again. At most it was half a pill (not tested, i know thats really stupid).
I have done weed before but between every smoke there was about 1 to 2 weeks break.
Now my questions is do i have hppd?
The moment i woke up the next day of taking ecstasy i was scared that something was wrong with me. I had some blurred vision and a bit of a headache. So i started looking online and found out about HPPD. Now i am trying to see if i have the symptomsbthey discribe and guess what? i do have some of the symptoms.
I have the visual snow one but only if i focus on it but yea its still scaring me.
I do have afterimages but only when i look in really bright lights and itbonly stays for 0.5 second.
And some bright car light have like this star shape but i think i had that as a child aswell.
So yeah what do you guys think?
I also want to mention that during the trip i didnt halucinate so im not sure if i eveb can get hppd without having halucinated. And the trip was good.
The thing im most scared about is that i will never be able to drink a beer and smoke weed again. (i read that people with hppd cant to that anymore cause it increase the symptoms).
What i dont have is things morphing in stuff and i dont halucinate. I dont feel disconnected with myself.
Am i overthinking stuff or what?
Thanks for reading,