Hi there. I've had HPPD since I was about 19... so going on 16 years now. I won't get into all the details but what I'm wondering is if anyone has resolved, or read about someone who resolved their Blue Field Entoptic Phenomenon (BFEP)? This is probably one of my most annoying symptoms and is prevalent on any large bright surface. Central vision and peripheral.
Any feedback would be much appreciated.
Hello my friends,
I'm writing an article for The Independent about HPPD. I'd like to talk first-hand with sufferers of the disorder and document their stories. This article will spread awareness about the risks of psychedelic drug-taking and show what can go wrong.
If you're interested in having a short chat or sending a summary of your experience with HPPD, then please email me at firstname.lastname@example.org. You can be anonymous on request, don't worry.
I started taking Clonazepam in a really small dose (0,2mg per day) 3 days ago, and yesterday evening I started getting possitive palinopsia and hard afterimages.
Is it possible that Clonazepam induced me this?
My psychiatrist prescribed it to me for Sertraline and Lorazepam withadrawl, for not getting too much abstinence (I am currently on Sertraline 50mg and Lorazepam 0,5mg and going down every week step by step)
During the last 3 months my symptoms increased a lot and I still thinking it’s because Sertraline. I’ve been taking Sertraline 100mg for 3 years now, same with Lorazepam 1g, every day during 3 years.
I talked to my med and he wants to take me off the Sertraline and change Lorazepam for Clonazepam some weeks / months. I am super afraid of withadrawl and also of still using benzodiazepines. My symptoms nowadays are: Severe VS, severe ghosting and palinopsia with afterimages, photophobia, photopsias, nyctalopia, flashes, color problems, apparent movement in objects, kind of bugs in vision, and really mild shaking vision (just on my periphery).
What I can do? Please I need help because my symptoms are so severe nowadays and I don’t want to get them worse, actually I would like they come back at least to last year were they weren’t so noticeable.
I get intrusive thoughts everyday and I need help. I’m 21 years old.
I have engaged in many many binge drinking episodes over the last decade or so and began to suffer panic attacks during withdrawal as a result. Hypersensitive receptors? Maybe.
I developed HPPD with comorbid DP/DR in 2005 so have a feeling that all of the negative psychological symptoms are linked to this neurological disorder.
I have tried SSRIs which did naught to help my psychological problems whilst increasing my visual symptoms and am currently on lamictal (100mg) for five weeks which doesn't seem to be demonstrating much efficacy thus far.
I have been reading about the damage binge drinking can cause to our NMDA/R and am wondering if the NMDA/R might also be linked to my HPPD/DP/DR.
I also suffer from trichotillomania if that is relevant at all.
Would TMS be useful if the NMDA is implicated in what ails me? TMS on the PFC of perhaps another area of the brain?
I know positive thinking/acceptance/exercise etc. are very useful at helping on live with this conditions but really think I need the expertise of a neurologist/psychiatrist to truly make somewhat of a recovery from these disorders.
Thanks for all of your help and thank you for reading.