Hello my friends,
I'm writing an article for The Independent about HPPD. I'd like to talk first-hand with sufferers of the disorder and document their stories. This article will spread awareness about the risks of psychedelic drug-taking and show what can go wrong.
If you're interested in having a short chat or sending a summary of your experience with HPPD, then please email me at firstname.lastname@example.org. You can be anonymous on request, don't worry.
I started taking Clonazepam in a really small dose (0,2mg per day) 3 days ago, and yesterday evening I started getting possitive palinopsia and hard afterimages.
Is it possible that Clonazepam induced me this?
My psychiatrist prescribed it to me for Sertraline and Lorazepam withadrawl, for not getting too much abstinence (I am currently on Sertraline 50mg and Lorazepam 0,5mg and going down every week step by step)
During the last 3 months my symptoms increased a lot and I still thinking it’s because Sertraline. I’ve been taking Sertraline 100mg for 3 years now, same with Lorazepam 1g, every day during 3 years.
I talked to my med and he wants to take me off the Sertraline and change Lorazepam for Clonazepam some weeks / months. I am super afraid of withadrawl and also of still using benzodiazepines. My symptoms nowadays are: Severe VS, severe ghosting and palinopsia with afterimages, photophobia, photopsias, nyctalopia, flashes, color problems, apparent movement in objects, kind of bugs in vision, and really mild shaking vision (just on my periphery).
What I can do? Please I need help because my symptoms are so severe nowadays and I don’t want to get them worse, actually I would like they come back at least to last year were they weren’t so noticeable.
I get intrusive thoughts everyday and I need help. I’m 21 years old.
I have engaged in many many binge drinking episodes over the last decade or so and began to suffer panic attacks during withdrawal as a result. Hypersensitive receptors? Maybe.
I developed HPPD with comorbid DP/DR in 2005 so have a feeling that all of the negative psychological symptoms are linked to this neurological disorder.
I have tried SSRIs which did naught to help my psychological problems whilst increasing my visual symptoms and am currently on lamictal (100mg) for five weeks which doesn't seem to be demonstrating much efficacy thus far.
I have been reading about the damage binge drinking can cause to our NMDA/R and am wondering if the NMDA/R might also be linked to my HPPD/DP/DR.
I also suffer from trichotillomania if that is relevant at all.
Would TMS be useful if the NMDA is implicated in what ails me? TMS on the PFC of perhaps another area of the brain?
I know positive thinking/acceptance/exercise etc. are very useful at helping on live with this conditions but really think I need the expertise of a neurologist/psychiatrist to truly make somewhat of a recovery from these disorders.
Thanks for all of your help and thank you for reading.
I’ve been suffering VSS for 2 years into mild and not too symptomatic way, but last month it became so several worse and I want to ask you something about my symptoms because I am super confused and afraid.
Let me explain my case.
About 2 - 3 years ago I tried hashis cigarette from some friends, I had a really bad trip with visual hallucinogens (something that got me super anxious and depressed, I didn’t like the effect).
After some weeks I got panic attacks and much anxiety, so my doctors prescribed me Sertraline 100mg and Lorazepam 1g per day. After some months of getting alright I started getting VS symptom, static dots in my vision like a TV. I went to the doctor but my vision was alright and my brain too, so as it didn’t bother me too much I lived with it for 2 years.
On Summer 2019 I felt so good so I stopped the medication gradually, I stopped the full medication on December 2019. Last month I got too anxious because a medical test. So my VS got worse and I started with flashes in the eyes, palinopsia and severe nyctalopia. I also had a kind of bad tinnitus so I went to the doctor and got treated with Dacortin (corticosteroids).
and also I had to start again with my psychiatrist medication because anxiety and obsessive compulsive intrusive thoughts.
Nowadays my VSS is super severe but I also have some weird, uncomfortable symptoms, and I get something new everyday, I am super afraid.
I have really severe symptoms: VS, palinopsia, nyctalopia, afterimages, really hard flashes at the edge of my vision, spontaneous and random black and bright dots that appear and disappear from the vision quickly, and also I have the perception of looking and object and the object moves so lengt but it only have a seconds duration.
Everyday from 1 month symptoms get worse and worse, I had to stop working because my world is so distorted.
Do you think it’s VSS, or HPPD??
What I can do and how I can be threated? I need help.
I saw a lot of success on Clonazepam and Clonidine or Lamotrigine. Should I go to the doctor to get a prescription of those? I am super afraid, anxious and desesperated.
I also have obsesive and intrusive thoughts about becoming schizophrenic, or suffering it for all the life. I can’t live with that, I feel like living into a psichedelic trip, and I NEVER tried LSD, cocaine, MDMA, or something like that, I have been always fear of these kind of drugs. So what do you think?
Looking for your answer, thanks for your time and attention.