7 posts in this topic
After a lot of research, i came across this medical review : https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3736944/Very interesting and rare hppd study.
Overall, it seems that Lamotrigine has been able to cure long term HPPD like mine is , and for good, or significantly decrease visual disturbances and symptoms.
I'm actually testing nootropics on many levels, but i'm willing to step-up to more epileptic oriented drugs.
Anyone has more input about Lamotrigine on long lasted HPPD (mine is about 20 years old...) ?
I’ve been trawling through this forum and seems like you guys are really helpful – not sure who’s active anymore but anyway I have some questions. Sorry it's long, if you’re feeling helpful but not up to reading then skip to the end :-)
I’m 20 and developed HPPD from LSD maybe 13/14 months ago. Light tracers, afterimages, visual snow, seeing colours etc. It caused me a bit of anxiety towards the beginning but it must have been very mild because it hardly bothered me at all. I could’ve very easily lived with it. I did MDMA multiple times in the following year, and some coke and keta, none made any difference to my HPPD, so I just linked it to LSD (wasn’t sure what it was really).
Just over a month ago I had mushrooms for the first (and LAST) time. Trip was extremely intense, I passed out and then it was like I’d woken up in another galaxy, but not a terrible experience like some you hear. About a week later I woke up with insane visuals, everything moving around, colours vibrant, people’s faces looked pink and yellow. I was vomiting and could hardly stand up. I felt like my life had ended, like I was no longer myself at all. I was seeing through a fish eye lens, my voice wasn’t my own, everything was moving around me like on a boat (I also have sea sickness so that didn’t help haha), brain fog, paranoia, crippling anxiety, muscle spasms and pain.
Im lucky enough to have a psych ive been seeing for the last 5 years so had that support. I found out a lot of the non-visual symptoms were anxiety-related (brain fog, muscle spasms, paranoia, and some worsening of visuals). I actually still feel as sharp as ever, just distracted by my visuals a lot of the time. My anxiety hasn’t been as bad, I’ve dealt with anxiety and depression before so that part I can handle.
It’s the fucking DP/DR that gets me, have never experienced it before and its hell. It got so bad I thought I was in a virtual reality simulator and my memories were all fake. And the visuals are definitely the cause – how could I not feel like things are fake if everything looks fake? I’ve been very up and down in managing it since then but still functioning, seeing friends, doing uni work, trying to get out and do things, exercise, I already ate pretty healthy.
Symptoms now: everything permanently looks like a mild acid/mushroom trip, covered in very heavy static, nothing looks solid, colours very vibrant and stuff moves in my peripheral vision, and sort of wobbles in and out of shape when I look at it (with all the afterimages, light trails etc. but I was already sort of okay with that stuff and can deal with it), and DP/DR. I am feeling depressed but that I can deal with.
So my questions are: do your visuals (the static in particular) ever fade away or will I just have to get used to them?
Or as it’s been just over a month since it got really bad, is it worth having Klonopin, Sinemet or Keppra now or should I wait?
I was thinking sinemet could be worth a try, even though it hasn’t done much to a lot of people, it seems to have the least side effects and I want my DP/DR to go away.
Or should I just get some Klonopin for the days when it gets really bad?
Very luckily my dad’s a doctor and completely believes me and is willing to prescribe me anything I think will help. (I live in Australia and have heard it’s hard to get it recognised at all here)
Sorry for the long ramble and thank you so much to whoever replies <3
Hello guys , so i have been suffering for 2 months and half from hppd caussed by alcohol , i smoked weed 8 month ago had a bad trip and stopped using it i was not having hppd after the bad trip,so it’s maybe related to the cause of alcohol i have been sober until now,i don’t see any improvement, it’s getting worse at night especially. i want to hear your opinion about those 2 supplements CoQ10 and vitamin D , some pepole reportd good improvement with this 2 supplements as you can see here
1.what your thoughts about it
2.if you try it especially CoQ10 one
” I had after images, halos around objects, trailers, bolts of lightning, and of course, VS. I still had a headace after my initial onset and had to go to a doctor to get meds to relieve the headache. After I started taking 400 mgs of CoQ10 for some time, I suddenly noticed that the after images, halos around objects, trailers, bolts of lightning had ALL DISAPPEARED”
Im writing this after a week of research done about hppd on google. I couldn't find much about. But the reason i'm ending up here is because i need some advice.
So a bit more then a week ago i took ecstasy for the first time. I took 1/4 of a pill and 3 hours later i took 1/4 again. I didn't feel too much about the "high". It feelt good and dance all night. When i walked came out of the club (7am) my vision was bit blurry (probably because of being in a dark club all night). Then I went home and my parents were awake. Someone told me to look into light to hide dilated pupils so i did.
Now the next morning i was scared i damaged my brain so i went online and searched the internet. At somepoint i stumbled across hppd. I immediately got scared i had this so i checked if i had any of the symptoms.
Since i read about hppd i have the "visual snow" all the time, except for when I'm busy with other things. but for the last week I've been obsessing about the visual snow a lot.
I see a bit of a glare around lights but im not sure if i had that before.
Some lights have a starshape
I have after images only when i look to bright lights for a few seconds and the after images dont last long.
That's about all the symptoms i have. I don't seem to have walls morph into shapes or anything. I also don't have any of the depersonalition or derealization nor do i have depression.
Now my real question do I have hppd?
I have OCD so i had anxiety before i did the drug and because of OCD i tend to obsess about a lot of issues, health or other.
Also i want to mention that I have done cannabis and alcohol before and since i have my symptoms i tried it once and it didn't seem to worsen the symptoms during the "high" of cannabis or alcohol.
I might be overthinking this but some advice would be appreciated.
About two weeks ago i did pure mdma(i dont want any criticism i know its not smart to do it with hppd)
Anyways this leads me to my question, as of recently ive noticed my hppd getting worse, the day after i did the molly it got really bad, but then i took my dose of lamotrigine and by the next day my hppd had been back to baseline, that was over two weeks ago.
The last 3-4 days ive been having a few episodes of depersonalization.
I should mention that up until last night i had been doing nofap for the last 21 days, because i suffer from PIED and i want it to get better.
Last night i fapped three times and it ended up making me super paranoid and i couldnt fall asleep for hours.
Anyways, my question is, can hppd not worsen until weeks after you consumed the drug? Like i said ive been fine up until the last few days, i assume last night fapping 3 times isnt helping my anxiety today but who knows.
Sorry for going so off topic multiple times, but i think its best you know all the info thats been going on.