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    • By LethargicAcid
      hey I decided I finally would upload a video about hppd  gonna upload on youtube
       
      WIN_20171117_060240.MP4
    • By Bursting Aura
       I have only done about 10 hours of research on this, which is not much. Ideally I would like a couple more weeks to wrap my head around something before I recommend it and I need time to see the long-term effects for me also. But I have a strong inclination to quickly get this information to the group, so perhaps this will help someone else suffering. Maybe this works, maybe it doesn't. I cannot recommend this as a cure, but I can only say this has helped me. However, I am not sure if it placebo. Anyways, I did an 18 hour fast and it helped with my HPPD.

                   I will keep the anecdote short, because anecdotes never matter. What really matters is science and peer-review. I did this short-fast because I saw someone on here mention in a success story of curing HPPD on a 3 day fast. Someone commenting suggesting that it has to do with "neurogenesis". I did research on neurogenesis and it happens throughout our lives, such as during exercise or sex, so it doesn’t seem very significant. But, I stumbled upon a term called "autophagy"
      ah-ta-fa-gee. Researching this process gave me motivation to try a 18 hour fast. My HPPD since then has gotten better. On a scale of 1-10 my symptoms have been at a 5 since Saturday, when they usually average about 7 or 8. I am theorizing my symptoms decreased because fasting induces autophagy.

                  Here is Autophagy from an article . "Short-term fasting induces profound neuronal autophagy"
      https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3106288/ Autophagy is a key homeostatic mechanism whose physiological importance is reflected by its preservation throughout the eukaryotic phylogenetic tree, from yeast to mammals. In recent years, autophagy has been recognized as a crucial defense mechanism against malignancy, infection and neurodegenerative diseases

                          Here is another definition. "Autophagy: cellular and molecular mechanisms" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2990190/ Autophagy is a self-degradative process that is important for balancing sources of energy at critical times in development and in response to nutrient stress. Autophagy also plays a housekeeping role in removing misfolded or aggregated proteins, clearing damaged organelles, such as mitochondria, endoplasmic reticulum and peroxisomes, as well as eliminating intracellular pathogens. Thus, autophagy is generally thought of as a survival mechanism. Autophagy is strongly induced by starvation and is a key component of the adaptive response of cells and organisms to nutrient deprivation that promotes survival until nutrients become available again.

                     Stay with me here. But it pretty much takes out damaged cells from our brains and recycles them in the liver. This process is activated via fasting.
      "Neuronal autophagy: going the distance to the axon." https://www.ncbi.nlm.nih.gov/pubmed/18000396/ Furthermore, our study implicates dysfunction of axonal autophagy as a potential mechanism underlying axonopathy, which is linked to neurodegeneration associated with numerous human neurological disorders
      Let me know what you think, I am always prepared to be entirely wrong. There is no research on a link between autophagy and HPPD obviously. So I am assuming a causal relationship that bad neurons are the cause of HPPD.

                   Here are more articles. I am hoping someone can partner and help me with this.
      "Disruption of Neuronal Autophagy by Infected Microglia Results in Neurodegeneration" http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0002906
      "Constitutive autophagy: vital role in clearance of unfavorable proteins in neurons." https://www.ncbi.nlm.nih.gov/pubmed/17332773/
      I found 2 posts of anecdotal claims.
      2013 bluelight.com post about fasting curing hppd. http://www.bluelight.org/vb/archive/index.php/t-688613.html
      2017 Reddit.com hppd forum success story about fasting curing hppd https://www.reddit.com/r/HPPD/comments/6ybbcs/success_story/
                          You can do an easy 18-hour fast by not eating after dinner at 5pm, and then not eating until noon the next day. Make sure you are healthy and talk to your doctor. I would like a couple people to try this to see if this actually works. I am going to start another fast today and I will report back in a week or so. Hopefully it works.
                      Potential adverse effects for women. there are claims that fasting can cause missed periods.  Also, unfortunately it seems autophagy is less profound with females. https://www.ncbi.nlm.nih.gov/pubmed/19036730/ In other words, the damaged neurons have a harder time dying off. For men, fasting will temporary lower testosterone. Do your own research and talk to your doctor.
    • By gabriel
      I came to talk to you about my symptoms a little bit. I'm Brazilian, so if I say something wrong, I apologize, but I'm still not fluent in English.
      About 11 months ago I tried lsd with a friend, after an hour we used weed, and after that I had a very bad trip. Only today I was able to find this forum, because until then I did not even know what I really have. After using lsd, I have never used lsd or weed again. Since then, I have a lot of anxiety, sometimes I feel very depressed, and I really feel some visual effects, such as sensitivity to light, things seem to vibrate a little, and it seems that sometimes I see traces in moving things.
      What makes me bad is that I can never stop thinking about it all, I try to fight against my own mind not to think about it, but it's very difficult, when I realize it, I'm thinking about it. From what I understand I have hppd, but is it normal for me to think about it constantly? Sometimes I think I'm going to go crazy.
      This site was very inspiring to me, until then I was very afraid of what happened to me, and not knowing that there are so many other people with the same problem. So, THANK YOU for making me a little calmer. I will accompany you always now, hoping that I will improve. Thank you.
    • By tlehmbecker
      So, after a hospitalization for a suicide attempt I've been put on 10mg Abilify (aripiprazole) and have been taking it daily.
      Haven't noticed my symptoms getting worse. Perhaps slightly, but nothing unbearable at this point. 
      Additionally I have tried 1:1 THC:CBD weed with no worsening of symptoms. This suggests to me at least that the mechanism behind my HPPD is entirely different than the common hypotheses.
    • By HDDeer
      I don't really know where else to vent about this, in all honesty, it's really bothering me that this could go on for so long, anyways let me begin. 
      This is just a thought of mine I have, and I don't want anyone to judge me for it because I feel like it could make me kinda sound delusional. 
      Let me begin,
      It's been about a year now since I first touched mdma, I remember when I first got my hands on it, I did it on Christmas eve and Christmas, lied to my family about where I was, i was doing it hours before work, there was a point when I did it something like 5 nights in a row. I picked up cocaine a few times which made me extremely suicidal, there was actually one time I had myself convinced i was going to spend all my money in my bank account on blow in hopes it would kill me(I don't know if it actually would have, and I still don't know if it would, I was just really reckless), it was a relatively rough period for me.
      I never had hppd during that period of time though. 
      But mdma, I did stop doing it as I couldn't find pure stuff anymore. I ended up stumbling upon mushrooms and lsd, the first time I took acid, best experience I've ever had in my entire life. Mushroom trips while not good, always helped me with my other neurological disorder. 
      Then I got hppd after a bad acid trip, I'm here now 7 months later, I think things have gotten better in terms of visuals, for the most part my anxiety is usually non-existent. 
      But every time my hppd is beginning to show improvements, I find my drug addiction comes back harder and harder. I ask myself most times, is it even possible to truly have an addiction 9 months after the last time you even touched the drug? You wouldn't think so. Maybe it's just my mental state.
      I should correct myself, the last time I was doing hard drugs faithfully was 9 months ago, I did end up doing a Molly capsule back in June, that nobody even knows of, not my girlfriend not anyone in my family, only my nephew whose a few months younger than me. It definitely made my hppd worse, it has gotten better since, though my ghosting was virtually non existent before, and now while it's going away again, it's definitely a lot slower going away than it was before. 
      Now, my hppd is finally getting better again, my mental capacity is so lacking, that I can't seem to get it through to myself that drugs put me here, mdma made it worse, but I find myself being drawn back into it. I have so much trouble fighting my urges. 
      I know it's not a life to live, hppd or not hppd.
      My mom died back in 2010, and I'm relatively confident that I suffer from dp/dr because of it, my emotions are relatively numb, I feel like I don't care about my family like the normal person should. Drugs filled that void my mom left there when she died. It's been so long that I truly do not know wether or not if what i feel is normal, personally, something does feel off, and it did before hppd happened. 
      Sometimes I kinda wonder, if my mom or even the universe for that matter, sees that I have some kind of purpose for good, which is why I was thrown into this mess with hppd to stop an addiction from getting worse, to fulfill something meaningful.
      Granted, it's very important to me to help someone, or change at least one person's life for good while I'm here, so maybe I'm just really lost in my own mind and this is all some weird ploy I came up with to comfort myself with this mess I'm in. 
      I just really hope something in my life changes soon, because while my hppd may not be getting worse, something about my life is. 
      I have a new job as a security guard, I work shift work, 7 days on and 7 days off, 12 hour shifts. And while it does pay decent, I just don't truly think it's for me. I want to do something meaningful.
      Sorry for the rant guys, haven't posted on here in a while and my urges and just my life all around have been coming in full swing, needed people I could relate to, to see this. 
      Thank you. 
Patthebat88

HPPD from weed alone (Rare experience)

10 posts in this topic

I hope people take the time to read this and believe what I am saying because everyone I talk to about this problem does not believe me. I am writing this now because I have had suicidal thoughts recently and need to make a change in my life. My suicidal thoughts are pretty bad. I plan on seeing a therapist this week.

When I first started high school in 2008 (9 years ago) I smoked weed once. Just one time. My friends who smoked the same weed were stoners and they recovered the next day like 99% of people do. But I smoked a lot and I had HPPD for about 4 months. I had tingly feeling in my feet and panic attacks everyday. This is when I just started high school where I knew no one and I am a shy introvert. It was absolute hell. I felt alone and scared everyday. But I got through it!!!! And all the symptoms went away like I said in about 4 months. I felt 100% fine. So over a year later I am working out one day and I sit down and my HPPD symptoms came back. ALL of them !!!! But they quickly went away in a few hours. And since then every time I work out (lift weights especially) my HPPD symptoms come back.

 

Please believe me when I say this!!! My mom does not believe me and no one else does. What the fuck is wrong with me. I smoked weed once and now every time I work out I feel HPPD all over again. I have not heard anyone else have this experience before and I have obviously done a lot of research into this. 

 

Okay so I lived with the fact that I cant work out for years. I just quit working out-whatever I felt 100% fine just kinda pissed that I could not do it.  But this past December I was very upset over things in my life.(Could not get a good job, girl I like a lot has a boyfriend, feel like I have zero friends, lonely) I was so mad that I just started working out. I would wake up and work out and work out some more. I knew that HPPD could come back but I was so sad and wanted my depressed feelings to go away. So now My life is terrible. It is June now and I have not worked out like that for 6 months. But Since that time I have extremly bad visual symptoms of HPPD. They include:

-afterimages (These are the worst, get them after looking at something for a second.)

-trails, I can see trail when things are moving. For example, if I move my hand across my face. 

-anixiety, can feel my heart beating at times, feel like I have no personality, feel alone and depressed

-tingily feeling in my feet (This feeling gets worse if I work out at all) I love to run but I cant now, makes it worse

-floaters all the time, especially outside.

-vision makes a huge adjustment from going to light to dark places

I seriously can not even go on a 15 minute run right now? If I do , my feet become tingily. What the fuck is wrong with me? No one else with hppd from what I have read has this? I smoked weed once and now I can not work out for the rest of life? What the fuck? This has caused me to have a terrible relationship with GOD. Why would he put this on this earth for me to use? Why would he make me this way? I love working out and want to have a great body but I cant because I smoked weed one. I want a six pack. I am a motivated and focused person. How does this happen when I smoke weed once. I can understand if you take LSD a ton of times, maybe this would happen. 

One thing that i keep thinking about is the time before I smoked weed once (in 2008) I want to go back to that time and not smoke obviously. I think about that sometimes, makes me feel very regretful. How do i deserve this? I literally smoked weed one time and this is my life. These visual problems are ruining my life. I accepted a job that begins in January and I am considering turning it down now because the job will require me to work 60 hours a week staring at a computer. This a dream job at one of the best companies in the USA to work for. I worked my ass off in college (Magna Cum Laude, graduated in top 15% of my class, made dean or presidents list every semester) And now I get this dream offer and I am afraid to take it because of anxiety I have from HPPD? From smoking weed one fucking time? God What do you want from me? I feel so sad and upset all the time because I have this disorder. I feel so alone. I wish I had cancer instead of this, that would be a piece of cake to deal with compared to this. No one I know can fucking relate to how I feel. That is why I am thinking about suicide. 

I know that neither of my parents had this disorder or my sister. They have all done drugs and been fine. I must say though that depression runs in my family. My dad has tried to commit suicide multiple times and so have my cousin and uncle. I just found out this information recently. 

I have seen that fasting can have some affect on the disorder. I have been considering fasting for a couple weeks to see what it does but I have a full time job now, no way I can function without eating food for days on end. I dont know what to do?? Can someone please help me, Make me feel better? I DONT DESERVE THIS. I literally smoked weed one time. God I feel so alone. Will appreciate any feedback. I hope you guys can believe me.

 

Want to make this absolutely clear: I have not done any other drugs besides smoking weed once. I dont even drink alcohol now,  (not that it makes my hppd worse but it is just not my thing) I have not done acid or shrooms or anything like that. Nothing. 

 

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Forgot to mention this: I get very bad headaches where it feels like my brain is being pushed against my skull, it feel awful. Those have been getting better from now working out though. 

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You might not have HPPD as much as you do Visual Snow Syndrome, though they're basically the same with regards to suffering. HPPD implies you got your symptoms from a hallucinogenic drug. Marijuana is a psychoactive substance but not nearly as potent as LSD for example. There's a chance you had underlying symptoms and then the weed brought it out. Others have mentioned their symptoms worsen when they work out as well. 

We've all been there before man. Nobody deserves this, but you're much better off trying to move forward and do what you can to benefit your health rather than worrying about the past, which you cannot change. Eat healthy, do some light exercises if possible, see a therapist, go to support groups, etc. It sounds like you've had times in your life since smoking when you didn't have these symptoms so you should consider yourself lucky. 

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Yeah if you really what to World out get one of Thise shaking things that you cam stand on. Then you Will get mucels but you dont really Work out what where your symptoms in highschool

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I don't think the hppd is the main issue here. I think your anxiety and depression are.

Panic attacks and severe anxiety can mimic all the symptoms of HPPD, even in people who have never touched a drug in their life. Floaters, after images and all that other stuff are symptoms most people with derealization experience.

The tingling in the feet could be circulation issues. I'd go see your GP about that.

Edited by TheMythos
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Also forgot to mention that I have tinnitus that comes and goes. My symptoms in high school were what I am feeling now but it was a little worse then. Thank you for the input. If it is anxiety and depression, why do I think it is HPPD? I definitely have a depression problem but I think that something is wrong with my nervous system which is causing the tingly feeling. I am seeing a neurologists in about a week. I also forgot to say that I am quitting a personal bad habit right now which I think is giving me some anxiety. I was addicted to looking at porn for about a decade and now I don't at all which is making me feel not good. I think that is causing me to have anxiety as well. My brain is rewiring itself without porn. Another symptom I have is when I look at patterns on walls, I see lines that are not there. It is hard to explain, my brain creates lines in an odd way. Anyone else have that? I know they are not actually there. 

 

Thank you for the feedback. 

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I'm not saying that you don't have hppd, I'm saying that your anxiety (and obsessive rumination) are making everything worse. Also, yeah, you're having withdrawals from stopping porn. I get the same thing. 

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On 2017-6-5 at 2:58 PM, Patthebat88 said:

Also forgot to mention that I have tinnitus that comes and goes. My symptoms in high school were what I am feeling now but it was a little worse then. Thank you for the input. If it is anxiety and depression, why do I think it is HPPD? I definitely have a depression problem but I think that something is wrong with my nervous system which is causing the tingly feeling. I am seeing a neurologists in about a week. I also forgot to say that I am quitting a personal bad habit right now which I think is giving me some anxiety. I was addicted to looking at porn for about a decade and now I don't at all which is making me feel not good. I think that is causing me to have anxiety as well. My brain is rewiring itself without porn. Another symptom I have is when I look at patterns on walls, I see lines that are not there. It is hard to explain, my brain creates lines in an odd way. Anyone else have that? I know they are not actually there. 

 

Thank you for the feedback. 

Hey man i have the patterns on the walls too. Do they create any shapes or detail? You mentioned severe headaches/migranes?? That sounds like something that could be causing your visuals. Make sure you see a neurologist about that. I know people who see static who havent even taken drugs. Imo its common to see with certain illnesses. 

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I am actually seeing a neurologist next week. I will post here how it goes. And yes they just create lines-so disturbing 

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Hey Pat,

So, I'm new here and I just made my very first post.  I also had a similar experience on weed, and I'm in the same boat as you:  wondering if this is Hppd.

If you'd like to talk and bounce some stuff off of one another, let me know.  

Here's my post:
 

 

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