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    • By LethargicAcid
      hey I decided I finally would upload a video about hppd  gonna upload on youtube
       
      WIN_20171117_060240.MP4
    • By Bursting Aura
       I have only done about 10 hours of research on this, which is not much. Ideally I would like a couple more weeks to wrap my head around something before I recommend it and I need time to see the long-term effects for me also. But I have a strong inclination to quickly get this information to the group, so perhaps this will help someone else suffering. Maybe this works, maybe it doesn't. I cannot recommend this as a cure, but I can only say this has helped me. However, I am not sure if it placebo. Anyways, I did an 18 hour fast and it helped with my HPPD.

                   I will keep the anecdote short, because anecdotes never matter. What really matters is science and peer-review. I did this short-fast because I saw someone on here mention in a success story of curing HPPD on a 3 day fast. Someone commenting suggesting that it has to do with "neurogenesis". I did research on neurogenesis and it happens throughout our lives, such as during exercise or sex, so it doesn’t seem very significant. But, I stumbled upon a term called "autophagy"
      ah-ta-fa-gee. Researching this process gave me motivation to try a 18 hour fast. My HPPD since then has gotten better. On a scale of 1-10 my symptoms have been at a 5 since Saturday, when they usually average about 7 or 8. I am theorizing my symptoms decreased because fasting induces autophagy.

                  Here is Autophagy from an article . "Short-term fasting induces profound neuronal autophagy"
      https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3106288/ Autophagy is a key homeostatic mechanism whose physiological importance is reflected by its preservation throughout the eukaryotic phylogenetic tree, from yeast to mammals. In recent years, autophagy has been recognized as a crucial defense mechanism against malignancy, infection and neurodegenerative diseases

                          Here is another definition. "Autophagy: cellular and molecular mechanisms" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2990190/ Autophagy is a self-degradative process that is important for balancing sources of energy at critical times in development and in response to nutrient stress. Autophagy also plays a housekeeping role in removing misfolded or aggregated proteins, clearing damaged organelles, such as mitochondria, endoplasmic reticulum and peroxisomes, as well as eliminating intracellular pathogens. Thus, autophagy is generally thought of as a survival mechanism. Autophagy is strongly induced by starvation and is a key component of the adaptive response of cells and organisms to nutrient deprivation that promotes survival until nutrients become available again.

                     Stay with me here. But it pretty much takes out damaged cells from our brains and recycles them in the liver. This process is activated via fasting.
      "Neuronal autophagy: going the distance to the axon." https://www.ncbi.nlm.nih.gov/pubmed/18000396/ Furthermore, our study implicates dysfunction of axonal autophagy as a potential mechanism underlying axonopathy, which is linked to neurodegeneration associated with numerous human neurological disorders
      Let me know what you think, I am always prepared to be entirely wrong. There is no research on a link between autophagy and HPPD obviously. So I am assuming a causal relationship that bad neurons are the cause of HPPD.

                   Here are more articles. I am hoping someone can partner and help me with this.
      "Disruption of Neuronal Autophagy by Infected Microglia Results in Neurodegeneration" http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0002906
      "Constitutive autophagy: vital role in clearance of unfavorable proteins in neurons." https://www.ncbi.nlm.nih.gov/pubmed/17332773/
      I found 2 posts of anecdotal claims.
      2013 bluelight.com post about fasting curing hppd. http://www.bluelight.org/vb/archive/index.php/t-688613.html
      2017 Reddit.com hppd forum success story about fasting curing hppd https://www.reddit.com/r/HPPD/comments/6ybbcs/success_story/
                          You can do an easy 18-hour fast by not eating after dinner at 5pm, and then not eating until noon the next day. Make sure you are healthy and talk to your doctor. I would like a couple people to try this to see if this actually works. I am going to start another fast today and I will report back in a week or so. Hopefully it works.
                      Potential adverse effects for women. there are claims that fasting can cause missed periods.  Also, unfortunately it seems autophagy is less profound with females. https://www.ncbi.nlm.nih.gov/pubmed/19036730/ In other words, the damaged neurons have a harder time dying off. For men, fasting will temporary lower testosterone. Do your own research and talk to your doctor.
    • By gabriel
      I came to talk to you about my symptoms a little bit. I'm Brazilian, so if I say something wrong, I apologize, but I'm still not fluent in English.
      About 11 months ago I tried lsd with a friend, after an hour we used weed, and after that I had a very bad trip. Only today I was able to find this forum, because until then I did not even know what I really have. After using lsd, I have never used lsd or weed again. Since then, I have a lot of anxiety, sometimes I feel very depressed, and I really feel some visual effects, such as sensitivity to light, things seem to vibrate a little, and it seems that sometimes I see traces in moving things.
      What makes me bad is that I can never stop thinking about it all, I try to fight against my own mind not to think about it, but it's very difficult, when I realize it, I'm thinking about it. From what I understand I have hppd, but is it normal for me to think about it constantly? Sometimes I think I'm going to go crazy.
      This site was very inspiring to me, until then I was very afraid of what happened to me, and not knowing that there are so many other people with the same problem. So, THANK YOU for making me a little calmer. I will accompany you always now, hoping that I will improve. Thank you.
    • By HDDeer
      I don't really know where else to vent about this, in all honesty, it's really bothering me that this could go on for so long, anyways let me begin. 
      This is just a thought of mine I have, and I don't want anyone to judge me for it because I feel like it could make me kinda sound delusional. 
      Let me begin,
      It's been about a year now since I first touched mdma, I remember when I first got my hands on it, I did it on Christmas eve and Christmas, lied to my family about where I was, i was doing it hours before work, there was a point when I did it something like 5 nights in a row. I picked up cocaine a few times which made me extremely suicidal, there was actually one time I had myself convinced i was going to spend all my money in my bank account on blow in hopes it would kill me(I don't know if it actually would have, and I still don't know if it would, I was just really reckless), it was a relatively rough period for me.
      I never had hppd during that period of time though. 
      But mdma, I did stop doing it as I couldn't find pure stuff anymore. I ended up stumbling upon mushrooms and lsd, the first time I took acid, best experience I've ever had in my entire life. Mushroom trips while not good, always helped me with my other neurological disorder. 
      Then I got hppd after a bad acid trip, I'm here now 7 months later, I think things have gotten better in terms of visuals, for the most part my anxiety is usually non-existent. 
      But every time my hppd is beginning to show improvements, I find my drug addiction comes back harder and harder. I ask myself most times, is it even possible to truly have an addiction 9 months after the last time you even touched the drug? You wouldn't think so. Maybe it's just my mental state.
      I should correct myself, the last time I was doing hard drugs faithfully was 9 months ago, I did end up doing a Molly capsule back in June, that nobody even knows of, not my girlfriend not anyone in my family, only my nephew whose a few months younger than me. It definitely made my hppd worse, it has gotten better since, though my ghosting was virtually non existent before, and now while it's going away again, it's definitely a lot slower going away than it was before. 
      Now, my hppd is finally getting better again, my mental capacity is so lacking, that I can't seem to get it through to myself that drugs put me here, mdma made it worse, but I find myself being drawn back into it. I have so much trouble fighting my urges. 
      I know it's not a life to live, hppd or not hppd.
      My mom died back in 2010, and I'm relatively confident that I suffer from dp/dr because of it, my emotions are relatively numb, I feel like I don't care about my family like the normal person should. Drugs filled that void my mom left there when she died. It's been so long that I truly do not know wether or not if what i feel is normal, personally, something does feel off, and it did before hppd happened. 
      Sometimes I kinda wonder, if my mom or even the universe for that matter, sees that I have some kind of purpose for good, which is why I was thrown into this mess with hppd to stop an addiction from getting worse, to fulfill something meaningful.
      Granted, it's very important to me to help someone, or change at least one person's life for good while I'm here, so maybe I'm just really lost in my own mind and this is all some weird ploy I came up with to comfort myself with this mess I'm in. 
      I just really hope something in my life changes soon, because while my hppd may not be getting worse, something about my life is. 
      I have a new job as a security guard, I work shift work, 7 days on and 7 days off, 12 hour shifts. And while it does pay decent, I just don't truly think it's for me. I want to do something meaningful.
      Sorry for the rant guys, haven't posted on here in a while and my urges and just my life all around have been coming in full swing, needed people I could relate to, to see this. 
      Thank you. 
    • By cneves
      Hello everyone,

      First of all, I'm really sorry for everyone here that suffers from HPPD, derealization, depersonalization, anxiety, depression, panic attacks and other symptoms. 

      I'm a journalism student at Anglia Ruskin University, UK. As my final project, I'm making a documentary about HPPD as a way to raise awareness for this condition. 

      I know about HPPD because of my boyfriend, he's been having it for almost 2 years now and this is my way of trying to understand him better and my way of trying to help in any way I can. 

      For my documentary, I'd like to talk to other people with HPPD, because everyone experiences it differently. If any of you wouldn't mind sharing your story with me, you can contact me at this email - c.neves@outlook.pt
      Your help would be truly appreciated.
      Thank you so much in advance, 
      Carolina Neves
       
Shadowplay

Clearing up the misconception of SSRI:s

10 posts in this topic

 

Hi there,

I haven't been active here for almost 1,5 year. I had to focus on recovering and there's some negativity in this forum which wasn't good for my mental health. I was so glad that I got help from you guys and girls when I was in the darkest time of my life. I'm better now. Still got it (2,5 years in) but I don't really care about it anymore, even though it's quite loaded.

I haven't smoke weed for 3 years. No psychadelics. I've done coke and drinking alcohol without any problems what so ever.

Anyways, I've had sleep paralysis since I was 15 and roughly 3 months ago I was having them 5 days a week, several times every night. You can read more about this what is medically referred to as hypnagogic hallucinations. I don't think that there is a correlation between HPPD and the increased rate of sleep paralysis. Since I had it since I was a kid and I'm 25 now. These sleep paralysis session were unbarely to me so I did some research and found about a great study at NCBI which said a man was cured after trying SSRI (Prozac).

I was desperate to get rid of it as it was effecting my studies and work. So I went to the doc and as simple as snapping my fingers I got a receipt. It worked straight away. The first night actually. Which is interesting because usually you have to eat those pills for months to achieve an effect. I've never tried it before though. After a month or two with increased anxiety, that side-effect left and I feel just like before right now, except that the sleep paralysis is gone.

 

My main point with this thread is that I would like to cancel all rumours about how SSRI:s has a negativt effect on HPPD. It is simply not true and there's no studies that proves it either.

When you start taking SSRI:s your body must adapt to the medicin as it effects serotonin (which is a transmittor that affects a lot of processes, for example, your movement, thinking and your vision). This is why some report that SSRI:s would worsen the symptoms. It is simply not true. Due to this false information on the forum, I didn't use those pills when my HPPD was at its worse and I wanted to kill myself. I stayed sober for 4 months and got out. But it was a really hard time and I had so much support from family, friends and this forum. If that wouldn't been the case, SSRI:s would probably been a good idea for a person in that kind of state.

I eat 75mg a day, and I've seen no whatsoever side-effects on my vision. Not even when starting the meds. But if you do, it will pass within the first 2-3 months. And maybe afterwards you will be able to focus more on your life then your vision.

Another thing about depersonalization/derealisation is that I had it for roughly 6 months. I couldn't recognize my own face in the mirror. Neither my family or my body. It's gone now. It's not permanent, but a psychological side-effect to HPPD.

Edited by Shadowplay
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That really nice man !

 But wich symptom did u have ?
Like floater, blue field, after image ?

Does the SSRI deleted all of them ?

Thx

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22 hours ago, Slipkorneu said:

That really nice man !

 But wich symptom did u have ?
Like floater, blue field, after image ?

Does the SSRI deleted all of them ?

Thx

SSRI did have 0 impact on the visuals, but my sleep paralysis is gone. I had major HPPD with all symptoms.

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Tough to make blanket statements with this condition considering everyone's HPPD is different and reacts differently to a wide range of substances. Some people do well on SSRIs, while some do not. I don't know how many people have seen specific improvements to their symptoms while on SSRIs but there's definitely a catalogue on this site of those who've seen symptoms worsen. 

I tried SSRIs and though they made me feel artificially happy they did nothing for my symptoms and gave me additional side effects I might have for the rest of my life. That's not necessarily something I'm excited about, so I've switched to natural antidepressant herbs and vitamins and I feel pretty great all things considered. 

Edited by K.B.Fante
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6 hours ago, K.B.Fante said:

I tried SSRIs and though they made me feel artificially happy they did nothing for my symptoms and gave me additional side effects I might have for the rest of my life. That's not necessarily something I'm excited about, so I've switched to natural antidepressant herbs and vitamins and I feel pretty great all things considered. 

 

What side effects did you get from SSRIs?

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1 hour ago, fruitgun said:

 

What side effects did you get from SSRIs?

More eye problems, in addition to HPPD obviously. Only happened after a week on Lexapro and has stayed about the same ever since. 

Edited by K.B.Fante
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On 2017-03-16 at 4:05 AM, Slipkorneu said:

That really nice man !

 But wich symptom did u have ?
Like floater, blue field, after image ?

Does the SSRI deleted all of them ?

Thx

I have all different kind of symtoms. You can read about them in one of my first posts here:

Yes, everyone's different but our brains are quite similar in the structures itself, then there are different chemical balances and reactions. However, there is no correlation whatsoever with increased visual disturbances and the use of SSRI:s. SSRI:s have not changed my vision at all and would be an extremly rare side-effect, if even possible at all.

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There's enough evidence from the literature to suggest that SSRIs can induce the same visual disturbances in HPPD and Visual Snow, particularly upon discontinuation. Its been seen in Citalopram, Lexapro, Zoloft etc. Hallucinogens do modulate the same and similar types of receptors that were bound with and desentisized.

That being said we dont understand how the Visual cortex works, nor do we understand the long term implications of SSRI use. Our modalities that we have in imaging these areas in vivo at the resolution that we will need to elucidate a coherent understanding and intricacies of their long term effects is non existent and wont be for at least a couple of years. 

SSRIs like any medical treatment are not without risks (something that I wished I had the wherewithal to understand before going to hospital), and when you start talking about long term use, that is when things become rather nebulous. (Ie David Foster Wallace at the end of his life).

When you bombard your brain with exogenous chemicals, you're bound to create a form of dysfunction or another. I mean we're all living proof of that. And as medical practitioners love to say, its all about risk reward. Are you willing to create disruption snd alterations to your brain in order to palliatively treat the symptoms of some underlying disorder? Sometimes the answer is yes, but we must all be cognizant of the ramifications our decisions will have on our long term health. And we stand at a period of time when disruptive therapies are looking to replace the old regieme of complacency and when medical knowledge is doubling in 73 days. It may prove prudent to wait untik we have a better understanding, instead of throwing darts and hroping in the dark for that magic bullet that will bring sweet reprieve to our afflictions.

I hate to be that guy, and I do not wish to attack you, but isnt your argument similar to those guys on Shroomery and Reddit that state LSD is harmless cause theyve tripped plenty of times without any adverse effects and that HPPD is just anxiety or a psychotic disorder manifesting itself? If it works for you, fantastic, but that doesn't mean SSRIs are innocuous.

 

Edited by Azureazalea
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Hey long time lurker here. I know your posts from the time you were active. Just like you I have really bad floaters. I remember you were the person who was thinking about a FOV, floater vitrectomy. You didnt do it right? And you really dont care that much about your floaters now?

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Getting off of paxil gave me cobweb like black floaters. So, I disagree. I wish I had never taken it.

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