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    • By LethargicAcid
      hey I decided I finally would upload a video about hppd  gonna upload on youtube
       
      WIN_20171117_060240.MP4
    • By Bursting Aura
       I have only done about 10 hours of research on this, which is not much. Ideally I would like a couple more weeks to wrap my head around something before I recommend it and I need time to see the long-term effects for me also. But I have a strong inclination to quickly get this information to the group, so perhaps this will help someone else suffering. Maybe this works, maybe it doesn't. I cannot recommend this as a cure, but I can only say this has helped me. However, I am not sure if it placebo. Anyways, I did an 18 hour fast and it helped with my HPPD.

                   I will keep the anecdote short, because anecdotes never matter. What really matters is science and peer-review. I did this short-fast because I saw someone on here mention in a success story of curing HPPD on a 3 day fast. Someone commenting suggesting that it has to do with "neurogenesis". I did research on neurogenesis and it happens throughout our lives, such as during exercise or sex, so it doesn’t seem very significant. But, I stumbled upon a term called "autophagy"
      ah-ta-fa-gee. Researching this process gave me motivation to try a 18 hour fast. My HPPD since then has gotten better. On a scale of 1-10 my symptoms have been at a 5 since Saturday, when they usually average about 7 or 8. I am theorizing my symptoms decreased because fasting induces autophagy.

                  Here is Autophagy from an article . "Short-term fasting induces profound neuronal autophagy"
      https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3106288/ Autophagy is a key homeostatic mechanism whose physiological importance is reflected by its preservation throughout the eukaryotic phylogenetic tree, from yeast to mammals. In recent years, autophagy has been recognized as a crucial defense mechanism against malignancy, infection and neurodegenerative diseases

                          Here is another definition. "Autophagy: cellular and molecular mechanisms" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2990190/ Autophagy is a self-degradative process that is important for balancing sources of energy at critical times in development and in response to nutrient stress. Autophagy also plays a housekeeping role in removing misfolded or aggregated proteins, clearing damaged organelles, such as mitochondria, endoplasmic reticulum and peroxisomes, as well as eliminating intracellular pathogens. Thus, autophagy is generally thought of as a survival mechanism. Autophagy is strongly induced by starvation and is a key component of the adaptive response of cells and organisms to nutrient deprivation that promotes survival until nutrients become available again.

                     Stay with me here. But it pretty much takes out damaged cells from our brains and recycles them in the liver. This process is activated via fasting.
      "Neuronal autophagy: going the distance to the axon." https://www.ncbi.nlm.nih.gov/pubmed/18000396/ Furthermore, our study implicates dysfunction of axonal autophagy as a potential mechanism underlying axonopathy, which is linked to neurodegeneration associated with numerous human neurological disorders
      Let me know what you think, I am always prepared to be entirely wrong. There is no research on a link between autophagy and HPPD obviously. So I am assuming a causal relationship that bad neurons are the cause of HPPD.

                   Here are more articles. I am hoping someone can partner and help me with this.
      "Disruption of Neuronal Autophagy by Infected Microglia Results in Neurodegeneration" http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0002906
      "Constitutive autophagy: vital role in clearance of unfavorable proteins in neurons." https://www.ncbi.nlm.nih.gov/pubmed/17332773/
      I found 2 posts of anecdotal claims.
      2013 bluelight.com post about fasting curing hppd. http://www.bluelight.org/vb/archive/index.php/t-688613.html
      2017 Reddit.com hppd forum success story about fasting curing hppd https://www.reddit.com/r/HPPD/comments/6ybbcs/success_story/
                          You can do an easy 18-hour fast by not eating after dinner at 5pm, and then not eating until noon the next day. Make sure you are healthy and talk to your doctor. I would like a couple people to try this to see if this actually works. I am going to start another fast today and I will report back in a week or so. Hopefully it works.
                      Potential adverse effects for women. there are claims that fasting can cause missed periods.  Also, unfortunately it seems autophagy is less profound with females. https://www.ncbi.nlm.nih.gov/pubmed/19036730/ In other words, the damaged neurons have a harder time dying off. For men, fasting will temporary lower testosterone. Do your own research and talk to your doctor.
    • By gabriel
      I came to talk to you about my symptoms a little bit. I'm Brazilian, so if I say something wrong, I apologize, but I'm still not fluent in English.
      About 11 months ago I tried lsd with a friend, after an hour we used weed, and after that I had a very bad trip. Only today I was able to find this forum, because until then I did not even know what I really have. After using lsd, I have never used lsd or weed again. Since then, I have a lot of anxiety, sometimes I feel very depressed, and I really feel some visual effects, such as sensitivity to light, things seem to vibrate a little, and it seems that sometimes I see traces in moving things.
      What makes me bad is that I can never stop thinking about it all, I try to fight against my own mind not to think about it, but it's very difficult, when I realize it, I'm thinking about it. From what I understand I have hppd, but is it normal for me to think about it constantly? Sometimes I think I'm going to go crazy.
      This site was very inspiring to me, until then I was very afraid of what happened to me, and not knowing that there are so many other people with the same problem. So, THANK YOU for making me a little calmer. I will accompany you always now, hoping that I will improve. Thank you.
    • By HDDeer
      I don't really know where else to vent about this, in all honesty, it's really bothering me that this could go on for so long, anyways let me begin. 
      This is just a thought of mine I have, and I don't want anyone to judge me for it because I feel like it could make me kinda sound delusional. 
      Let me begin,
      It's been about a year now since I first touched mdma, I remember when I first got my hands on it, I did it on Christmas eve and Christmas, lied to my family about where I was, i was doing it hours before work, there was a point when I did it something like 5 nights in a row. I picked up cocaine a few times which made me extremely suicidal, there was actually one time I had myself convinced i was going to spend all my money in my bank account on blow in hopes it would kill me(I don't know if it actually would have, and I still don't know if it would, I was just really reckless), it was a relatively rough period for me.
      I never had hppd during that period of time though. 
      But mdma, I did stop doing it as I couldn't find pure stuff anymore. I ended up stumbling upon mushrooms and lsd, the first time I took acid, best experience I've ever had in my entire life. Mushroom trips while not good, always helped me with my other neurological disorder. 
      Then I got hppd after a bad acid trip, I'm here now 7 months later, I think things have gotten better in terms of visuals, for the most part my anxiety is usually non-existent. 
      But every time my hppd is beginning to show improvements, I find my drug addiction comes back harder and harder. I ask myself most times, is it even possible to truly have an addiction 9 months after the last time you even touched the drug? You wouldn't think so. Maybe it's just my mental state.
      I should correct myself, the last time I was doing hard drugs faithfully was 9 months ago, I did end up doing a Molly capsule back in June, that nobody even knows of, not my girlfriend not anyone in my family, only my nephew whose a few months younger than me. It definitely made my hppd worse, it has gotten better since, though my ghosting was virtually non existent before, and now while it's going away again, it's definitely a lot slower going away than it was before. 
      Now, my hppd is finally getting better again, my mental capacity is so lacking, that I can't seem to get it through to myself that drugs put me here, mdma made it worse, but I find myself being drawn back into it. I have so much trouble fighting my urges. 
      I know it's not a life to live, hppd or not hppd.
      My mom died back in 2010, and I'm relatively confident that I suffer from dp/dr because of it, my emotions are relatively numb, I feel like I don't care about my family like the normal person should. Drugs filled that void my mom left there when she died. It's been so long that I truly do not know wether or not if what i feel is normal, personally, something does feel off, and it did before hppd happened. 
      Sometimes I kinda wonder, if my mom or even the universe for that matter, sees that I have some kind of purpose for good, which is why I was thrown into this mess with hppd to stop an addiction from getting worse, to fulfill something meaningful.
      Granted, it's very important to me to help someone, or change at least one person's life for good while I'm here, so maybe I'm just really lost in my own mind and this is all some weird ploy I came up with to comfort myself with this mess I'm in. 
      I just really hope something in my life changes soon, because while my hppd may not be getting worse, something about my life is. 
      I have a new job as a security guard, I work shift work, 7 days on and 7 days off, 12 hour shifts. And while it does pay decent, I just don't truly think it's for me. I want to do something meaningful.
      Sorry for the rant guys, haven't posted on here in a while and my urges and just my life all around have been coming in full swing, needed people I could relate to, to see this. 
      Thank you. 
    • By cneves
      Hello everyone,

      First of all, I'm really sorry for everyone here that suffers from HPPD, derealization, depersonalization, anxiety, depression, panic attacks and other symptoms. 

      I'm a journalism student at Anglia Ruskin University, UK. As my final project, I'm making a documentary about HPPD as a way to raise awareness for this condition. 

      I know about HPPD because of my boyfriend, he's been having it for almost 2 years now and this is my way of trying to understand him better and my way of trying to help in any way I can. 

      For my documentary, I'd like to talk to other people with HPPD, because everyone experiences it differently. If any of you wouldn't mind sharing your story with me, you can contact me at this email - c.neves@outlook.pt
      Your help would be truly appreciated.
      Thank you so much in advance, 
      Carolina Neves
       
Tomw27

Need some light and comfort really

5 posts in this topic

I don't really know where to start and I'm not sure how long this is going to be so I apologise in advance lol.

So I'll start at the beginning, I'm 19 and I've tried LSD 5  times in the past year. I first tried it with some family members as I had red ALOT on lsd. I've always wanted to know what I was getting into before I tried a drug (I've only actually smoked weed and done lsd). The experience was amazing, noting crazy but just chilled. I did this 3 more times with mates instead and they were all great as well, no HPPD at this point, until early October last year. I took a 120ug with some friends, nothing crazy happened and was actually a bit of a let down, so I managed to cut another tab into 4 (me and 3 others taking it). Nothing, so we met a friend to smoke a spliff as I heard it can kickstart a trip. That's when things went really, really bad for me. I started tripping like crazy and got really scared really fast. I'd red on what to do when going into a bad trip but all my knowledge at that point in time went straight out the window. It wasn't the actual visuals that freaked me out, it was a seriously intense fear of everything. I was generally petrified and thought my body was shutting down and I was going to die. I didn't even want to go to sleep (this went on till 4am) , the visuals were VERY intense though, swirls and some serious colour over my vision, I could barely walk, this went on for 6 hours but felt like a week. Worst experience of my life. After the bad trip that's when I started to notice changes in my vision and perception. I get halos, trails in lights, light burns on my vision and my general perception feels slightly off most of the time. I feel it comes In waves, when I'm distracted or with people/friends I don't tend to get the discontinued feeling or perception changes, but when I'm working or chilling by myself, I'm more aware of it. I've red so much on how long hppd can last and have not plucked up the courage to share my story to the community for advice until now. I sometimes go into an anxious mood and it's a slight feeling of what I had on the bad trip. I'm guessing my anxiety is tied with it so it relates back to it whenever I'm feeling anxious? If someone could confirm that, that would be good. I've got friends who want to smoke weed in the summer with me and I said I'd wait at least 8-9 months before trying a joint again. Do you guys think it's a good idea or what I should do. Honestly any advice on anything I've said would really help, or any comment on it at all. If you've red this far I really appreciate you for checking my story out, look forward to seeing some replies :)

Edited by Tomw27
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Look I'm going to blunt but it's needed in this situation. This advice could save your life. QUIT DRUGS or sooner or later you will end up on this site for a very long time. I was in a situation were I felt off after MDMA, passed it off as something that would pass, I smoked weed and I ended up in very very dark place. It's been 6 months and there is finally light at the end of the tunnel for me. You may not be so lucky. If you really want drugs wait at least a year. But keep it minimal.

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I'd echo what Unlucky said. Don't do drugs, not in eight months, not ever. It's just not worth it. Think about it: You either get high for a few hours with friends or potentially spend a lifetime cognitively impaired, depressed, anxiety ridden, wishing you could just go back in time to that day you messed it all up forever. As many people on this forum will tell you, drugs have been the worst thing to ever happen to them. 

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Thanks for the advice guys, I've been on edge about and weighing in the risks. I'd do anything to be normal so thanks for the comments. It's nice to get some insight on the topic

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Yeah, these guys are right.  And, I know what it's like to hear you should quit drugs, when you're still used to doing drugs -- but, after you've been sober for a long while, you will not feel the same way about it...I promise you.  Life goes on, drugs are less appealing the longer you're clean.  You just went through a really traumatic experience too. If you take this seriously now, and while you're still young, you have the best chance for a full recovery.  Even weed, unfortunately, is going to provoke your symptoms.  It's a psychoactive substance.

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