Guest

Initial funding DONE! Phase 2: Indiegogo Campaign

6 posts in this topic

That's great... Really impressive. The conditions are very closely linked, so everyone on this forum should be excited about this one!

0

Share this post


Link to post
Share on other sites

Can we get some funding to do a documentary? Just for travel and basic board. Because I think that I have the time and resources and perhaps jay does too. Kind of off topic but just thinking.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now

  • Similar Content

    • By Centar
      Hey guys i think i found the triger for recovery
      sorry for bad engrish
      This is called subliminal audio i has been known to cure many physical and mental problems so i ascume that this would help.
      I know this sounds like placebo but it is not i know because you can hear those voices in the video
      here is the video and update if it helps
      instructions are in the desciption
       
    • By Andando
      I have had HPPD for 15 years, 
      I am much better now than when it started, I have tried so many natural and psychological techniques that I feel its the right time to test if certain Medical treatment could work.
      My main symptoms are now anxiety, depression, heavy brainfog, visual snow, problems reading - writing, focusing and depersonalisation sometimes.
      I have found a neurologist in the city of Barcelona where I live, and I will like to ask you guys for a favour before I meet him:
      is there is an order for which meds are to be tried first?
      which meds in your view have been the most successful in treating some symptoms?.is there a page with these things online?
      I tried a low dose of diazepam and the day after my symptoms where very high again so I stopped, same thing with an antidepressant.
      Having said all of this I will like to share some hopeful news too:  I have been fortunate to have had days with almost no symptoms, have traveled extensively, managed to finish my BA in fine arts, lived in various countries, got my drivers license, can now read (even though i get confused sometimes), I can hold conversations much better (less DP), at the beginning of this disorder my life was very very miserable now its a lot better.
      Thank you for reading.
       
    • By Range
      Hi everybody,
      I'm from Spain and im soffering this fucked shit HPPD since I was 15 yo. To the beginning i had several mild psychotic attacks. These were horrible, but suddenly they went.
      First symptoms were vs, halos, flashes, ed, low libido,depressión, anxiety, dp/Dr, panic attacks,... 
      Nowadays i have a  regular Life. I have a good job, i try don't to think about HPPD, i have girlfriend, but i feel that i have to give another Big step because we wanna hace childs and everyday since 10 years ago i take 1 pill of lorazepam and 1/2 of deprax, just to leave me sleep 6-7 hours at least. I want to leave them because i feel memory loss and other bother sympthoms. And because i want todo face It without drugs. 
      As well i would like to know if someone else has soffered ed even to with Viagra. I don't know if it's a secondary HPPD effect, but i would bet for It. What do you think?
      My BEST wishes for all. I'm sure we can get much better and cure this shit. 
      Sorry about my english.
    • By Deleted account
      >Visits the doctors about HPPD, doctor doesn't know anything about HPPD
      >Tells doctor about persisting drug-induced hallucinations and panic attacks, gets referred to a drug and alcohol service
      >Makes it clear that there is no history of addiction or continued use, gets referred to psychiatrists
      >Open to suggestion, trying not to be classed as a drug-seeker, I accept the anti-psychotic prescription Seroquel
      >Takes Seroquel, makes HPPD worse, notifies doctors of this 
      >Is offered SSRI anti-depressants for panic attacks, rejected them
      >Prescribed antipsychotic Olanzepine (Zyprexa), which doesn't do anything for HPPD, and Diazepam (Valium) for panic attacks, which also does nothing
      >Moved to a mental health facility so that doctors can sort medication out
      >Psychiatrists conclude that panic disorder can fix itself and that the HPPD visuals are psychotic hallucinations
      >Prescribes Aripiprazole (Abilify), and took away the Diazepam, which made HPPD worse, and induced anxiety and hypertension (high blood pressure)
      Psychiatrists insist that benzo's are unsafe and should only be used short term due to risk of addiction, despite no history of addiction and the thousands of milligrams worth of any benzodiazepine it would take to actually be fatal. 
      Big fuck you to every single doctor out there who hasn't done their research and has treated every HPPD patient like this. I have already explained to them that the most effective treatment for HPPD include anti-convulsants, but they do not listen. Instead they want to chuck as many anti-psychotics and anti-depressants at me as possible, hoping that I will come across one that will eventually kill me. These doctors are not here to help, they are here to kill and deny effective treatment. Even if addiction were a problem (which is not if you do not abuse medicaiton),  I'd rather be addicted to a drug than have HPPD for the rest of my life. Now I will proceed to seek medication illegally because this medical system has failed me. 
       
       
       
    • By Mike
      This is interesting....
       
      Was browsing some medical things today and came across this med that came out recently.  It made me think it may be beneficial to this underserved area due to its unique mechanism of action.  
      It's essentially an add on antipsychotic BUT it doesn't work like any other antipsychotic on the market.  It targets 5HT2A almost exclusively as an inverse agonist and to a much lower extent at 5HT2C.  You guys probably know that LSD, psychedelics, ect, target 5HT2A as an agonist, this is essentially a down regulator at that site in other words calming overexcitability.  That's kind of simplifying it but it look interesting and nothing else seems to help much other than time.  The side effect profile is suppose to be low because it does not effect dopamine receptors that cause Parkinsonism, Tardive dyskinesia.  Its used to treat hallucinations in Parkinson's because it doesn't mess with dopamine.  
      I know there's some people on this board that know about all the pharmacology and this looks like it's hitting where it needs to, and a new avenue, there is no other inverse agonist on the 5HTA2 receptor on the market, might be worth a shot, best of luck to all of you, give it a look.
      https://en.m.wikipedia.org/wiki/Pimavanserin
       
      https://en.m.wikipedia.org/wiki/Inverse_agonist
       
      https://en.m.wikipedia.org/wiki/5-HT2A_receptor
       
      http://www.parkinson.org/find-help/blogs/whats-hot/april-2016
      ^^^^^ bullet points sum up above link ^^^^^
       
      Best