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Missjess

Day 2 of antibiotics put my brain back to the start :(

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I feel like my progress was knocked back after taking anti biotics...my brain is now at the point of feeling like it can't handle any noise or stimulil I rlly feel like the electrical channels in my brain r fuked I think a seizure medication wud be ideal to use but still waiting :(

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Hell yea. Im still on antibiotics too. The noise sounds weird huh? Especially people talking, its like a big flasback.

Im not getting better from the antibitics either, maybe i hsve to take stronger pills.. my dpdr is flaring up alot also. Not to talk about the blurry vision. Damn. Hopefully i dont die on a disease where i need medication. Well, prednison helped people with visual snow.

Hang on jess. You are on a good way. I also did a new kind of therapy today where thoughts are going out of my head and i might go feel better.

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Yeah this fuking hppd shit is awfull !!! If an anti seizure med don't work I'm afraid I'm going to have to off myself coz this is just unacceptable

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What kind of diet is that? Diets don't make any difference with what's happening to my brain unfortunately.

I think my problem is the same as solveigs

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Well, that can be true, but I've found dietary approaches to be far superior to any supplement or med thus far, outside of LLLT. I'm not saying I know everything about the biological information underlying diet, but many individuals believe simply avoiding processed foods and what not will create a healthy diet.

 

I'd look into Dr. Peat - his whole entire dietary philosophy is about restoring brain function, or, in a healthy individual, enhancing brain evolution. Dr. Roger J. Williams is another. Oh, Dr. Peat also responds to practically every email sent to him personally, often within the same day of receiving it. I've had extensive conversations about my problems with him, and at first glance, his ideas seem too good to be true. Things such a eating raw carrot salads every day, breathing into a bag, supplementing with salt and baking soda, yet, these things have worked better for me than anything.. There were times that I didn't have etizolam or CES to control panic attacks and debilitating DP/DR - it was all Dr. Peat's ideas that helped at those times.

 

A ketogenic diet is typically one devoid of carbs, in which your body breaks down its own adipose tissue to create ketone bodies such as beta-hydroxybutyrate. The reason I asked you is because ketogenic diets are used for epilepsy, and are often far more efficacious than medication. Additionally, it has been known to help people with Schizophrenia and Alzheimers diseae; in fact, there are a lot of people who suffered from debilitating hallucinations, went on a ketogenic diet, then were free of any mental illness symptoms.  "She returned for a follow-up appointment 7 days after starting the low-carbohydrate diet. She was feeling well, and noted an increase in energy. She was seen again in clinic 19 days later. When asked how she was doing, she responded that she was no longer hearing voices or seeing skeletons. "

 

I personally don't think ketogenic diets are optimal long-term, but there are ways around this. Schizophrenics and psychotics routinely have diminished cerebral glucose metabolism, hence why ketogenic diets cure them of their ailments. Yet, simply fixing the foundation of the problem would work equally as well, if not better. This is where the likes of Dr. Peat comes in, with his seemingly ridiculous idea of consuming a diet with a large amount of fructose and sucrose in it. Interestingly, both of those sugars also serve as an alternative fuel to glucose, and are anti-convulsant (anti-epileptic). I posted about him recently in my Orthomolecular Approach to HPPD and Other Neuro-Psychiatric Illnesses thread. For instance, a lot of people end up being considered psychotic, when really they're hypothyroid. They then get institutionalized and pumped full of anti-psychotics, yet all along all they needed was some sugar and salt and maybe some thyroid meds. 

 

If one isn't eating correctly, NO amount of medications or supplements will work. One's body needs the proper lipids, carbs, proteins, nucleotides, etc. I'd bet my money that more psychiatric diseases have been cured through diet alone as opposed to any combination of medications. 

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I've worked with a naturopath before and the no wheat and no dairy diet rlly helped me a lot but of course it doesn't do shit for hppd..I will be starting it again when I get back home tho coz I get very grumpy and reactive when I eat dairy and wheat products.

It rlly helped with my moving around a lot in bed and sleep quality and my mind was not always spinning shit

I think medications will be way more appropriate to treat hppd tho for me personally...I was on that diet a few months after Iboga use for almost 2 months yes it helped but it didn't tackle the hppd or dissociation at all. It is an excellent coping strategy tho and a great idea to keep my mood in line and mind under control

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Is anyone discussing hormones anywhere.  Someone told me her symptoms went away every time she was pregnant but that the medical community has ignored this area of inquiry.

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I feel like my progress was knocked back after taking anti biotics...my brain is now at the point of feeling like it can't handle any noise or stimulil I rlly feel like the electrical channels in my brain r fuked I think a seizure medication wud be ideal to use but still waiting :(

 

 

Hell yea. Im still on antibiotics too. The noise sounds weird huh? Especially people talking, its like a big flasback.

Im not getting better from the antibitics either, maybe i hsve to take stronger pills.. my dpdr is flaring up alot also. Not to talk about the blurry vision. Damn. Hopefully i dont die on a disease where i need medication. Well, prednison helped people with visual snow.

Hang on jess. You are on a good way. I also did a new kind of therapy today where thoughts are going out of my head and i might go feel better.

 

Which antibiotics are you one specifically?

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Well, that can be true, but I've found dietary approaches to be far superior to any supplement or med thus far, outside of LLLT. I'm not saying I know everything about the biological information underlying diet, but many individuals believe simply avoiding processed foods and what not will create a healthy diet.

 

I'd look into Dr. Peat - his whole entire dietary philosophy is about restoring brain function, or, in a healthy individual, enhancing brain evolution. Dr. Roger J. Williams is another. Oh, Dr. Peat also responds to practically every email sent to him personally, often within the same day of receiving it. I've had extensive conversations about my problems with him, and at first glance, his ideas seem too good to be true. Things such a eating raw carrot salads every day, breathing into a bag, supplementing with salt and baking soda, yet, these things have worked better for me than anything.. There were times that I didn't have etizolam or CES to control panic attacks and debilitating DP/DR - it was all Dr. Peat's ideas that helped at those times.

 

A ketogenic diet is typically one devoid of carbs, in which your body breaks down its own adipose tissue to create ketone bodies such as beta-hydroxybutyrate. The reason I asked you is because ketogenic diets are used for epilepsy, and are often far more efficacious than medication. Additionally, it has been known to help people with Schizophrenia and Alzheimers diseae; in fact, there are a lot of people who suffered from debilitating hallucinations, went on a ketogenic diet, then were free of any mental illness symptoms.  "She returned for a follow-up appointment 7 days after starting the low-carbohydrate diet. She was feeling well, and noted an increase in energy. She was seen again in clinic 19 days later. When asked how she was doing, she responded that she was no longer hearing voices or seeing skeletons. "

 

I personally don't think ketogenic diets are optimal long-term, but there are ways around this. Schizophrenics and psychotics routinely have diminished cerebral glucose metabolism, hence why ketogenic diets cure them of their ailments. Yet, simply fixing the foundation of the problem would work equally as well, if not better. This is where the likes of Dr. Peat comes in, with his seemingly ridiculous idea of consuming a diet with a large amount of fructose and sucrose in it. Interestingly, both of those sugars also serve as an alternative fuel to glucose, and are anti-convulsant (anti-epileptic). I posted about him recently in my Orthomolecular Approach to HPPD and Other Neuro-Psychiatric Illnesses thread. For instance, a lot of people end up being considered psychotic, when really they're hypothyroid. They then get institutionalized and pumped full of anti-psychotics, yet all along all they needed was some sugar and salt and maybe some thyroid meds. 

 

If one isn't eating correctly, NO amount of medications or supplements will work. One's body needs the proper lipids, carbs, proteins, nucleotides, etc. I'd bet my money that more psychiatric diseases have been cured through diet alone as opposed to any combination of medications. 

 

This is really interesting - I can't comment in depth, not having looked at the research you're citing, but I can attest to this: maybe it was coincidence and maybe not, but my hppd burst onto the scene as i was in the middle of something like the third large bowl of cheerios i was having for snack.  I've always associated the two, the massive sugar/carb input, and the onset of hppd.

 

Seems you can't go wrong on a low-carb diet anyway, but the link between excessive intake of sugar/simple carbs and disrupted perceptions seems very plausible

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I clearly remember when my hppd went dormant I was barely eating and lost 59 lbs in like a year.. I was also walking/jogging three times a week.. Back in that era it literally felt like it was gone..

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im not on them anymore

 

im sure it doesnt matter what specific ones they were i wud react the same to all

 

There are many antibiotics and they do not act the same.

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On 4/15/2014 at 8:30 AM, Missjess said:

This was the one!

Generic Name Brand Name

ciprofloxacin

Just want to point out this drug belongs to a class called quinolones that have a link to nerve damage: https://www.webmd.com/brain/news/20130826/fda-strengthens-fluoroquinolone-warning

If you have HPPD you should not be taking these types of antibiotics. 

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I know this is a really old post, but if you googled cipro and “Floxed” you get some really interesting stuff about people taking cipro and suffering from a disorder that shares a lot of symptoms with hppd. I agree that if you have to take an antibiotic and have hppd, or even if you don’t have hppd, you should avoid cipro.

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