My doctor prescribed me lamictal yesterday and as pretty much all of you know, it's one of the more highly regarded medication out there for this condition.
My hppd is actually very bearable, the only time I struggle is when I'm alone in the house where the lsd trip happened, which leads me to a few questions.
If I decide to take it, and my hppd gets better/worse/stays the same, if I stop taking it will I return to baseline? Has anyone else taken this med?
By Deleted account
>Visits the doctors about HPPD, doctor doesn't know anything about HPPD
>Tells doctor about persisting drug-induced hallucinations and panic attacks, gets referred to a drug and alcohol service
>Makes it clear that there is no history of addiction or continued use, gets referred to psychiatrists
>Open to suggestion, trying not to be classed as a drug-seeker, I accept the anti-psychotic prescription Seroquel
>Takes Seroquel, makes HPPD worse, notifies doctors of this
>Is offered SSRI anti-depressants for panic attacks, rejected them
>Prescribed antipsychotic Olanzepine (Zyprexa), which doesn't do anything for HPPD, and Diazepam (Valium) for panic attacks, which also does nothing
>Moved to a mental health facility so that doctors can sort medication out
>Psychiatrists conclude that panic disorder can fix itself and that the HPPD visuals are psychotic hallucinations
>Prescribes Aripiprazole (Abilify), and took away the Diazepam, which made HPPD worse, and induced anxiety and hypertension (high blood pressure)
Psychiatrists insist that benzo's are unsafe and should only be used short term due to risk of addiction, despite no history of addiction and the thousands of milligrams worth of any benzodiazepine it would take to actually be fatal.
Big fuck you to every single doctor out there who hasn't done their research and has treated every HPPD patient like this. I have already explained to them that the most effective treatment for HPPD include anti-convulsants, but they do not listen. Instead they want to chuck as many anti-psychotics and anti-depressants at me as possible, hoping that I will come across one that will eventually kill me. These doctors are not here to help, they are here to kill and deny effective treatment. Even if addiction were a problem (which is not if you do not abuse medicaiton), I'd rather be addicted to a drug than have HPPD for the rest of my life. Now I will proceed to seek medication illegally because this medical system has failed me.
So a couple months ago I started having HPPD symptoms: visual snow, anxiety, tinnitus, problems with contrast, night vision, visual acuity (sharpness vs cloudy), depth perception kinda, halos, glare(light sensitivity). My symptoms were very distressing at first, but they aren't really that bad(especially compared to many people on here it seems). I've gotten used to a lot of them, and I don't really seem to have the brain fog and DP/DR a lot of people on here have, maybe on occasion but for the most part I'm free of them. Its only been 2.5 months so I'm hoping my sypmtoms will decrease/go away, though if they don't I can live with this. My main problem is I also have ADHD though, which complicates things, because taking my stimulant medication has made the snow and other visuals far worse, though it helps with adhd symptoms. I stopped taking my medication, and I was already having school problem, which really stresses me out. I heard from some people on keppra that it could improve my symptoms and maybe even make it so I could try my stim adhd meds again, though the data is rocky. I decided to try it out, and just started my Keppra regiment today with 500mg. I'm going to try this for around a month or so, hopefully the side effects aren't problematic &/or reduce or go away quickly if I have them. I'm optimistic that it will improve my symptoms, even if marginally. But the great thing is, even if it doesn't, I'm really taking it to see if it will allow me to take CNS stimulants without exacerbating my symptoms. For people on this site, as few as there were, that tried both Keppra and CNS stimulants, it seems to be a 100% success rate, so I'm hopeful. Also would be nice if I could drink on occasion without a 3-4 day HPPD exagerated hangover.
I've been on klonopin for 6 months now. It helps with frame rate problems in high doses (over 4mg/day) but i have never wanted to go so high. It also have helped me greatly with the visual snow and basicly reduced all my visual problems.
But in November i started to devolop tolerance so i have quit the klonopin after 6 months on 2mg/daily.
So now i'm on Lamictal 450mg/day that greatly reduces my visual snow,BFEP and negative afterimages. I will increase my dose soon and see if more positive things happends. But i still have much problems with frame rate problems, positive afterimages and tracers.
So now i'm thinking of adding medications to my Lamictal such as Sinemet and Tegretol. I've heard good things about Sinemet when it comes to positive afterimages, tracers and also that it makes the vision much smoother. I've heard some good things about Tegretol too.
Somebody that have tried this medications and had good results? I would verry much apreciate some help regarding this because it's a big problem for me.