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    • By HDDeer
      Hey guys,
      My doctor prescribed me lamictal yesterday and as pretty much all of you know, it's one of the more highly regarded medication out there for this condition.
      My hppd is actually very bearable, the only time I struggle is when I'm alone in the house where the lsd trip happened, which leads me to a few questions.
      If I decide to take it, and my hppd gets better/worse/stays the same, if I stop taking it will I return to baseline? Has anyone else taken this med? 
    • By Deleted account
      >Visits the doctors about HPPD, doctor doesn't know anything about HPPD
      >Tells doctor about persisting drug-induced hallucinations and panic attacks, gets referred to a drug and alcohol service
      >Makes it clear that there is no history of addiction or continued use, gets referred to psychiatrists
      >Open to suggestion, trying not to be classed as a drug-seeker, I accept the anti-psychotic prescription Seroquel
      >Takes Seroquel, makes HPPD worse, notifies doctors of this 
      >Is offered SSRI anti-depressants for panic attacks, rejected them
      >Prescribed antipsychotic Olanzepine (Zyprexa), which doesn't do anything for HPPD, and Diazepam (Valium) for panic attacks, which also does nothing
      >Moved to a mental health facility so that doctors can sort medication out
      >Psychiatrists conclude that panic disorder can fix itself and that the HPPD visuals are psychotic hallucinations
      >Prescribes Aripiprazole (Abilify), and took away the Diazepam, which made HPPD worse, and induced anxiety and hypertension (high blood pressure)
      Psychiatrists insist that benzo's are unsafe and should only be used short term due to risk of addiction, despite no history of addiction and the thousands of milligrams worth of any benzodiazepine it would take to actually be fatal. 
      Big fuck you to every single doctor out there who hasn't done their research and has treated every HPPD patient like this. I have already explained to them that the most effective treatment for HPPD include anti-convulsants, but they do not listen. Instead they want to chuck as many anti-psychotics and anti-depressants at me as possible, hoping that I will come across one that will eventually kill me. These doctors are not here to help, they are here to kill and deny effective treatment. Even if addiction were a problem (which is not if you do not abuse medicaiton),  I'd rather be addicted to a drug than have HPPD for the rest of my life. Now I will proceed to seek medication illegally because this medical system has failed me. 
       
       
       
    • By Soup21
      So a couple months ago I started having HPPD symptoms: visual snow, anxiety, tinnitus, problems with contrast, night vision, visual acuity (sharpness vs cloudy), depth perception kinda, halos, glare(light sensitivity). My symptoms were very distressing at first, but they aren't really that bad(especially compared to many people on here it seems). I've gotten used to a lot of them, and I don't really seem to have the brain fog and DP/DR a lot of people on here have, maybe on occasion but for the most part I'm free of them. Its only been 2.5 months so I'm hoping my sypmtoms will decrease/go away, though if they don't I can live with this. My main problem is I also have ADHD though, which complicates things, because taking my stimulant medication has made the snow and other visuals far worse, though it helps with adhd symptoms. I stopped taking my medication, and I was already having school problem, which really stresses me out. I heard from some people on keppra that it could improve my symptoms and maybe even make it so I could try my stim adhd meds again, though the data is rocky. I decided to try it out, and just started my Keppra regiment today with 500mg. I'm going to try this for around a month or so, hopefully the side effects aren't problematic &/or reduce or go away quickly if I have them. I'm optimistic that it will improve my symptoms, even if marginally. But the great thing is, even if it doesn't, I'm really taking it to see if it will allow me to take CNS stimulants without exacerbating my symptoms. For people on this site, as few as there were, that tried both Keppra and CNS stimulants, it seems to be a 100% success rate, so I'm hopeful. Also would be nice if I could drink on occasion without a 3-4 day HPPD exagerated hangover. 
       
    • By Gustav
      Hello!
      I've been on klonopin for 6 months now. It helps with frame rate problems in high doses (over 4mg/day) but i have never wanted to go so high. It also have helped me greatly with the visual snow and basicly reduced all my visual problems. 
      But in November i started to devolop tolerance so i have quit the klonopin after 6 months on 2mg/daily. 
      So now i'm on Lamictal 450mg/day that greatly reduces my visual snow,BFEP and negative afterimages. I will increase my dose soon and see if more positive things happends. But i still have much problems with frame rate problems, positive afterimages and tracers. 
      So now i'm thinking of adding medications to my Lamictal such as Sinemet and Tegretol. I've heard good things about Sinemet when it comes to positive afterimages, tracers and also that it makes the vision much smoother. I've heard some good things about Tegretol too. 
      Somebody that have tried this medications and had good results? I would verry much apreciate some help regarding this because it's a big problem for me.
      Thanks
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Puppeteer

Why does levetiracetam/Keppra seem to be regarded as superior to lamotrigine/Lamictal in HPPD treatment?

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So given that agomelatine doesn't seem to have done much of anything it's very likely I'll be prescribed Lamictal next Tuesday. When I mentioned levetiracetam the psychiatrist I'm seeing either didn't have much to say about it or didn't want to go there for some reason, but he praised Lamictal and said it'd be the next move in my treatment.

 

Thing is, I know Keppra tends to be the most well-regarded anticonvulsant by members here and seems to have the most success stories, but I'm not sure if that's just because more people have tried it. I'm not well-versed in the pharmacological actions of either and how they differ but a lot of studies/reports seem to regard them as relatively comparable as far as treatment of epilepsy goes. I know there's the study, but is there any reason Keppra was chosen for the study over Lamictal, and were the same study to be done with Lamictal is there much reason to believe the results would be less positive?

 

I really just want to know if there's any concrete reason that I might want to really push for Keppra over Lamictal; I don't especially want to get into an argument about this stuff with a professor of psychiatry unless I'm confident there's a solid basis for doing so :P

 

Oh, and while I'm at it I'd like to ask: if one's HPPD fails to respond to treatment with one anticonvulsant, is that reason to believe it won't respond to another and that avenue of treatment should be abandoned?

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The Keppra study is still up for debate. Kinda funny that no one has called the institution that conducted the research and asked about what they meant about "flashback frequency".

The thing is that Keppra is not as mood stabilizing as Lamictal. I know that Keppra often is prescribed in seizure treatment and dementia while Lamictal is used in both but also in bipolar disease. My psych never heard of Keppra, but the med docs had

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Funny you posted this, my neuro just put me on 2000mg from 1500mg/Keppra. Afraid its too much but gonna go with it. Dont wanna be a zombie

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The Keppra study is indeed a bit dodgy - but it is also useful if you want to get it prescribed.

 

Lamotrigine is an interesting med and I'd like to possibly give it a go - although the side effects are a little off-putting. Although apparently they are more common in women.  ;)

 

A few on the visual snow Facebook group have tried it with some success. Unfortunately it's similar to Keppra in that it can take a long time to work, with some people saying it takes many months. So you'd probably need 6 - 12 months to know for sure if it helps. I suspect most people who try it only do so for a very short period of time, and so we probably do not truly know how good it is at treating visual snow syndrome and/or HPPD.

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Are you aware it's often prescribed in cases of "pure" DP/DR with what seems to be a pretty decent success rate? It's discussed far more often on the dpselfhelp forum as well as in scientific literature: see here http://apt.rcpsych.org/content/11/2/92.full

 

I'm really not aware how the neurobiology of HPPD-related DP/DR compares to that of other cases but I can't help but have a lot of hope. Ought to check out if many people on here have tried/had success with naltrexone or naloxone as those are praised quite a bit as well.

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Are you aware it's often prescribed in cases of "pure" DP/DR with what seems to be a pretty decent success rate? It's discussed far more often on the dpselfhelp forum as well as in scientific literature: see here http://apt.rcpsych.org/content/11/2/92.full

I'm really not aware how the neurobiology of HPPD-related DP/DR compares to that of other cases but I can't help but have a lot of hope. Ought to check out if many people on here have tried/had success with naltrexone or naloxone as those are praised quite a bit as well.

Well, i believe there is a difference in "pure" DP/DR and the HPPD one. Keppra did a lot to clear up visuals and by that diminishing DP/DR. Meaning that its better to treat the cause of the symptom rather then the symptom.

Anyway, i started lamotrigin at a low dose and switched to Keppra. I also tried valproate at a Liw dose. All these three had a similar effect on my HPPD. I do not think there is a major difference, but Keppra only blocks the calcium channels while the others are messing with other things.

Thats why Keppra is used as "strictly neurological" and not psychological, like bipolar. By that, its not a bad thing to go on lamotrigine but i do wanna keep my affections intact and Keppra is doing its job, killing the cause of the issue.

If shit hits the fan in the world economy i might think twice and try a switch. Keppra is ridicoulus expensive and without the social system paying the cost, i wouldnt afford it.

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I have been on lamotrigine for 6 months, high dosages had no affect on me.

I would like to try Keppra but it is too expensive. 

Maybe some of you have a source where can I buy it cheaper.

Eventually since I have anomalies in EEG I could convince a psychiatrist to prescribe me Keppra. I mean that I could trick a doc that I am an epileptic and get keppra refunded.

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my closed eye vision is reduced with 50% on lamotrigine 100mg, I can go to 300mg.

Also reducing my klonopin from 4mg to 0.75 for sleep.

also building of lexapro now, this is a bitch! 

Hopefully i will feel again.

Dont lose hope! 

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Lamictal did nothing for me on 600mg/day.  I developed static while I was taking it.

 

Keppte for me, as many others was intolorable so could not stay on it to determine its efficacy.

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I was hoping to add something useful to this conversation, as I did have some valid arguments at the time I had to choose between the two. Can't remember them though. Think it had to do with safety and side-effects, with Keppra being the superior IMO. Bummer I can't remember. In any case, I saw you got it prescribed, so let's hope it works for you!

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Neither keppra nor lamictal helped me. Keppra made me feel high when I first started taking it which I enjoyed strangly because it reduced my anxiety.

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For what it's worth, after increasing my lamictal dosage from 150, which I had been take for months, to 200mg I saw a drastic change in my symptoms. Ghosting now surprises me when it happens because it has pretty well disappeared. No more distortion on walls. Visual snow at night has reduced to the point that it no longer "blinds" me but it is still some what there. Most importantly the brain fog, depression and anxiety have diminished greatly. From 25-150mg I hadn't noticed much more then slight reductions in my visuals. Everyone is different, obviously, but I don't what people to completely dismiss these drugs.

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