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All these "success stories" are just acceptance. . . just stop. Has ANYONE ACTUALLY RECOVERED NOT ACCEPTED THEIR SYMPTOMS??!!?!?!? I can't live under a static sky for the rest of my fucking life. Honestly we should have another thread for ACCEPTANCE STORIES. RECOVERY IS DIFFERENT. ISN'T NEUROPLACICITY A THING?????

Edited by LumiLVI
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9 hours ago, LumiLVI said:

All these "success stories" are just acceptance. . . just stop. Has ANYONE ACTUALLY RECOVERED NOT ACCEPTED THEIR SYMPTOMS??!!?!?!? I can't live under a static sky for the rest of my fucking life. Honestly we should have another thread for ACCEPTANCE STORIES. RECOVERY IS DIFFERENT. ISN'T NEUROPLACICITY A THING?????

I agree with this statement 100%. Also have you read my thread on here?

Neuroplascicity is a thing but if the issue is neuronal loss it wont do much, if its not neuronal loss, then neuroplacicity wont do anything lol.

If you dont want to live like this for the rest of your life you can always help with research.

Edited by dasitmane
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On 10/26/2019 at 3:06 AM, dasitmane said:

I agree with this statement 100%. Also have you read my thread on here?

Neuroplascicity is a thing but if the issue is neuronal loss it wont do much, if its not neuronal loss, then neuroplacicity wont do anything lol.

If you dont want to live like this for the rest of your life you can always help with research.

How does that work? So if it Isn't neuronal loss that means its a chemical imbalance. Also neuronal lose would shown on mri. The brain can correct for chemical imbalances, no? 

Edited by LumiLVI

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43 minutes ago, LumiLVI said:

How does that work? So if it Isn't neuronal loss that means its a chemical imbalance. Also neuronal lose would shown on mri. The brain can correct for chemical imbalances, no? 

Its highly unlikely that its chemical imbalance. I think people tend to jump to it because chemicals in the brain are the most talked about thing, and its an idea that offers hope. There are a lot of possibilities that it could be... I line a lot of them out in my thread on the front of the forum. "Idea for a possible cure...etc", you can read about all the possibilities there, they're the areas that require research. If its not neuronal loss its probably highly correctable. It could be neuronal loss though... HPPD sufferers may have some metabolic disorder or something that does present naturally and maybe cant break down the metabolites of the hallucinogens or something to that matter, which would explain why some get it and most dont. There are a lot of possibilities though, just check out my thread. I think a lot of people do recover to some degree though, I did, but it was still extremely difficult of the first year or two.

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7 hours ago, dasitmane said:

HPPD sufferers may have some metabolic disorder or something that does present naturally and maybe cant break down the metabolites of the hallucinogens or something to that matter, which would explain why some get it and most dont. 

Maybe, but still, some of us have gotten hppd after TENS of uses of hallucinogens. Why would, all of a sudden, our bodies can't break down the metabolites like they had before? Its just all murky. 

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21 hours ago, LumiLVI said:

Maybe, but still, some of us have gotten hppd after TENS of uses of hallucinogens. Why would, all of a sudden, our bodies can't break down the metabolites like they had before? Its just all murky. 

I got my HPPD 1 month after  my first acid trip. I stayed completely sober during that month. 

How is that even possibld?

 

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12 hours ago, Recovery said:

I got my HPPD 1 month after  my first acid trip. I stayed completely sober during that month. 

How is that even possibld?

 

I got HPPD about half a year after my first LSD trip as far as I remember. I smoked week in the meanwhile although.

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7 hours ago, hppdvictim92 said:

I got HPPD about half a year after my first LSD trip as far as I remember. I smoked week in the meanwhile although.

You've had it a while judging by your post history. Any changes? Improvement? 

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19 hours ago, Recovery said:

I got my HPPD 1 month after  my first acid trip. I stayed completely sober during that month. 

How is that even possibld?

 

Same with you, any improvement? 

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On 10/29/2012 at 10:48 PM, Red said:

Here is my success story. I really hope this helps people because when I first got HPPD almost 4 years ago at age 23 I was a total train wreck and thought I would never get my life back. I am certain that this forum played a huge role in saving my life because for a long time I was seriously worried that I would have no other way out than to take my own life. This was definitely my darkest time and it makes me a little sick to think about it but I feel like I owe it to all the kids out there who are suffering.

I'll get to the point. I took mushrooms for the first time ever and I flipped out. There seems to be a pretty standard story to this...total fear, a feeling that the trip will never end, it was a feeling I had never felt before. In my mind, I went to hell if it does exist. I woke up the next day feeling wierd, just off, sort of empty. I didnt think it anything serious until a week later, on new years day, I woke up after a night of partying in Las Vegas, and I knew something was wrong, I was sick, I was throwing up, and I was terrified, my vision was changing before my very eyes, everything was moving, and I knew something was wrong, the first thing I thought when I got up...the mushrooms were coming back to get me. I tried to tell myself it would be ok, that I was just sick from drinking, but it didn't stop. I didn't eat for almost a week, and I went to the hospital to get an I.V. to rehydrate me. In the ER, there was a true psychotic woman having an episode, It terrified me, because I felt I could somehow relate to her. I thought I had really lost it and I would never be the same. I'd heard of people "freaking out" and stories from the 60s, musicians like Brian Wilson going nuts on acid ect. and I starting thinking I was one of them now. I went home and felt so empty, but I couldn't even cry. My parents came back from a trip they were on, and it was like I didn't even know them, I was in my own little world. Things that were familiar were foreign to me, nothing was the same.

As I worried more, things got worse, I started having panic attacks daily, I couldn't sleep, and my visual symptoms got worse. I had horrible headaches, nausea, paranoia, depression, visuals, the whole nine yards. At this point I think i was pre depersonalized, the panic was very strong, and it drove me deeper into a state of numbness. I was having terrible nightmares when I did sleep, finally, I think my mental anguish drove me into a state of numbness, where I couldn't feel anything around me, just like a zombie. I would say this was about 4-6 months into it. I started seeing therapists, and it helped a bit to have someone I could talk to because I didnt have anyone. None of my friends got it, and I was scared to tell my parents. At that point I wasn't even sure if they were real.

I started reading on the forums, and this was a real game changer. I started to learn about some of the things that were happening, like the depersonalization/derealization, anxiety, ect. But more than that, I learned that there were people just like me, that I could talk to and would understand me, and even better that some people had survived it. This gave me what I needed, a little hope. Something to AIM for, a light at the end of the tunnel. Of course I was unsure and skeptical that I would get better, but at this point, in what seems like a rather odd reasoning, I decided that I couldn't be any worse off, and that the only choice I had was to get better, I really had nothing to lose.

I knew it wouldn't happen soon but I thought, hell, I've survived this long (it was probably a year in) I can keep going, so I kinda just put my life on autopilot. I bought myself some time, I said, hey I'm just gonna deal with this day to day, not try to push myself too hard, and maybe in a few years I'll at least be able to function. That was a big deal, I accepted my situation, that it was gonna suck now, and that it would be a long time before I got better.

During this time I had a lot of bad days, I also had some good ones. But every time that I had a good day, I kinda put that in my mental bank. Like saving pennies at a time. They add up. I made habit of doing things that would promote overall well being. That meant regular exercise programs, eating better, meditation, and yoga.

I began to make steady improvements, I started having more good days, and things looked better for me. Someone once described HPPD as sort of like throwing a stone into the water, a huge splash, then lots of waves, ups and downs, and the slowly get less and less intense and I would totally agree. There was a long period of about 1 1/2- 3 years into HPPD that I began to get frustrated because I would feel great and think I finally beat it, then relapse again, I just wanted to be better, but again, time heals.

This coming New Years day will be my 4 year anniversary of the day HPPD and I can say that this is behind me. In fact, I look back on it and I almost don't believe myself. It's almost like it was just a terrible nightmare. Which is how I had hoped I would look back on it some day. I want to put it behind me and never look back. But at the same time I want to help the kids that are on here because I know how terrible they feel and they need help just like I did. I owe it to someone because I survived and I want people to know that you can beat it but it takes work and commitment. I still feel a little lost, like I'm not sure who I am as a person, but I at least feel like I know where I am (haha). I just spent 4 years in a nightmare and now I'm awake.

So I will try to offer some advice. The forums are great for helping you out, but don't spend too much time here. Don't spend hours on hours reading about peoples problems, about mental disorders. Education is good but at some point it will only make you more obsessive. Also, there is a lot of negativity here that will bring you down, because people that are on here are mostly here because they are having problems, not because they are doing great. For every 1 success story you will read about 20 horror stories. It's like watching the news, they only report on the bad stuff, you will never turn it on and have the reporter say "hey, everything is great."

Again, do stuff that promotes good health, a healthy body is a healthy mind. Get outside and enjoy nature. I found it easier to connect with natural objects. Try to feel the sun, or the breeze on your face, little things like that. They can help you feel alive.

Stop doing drugs, alcohol, tobacco, or limit your intake if you can. Smoking weed really made things worse for me.

Talk to someone that can offer something positive and will understand your situation. If anyone ever wants to talk, on the phone, email, whatever, hit me up.

Believe you can get better.

My son is 6 months in to what we believe is HPPD. He was hospitalized for 10 Days.  The doctors  wanted to label him with bipolar or schizophrenia but there is no family history so they basically said it must have been due to lack of sleep and the drugs.

He seemed to come out of it after his hospitalization but after he went back to college he felt too much pressure and came home. From there he went into a pretty bad depression and the symptoms reappeared. We are currently working with a group called amazing grace that does neural feedback and are praying for stabilization.

 

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hi  guys just a screen of a french forum about HPPD

It's a poll about the HPPD and if the peoples who have are recovery and in what time i do a translate. 

25 peoples who have HPPD answer to the the poll :

For 6 they fully recover in few days

Fors 2 they fully recover in few weeks

For 4 they fully recover in few months

For 2 they fully  recover in few years

For 7 they never recover 

For 4 they  partially recover 

And 1 have dont answer 

Just for show it's possible to fully recover. Good luck for everyone who have this.

(sorry if my english is not perfect i'm french)

 

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On 11/1/2019 at 5:17 AM, LumiLVI said:

You've had it a while judging by your post history. Any changes? Improvement? 

Depends on time and day I would say 60-90% improvement. Mostly 80%. Way better than in the past.

Maybe the first two years were the worst. Then it became gradually better. It's not just coping with that stuff, it really became better.

I still have visual snow and sometimes mild negative afterimages and sometimes flashbacks from the LSD trip. But it's really better. Also no anxiety/panic regarding HPPD anymore. Symptoms temporarily get worse when I have no sleep for 24+ hours though.

Most of the time I don't think about HPPD anymore. Just sometimes, then I re-visit this forum.

Edited by hppdvictim92

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