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June 11, 2019 SUBJ: Faces of HPPD Survey/Research Published – RESULTS! Dear HPPD Online Community: As a mom with a grown son with HPPD, I was so fortunate to come across this forum several years ago for information and support. David Kozin, who runs this board, is an amazing man to have created and maintained this website and kept up his work/studies over the years – all the while suffering with HPPD. I would like to thank him for this platform, and well as thank those of you who participated in the survey that I launched four years ago to collect data about individuals who h
I am here for several reasons. Foremost, my 23 year old son has HPPD and I am personally touched by this. His struggles parallel what others feel and experience as written here. Living with HPPD is a private hell – seems. It is met with misunderstanding and judgment from an insensitive society and an uninformed professional medical community, generally speaking, with exception of very few doctors who are HPPD champions. It seems most members here are unofficially diagnosed… seeking information what to expect, where to go, how to feel better, lead life unencumbered. What a Godsen
----- This post is especially important for the Dutch guys out here on the forum ----- Recently I received a mail from Brijder Jeugd (rehab center) where they tell about a new upcoming research by a neurological department from a medical center about visual snow sufferers, and they're looking for people that want to participe in the research. This could be another opportunity to shred some light on the visual snow and HPPD. The research is targeted for Dutch people but I wouldn't hesitate contacting them in English if you're interested in the research. You can reach them by sending an e-m