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Found 11 results

  1. This is day 2 250 mg 2x a day I also take Effexor symtoms: visual snow frontal head pressure trails brain fog fatigue DR/DP patterns moving walls breathing feel kinda crappy all the time I have not had anxiety attacks or general anxiety for years I've had HPPD for 25 years Day 2- only thing that might be from the med is I feel more impulsive, almost a little agitated.
  2. So given that agomelatine doesn't seem to have done much of anything it's very likely I'll be prescribed Lamictal next Tuesday. When I mentioned levetiracetam the psychiatrist I'm seeing either didn't have much to say about it or didn't want to go there for some reason, but he praised Lamictal and said it'd be the next move in my treatment. Thing is, I know Keppra tends to be the most well-regarded anticonvulsant by members here and seems to have the most success stories, but I'm not sure if that's just because more people have tried it. I'm not well-versed in the pharmacological actions of either and how they differ but a lot of studies/reports seem to regard them as relatively comparable as far as treatment of epilepsy goes. I know there's the study, but is there any reason Keppra was chosen for the study over Lamictal, and were the same study to be done with Lamictal is there much reason to believe the results would be less positive? I really just want to know if there's any concrete reason that I might want to really push for Keppra over Lamictal; I don't especially want to get into an argument about this stuff with a professor of psychiatry unless I'm confident there's a solid basis for doing so Oh, and while I'm at it I'd like to ask: if one's HPPD fails to respond to treatment with one anticonvulsant, is that reason to believe it won't respond to another and that avenue of treatment should be abandoned?
  3. Shadowplay

    My Keppra Trial

    Happy new year! Mine's probably gonna suck but things are getting a bit better. I've been on Keppra for roughly 5 weeks now, started at 250 mg a day, and I'm now at 2x 500 mg day and night. I can't describe this in the percentages as this disorder comes in waves for me. For example on some days I still question who I am, where on some days I almost feel completely like myself. Visuals seems to be quite stable though. Improvements: - DP/DR reduced - Brain fog reduced (cognition improved). - Trails slightly reduced - Starbursting slightly reduced - Stopped losing a lot of hair (can be related to something else). - Visual snow reduced - Floaters slightly reduced - After-images (but I barely had them in the first place). - Emotions improved. (I can laugh more often and I can cry which helps with the anxiety). Not sure if I'd prefer the comfortably numb feelings though, but I guess not. - Memory: I can relate to memories better. - Neck pain is improved. - Eye strain improved (fuck yeah!) I hated this so much, and now I barely get it anymore. - High feelings gone. (kind of suck but I guess I won't miss it that much because it felt really wierd). Worsening/Side effects: - Anxiety, I was completely anxiety free when my HPPD started which lasted for 3 months but now it's rough. Maybe it has something to do with depersonalization lifting. That I'm actually dealing with more feelings now. - Depression. (could also be caused by different reasons, as I was heavily depressed prior to Keppra but I know there is a general 6% chance in Keppra patients to experience this) - Extreme tiredness randomly occured twice. Don't get it anymore. I don't do much during the days though, it might be different in an active life. - Easily irritated first weeks. Things coming up: I will talk to my neurologist this Thursday to get some more Keppra and will probably increase the dose to 1500 mg a day. I will stick to this dose for a while. I might ask the doctor for Naltrexone for the dissocation. A lot of positive vibes here regarding that: http://hppdonline.com/index.php?/topic/68-success-with-naltrexone-read-this/page-2 There's also another study with some great success: http://www.ncbi.nlm.nih.gov/pubmed/15876908 Life in general is still a living hell, but if these improvements keep on coming I might get out of it alive. I got a new goal in life too: To study biochemical medicine to cure us and our children. Hopefully I'll be able to get my feet back on track to be able to do this as soon as possible. Take care everyone,
  4. StateOfRegret

    My keppra story

    I've been meaning to post this for a while, but here it is, my experience with Keppra. I took Keppra for a little over two months, taking 500mg/day for the first five days and 1000mg/day for the remaining two months. Before beginning Keppra treatment I had all the usual bloodwork done and all looked fine. During the period where I took 1000mg/day I had blood tests done twice and both showed elevated liver figures - I don't remember the details, but my ALAT/ALT was twice the upper boundary of the normal range (indicating liver problems). Since it hadn't decreased at all by the second blood test after beginning Keppra (which was about a month after the first one) my doctor recommended that I didn't increase the dosage and advised me to perhaps taper off if the medication wasn't having substantial positive effects. Now, I didn't feel anything remarkable during the treatment, but it did seem to have some effect. It seemed to reduce after-images/palinopsia, which was great. It seemed to do very little for general "patterning", but it may have helped this a little bit as well. It made me pretty confronting and unrelenting. I seemed to fall out with a few people while taking it, which is unusual for me. It may have helped general anxiety somewhat, but not much in any case. So, all in all, not remarkable nor a complete let-down. Oh, and if you take Keppra, remember to get blood tests for liver function!
  5. need help asap please! i nearly committed suicide the other day and would really appreciate if anyone could help me in finding a doctor that understands hppd in my area. I live in Tacoma, WA, USA, which is about 30 miles south of Seattle, WA. I just want to be better so i can finally have the confidence to meet a girl and to love as well as my lifelong dream to pursue a career as a piano composer. I am 18 years old now and have had it since i was 16 (September 2, 2012)- yes i remember the exact date because since then it has been a living nightmare. Ever since I developed HPPD I have had Constant Depression and Consistent Anxiety of the extreme along with the disturbing visual snow and hallucinations.
  6. r.trudeau

    Keppra Study

    From the album: Levetiracetam efficacy in Hallucinogen Persisting Perception

    Levetiracetam efficacy in Hallucinogen Persisting Perception study
  7. File Name: HPPD summary, Keppra study and testimonials File Submitter: Puppeteer File Submitted: 29 Nov 2013 File Category: Publications A compilation of HPPD diagnostics from the DSM-IV and ICD-10 on HPPD as well as excerpts from other sources, the Keppra/levetiracetam study abstract, and numerous testimonials for Keppra's effectiveness from around the forum (largely thanks to user HBB). Changes and updates are very welcome, please upload any modified versions if you think they'll be useful Click here to download this file
  8. Just a quick one to ask if anyone who's experienced success with Keppra had developed HPPD from MDMA use, or had their HPPD significantly exacerbated by MDMA. I've just noted that a few of the unfortunate non-responsive cases have been in people with MDMA-related HPPD and wanted to know if there's any tangible connection there or not.

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