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Hallucinogen Persisting Perception Disorder (HPPD) Support Forum

p3rs0n

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  1. Yes I have these sensations. Phantom water dripping down my face, bugs crawling, burning, itching (I don't have MS), but they thought I did. MRI ruled it out. Mental health issues can cause these sensations. So can disc herniation in the neck. Also may want to have B12 checked as it can cause nerve damage which is what happens to people with MS and Disc Issues. @Jaz Where is yours located? Is it occurring on both sides of your body (left/right)? Upper and lower half (above below waste). I have episodes where it gets really intense, but it's always there just to a lesser extent in my face. I've never done Meth.
  2. Yeah, I'm aware of the negative effects anti-psychotics have on this HPPD (now) as it's what made my situation much worse. I was unaware of what HPPD was prior to taking this class of medication. I edited my post to exclude that part about the forcing me to take them. It was a poor choice of words. I guess I was just curious what one of these SPECT scans may be able show in regards to HPPD. I know they are using these scans to formulate treat other brain injuries and mental health disorders so I'm curious if it could aid in treatment for those who suffer from this as well. Probably a long shot, but you never know.
  3. Anyone had one of these scans and was it helpful in providing any information. I saw an old TED talk and was thinking about giving this a shot as I also suffer from mental health issues and it sounds like these people use these scans to help treat these disorders (mental health). Was curious if the scans may give insight into HPPD as well. Ted Talk Dr Daniel Amen SPECT Scan SPECT Scan Clinic Mayo Clinic
  4. Sounds pretty intense man. I'm sorry to hear your symptoms are as strong as they are. I did Salvia a handful of times and it was some f'd up shit for sure, but it was not what sparked my HPPD. This forum isn't all that active. Maybe check r/hppd. Just don't smoke any weed or take Lions Mane as it's not some kind of miracle cure despite what advice the kids there may suggest.
  5. What I've found regarding Anti Psychotics. This is about what role anti psychotics played in the increase of my symptoms not decrease. As I was unaware of what HPPD was prior to taking them. I would say that for sure the visual changes began only after stopping the anti psychotics in my case. It also seems like there was a pattern of anxiety that occurred, sometimes very extreme anxiety, upon withdrawal which may have been a precursor to these changes. Or was just a coincidence. Prior to starting anti psychotics I only had visual snow.
  6. Appreciate the reply Jay. I kinda figured I was overthinking it. I'm still pretty new to this all and can get a little paranoid at times wondering if I've reached some kind of baseline or not. Thanks,
  7. Started coughing today and I started seeing intense stars. I've seen stars before while coughing or standing up or whatever throughout my life, but this was a real light show. They were really bright and lasted for what had to be a solid 30 seconds. I was concerned they weren't going to go away. I've never seen it this intense before the onset of HPPD. Anyone else had this happen? In my mind this makes absolutley zero sense. I was under the impression that the mechanics behind seeing stars was purely physical and directly related to pressure on the eye itself (Which I had just been checked out by a Neuro Ophthalmologist). Could be completely unrelated.
  8. @Ivanmalagon23 I'm having this EXACT issue with the dreams and it's killing me. I cannot get sleep. I've got CEV's in which I see flashing lights when I close my eyes, but eventually I can get to sleep. But literally almost every hour throughout the night I'm woken up by my dreams. They aren't anything even that strange or frightening. I just get woken up by them. Benzos will put me to "sleep", but I still feel like shit the next day like I didn't get sleep at all. I'm like a month and a half into this and it's really taking it's toll. I have seriously not gotten a restful nights sleep since this started. I hope this symptom has calmed down for you. I know how terrible it can be.
  9. I hear where you're coming from @olivier24445 with this stuff it's one of those situations you could easily become paranoid trying to blame everything under the sun for causing symptoms/flare up. But as I stated in one of my posts I started having issue right after I was eating. I thought at first it was blood sugar or some shit, but this literally started with the onset of HPPD. I next thought it was Caffeine after reading a bunch of people have sensitivity to that on here. Cut that out, but still was seeing the same. Now I'm not so sure I fall into that category. All I can say is I seem to have an increase in symptoms after eating so for me @David28 may be on to something. If anything it's worth noting. At the least I may provide some more insight into possible triggers. Everybody's different though. Seen it on here with peoples personal experiences with various meds as well as with Caffeine for example.
  10. Thank your the detailed breakdown @David28 It's funny you mention the food aspect. Ever since this started I've noticed I get "high" or an off feeling after I eat with an intensifying of my symptoms. I thought it was caffiene as I used to drink it when I ate, but there's definitely something else contributing to it. I'll have to pay closer attention to what I'm eating to see if i can single out what's triggering it. I too am getting mad color enhancements too. It's so messed up because I haven't used drugs in so long it's really caught me off guard. I had no idea about this disorder and when it all came on I was like what the f*** is happening to me. It's been so long since i've used drugs it blows my mind this is even possible. I've looked into all this other shit though and consulted with Neuro-Ophthalmologist/Neurologist/Psychiatrist(s). Done the whole MRI bit and this is the only thing that makes sense at this point and they all seem to agree. I'll definitely take all of these suggestions in to consideration and start with some lower doses of some of this to see what impact it has as I cautiously move forward. I really do appreciate all the input guys.
  11. My thoughts as a newcomer. I'm grateful sites like this exist. It's incredibly valuable considering the rare nature of this disorder and the fact that there is no one place you can go to get information regarding this disorder. Even though it's included in the DSM most doctors still have no clue and therefore don't know what may or may not make it worse. Of course you've got to use your best judgment when listening to opinions here (cue the bleach dude). Even if the forum isn't as active though it's still has been really helpful for me being able to search back and find what helped or hindered those in the past. This shit blows, but at least there's a place I can go that makes me feel less alone in this. It also acts as an archive of self reported data from people from around the world who have already been there tried that when considering my options as I move forward with this new burden.
  12. Appreciate the feedback guys. Really good point on the Melatonin. Something I honestly didn't think about, but going forward I'm going to keep in check. Also, my issues appear to be with getting restful sleep and not so much going to sleep anyways which was how I was using it. I'll have to check out the Valerian root only thing i'd be curious as to whether it would increase possible dependence on benzos if used simultaneously with the Klonopin considering both affect GABA receptors. Already on B12 so I got that covered. I'm hoping has this evolves my mind will settle down on it's own some too.
  13. Thanks for the feedback Oliver. I really need to check out CBD. I'm loving Melatonin especially since it doesn't make this any worse for me. Curious about CBD's affect on anxiety if any as it'd be nice if i didn't have to take benzo's. For for the time being they do help out a lot and I'm doing my best to be careful with them. The main thing that is messing with my sleep is these damn CEVs and crazy vivid dreams. I feel like my mind just keeps on doing it's thing even though my body is out cold. I talked to my psych and he prescribed me this drug called Prazosin that is supposed to help people with PTSD who have crazy nightmares sleep through the night. I think i'm going to try to hold out for a little bit longer though. See if the melatonin and Klonopin can keep me in check before I go tempting fate again with another pharmaceutical.
  14. Thanks for the reply! I'm sorry to hear this affects you as well. Benzos seem to help in going to sleep, but I still feel exhausted the next day. Perhaps I should look into CBD. Regarding the affect of sleep on my symptoms it's hard to tell. I've been dealing with the sleep thing since this started. My visual snow all of a sudden got worse after a month in, but I'm thinking it was related to either Ambien or Caffeine which I've since stopped both.
  15. Anybody? I've read of people having insomnia, but with my situation I'm able to go to sleep and not wake up during the night yet in the morning I'm feeling like I never slept at all. Nodding out durning the day etc. Ambien/Klonpin/Melatonin do not appear to be helping. This all started after the onset of this, but I was wondering if anyone else has experienced this. Especially in the early stages.
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