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Sambabeat78

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Everything posted by Sambabeat78

  1. Hi everyone! My name is Ed Prideaux and I'm a Master's student at the University of East London who has lived with HPPD and DP/DR for around 7 years. I'm also doing research on the condition through a survey! https://uelpsych.eu.qualtrics.com/jfe/form/SV_b3kXHTcwDHujzZY It's probably the most in-depth mass survey on HPPD yet drafted: it measures HPPD-related distress, the role of thoughts and behaviours, measures of symptom intensity, as well as psychoeducation relating to HPPD. I'm really excited about it. It should take about 30 minutes to complete, so please carve out any time if you can! If anyone notices any issues with the survey, please let me know at my UEL email, which is u2252270@uel.ac.uk. Ed
  2. Hi everyone! My name is Ed Prideaux and I'm a Master's student at the University of East London who has lived with HPPD and DP/DR for around 7 years. I'm also doing research on the condition through a survey! https://uelpsych.eu.qualtrics.com/jfe/form/SV_b3kXHTcwDHujzZY It's probably the most in-depth mass survey on HPPD yet drafted: it measures HPPD-related distress, the role of thoughts and behaviours, measures of symptom intensity, as well as psychoeducation relating to HPPD. I'm really excited about it. It should take about 30 minutes to complete, so please carve out any time if you can! If anyone notices any issues with the survey, please let me know at my UEL email, which is u2252270@uel.ac.uk. Ed
  3. Hello all - I'm the person who wrote the response. What I said was lost in translation, partly because the original person with whom I was communicating left out substantial excerpts of my messages. I will reproduce below what I have also posted on Reddit in response: I'm the person who said this. The post does not really provide the context for what I said, which is misinterpretable. The Macquarie study is not dead; we are attempting to raise funds. I'm sorry people felt gaslit, which is not what I intended. I do sincerely believe, though, that a blanket (edit: mass media/JRE) 'raising awareness' may have a downside, although it's ultimately a contested point how the upsides and downsides balance. (edit: see below to read that my fundamental concern is ensuring subtlety in any media presentation on HPPD; the media is rife with oversimplified and sensationalist accounts, and my concern to this person was that an appearance on a channel as large as Rogan's not executed right could backfire). Here's the rest of what I said, which is left out this person's account: 'I'm more optimistic than you about the funding. Psychedelic medicine cannot ignore HPPD, and it increasingly isn't.' [Why would going on JRE give people HPPD?] [admittedly a crude way to express this, and I apologise] "'Because HPPD is characterised by distress + visual changes. Lots of people have visual changes that don't bother them. So, going on a big platform like JRE and 'sounding the alarm' risks making people view their visual changes as a problem when they don't need to be. I think better work is to be done working behind the scenes and being subtle. Going on JRE will raise awareness, and possibly create more of a groundswell towards motivating research into the condition, but I'm not sure. What this condition needs is careful research.Also, the development of lasting visual changes is, I believe, strongly related to fixation and suggestion. If people have it in their heads that these changes are possible and are freaked out, they will be more likely to manifest them in the acute period of suggestibility after a trip, when certain lingering visuals are actually normal. "'Just had another thought. I think my bigger concern is that a mass media platform gives a very simplistic and sensationalist narrative about HPPD; something that maybe going on a platform like JRE or Lex Fridman is designed to avoid (maybe). 'Going on FOX News or something would probably fit that risk more!'" I hope this clarifies things for people concerned, and I take ownership and am sorry for any offence caused.
  4. Hi all - My name is Ed Prideaux and I'm a UK-based writer, journalist, and six-year HPPDer. You can see my portfolio here: https://edprideaux.journoportfolio.com/. I'm working on HPPD awareness for a nonprofit, and appeared on a podcast (you can see in my post history) to discuss: https://www.perception.foundation/ I'm writing an article right now about all things HPPD for a publication called Mad In America, which is run by the journalist Robert Whitaker. The magazine specialises in coverage of the psychiatric-psychological sector, often in a critical lens. It's run a couple of excellent critical pieces on psychedelic medicine, so I've decided to throw in my contribution from the lens of HPPD and harm reduction for psychedelics. Something I'm interested in covering is how well-equipped our current psychiatry/psychotherapy/counselling systems are for handling people complaining of HPPD, and the under-covered risks of psychedelics more generally. Please leave a comment outling your story, or otherwise indicate your interest in participating, and I will DM you. You can DM me, too. This is totally anonymous on request. I'd also like to situate people's experiences with clinical professionals in the broader context of their HPPD story, so if you're comfortable sharing that kind of detail, please do. You can also email me at eddie.prideaux@gmail.com Ed
  5. Hey all, I'm the journalist who was looking for interview subjects last month. The article has, at long last, been published. Among other details, my article features a history of HPPD that stretches back to the 19th-century; several real-life case studies; discussions of HPPD's link to psychosis, alcohol abuse and suicide; and what the condition may mean for the promise of future psychedelic research. You can read it on The Independent here: https://www.independent.co.uk/independentpremium/long-reads/netflix-good-bad-trip-lsd-psychedelics-never-wears-off-a9533136.html It's behind a paywall, but you can create a temporary account through Google or Facebook pretty quickly. If you'd rather skip that, you can read a less fancy-looking version here on Pastebin: https://pastebin.com/R9jy1NWV Thanks - enjoy. Let me know what you think.
  6. Hello my friends, I'm writing an article for The Independent about HPPD. I'd like to talk first-hand with sufferers of the disorder and document their stories. This article will spread awareness about the risks of psychedelic drug-taking and show what can go wrong. If you're interested in having a short chat or sending a summary of your experience with HPPD, then please email me at eddie.prideaux@gmail.com. You can be anonymous on request, don't worry. Ed
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