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sami

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sami last won the day on December 6 2019

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  1. I've noticed there are substantial differences on the improvement of the visuals even when it comes to minor changes of dose. 0.75mg makes me less tired, easier to get some work done but definitely not as effective when it comes to improving visuals. 1mg gives more relief. Today I took abt 0.8mg in the morning, and 1mg now in the evening and wow, major improvement. I have to try 2mg some day - when I don't have anything important to do - to see what happens, just because I am curious.
  2. Forgot to mention that CZ also reduces my pattern glare/motion substantially. ✌️
  3. Sometimes I notice a minimal reduction of visual snow, like 10% less. I just startes Clonazepam though and that changed everything. 50% reduction, don't see it day time at all. Also no after-images. So I am gonna taper off from Zopiclone now. Already started. Still doing it carefully. I noticed an increase of symptoms today in the morning because of it (and it was a minimal dosage change, from 6.5mg to 6mg), but Clonazepam solved that. Gonna stay on 6mg for a week, then go to 5.5mg. I did cold turkey 10 months ago and that's when my HPPD exploded. It was terrible. So, Zopiclone is fi
  4. Thanks Jay. I've lowered my dose to 0.25mg in the evening and 0.75mg in the morning now. Seems to work fine. I still get a lot of relief from the visuals, but it doesn't help much with my anxiety, but enough so I don't freak out about the tinnitus all the time. I think that's because I've been on benzos on and off for the past 20 yrs in, and my tolerance is just sky high in regards to anxiety. (I am also kicking Mirtazapine and that causes some insane levels of anxiety, so once I've done that it might get better.) I find it interesting it still helps with my visuals. Still experiment
  5. I use Zopiclone, and have used for a while. Just be careful if you taper off. It can make it worse. Do it very slow.
  6. Just wanted to share that I've had a very rough time past few weeks. Since I have deteriorating HPPD that started 1.5 yrs I was coming to a point now that I had started to lose all hope, and suicidal thoughts started to plague me, especially because of the increase my tinnitus past month, which made life unbearable. So yesterday I gave up, visited my psychiatric MD, and said I am ready to give up. Clonazepam has been the last thing on my list to try since I have had issues with a benzodiazepine addiction a few years ago, but I asked for it. We spoke about setting up a schedule. Durin
  7. No risperidone. I've also been on Mirtazapine (4 yrs) and Zopiclone (6 months). Quit everything back in Jan-Feb after my symptoms turned to worse. Withdrawal from bith meds definitely exaggerated symptoms for a while, and I was off them completely for 5 months. Some symptoms improved after a while, like I mentioned (light sensitivity, dp/dr, also palinopsia got slightly better, was having constant positive afterimages but it was reduced by 50%) but the others have kept on deteriorating (visual snow, tinnitus, halos, starbursts, bfep, pattern glare). I got sleeping issues again after five month
  8. I was put on 200mg Lamotrigine beginning of 2018, when I was diagnosed with bipolar disorder. It was shortly after that that I saw visual snow for the first time. I even brought this up with the prescribing doctor. At this point I had no idea even what visual snow was. Visual snow got worse during the year, end of 2018 I also had tinnitus and diplopia. Jan 2019 I started to see the visual snow in day time, and I also got palinopsia, light sensitivity, floaters, starbursts, halos, etc. I quit the treatment with Lamitrogine in February. No change. Instead most of my symptoms (except light s
  9. I use Ashwagandha since a few weeks back. Really helps me with both falling asleep and deep sleep, but will probably have to agree with the above statement, slight increase in withdrawal symptoms (I am tapering off Zopiclone currently). Haven't noticed any change in other HPPD symptoms.
  10. My dad has tinnitus. My mom has anxiety and depression. They've never done drugs. My sister gets visual snow when rubbing her eyes (but I guess that's not completely unnormal after psychedelics use).
  11. And a lot of people that seem to get better from HPPD are those that live a healthier life. They stop with drugs, alcohol, nicotine, they eat healthier, they excercise, meditate, etc. What could be going on is that the immune system actually gets a boost, and symptoms start to dissipate.
  12. If HPPD is caused by a virus antibotics won't of course help directly, but the virus may be active, or even more aggressive, because the immune system is suppressed. So by helping the immune system heal and fight bacterial infection, it might also get more resources to fight a virus infection. The Epstein Barr virus, a herpes virus most people have becomes latent after initial infection, can become active when the immune system is suppressed. Same could be for other viruses (and bacteria). LSD may act in an immune suppressive fashion. This post on reddit mentions a paper fr
  13. This has been mentioned before but it seems like as soon as it is mentioned there is a backlash from several people in the HPPD community, like it is totally absurd to even bring up a possible connection. If we really want to find a "cure" for HPPD, we really need to dig into everything, even if it is unprobable, to make sure we haven't missed something.
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