Jump to content

palinoptical panopticon

  • Content Count

  • Joined

  • Last visited

  • Days Won


palinoptical panopticon last won the day on May 24 2019

palinoptical panopticon had the most liked content!

Community Reputation

3 Neutral

About palinoptical panopticon

  • Rank

Profile Information

  • Gender
  • Location

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. If you ever get back your post, thanks for getting in touch with the board! Raising awareness would not only help sufferers immensly but also prevent further damage and it's great that this approach comes from a platform with such a massive range. I'm sure everybody hopes someone gets up the nerve to openly talk about it but unfortunately I doubt you will find a volunteer here. Nonetheless it would be great to see more about hppd from VICE. It definitely deserves much more attention.
  2. For everyone from the UK and Australia, please check this out: https://www.visualsnowinitiative.org/research/visual-snow-researchers-seeking-volunteers/ This is a huge deal, you can really help the research big time, so please make use of this opprtunity!!! This research is no joke. There is real legitimate hope.
  3. Man that sucks. How are you doing now? Is this this common with Keppra?
  4. https://metro.co.uk/2019/06/18/new-breakthrough-pill-could-cure-tinnitus-10006638/ For more detailed info: https://journals.plos.org/plosbiology/article?id=10.1371/journal.pbio.3000307
  5. The Visual Snow Initiative is working in cooperation with specialists on lenses/ glasses that are supposed to reduce vs symptoms. It's going to be available this summer. This info has been available on https://www.visualsnowinitiative.org/ but not anymore. However for further info you can contact them via email, they are happy to help.
  6. I had tinnitus last year and it's gone after 3 months. The ringing would made me go insane!!! It was so loud at times (on both ears) that I could barely focus on anything other than that. When I couldn't sleep the second night in a row, I decided to take just half a lorazepam and boom.. no ringing. Doctors don't like to admit as they're pretty addictive and not appropriate for a long term treatment, but benzos are the only really effective meds, no ginko or other bs. It's not an ear issue, it's a central nervous system issue. That's where benzos are effective. Unfortunately afte
  7. So I got back from the appointment... The doctor was very patient tbh, there was none of the why did you take drugs bullshit and he was even aware of the symptoms that come along with VS and HPPD, but... he seemed to be convinced that fighting depression would be the target to aim at. After mentioning that SSRIs etc. just make the symptoms worse I suggested, based on many users' positive experiences, taking Keppra, Lamotrigine, Klonopin or Levodopa. According to him, any of those meds I asked for were too off label, which is anything related to HPPD I guess, but anyway there is no ch
  8. After having been waiting forever, I finally got a neurologist appointment coming on friday. However I'm still unsure what to ask for as it seems that there's no definite guideline to what's a good med to start with. So for those who have gone through some trial and error processes, is there a particular approach that makes the most sense or do you just randomly pick and see what happens?
  9. Nobody said that everybody with HPPD has a family history of mental illness, so no need to make that clear in the first place. But I'm very interested in the correlation between HPPD and mental illness you mentioned being mutually exclusive. Is there something to read about?
  10. I was wondering if some of you also have family members that suffer(ed) from some kind of mental illness. In my case there is a first hand background (schizophrenia and depression) and I've been prone to depression as well. So it's something that makes me curious. Especially in regards of HPPD there may be a correlation.
  11. Just received a reply from King's College saying that unfortunately they cannot consider me eligible for their recent studies because I'm not from the UK. So for the UK people here, if you like to participate in their recent studies on visual snow, please contact them or send them your questionnaire: http://eyeonvision.org/visual-snow.html I'm sure they're more than happy to drum up some support.
  12. That’s exactly what I find mind boggling, too. There must have been way more awareness in psychedelic circles such as MAPS, or even around Timothy Leary or Terence McKenna back then about HPPD than they actually pretend but they collectively chose rather not to talk about it. You can barely find references in the footnotes. I understand it’s been a rough road for MAPS to get where they are today, which is a huge succes story, and then it’s just the way politics work, they don’t want to admit flaws, the war on drugs is still going on, and people seek spiritaulity and try to compensate the
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.