Jump to content


  • Content Count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About whyohwhy

  • Rank

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. After 3 years with HPPD, I have acquired a new symptom. Severe chest pain off and on like I’m having a hard attack. Benzodiazepines do not even help. Even though my doctor says it’s due to anxiety and having a panic attack. Already felt pretty disabled and debilitated by this symptom but now this is just the cherry on top. Anyone else suffer from this. It’s almost like psychosomatic chronic pain in my chest that I experience.
  2. Thanks for the reply. Did you start lamotrigine recently or have you been on it for a while?
  3. So I've been on lamotrigine for a few months. Gradually went up to 100 mg. No sense of side effects but a few days ago symptoms worsened. Just when it seemed the medication was working of course. However, I've heard from you guys that it can take up to a year to really see long lasting changes. What do you guys think - should I remain on 100 mg as to prevent a worsening of symptoms, go down to 75mg which i started noticing improvements and no signs of worsening symptoms, or keep titrating up until 200mg like most people here?
  4. Hi there... just reaching out to everyone. Does anyone who has OCD have experience taking lamotrigine and if so did it help with intrusive thought type OCD? I happen to have severe Obsessional symptoms of OCD and am worried as I have just come off of clomipramine (around a month ago). However, I started on lamotrigine and plan to just stick with that for about a year without adding a SSRI or tricyclical on top of it. Last time i came off my ssri and was on no medication life became a living hell and I had to go as an in-patient to a mental hospital to treat the ocd. I'm hoping lamotr
  5. @justhere Hey, just like everyone else has been saying: hang in there and never give up on life. I know it sounds redundant or repetitive but if you keep repeating it to yourself you can trick your mind into believing it and give yourself the willpower. Side question: Could you elaborate on how clonazepam made symptoms worse? For me and quite a few others it does wonders with helping with visuals, anxiety, dpdr so I'm interested to hear on your experience with it.
  6. I basically got my doctor to prescribe lamotrigine through persistence mainly. I also brought in reputable medical reports and case studies of where lamotrigine was successful and so eventually he abided to prescribing me it.
  7. hmmm in my opinion, if it is your first time taking a medication approach... I would try for either Keppra or Lamotrigine. These meds have been most studied and trailed for the condition of hppd and based on what I've read on this forum have been the most successful.
  8. hmmm I've come across hearing something like that as well. I'm also curious on whether going to see a chiropractor might help... it has been something I have been looking into.
  9. I would try and stick with it for at least a month. A lot of people notice a worsening of symptoms before things improve. I know a lot of people who have visual snow and find this medication is helping them a lot to make their symptoms bearable. If you are still mentally struggling and even more so with it in a month, discontinue. But I'm no doctor. Here is a video of some guy whom verapamil has helped: https://www.youtube.com/watch?v=KSHUcxkPJoA
  10. Been feeling the same pretty lately. I'm pretty active these days on this site if you want to message and talk.
  11. I would give it some time. Your symptoms sound quite mild but this is just an inference based on what I read in your description. Let this be warning that maybe your body is susceptible to changes due to drugs. I would take it easy with recreational drugs in the future if you do choose to continue. If you wish to be safe and on the side of caution, refrain from using any type of recreational drug. And yes, unfortunately this does include alcohol. I highly recommend this. However, I know this can be a hard thing to do and impossible for some people who are in the habit of that lifestyle so if
  12. I heard the same thing as @palinoptical panopticon Does anyone have any updates on that?
  13. I've heard about people with visual snow being treated with this medication. From those sources it is said to be very helpful. Hope it works! 🙂
  14. Subscribed as well. If HPPD has given me anything good it is this massive amount of determination to conquer and rid of it.
  15. Interesting... I never heard of Inositol up until now, but looked it up. I guess its just a Vitamin B8 dietary supplement? Correct me if I'm wrong though. And yeah I guess everyone is affected differently by medications. I know that my body was VERY sensitive to the withdrawal affects from Zoloft. I swore I'd never go back on after. However, I might have to find a SSRI that works. I heard somewhere that Prozac may help with palinopsia which is my worst symptom to date.
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.