Hi folks - my heart goes out to all of you. I have had this for nearly two years now, and I have improved loads (my vision, not so much...aspects are better for sure, but it's still there). My mental health is generally good. I maintain a successful career and happy marriage. Life is good except for hppd I live a psychoactive drug free life - actually I don't take any drugs as I'm too nervous. I recently birthed my baby with no drugs and didn't even take a Tylenol after. I have experienced major flare-ups (hppd became much worse with added symptoms that have never dissipated) due to second-hand marijuana twice....not even marijuana that was particularly close to me (ie, I wasn't even standing next to someone smoking). The first time I was at a party and the smell of campfire disguised the weed smell. The second time I accidentally walked past a marijuana cafe where people were smoking on the patio (I didn't know this was a thing! I thought they had to smoke inside). In any case, I've learned that I can't attend events where there will be marijuana outside, and I am vigilant while I walk down the street. I hate living this way, but it is what it is. I'm wondering if anyone has experienced this? Or can you attend parties and just be a normal person?
Are you able to take drugs such as tylernol, Advil, etc? Coffee? Coke and pepsi?? I haven't dared to try them.
this is by far the worst part of it for me. I can deal with visuals and perceptual oddities (except the disequilibrium is a challenge!), but having to restrict my activities is a real bummer.
best wishes to you all!