Spartan

I have a question If serious hppd sufferers were monitored in hospital say for a period of 2 weeks.. Do you think the report from medical staff would pick up any significant abnormalities or pathologies? With our condition/ illness it's so hard because everything is happening on the inside and not so many blatant physical manifestations. Please share your thoughts. ???

26 years is a really long time. I understand the going blind thing tho don't think it would make a difference to be honest as it's etiology is from the brain with CEV (closed eye visuals) included. That is really awesome that you have your husband as your rock etc Yes can totally relate with the caffeine thing and any other stimulus like pseudoephedrine or even anti depressants definitely exacerbate and apmliy symptoms visual and non visual.... along with stress / any stressors to the CNS. Thanks for that, yes klonopin cold turkey from a high dose can be dangerous/ that's why I was monitored in hospital, tho yes certainly comeing off greatly heightened / worsened all symptoms as well as DP DR etc and new symptoms like agoraphobia etc K pin withdrawal can be brutal. Thankyou so much for your the words and for your prayers etc. Really means alot to me. Will keep you in my prayers too. Wishing you all the very best.

Yeah i understand they have to live tho it would be nice if they could make treatment slightly more accessible to the people who really need it.

Welcome to the board.. unfortunately I don't know any experts in that part of the world. Google maybe helpful in tracking someone down. Take good care !

Heyy sorry to hear.. that must be very challenging with no experts in your country. Klonopin helps take the edge of slightly for me. Yeahh I understand how tough things can be. I think your environment will play a key role. I've been trying for a long time to get help. (30 + year sufferer) tho only thing that makes slightly more manageable Is klonopin. That's cool you are in Brazil . I have a beautiful Brazilian girlfriend from Nathal , she knows about my hppd as she had to look after me while I cold turkey off 6 mills of klonopin. Yes always keep fighting. Tho there are situations where if someone or something is trying to destroy you and everything you have worked and stand for, that kind of stress and exacerbation sometimes makes me seriously consider not being here any further. Thankyou man. Please take care of yourself, I hope you will find the right treating professional as soon as possible.

thankyou im actually Australia.. I'm a severe and long term sufferer / over 30 years. Yes a part of the law is that human beings have the human right to medical treatment, tho I feel I am got getting it sadly and therefore condition worsening and immense suffering. Reason things have been so worsened over the past 2 years is because I have had massive existential treat / stress and trauma that is not going away, yet. This has driven me to the edge with no relief. I'm currently in disability support also for severe hppd. I recently contacted Dr Locke in the USA / hppd specialist, tho he charges something like $500 USD an hour . That's out of my price range. I have played a key role in the existence of the hppd protocol study, tho that is 800K to get It started, don't have it yet and Still looking at funding options. Yes I have a mum and a dad they understand and they are awesome. They are likely the only reason why I'm still here physically today. Yeah I did a recent post about removal of eyeballs to see if still hallucinating tho unfortunately many think it would still be a yes because it's coming from the brain and not the eyes. Thankyou I appreciate the support. Wishing you blessings , peace and healing also.

Thankyou I'm out now. They diagnosed me with adjustment disorder on top of hppd which is bullshit because the trauma and stress I have been though have acasebated hppd severely. Diagnostic criteria for Adjustment disorder is not to have another condition exacerbated by the event, which I do and have do so this diagnosis is inaccurate for me. Cannot even get prescribed a benzo after numerous psyches, neuro-psychs and hospital admissions, because I've had dependence on the past, who gives a fu*@ it's for a severe chronic condition and I need some treatment. I have that human right. I seriously cannot take this much longer, I felt invalidated by mental health ward, no one takes seriously.. well that will change when I'm fucking dead.

Many thanks will do..

You are all awesome. Many thanks . Will do !

My hppd became seriously intolerable , highly severe, serious with prolonged ongoing stress with no treatment. I've now been admitted by ambulance to an acute psychiatric unit. Possibly the internet is to give me MRI and testing etc to rule anything else out and to trial various medications etc Likley will be a 5 day / night visit.

Has anyone had any experience with this , Quitiapine. I was put on 100 mgs, ( 50 mg extended release ) .. and could not function because so sedated. Really nocked me around. Also visuals possibly heightened, like mind bending stuff.

.

Yes exactly it's a brain thing. Would not make any difference.. if happened to be blind. My understanding is CEV = closed eye visuals.

Hi community Just wanted to put this out there.. Does anyone know of someone or a person that may have "deep pockets" i.e. who is financially well off..? Someone who would like to help make a difference in the world by contributing to the hppd study and work towards finding a cure for the condition, for current suffers and future generations. Please have a brain storm regarding this and please put the word out there! Feel free to use the pitch in research advertisements IMPORTANT RESEARCH INTO HPPD-ADVERSE VISUAL EFFECTS FROM PSYCHEDELICS ( can even modify to include your own story) Please get in touch. I can put the individual directly InTouch with the reaserchers to share more. Thankyou Kind regards. Ben

IMPORTANT RESEARCH INTO HPPD-ADVERSE VISUAL EFFECTS FROM PSYCHEDELICS HPPD stands for hallucinogenic persistent perception disorder. This is a disorder that occurs after the use of psyocactive substances, these include LSD, MDMA, marijuana, magic mushrooms,even cough medicine has been known to trigger this condition. I myself have been living with severe hppd for over 30 years. HPPD leaves a person with disturbed vision, halos and trails around lights, a feeling of depersonalization and derealization, not knowing what is real or not, everything they see is brighter and can warp and move, visual snow is very common with HPPD also. All these symptoms leave the sufferer with feeling of despair, depression, anxiety, social withdrawal and isolation , suicidal thoughts, many people with HPPD have in fact ended their life rather than endure this horrific condition. There is the chance to have a study of this condition at the Macquarie university in Sydney , lead by internationally acclaimed professor, Dr Harry McConnell. Professor McConnell has the protocol and ethic approvals to go ahead with the research. This study is vital to help people suffering now with HPPD and for those that sadly acquire it in the future. Awareness is also needed about this condition. The Macquarie study needs funding. Would you be interested in meeting with myself and Professor Harry McConnell so we could discuss more? If so, please reach out to me via direct message. Thank you for your time Kindly https://researchers.mq.edu.au/en/projects/hallucinogen-persisting-perception-disorder-hppd-protocol-multimo

That is awesome. Massive congratulations!!!

Okk.. interesting to know.. Yeah I feel I have definite elements of OCD also.. tho in an attempt to try and distract myself from symptoms.

Can severe hppd cause OCD ? Has anyone seen any cases of this? Thanks

Yeah I totally understand this.. I was cut from the medication from silly doctor Yes has been exacerbated hugely since

.

.

.