Spartan

That sounds truly hardcore Jay! Can totally relate with everything you are saying too blossy! Hope everyone is doing well.

Thankyou I'm sorry to hear of your challenges! I had to leave school during onset also. It's great you seem to be calming your CNS and entering more of a flow state etc So sad these people are dressed up as "healers" and just trying to be cool and profit. It really is disgusting! They do not know anything. That's great you are doing your best to lend your voice as an advocate! There is a non-proffit doing good work, you may like to contact... www.neurogroup.org. as they generally welcome new team members working towards the same cause / goals. I'm wishing you all the very best with your continued healing recovery. P.s. another powerful modality is "shamanic breathwork" similar to holographic breathwork. It's 100% natrual no substances, tho really helpful in deep healing work.

Wow yeahh. That sounds aweful!! Sorry to hear of your challenges. Have a feeling my onset was around age 15. Was too young to know anything of long term consequences... And too caught up in that world. Main tab names I can remember were : Red dragons, Tiles, Blue gels, Robots, Microdots, Strawberries etc etc As well as other substances... Yes very true, acceptance is definitely a key.. I've herd a few horror stories from people mixing psychedelics with pharmaceuticals.. No way I would ever touch any psychedelics now... I'm having real challenges sourcing medication now (K) as I do need it at this time.. Occasionally I will use other things to help me do my best to manage while things are so heightened.. Cheers!

That is full on. How are you now ? Thankyou for sharing. I hope you are ok.

Yeah absolutely! Sure. Yes most def severe hppders..100% Very true, I'm sure it will come back to bite them at some stage . One of the reasons why they should be taking more interest in research! Absolutely, yes your right. I'm dumb founded and disgusted at times when people try to sell hppd sufferers psychedelics as treatment. That makes me angry. Anyhow.. been challenging times for me as been super vidid strong.. Likley worst ever been with protracted stress.. no doctors will prescribe K.. At times I will turn to "other things" to try and cope.. though it's not healthy.. I just feel human beings have a human right to medical treatment..ffs most doctors in this part of the world are not knowledge to put it very nicely. I will just have to keep looking until I find the right one. I will get though this. Cheers all.

Yes LSD seems to be a main culprit.. makes two of us. Super intense stuff.. I clearly remember the onset also. Yes, that sounds pretty hardcore . I started using / dropping A way to young, with the influence of my older brother sadly.. so likely that is another contributing factor.

Absolutely! Yes, I am the same.

Tik tok link https://vt.tiktok.com/ZSFpSDRuL/ Man so many trolls Tho sone very empathetic understanding souls out there. Doing my best to educate with the facts.

Celebrity script (feel free to use and expand upon) Hello.... Hope you are all very well. We are doing our best to raise awareness of a debilitating drug induced mental health disorder known as HPPD. Please see…............. for more information Just last week there was ABC news coverage on the condition, in a attempt to raise awareness for much needed research, Please see video the attached at the bottom Noting your amazing very large social media reach and your passion and philanthropy in mental health It may be a possibility to put something real together and out there to increase awareness and furthermore work towards funding for much needed treatment of this debilitating illness. In this way, warning youngsters that may have there lives irreversible altered due to contracting this condition, and enabling life long sufferers access to treatment. We are not anti psychedelic at all, although just advocating for much needed research. Please share your thoughts? Much appreciated, you are awesome! Thankyou Kind regards ........

I might see if I can get celebrity's with large reach to blow it up further!

I made one comment " "30 year hppd suffer right Here. visuals 24- 7 open and closed eye hallucinations constant. it is a very real condition and sadly no effective treatment. you cannot comprehend what it is like and you never will.'" My comment got over 1000 likes only one day.

This is excellent for awareness etc etc It's going semi viral on tik tok.

Yes I have Unfortunately it did not do anything for me.

Not on any way suggesting opiates I'm just saying that it contained naltrexone And seemed to possibly help some

I was taking naltrexone contained in a slow release opiate called Targin* It was helpful for me at that time.

Yes it is. Most welcome! Very sad to hear about Joey. RIP Joey and sincere condolences to all family etc I was requested by the producer to be interviewed for this, unfortunately I was not able to at this time. Hopefully this may be a catalyst for further funding to prompt the Macquarie HPPD study protocol.

https://www.abc.net.au/news/2024-03-30/research-into-hallucinogenic-persistent-perception-disorder-hppd/103641192

Thankyou

I'm doing my best to understand.. Are you saying that you have been given an incorrect diagnosis of schizophrenia and it's only hppd ? If this is the case... I would get away from your silly doctor... Find a doctor who acknowledges hppd, dump the antipsychotics and possibly start trying mediations that are most commonly used for hppd etc

I know most antipsychotics exacerbate hppd unfortunately... It may be some trial to find one that you can tolerate.. whilst the same time.. some additional medication for you hppd if needed. It might be an idea to change doctors to find one that acknowledges your hppd etc I'm not a doctor.. these are just my thaughts. It's a possibility.

I have severe hppd, when describing symptoms to psychiatrist... He was like "oh you may have underlying schizophrenia also" This is a misdiagnosis He has put me on a high dose of antipsychotic Seroquel 150 mg Generally Seroquel heightens visuals, Tho turns me into a sedated zombie so I cannot react as much too them. I don't like the side effects of Seroquel.

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Came on there trying to help... ?? Really see your empathy ozzing NOT More like a massive insult.

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I have a question If serious hppd sufferers were monitored in hospital say for a period of 2 weeks.. Do you think the report from medical staff would pick up any significant abnormalities or pathologies? With our condition/ illness it's so hard because everything is happening on the inside and not so many blatant physical manifestations. Please share your thoughts. ???