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Hallucinogen Persisting Perception Disorder (HPPD) Support Forum

hope1

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Everything posted by hope1

  1. Can this therapy help HPPD? Could it make it worse?
  2. Please log on to Twitter, read and comment.
  3. Pimavanserin Update https://finance.yahoo.com/news/acadia-pharmaceuticals-announces-pivotal-phase-103000599.html
  4. I thought Dr. Goadsby was excluding drug induced visual snow patients from his research studies.
  5. Floaters are not caused by HPPD? Caffeine, alcohol and cannabis dramatically increase my floaters or whatever the hell they are. I’ve noted heavy caffeine consumption induced closed eye visuals. Cannabis in particular gives me depersonalization that is reminiscent in severity of HPPD onset. Not sure what’s going on but whatever it is isn’t good at all.
  6. Dr. McConnell’s research study has been approved by Macquarie University, one of the most prestigious research institutions in the world. Kings College London is onboard along with Harvard and potentially, Johns Hopkins. Today marks a historic day for anyone, past, present or future regarding the recreational or medical use of psychedelics. more to come...
  7. Brilliant Job. Too bad 50 years have gone by with virtually no attention paid to this problem. Its criminal...
  8. Let us know how things went. I’d recommend a PET scan
  9. Will a low dose for pain affect my HPPD?
  10. You’re set of circumstances are not the same as everyone else..
  11. Anyone in the pro psychedelic research space looking for an excuse to blame the patient for getting HPPD. They have funding, access to facilities and scientist trying to usher psychedelics into the clinical setting who have little to no interest in HPPD. This will lend them an excuse to sweep the condition under the rug.
  12. I’m tired. I’m tired of trying, tired fighting and feeling so alone, tired of having to have put up with this bullshit for over 20 fucking years and quite frankly, because there has been virtually no progress in HPPD research despite my best efforts and that of others here. Nobody gives a fuck about us and there is no Calvary coming at least not in my lifetime. I suppose this is the ultimate act of acceptance; that this is how it is and as I get older and older, it’s just going to get worse. Fuck the scientific community, fuck the politicians who refuse to allocate funding for neurovisual disorders and a big fuck you to anyone having sold false hope which I suppose I’m guilty of doing albeit unintentionally. I truly thought I could hang on, live long enough till the day came where I could say I outlasted HPPD, I beat HPPD and I contributed in finding a cure for HPPD. That day won’t ever come. This is my final message on this group. I wish you all the best and I’m sorry I couldn’t do more.
  13. I’m on the verge of giving up. progress is slow and I’m getting no help from anybody.
  14. Predisposed to mood disorders is 100%? Im no scientist but that’s certainly going to play a major bias against those of us who did not have any predisposition to anything except bad luck...
  15. The problem here is that there is so much money behind psychedelics that insiders will risk nothing to jeopardize this gravy train of revenue. In reading the article there are psychedelic wellness clinics popping up, self proclaimed shamans appearing out of the woodwork and a booming medical tourism model all built around “consciousness enlightenment” so when this guy come here without ANY regard to our plight, I can’t help but be a bit angry because he and his colleagues are in a position to help, have access to technology, facilities, funding and resources that we don’t; in effect, he and his colleagues can help us but they won’t. its all about the money because if there were one patient class deserving the most help from psychedelic research, it would be us... https://www.google.com/amp/s/www.nytimes.com/2019/06/12/books/lsd-books-pollan-waldman-doyle.amp.html
  16. You know what the problem is? The problem is that psychedelic scientists like you are doing fuck all to research and cure HPPD. Do something about it!
  17. I need help with the website. I can’t afford to pay anyone to work on it.
  18. You know what sucks? having worked on this for years but in asking for help nobody steps up. Thanks
  19. The older you get, the longer it takes for your mind to rebound. With HPPD it’s safe to say the rebound effect is much much longer. Save what yo have left mentally, don’t drink.
  20. I want to make it clear that not everyone misfortune enough to have contracted HPPD has family history of mental illness. In fact mental illness and HPPD could be mutually exclusive of one another. The catch is that the neurological damage sustained by HPPD manifests itself mirroring psychiatric disease(s).
  21. I recently put up a post indicating that May 6th, 2019 was the last day to take the Visual Snow/HPPD survey. This was an error. The survey will be closed a week from today. If you haven’t taken it please do it ASAP! The more data that’s collected, the greater the chances of more research being done on these two terrible conditions. Remember, the survey can only be accessed via desktop computer. NO MOBILE DEVICES! Access the survey here: https://twitter.com/simonsaryazdi/status/1125798943873470464?s=21 #CureHPPD #CureVisualSnow
  22. Today is the last day to participate in the survey so if you haven’t completed it already, get on it. Establishing an indicator of how many of us out there with neurovisual disorders will prompt researchers to help us all. https://universityofsussex.eu.qualtrics.com/jfe/form/SV_blrsONUZAQ19BGZ
  23. Feeling like sharing your feelings with the architect behind this center which excludes HPPD? Here you go: The best part about Twitter is that you can have an anonymous account. Have fun...
  24. Millions are being donated to research psychedelics! Just not for Hallucinogen Persistent Perception Disorder...
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