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Hallucinogen Persisting Perception Disorder (HPPD) Support Forum

hope1

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hope1 last won the day on August 25

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About hope1

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  1. Can this therapy help HPPD? Could it make it worse?
  2. Please log on to Twitter, read and comment.
  3. Pimavanserin Update https://finance.yahoo.com/news/acadia-pharmaceuticals-announces-pivotal-phase-103000599.html
  4. I thought Dr. Goadsby was excluding drug induced visual snow patients from his research studies.
  5. Floaters are not caused by HPPD? Caffeine, alcohol and cannabis dramatically increase my floaters or whatever the hell they are. I’ve noted heavy caffeine consumption induced closed eye visuals. Cannabis in particular gives me depersonalization that is reminiscent in severity of HPPD onset. Not sure what’s going on but whatever it is isn’t good at all.
  6. Dr. McConnell’s research study has been approved by Macquarie University, one of the most prestigious research institutions in the world. Kings College London is onboard along with Harvard and potentially, Johns Hopkins. Today marks a historic day for anyone, past, present or future regarding the recreational or medical use of psychedelics. more to come...
  7. Brilliant Job. Too bad 50 years have gone by with virtually no attention paid to this problem. Its criminal...
  8. Let us know how things went. I’d recommend a PET scan
  9. Will a low dose for pain affect my HPPD?
  10. You’re set of circumstances are not the same as everyone else..
  11. Anyone in the pro psychedelic research space looking for an excuse to blame the patient for getting HPPD. They have funding, access to facilities and scientist trying to usher psychedelics into the clinical setting who have little to no interest in HPPD. This will lend them an excuse to sweep the condition under the rug.
  12. I’m tired. I’m tired of trying, tired fighting and feeling so alone, tired of having to have put up with this bullshit for over 20 fucking years and quite frankly, because there has been virtually no progress in HPPD research despite my best efforts and that of others here. Nobody gives a fuck about us and there is no Calvary coming at least not in my lifetime. I suppose this is the ultimate act of acceptance; that this is how it is and as I get older and older, it’s just going to get worse. Fuck the scientific community, fuck the politicians who refuse to allocate funding for neurovisual disorders and a big fuck you to anyone having sold false hope which I suppose I’m guilty of doing albeit unintentionally. I truly thought I could hang on, live long enough till the day came where I could say I outlasted HPPD, I beat HPPD and I contributed in finding a cure for HPPD. That day won’t ever come. This is my final message on this group. I wish you all the best and I’m sorry I couldn’t do more.
  13. I’m on the verge of giving up. progress is slow and I’m getting no help from anybody.
  14. Predisposed to mood disorders is 100%? Im no scientist but that’s certainly going to play a major bias against those of us who did not have any predisposition to anything except bad luck...
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