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Hallucinogen Persisting Perception Disorder (HPPD) Support Forum

hope1

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hope1 last won the day on April 11

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About hope1

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  1. hope1

    Cured hppd 100% full recovery

    Your visuals are also completely gone?
  2. hope1

    Recommended Drs? Australia

    Dr. Harry McConnell Griffith University
  3. hope1

    Suicide

    I don't know about that. My impetus for starting the foundation was self preservation. Thought if I could beat one problem maybe I could limp through life with the other until a solution could be found. There's nothing great about me. Don't even think I'm a good person just a burden to my family.
  4. hope1

    Suicide

    I hate to say it but I’m strongly considering it as I am at a point where I am unable to take care of myself. The thing is HPPD didn’t bring me to this point asi found a way to live with it,to function,have friends, work, be in relationships even got married and had a kid but I was struck with a pelvic pain disorder about a decade ago which robbed me of my coping mechanisms like my ability to work out. It destroyed my marriage and has me living from hand to mouth all the while in pain, pain which is exacerbated my anxiety. My last ditch effort to control this problem will be with a spinal cord stimulator implant by the end of December. 2019 will either be the year I’ve renewed my lease on life or the year my account goes dark permanently. I just can’t handle the pain anymore. Honestly, between HPPD and pelvic pain, I’d settle for just HPPD. My life is hell.
  5. I have had an incredible amount of stress of late. The flashing is gone but initial onset of hppd yielded floaters or floater like visuals. The eye doctor detected them in my right eye but not my left so what is it I have going in in my left eye. Going on 22 years with hppd. I hate it.
  6. hope1

    Does keppra really work?

    Do consider yourself cured?
  7. There is crossover in symptoms beteeen hppd and Lyme
  8. hope1

    AGGRESIVE ADVOCACY

    So it's been six years and I've managed to get the non profit created and the first major study on hppd underway. We are looking at the beginning of 2019 to get the study going. In the interim I've worked rather intensely in raising awareness of hppd on social media. Word is getting around about this horrible condition especially among the pro psychedelic reseaarch community who sadly have shown the greatest resistance in accepting the validity of it and willingness to help. Our study may prompt them to rethink their position
  9. hope1

    HPPD Non Profit Status Update

    The non priofit created and our first study for hppd is under ethics board review. 20 volunteers will be needed with a diagnosed confirmed case of hppd. Stay tuned.
  10. I've had HPPD for roughly 22 years. My visuals which were primarily floaters, a little static in my left peripheral vision and after images stabilized for many years. Two day ago the floaters increases dramatically in my right eye as well as a new phenomenon; some kind of flashing that I see at night when I move my eyes quickly like when I'm driving. So dark environment coupled with fast reflexive eye movement causing a flash effect. Is this hppd or could it be something else?
  11. hope1

    Naltrexone

    Any update? Can you describe how you got HPPD and what your symptoms are? thanks
  12. hope1

    HPPD Non Profit Status Update

    Don’t know how to improve SEO. If anyone can help please let me know.
  13. hope1

    HPPD Non Profit Status Update

    Doing what I can to help this community
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