FDog

Did anyone manage to get hold of Flunarizine in the UK or get it prescribed?

So 6 months on since I posted this and my symptoms have got slightly worse. I have totally stopped taking MDMA's/Pills but I admit I have slipped and smoked weed a couple of times as it seems to help with the depression I have from suffering these visual issues. I know get persistent after images and the visual snow is a lot worse and I have real problems seeing at night. I have since been referred to a neurologists as I was experiencing tremors in my arms and legs so was tested (another MR scan of brain/neck) for MS and other possible neurological problems. all came back clear. I am trying to stay positive but I feel like I am reaching the end of my tether and sometimes feel like doing myself in rather than living with this constant torture. If my symptoms are mild I hate to think what it must be like for people with worse symptoms. Not sure how much more I can take of this, eye hospital are discharging me soon and all my GP will say is that if they do discharge me all she can do is refer me back again! My neuroloigist has since discharged me stating the tremor is caused by an "Essential Tremor" but offered no explanation to why I have these visual problems. Some times it gets to much to take and I really struggle to cope. My family try to support me but as some of you will know it is never enough and unless these people experience this to they will never know what it is like to live with this hell.

Hi, SO its been 6 months since I last posted and I am still in exactly the same position although my symptoms seem to have got slightly worse. I have stopped taking MDMA/Pills completely but have slipped and smoked weed on a few occassions since. Since I posted I have been referred to a Neurologist and was tested for things like MS and thankfully these all came back negative. The problem I have now is that I have reached a stage where my Eye Consultant at the Royal Eye Hospital in Manchester is saying there is nothing else they can do to help me as the things I am "experiencing" are not being caused by the eye. My GP is saying all she can do is refer me back to the Eye hospital and the merry-go round will start all over again. Can anyone recommend any Doctors or Specialists in the UK that deal with HPPD as everyone I have mentioned it to have never heard of it because "it is not a recognised condition". Or any resources I can print out and take to me next appointments? I am getting to the end of my tether with it all. I am severely depressed and sometimes think things would be better if I did myself in, living with this is killing me from the inside and it seems there is nothing to do to stop it

Hi all, I am 29 and live in the UK. I am not sure if I have HPPD but came across this site when searching out symptoms I have been suffering from for about 6 months now. I have slight double vision (worse when looking at light sources or back lit (e.g TV's etc)), visual snow, slight afterimages that burn away very quickly, halo's around light sources and some trails. I also have some floaters (crystal worms). My colour perception is fine and the only I anxiety I have is caused by me worrying about the symptoms. I used to to take ecstasy when I used to go clubbing about 5/6 years ago but was never a heavy user but took it quite regularly for about 18 months. I now only take it on very rare occasions (maybe 1 or 2 twice a year if that) and I have never done LSD/shrooms and only real hallucinogen I have taken is Salvia. I smoke cannabis 3 or 4 times a week, sometimes this makes my symptoms worse, other times I don't notice a difference. I started getting the symptoms I described above in February this year, starting with double vision and visual snow. As these progressed and other symptoms become prevalent I visited my GP and optician. The optician was worried I had optical neuritis (a symptom of MS) so I was referred to the eye hospital. I have been tested for everything possible to do with my eyes and neuro-opthalmology including an MRI scan of my orbits and brain and everything has come back as healthy. My GP made me have a full suite of blood tests to rule out things like thyroid diseases or diabetes and again these all came back normal. My blood pressure is fine as well. I have taken ecstacy since the symptoms occurred and they don't seem to have got any worse. My question is, do you think this could be HPPD? Is MDMA known to cause it if I have never taken other hallucinogens? The symptoms I have are driving me insane and have started to affect me mentally as I feel constantly down and worried that I am going to have to live with these for the rest of my life. Any help or advice from the community is greatly received as I feel at the end of my tether!

Hi all, I am 29 and live in the UK. I am not sure if I have HPPD but came across this site when searching out symptoms I have been suffering from for about 6 months now. I have slight double vision (worse when looking at light sources or back lit (e.g TV's etc)), visual snow, slight afterimages that burn away very quickly, halo's around light sources and some trails. I also have some floaters (crystal worms). My colour perception is fine and the only I anxiety I have is caused by me worrying about the symptoms. I used to to take ecstasy when I used to go clubbing about 5/6 years ago but was never a heavy user but took it quite regularly for about 18 months. I now only take it on very rare occasions (maybe 1 or 2 twice a year if that) and I have never done LSD/shrooms and only real hallucinogen I have taken is Salvia. I smoke cannabis 3 or 4 times a week, sometimes this makes my symptoms worse, other times I don't notice a difference. I started getting the symptoms I described above in February this year, starting with double vision and visual snow. As these progressed and other symptoms become prevalent I visited my GP and optician. The optician was worried I had optical neuritis (a symptom of MS) so I was referred to the eye hospital. I have been tested for everything possible to do with my eyes and neuro-opthalmology including an MRI scan of my orbits and brain and everything has come back as healthy. My GP made me have a full suite of blood tests to rule out things like thyroid diseases or diabetes and again these all came back normal. My blood pressure is fine as well. I have taken ecstacy since the symptoms occurred and they don't seem to have got any worse. My question is, do you think this could be HPPD? Is MDMA known to cause it if I have never taken other hallucinogens? The symptoms I have are driving me insane and have started to affect me mentally as I feel constantly down and worried that I am going to have to live with these for the rest of my life. Any help or advice from the community is greatly received as I feel at the end of my tether!