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Hallucinogen Persisting Perception Disorder (HPPD) Support Forum

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  1. 4 points
    Hey All! It's almost been two years now with HPPD, coming up on June 2nd. Man, it's been a hell of a fucking ride. I don't know where to start, I've grown so much since getting it when I was 16, I'm 18 now. I'm graduating from high school in 15 days. This site has been in my life less-so in the past year, but you guys really gave me the guidance I so needed as a confused 16-year-old. I just wanted to come on and say thank you for all the guidance and love. Just wanted to say my symptoms really have almost gone away, like 90% gone! It's just the fucking depersonalization and sadness I feel that stay with me regardless of the change I've gone through. Even though I feel this way, life is only going to get better from here! To another year! Andrew A.K.A Originally Lizard_1.mp4
  2. 3 points
    I was going to write an introduction, etc. I don't have the energy now, but I do think it is VERY important that people with HPPD learn the truth about the amount of information that has existed out in the academic literature and why it frankly pisses me off that some researchers see that since 1969 there has been a stable disorder of symptoms that account for our condition, but they ignore it or don't have the time or desire to invest in researching what came before. I have read over 100 articles for my undergraduate thesis, and luckily had access to all of the databases I needed. So, I was privileged . Ii want to share that with you. I want to do these in videos, but I haven't set that up yet. So, here is the first major paper on HPPD that literally covers every major point and gets it right: Copy of horowitz_flashbacks (1).pdfCopy of horowitz_flashbacks (1).pdf
  3. 3 points
    muh "MMS CuReS EvErYThiNg" Stop shilling for KNOWN TOXIC compound, I suggest anyone interested in MMS watch this. (inb4 dosage matters) To anyone reading this, If you want placebo effect, there are much better options out there. I know (from personal experience) that one gets desperate to find cures, but MMS definitely isn't what you are looking for.
  4. 3 points
    I drank for a number of years after I quit dosing. I wasn't out of control, but I was definitely drinking too much. I went in for a physical, and had a blood test. A few days later my doctor asked me to come in. She wanted to how much I was drinking. I was honest with her, after that conversation I quit for good. To be honest I was self medicating to deal with the anxiety caused by this disorder. Some people can manage their alcohol intake. Others, like me, can't. I had to find another way to manage my anxiety. With a young family, and a new career, I had too much to live for. I don't think having a few drinks is a terrible thing for those of us with hppd. Just my opinion. For me though, I think it would have made me a sick and unhappy soul.
  5. 3 points
    I think these MDMA/LSD therapy treatments need to be held to the same strict levels as medications, with a very clear set of potential side effects. Needs to be fully regulated
  6. 3 points
    I've been doing this every year for the last four years since I got HPPD on May 8, 2015. I can't put into words how much I've been through and how much my life has changed since that day. I know a lot of people here understand what it's like, but trying to explain this to your everyday normal person feels impossible. I just never imagined in a million years my life would turn out the way it has. I actually had a major setback a few months ago from a mold exposure where I basically had HPPD all over again except on a much smaller scale than the first time. Three months later I still feel disconnected from my body a bit (worsened streamers mostly), but it's to the point where I don't notice it hardly at all as long as I eat right and avoid inflammatory foods which always make it worse. Speaking of, I'm pretty convinced HPPD is some sort of autoimmune reaction in the brain. I know nobody has the answer but this so me makes the most sense after trying to piece the puzzle together for the last four years. All the more reason to eat healthy and exercise! I don't know that I'll ever totally overcome HPPD and return to completely normal vision. I've always had eye floaters and a bit of snow so my normal is probably always gonna have some HPPD symptoms. But overall I feel I'm getting close to that normal feeling again, whatever that is. I think in another two years or so I'll be pretty much done with HPPD as a chapter of my life. It's strange, I remember years ago when I first got HPPD I thought there'd be some kind of cure. I often fantasized about it and what I'd do if I was able to suddenly return to my old brain, personality and way of life. I thought I'd be the happiest person alive. But as it turns out HPPD fades extremely slow, almost to the point where you don't even notice it improving at all. The years just pass by, you keep checking in only to feel about the same as you did before, until a few years pass, then a few more and finally you realize you've made a ton of progress and you can maybe even see the light at the end of the tunnel. That's sorta how I feel now. I've improved enough to where I'm closer to being me again than I ever have in the last four years. I've had lots of other health struggles since getting HPPD that have also transformed my life, but HPPD is honestly the least of my worries at this point, which feels incredible to say. I'm hoping to do some work in the future with regards to bringing some attention to this disorder -- I just don't know what quite yet. I also need to get fully healthy before I do. In the meantime I'm gonna keep doing what I've been doing the last four years: eating healthy, exercise, work, spend time in nature, learn, love my friends and family and just try to take it one day at a time. That's the only thing you can do with this disease: just put one foot in front of the other.
  7. 3 points
    Congrats! I wish more people posted about when they get better. I think the vast majority of people with HPPD recover, if not fully then at least to a degree they can live with it and sustain a normal life. You're lucky to have been so young and have had such a malleable brain. You've got your whole life ahead of you now! Stay away from drugs and make the most of it!
  8. 3 points
    Hey everyone! I’ve had HPPD for a little under a year now (OD’d in early August), I’m pretty lucky considering that the drug I took was nBOME and HPPD is all that I have as a long term sideeffect. This was the second time I took this drug, and I didn’t take it knowing it was nBOME though I suspected it was. I’m an 18 year old and I’ve had HPPD since I was 17. After my first trip on this drug (1 tab) I experienced very minor HPPD, I had no noticeable personality changes and the only thing that really happened was an isolated feeling of tripping in my left thigh (very weird). It didn’t bug me at all and it was actually kind of pleasant to feel. It occurred fairly rarely, about only once or twice a week. My second trip was hell. I popped 3 tabs into my mouth, pulled up some anime, and waited in my bed at 8 pm for it to hit. It was extremely overwhelming for around 2 hours at the peak. I remember that I forgot how society worked, I forgot that real life was a thing and I just basically went crazy for a bit. Eventually, I hit a point where I made the sudden realization that after death, I would cease to exist. Coming to terms with that at the peak of my trip really fucked me up, and it took quite a bit of time to get over it. After my trip, I entered a state of psychosis. I couldn’t sleep and just felt like absolute shit. The trip not ending when it should have initiated the psychotic state and I ended up having to tell my parents that I just took drugs. I finally fell asleep after around 30 hours from when I initially took the drug. Recovery was greatly aided by an electrolyte drink my dad got from CVS. After that time I felt pretty weird, I didn’t enjoy anything for some reason and brain felt really numb. Food tasted off, I didn’t enjoy listening to music that I loved before and watching tv was boring. I also felt like my personality went kind of blank. To fix that, I watched a YouTube channel called JK news, the hosts on there are pretty vibrant and it helped stimulate human contact so I could get the hang of it again before talking to friends. slowly but surely my brain has reached a level where I have minor visual issues that are unnoticeable when I get enough sleep. I find that drinking caffeine makes my symptoms more pronounced as well, so I’ve cut off drinking energy drinks to handle school and instead push myself to stay up if I need to. I remember trying to smoke weed to see if it would mess with my brain back in December (4 months after OD) and sure enough it gave me heavy brain fog and I noticed changes in my personality. as of right now, I feel pretty alright. HPPD hasn’t been as much of a nuisance in my life except for the very rare moments when I’ll stay up til 2 am studying for a test and start tripping heavily. I’m still able to do high level work, my class load of organic chemistry, calculus 4, differential equations, etc in my senior year of high school isn’t impaired by my HPPD and I’ve found that it’s been a huge incentive for me to live my life in a healthier manner. I’ve been sober ever since I smoked weed in December. To anyone that’s suffering and thinks that things won’t get better, they will. Time helps heal the brain. I went from feeling like my brain was fried to succeeding in all my hard courses while maintaining a good social life. Of course, I’m still looking for a way to eliminate my restrictions (caffeine, sleep, etc.), but life is still fulfilling. HPPD has made me more aware of how my brain functions in that I analyze things with much more awareness, which has its pros and cons but it’s still an overall bonus. Don’t let this condition keep you from achieveing your goals and dreams. I’d like to become a member of this forum since you guys are the only other people I know of that suffer from this. I plan on going into medschool and would like to become a neurosurgeon, maybe neurologist down the road if I can’t do surgery while sleep deprived. I’m hoping to start research into HPPD and will do everything I can to find out what happened and how to fix it.
  9. 3 points
    Some if not most of you may know I started a non profit for HPPD and VS with the help of several people with HPPD. After many years of hard work we have a neuropsychiatrist, Dr. Harry McConnell, on board who has taken up the mantle from Dr. Abraham and has designed the only fully comprehensive research study on HPPD. It will cover genetics, autoimmunity and utilize several means of neuroimaging. I’m encouraging all of you to get your family, friends even yourselves to donate toward this study because if something remarkable is found, it will change everything for us as a patient community. http://www.neurogroup.org/donate/
  10. 3 points
    MadDoc has covered it well there. the majority of people who sign up on here tend to stop posting after a couple of months, which suggests that most cases of hppd heal after a while (this is backed up with anecdotal evidence from speaking to people via PM here). Try not to stress about it for now. I wouldn't even read up too much about it. Just eat well, excercise, take your mind off it any way you can. This does add to my fear about the sudden gold rush towards mdma/lsd as a legitimate therapeutic treatment though.
  11. 3 points
    If you think this sounds like a dream come true, you are wildly misinformed. It is not like tripping all the time.. You have no feelings of joy, or insight. Just all the very ugly aspects. Anyone saying otherwise has some very mild form is this. Imagine your strongest trip ever, now remember that feeling when you've come down but you are still fucked up (and remove any feelings of relief that you made it through to the other side)... You're disphoric, depressed, anxious, nervous, paranoid, your mind is starting to make normal thoughts, but something is still very off, your vision is all messed up, but without the joy and insight, it's just an ugly mess. Don't underestimate this illness. I'd literally rather have cancer, or have my arms cut off.
  12. 3 points
    I too used to take ridiculous doses but my drug was acid. Why did I do it? I just wanted to see what would happen I guess. Go deeper. We were also under the false impression that it was harmless. The handful of times I've smoked weed since I stopped dosing produced panic attacks and a scary psychedelic effect. My brain felt like it was being run by some alien software. Horrid! I think it's great that you reached out on this forum. You're not alone, there's a whole tribe of us who are dealing with this. Understand, there are people in this forum who life happy and productive lives. I've had this disorder my entire adult life but existence has been sweet. Welcome!
  13. 3 points
    This is quite funny really: "Can i still smoke weed?" "well, staying totally sober is the best bet" "What about spice?" "well, staying totally sober is the best bet, no more drugs of any kind" "Just some coke then?"
  14. 3 points
    Keep on fighting mate, I know how hard it is, but you never know what is around the corner. What is your current situation, are you on any meds? PM me if you need anything, even just to rant.
  15. 2 points
    Hello everyone This is the first time I write on the forum, but I have been visiting you guys for about a year now. I have had Hppd for that same amount of time. I am not going to write anything about myself nor my symptoms, except it might be important to mention that i have meditated for more than half my life, in a very serious manner. I would like to share something, since i am deeply engaged in eradicating Hppd from my system or at least from the neuralpathways that my consciousness observes. Psychedelics have in many experiments shown to increase neuroplasticity. Always portrayed very positively and for good reason, we don't generally have much plasticity. But negative plasticity can also happen..This is a qoute from an article "Successive dosing and increasing levels of tolerance implies stress-based neuroplasticity. In the case of hallucinogen persisting perception disorder (HPPD), the subject retains some of the visual effects of hallucinogens long after the drug should have metabolized;5 persisting reactions to neural stress imply neuroplasticity. " This resonates so much with me. About 4 months into Hppd i started to meditate daily for 1 hour, later making it 2. In the beginning it was tougher than ever before...It was like my mind was stuck in a loop and couldn'tfind its way back to meditation. I have been doing intense retreats since the age of 11, so it should have been fairly easy. But this was more painful than ever. Anyhow i pressed on, no matter how much it hurt, because it hurt a lot when i meditated. My head hurt so much that 1 time i nearly passed out. When practicing zazen we sit with open eyes, and the visuals would become extremely intense to the point of full on tripping again. So I pressed on day after day, and month after month. I could feel how my mind was slowly but surely breaking free from the evil spiral of Hppd. After some months the visuals when meditating died down, and the pain in the head became more bearable. I believe it will take quite a while consciousness to never dig into the dark channels of hppd again, maybe about 5 years. But that is fine. I believe that Hppd can be reversed with neuroplasticity. I will practice things that improve my neuroplasticity consistently and forcefully. Drawing, writing, dancing, learning a new language, training/yoga, daily meditation/zazen, proper sleep, playing a new instrument and so on. Good luck to all of you!
  16. 2 points
    it's very funny because i remember long time ago i saw on a french channel a tv documentary about shamens , and he was called to cure a girl that was "stuck in the spirit world", ...seemed like hppd to me how they described it. The shamen came and used Sage to cure her, but i remember he burned it and she has to breath the fumes. What a coïncidence.
  17. 2 points
    Understand, I'm not knocking the use of medications. Some people in this forum have had success with them. Why don't I take any? My symptoms aren't that bad at this stage in my life. I still have visuals, but I can live with that. I've had this disorder for over four decades and I've learned to adapt. Medications can have side effects and I'd prefer not to deal with that. In general, I'd prefer not to introduce any medications into my body unless I need them to live (if I got cancer for example). I've avoided blood pressure and lipid lowering meds through natural practices and life style changes. At this stage of my life, I'm happy and active. I'm not going to take anything that could possibly derail that. This is my path. I'm not suggesting that it's a better approach than anyone else's.
  18. 2 points
    Jay, thank you so much for your interest and being willing to film yourself! That is a great start for the documentary and I really appreciate you responding. In terms of other types of interview, I'm also seeking out those who may be comfortable showing their face. The documentary really all depends on how many people are willing to share their story and the way in which they want to share it. One of the things that I'm best at is something called rotoscoping, which is tracing over each frame of a video so that it produces a realistic animation (this was the method in the music video Take on Me). If I were taking the rotoscoping approach, I could trace everything except for the details of the face. So far, I've only had one person message me who is interested, but I really hope that people can see how much this documentary could help the public better understand and empathize with what we go through day to day. I'm guessing people may not be responding because of the anonymity issue, but even if people are willing to share their writing and read over it, I could change the pitch of their voice and make an animation that can visually represent what they are saying. Is there anyway to pin this post so more people see it? I really think this documentary could end up making a difference in terms of awareness and empathy towards people with HPPD. If certain people really respond to it, more research could be done.
  19. 2 points
    Hi guys. Im apparently new to the forum, so i want to start by explaining my story and how and why i got here. Im 16 years old and as you can imagine, people between that age aren't very concerned about their health or anything in general. Even though i was a kid who liked exercising or working out i was also very curious on trying drugs like weed . About a year ago, my mom got cancer but i couldn't feel anything, like i had no fear that she was going to die(i hadnt tried any drug in my life, not even tobacco or alcohol), feeling like im some kind of numb, not having empathy (which scared me because i was that kid who would be concerned about anything related to his family.) A couple months later, i started feeling more lost. I had lost the days and i didnt care at all . I was depressed but i didnt want to realize it. I couldn't accept the fact that something was wrong about my mental health at that point. After my vacation between December and January, i came back, again kinda numb. School was closed for Christmas and would open soon. As school opened, my friend asked me if i want to smoke some weed with his friends. Not even thinking about it, i answered, why not? The next couple of weeks i would smoke about 2-3 bong hits a week(nothing more). And yet i wasnt feeling high(maybe because of the dosage) . So one day i made a stupid desicion to get as high as possible(at that point i hadnt get a single high feeling in my life, not even from the bong hits). I started smoking and taking bong hits. I ate nothing. Fifteen minutes later i was kinda confused. I would be so stupid that i couldn't even think of simple things. I started to realize that i was high and it felt cool, for the first minutes. 2 minutes later i started feeling like i was in a boat, like i was lost and dizzy. Suddenly, my vision started to have some wierd black dots everywhere . I had a blackout and a bad panic attack . The high was so strong that i couldn't control or see anything for a couple of seconds(idk if that sounds a bit unrealistic but im trying to explain everything as it went through). After that seconds, i took control over my body, but it was like i was in a lucid dream. Like i was a camera, like i was observing the world through the tiniest tv screen . I felt my body strange. I would touch things and feel them after 2 to 3 seconds . I was so confused and anxious . My friends had freaked out because nothing similar didnt happen to them ever .i lost my mind, i got paranoid that this thing would last forever, like i was going to live the rest of my life like this. 2 hours later i wasn't high no more, but something felt strange. I went to sleep and i remember being between sleep and awake. I was so lost that night. I was having a dream of getting paranoid while i was also partly awake. The morning came and yet i was lost. I had black dots around my visual field, I couldn't see the walls clearly, like if they had some light everywhere in them. Moving my eyes from a shiny direction to another, i would see the previous image blurry for a couple of seconds. All that combined scared the shit out of me making me more paranoid about everything. I started feel like i was fake, everything seemed like a dream, my body felt like it wasnt mine. I got home after school and i remember having a nap caude i was to tired. Again, i couldn't sleep, i was somewhere between sleep and awake, lost. I woke up feeling like i was a stranger to everything. I had delay on touching things like when i was high. Im not gonna lie, i thought i was in a dream again. That night i explained my parents everything and they were very helpful. The next days my symptoms got worse. My anxiety increased and i had some terrible panic attacks. I would see those black dots everywhere ( when i would wake up in the morning they were moving fast as hell), and a little tinnitus. After a couple of days i would have that delay over the things i touch for some minutes and that was kinda annoying and unexplainable to me . I started observing around and seeing some small halos around people. The first couple of months was literally HELL. Suicide was the only option, i would tell to myself. Everyday i was overanalyzing everything. My walk, the way i talk, how am i able to see humans everyday without observing everything they do and all that insane stuff. It became i habit. Every single day 24/7 checking in to see whats wrong , if im going to be like this for the rest of my life. I went to therapists but they didnt help. They wouldn't diagnose anything. I had an mri and still nothing. I was feeling so unaware of everything. Being in autopilot. I also started homeopathy but it didnt help. My visual symptoms stayed the same 24/7 . The only time the were worse , it was when i was waking up(stayed for 10-15 minutes and then back to normal). 2 months got by without me doing nothing except of overanalyzing every single detail of me, my movements everything.it was that time that i couldn't take it anymore. I started running once a week . It did help with my anxiety (not my visual symptoms though. They were the same all the time.) I also started to taking cold showers. Amazing . Simply amazing for my mental state. It was so difficult at first but i tried and trying my best not to care about jt . I would gonto school and starting to get mote sociable,although feeling lost cause of my vision, but i tried not to care at all(it helped). Now im 4 months after that terrible experience and im way better with the dpdr thing. The only thing that remains is the visual symptoms and the feeling that im in a moving boat. They scare me sometimes causing me panic attacks. I hope that time will heal me and all that people that feeling hopeless. Remember guys, you are not hopeless. You will never be. I was hopeless for months and i did nothing. I AM BETTER. even though my vs and all that hppd symptoms are still there im in a way better mental state than i was. If someone is feeling hopeless or wants to talk, feel free to hit my dm anytime. That was my story . Hope u people found ot helpful. It surely release some kind of a tension to me! Stay safe
  20. 2 points
    This is a good list. I am setting up the space where people with HPPD, their allies or medical professionals can use to look up information about the big questions: What pharmacological treatments have evidenced based positive results? What medications are specifically CONTRAINDICATED for individuals with HPPD? The page would have 30 or so medications I would imagine. It could be broken down into a Professional and a Consumer Page. I think it would be nice if a more advanced write up with citations were included as a Continuing Medication Education "type" certification, which a licensed medical professional can take in order to be listed on the World Map with their information as a doctor that at minimum has familiarity with the most important concepts.| The goal of the web site is to create the most value and impact with the little money that we have. If individuals with HPPD go to one of these doctors, and the doctor does not prescribe risperidone as a first line of defense because the web site details a very outspoken research and patient community about why this class of anti-psychotics will produce an increase in symptoms. Imagine saving 5 people from having to experience this awful period, which I have known some people to have been hospitalized and placed on anti-psychotics, and as the symptoms got worse they prescribed more antipsychotics. It was about 6 months or maybe a year later, the medication was stopped and the symptoms were dramatically improved. This is where everyone can have an impact.
  21. 2 points
    June 11, 2019 SUBJ: Faces of HPPD Survey/Research Published – RESULTS! Dear HPPD Online Community: As a mom with a grown son with HPPD, I was so fortunate to come across this forum several years ago for information and support. David Kozin, who runs this board, is an amazing man to have created and maintained this website and kept up his work/studies over the years – all the while suffering with HPPD. I would like to thank him for this platform, and well as thank those of you who participated in the survey that I launched four years ago to collect data about individuals who had received an official diagnosis of the disorder. Fast forward…. Here it is June 2019. Long overdue for the published report, however, I lingered – always hoping to gain a larger sample of subjects. I am fortunate to have a PhD in psychology, experience in research, and a heart to try to make a difference. Instead of publishing a book, it only made sense to get the results in the hands of the scientists and medical professionals through scientific writing. I am so happy to tell you… the peer-reviewed medical journal, Addictive Disorders & Their Treatment, published by Wolters Kluwer publishers, has reviewed and accepted my manuscript for publication in an upcoming issue. Last week the article completed rounds of publication editing and formatting. The article is posted at their website for advance release. Lewis, DM, Faces of HPPD: Hallucinogen Persisting Perception Disorder Patient Survey Results and a Descriptive Analysis of Patient Demographics, Medical Background, Drug Use History, Symptoms, and Treatments. Addictive Disorders and their Treatments. Forthcoming 2019. The link is here: https://journals.lww.com/addictiondisorders/Abstract/publishahead/FACES_OF_HPPD__Hallucinogen_Persisting_Perception.99733.aspx (NOTE: This direct link will change probably in a month or two when the article is given a print-issue date – right now, it is advance copy, undated. In the future, you can search the article at https://journals.lww.com/addictiondisorders/ . While the article is available for immediate download, many of you know that publishers charge money for copy downloads (this one is $49), and authors cannot give away their copy. This, I know, is not a good thing for some within the community who do not have the funds. However (here’s the good news 😉), I contacted the publisher and obtained permission to publish a summary of the results (the important data!) and I created an infographic that provides you all the results. I am including it here as a .pdf file, attached. It’s reader-friendly, and I hope it provides insight. I want to mention some findings that particularly concern me: the high rate of suicide ideation (among other co-morbid psychological/psychiatric symptoms reported), and the significant number of individuals who reported being unable to work due to HPPD. I feel strongly that HPPD needs recognition as potentially disabling – and I believe there are some individuals who may need government assistance (eg, Social Security Disability benefits). My future work leads me in the direction of carving a path for HPPD as a qualifying mental disorder for eligibility for assistance. I will keep you posted on that. Again, thank you so very much for those who partook in the survey. My best wishes to each of you for good health and peace of mind, Doreen M. Lewis, PhD https://www.facesofhppd.com https://www.vellichorresearch.com Faces of HPPD Infographic - LEWIS.pdf
  22. 2 points
    RE: Depression and Ketamine Infusion Therapy - WARNING! I wanted to share IMPORTANT information about a trendy treatment for severe depression/suicidality. That is, the use of ketamine IV therapy. It's expensive and there are news reports that it is a miracle for serious depression ( there's alot of stuff on youtube.com). My son had two rounds of Ketamine Infusion Therapy, and it seemed to work - we were (initially) quite impressed with the effects. Then I found a case report written by Dr. Abraham last year that shows the ketamine IV therapy CAUSED HPPD in an individual! If it causes HPPD, then it might exacerbate the HPPD, too. Please see the article... I am providing the online link, below, and attaching a PDF copy here. Salzman, Carl & David Abraham, Henry. (2017). Hallucinogen Persisting Perception Disorder Following Therapeutic Ketamine: A Case Report. Journal of Alcoholism & Drug Dependence. 05. 10.4172/2329-6488.1000281. Link: https://www.omicsonline.org/open-access/hallucinogen-persisting-perception-disorder-following-therapeutic-ketamine-a-case-report-2329-6488-1000281-93968.html PDF copy attached. Hope this information helps! Doreen Lewis, PhD hallucinogen-persisting-perception-disorder-following-therapeuticketamine-a-case-report-2329-6488-1000281 (3).pdf
  23. 2 points
    I don't have visual snow, never have. I have visuals to beat the band, but no snow. Categories, taxonomies, labels, etc. never quite fit in the real world. I think hppd a spectrum disorder as varied as the people who have it.
  24. 2 points
    I tried homeopathy and definitely felt something, although it could have just been placebo. If you think it could help and won't make your HPPD worse and are willing to take the chance then you should give it a shot. The homeopathic medicine I took was cannibis infused and I didn't experience any averse side effects. I don't think there's much risk but I also don't think you're gonna "cure" yourself. HPPD isn't really something that can be instantly reversed.
  25. 2 points
    Hello, I’m sorry to hear about all you have gone through; life can be very difficult and each of us have our own battles. From my experience if we focus on our problems they only get bigger. In the age of the internet this can have terrible results because there is an endless stream of information available that can make us feel worse about ourselves. My advice to you is to try and not focus on your condition or the troubles from your past. Therapy can be very good with the right person to address what’s troubling you. Meditation is also an incredible tool that is free and can be very effective for treating depression, anxiety and other issues. The important thing with meditating is consistency; it’s like working out. You will not reap the benefits unless you put in the time and energy. It also is a subtle business that comes only after a few weeks of practice but then eventually one day you realize everything is okay and as it should be. For mediation it’s always worth investing in some course to help learn the basic techniques and ask all of your questions. These are typically pretty cheap and you only really need to attend a few classes. Anyway it sounds like you’re on the right path. Remember the ‘here and now’ is all we can influence and all that matters. It’s so easy to forget that. Keep pushing forward and believe things will get better and they will. Keep seeking peace and you will find it. I’ve messed up so many times but those low points provide lessons. Also hope is essential to keeping a good additude. Take care and keep posting on this forum. Nick
  26. 2 points
    You said you don't have an outlet, maybe you can create one. Find a healthy distraction from what's going on. I am filled with anxiety as well and I know it can be absolutely debilitating; I also have OCD. What works for me is keeping busy. I go to the gym a lot, I play chess, I read, meditate and I go for long walks. Find something that brings you joy and can take your mind off of the current situation. Keep coming back to these forums, when you share your problems with others I have found that it has the effect of making them seem smaller. A lot of anxiety I think is rooted in our perception of the situation, and often times that perception isn't even logical and therefore not sound. Anyway hang in there, believe that it will get better and it will. Take Care, Nick
  27. 2 points
    Thanks for sharing.
  28. 2 points
    Thank you for posting. The fact that your symptoms are improving is great news! Keep posting to let people know what's working for you. It might help someone else in the future.
  29. 2 points
    okay since February my HPPD symptoms have slowly went down i avoided all types of drugs especially when sick i would only take ibuprofen and pray that it isn’t anything worse than a cold. I’ve tried to eat healthy but it not really good at that. Since overdosing on THC i’ve ended up going through a spiritual awakening so i’ve been very occupied and forgot all about my HPPD until night time when i dim my lights. I just now started exercising and i see my symptoms getting a bit worse but since I read some of the past topics on here I guess it will get better and not worst i’ll see what happens but other that i only see a lot of static , ghost images , shadows and splashes of color. Anyways i just decided to post my update on my HPPD symptoms.
  30. 2 points
    The University of Sussex, UK, is recruiting participants aged 18 or over to complete an online questionnaire relating to the visual symptoms associated with visual snow syndrome and hallucinogen persisting perception disorder (HPPD). To participate you should experience the visual symptoms associated with visual snow syndrome and/or HPPD. The questionnaire will take approximately one to two hours to complete, depending on the number of questions you answer and the detail of your responses. It will include answering some questions about what visual symptoms you experience alongside on-screen illustrations of those visual symptoms. You will also be asked about how your visual symptoms impact your life. Other questions include those which ask about some aspects of your medical history. The questionnaire must be completed either on a laptop computer, a desktop computer or an iPad. To complete the questionnaire, please visit: https://universityofsussex.eu.qualtrics.com/jfe/form/SV_blrsONUZAQ19BGZ Some extras: - You can complete the questionnaire in more than one sitting so long as you have cookies enabled and return to the same browser on the same computer. Your progress is automatically saved when you continue to a new page within the questionnaire. Your partial responses are saved for one week. - We are carrying out ongoing research on visual snow syndrome and hallucinogen persisting perception disorder at the University of Sussex. This is the first of a series of questionnaires which will be released over the coming months. It’s really important for our research that we receive a high number of responses, and so I would encourage you to complete this questionnaire if you are able to!
  31. 2 points
    Thanks MadDoc, yeah Im still in a rough state generally but I find that my symptoms will peak for days or a couple weeks and then tend to stabilize (tho as of writing they have yet to return to my baseline) Unfortunately I can never tell (and I don’t think any of us can) if when I feel a bit better that’s because my symptoms did actually lower in intensity or if I just got used to it. What stuff sets you off and how long do these reactions tend to last? thanks!
  32. 2 points
    Thanks Jay I really didn’t think I was going to cope well at my cousins’ and I did much better than I thought even with the increase—I think my subconscious has influenced my symptoms a lot as of late and possibly the little cold I am just about through with. Otherwise I don’t have much of an explanation for why my symptoms would be worse all of the sudden as I did not take anything. Subconscious stress, anxiety and being out of my daily routine (and I’m way more isolated so I am not forced to be “normal” out in the world etc.) I would imagine is the culprit here. Right now distraction is all I can do until I make my next move and unfortunately the dp at its worst cuts me off significantly from former interests/nostalgia to where it’s hard to get into anything but “faking it” and doing it anyway has always helped even just a little so I’m back to it. hope your collarbone’s healing up thanks as always
  33. 2 points
    The 1080HD version is available at resolution of my monitor. CLICK to SUBSCRIBE! I just recorded my screen and started showing some behind the scenes. I have a real camera, I can make audio but right now I wanted to just make something that shows how much research exists and was published on this topic and how can a researcher miss these papesr if I found them for my undergraduate thesis. Well, there is a self-biasing, and I have heard from very prominent researchers in the hallucinogenic research community that were surprised by the overwhelming amount of content and the quality of the content. What is interesting to me, is when new research about HPPD is published and none of this history is included. It is almost as if the only research on the topic was selected by the researcher to validate their point. Well, I read the papers. I paid $35 for a lot, and admittedly thank you to my two sponsors and the MANY sponsors over the years that kept and still keep the web site up. I have finished what I needed to do before I could dedicate my life to HPPD, and so I invite you to a 40 minute video of me just clicking around at some of my links, showing the actual papers, using my mouse as my voice and pointing out passages that are tremendously interesting and it blows my already altered mind on how researchers are unable to use research services. PLEASE GO TO MY CHANNEL AND SUBSCRIBE. I have a place donated for me to live in my area to allow me to dedicate a day's work to HPPD research, web development and my personal withdrawal to lower my dose of klonopin. I will record this. I am sure it will horrify/entertain you or perhaps you can put a face to the web site and past comments and I will be honest about what is happening to me. This video is a FULL image of my desktop while I navigate through files. So, as I said you will see some personal things (nothing obscene, but I have no problem with anything you will see. I am not adding music, so you can feel the freedom to choose to look at different sections at your leisure. Just skip around. If you find something that you want to point out, then highlight and comment it on the actual channel. I NEED 1,000 SUBSCRIBERS. I have 32. If you want videos that will break down this information and include updates and opportunities to work together, then subscribe. Subscribers are hidden (unless you opt to let it be show. It also is not a channel that says anything about HPPD. It is my channel, and will have topics of perception. This video will contain simulators that you have never seen. I will show different types of visual snow. I will show you a sample of many of the papers that I have in my library. You will see articles from 1969 on HPPD that describe the symptoms in almost the exact way we do today. I will show a military research study. I will include related studies, hints at multiple biophysics studies I designed. You will see some links and bookmarks that I am not bothered by, so you have no "gotcha moments" in the comments. Papers covering all aspects of this disorder. Enjoy, fast forward, comment on a section time and ask a question. I will have more videos. I am so uplifted to see the positive videos about HPPD from individuals with this disorder, and also I am excited to see the positive momentum of the Visual Snow Community. Similarly, I am glad the work we did with Depersonalization and Derealization had an impact. What I did not want to do is tell you, "HPPD is this or that... We only have this much evidence..." or other surface level washing of the topic. This is my personal desktop. (Yes, I like writing music and flight simulators) 😜 This is what I have in my online drives. This is what exists. This does not include the many gigabytes of data from the hppdonline.com web site, but that is protected. Please subscribe. I have this checkmark, and it enables me at 1,000 subscribers to do much more with my channel. Typically, 100,000 subscribers require a verified account or celebrity. I guess having 1000's of pages with you name on it because of HPPDonline.com pages and publishing research or paying off my Google rep (jk) earned me this badge. It is time to get REAL serious about HPPD research. I have taken my vacation. I have read much of the new theories on HPPDOnline.com and I am so excited we are on the same page without talking to each other. We are looking farther than the GABA inhibitory system with the 5ht inputs and GABA outputs and looking at activation cells and the role of Dopamine. Functional structures and pharmacological observations. The first paper I was a primary researcher and author (and programmer and CEO of the non-profit that paid to host the research for Mount Sinai School of Medicine) has nearly 100 citations. It is a landmark characterization of the disorder and contributed to validation DPD/DR for the DSM-5. I have this designed for HPPD. You saw bits of it and the many revisions on my drive. I have updated more and I have completely re-hauled it. I will need help from the community. I am awful at raising money. I feel guilty for asking for money, even if that money is what will make this work. Unlike what many may believe, I would be homeless if it were not for my family's home. I have been a caretaker for a few years, and dealing with my ADHD symptoms that have been disabling for so many years. I am ready now. We are all definitely ready. I have never thought I would see the day there is TOO much information about HPPD on the Internet, but that much of it is garbage. I promised I would dedicate my life to this, and this is where I feel most energized. CLICK SUBSCRIBE! - David S. Kozin
  34. 2 points
    Just as Jay mentioned, no one can answer those questions. We don't understand the underlying mechanism of HPPD or psychedelics for that matter. If you do your research you'll come across some explanation of LSD or Psilocybin 'mimicking' the role of serotonin in your brain but that's still speculation and probably not the whole picture. Maybe we will fully understand them someday but probably not before we have a better grasp on the brain. The brain is certainly still a mystery. The moral here being when dealing with these substances you never know what you're going to get. And this varies wildly from person to person. It all comes down to what you want out of life; what are your goals, what makes you happy. I can almost guarantee you that drugs will not bring happiness, they do not bring stability and they typically do not promote personal or spiritual growth. I used to be convinced that LSD and Psilocybin were the answer to 'finding myself', uncovering my spirituality and transitioning to a higher level of thinking. This lead me to binging on them (15 hits of acid in one night ) and HPPD and substantial regression which almost cost me my marriage and opportunities that were in front of me. Not to mention my personality. I think the most debilitating aspect of HPPD is the loss of self, the visuals are just distracting and of course bring guilt because they are a constant reminder that we fucked up. But knowing you used to be someone else and not knowing how to go get that back is very strange and depressing. I'm not trying to preach to you. We all have to make our own decisions but there are some things that cannot be undone or will take years to undo. The mystery of the mind is also in how resilient it can be if you give it the proper conditions to recover. So there is always hope! But if you have HPPD now and continue to explore the trippy life it will likely get worse. This is just from experience and the reports of others. The longer you let it get worse the longer it takes to recover and the more difficult it will be. Also on the subject of people dosing more than you: do you really know that they are okay? People are great at putting on a front (including myself) to escape the possibility that things really are not going well. I did just that. Not to say that there aren't people who can responsibly use these substances without problem but what's important is if you can. You know in your heart whether it's time to stop or not. The fact that you're here and seeking help is a great indication that you're mature and care about your life. Think long and hard about whether drugs are worth your happiness. Again not trying to preach but this is something I had to deal with and it's not an easy question. It can become an identity issue, especially when most of your friends are still exploring. You have friends here, please continue to reach out. Life is beautiful, sometimes we just have to step back and realize that. Take care and please keep coming back!
  35. 2 points
    No one can answer those questions.. You might be ok, you might completely ruin your life. It sounds like you got incredibly lucky to come through the other end and have a form of hppd that can be managed. I'd quit while you are ahead. I was in your situation and carried on pushing my luck and got totally fucked over and have had life altering, severe hppd for 24 years now. You say that quitting drugs would suck.... What sucks FAR more is not being able to have 1 moment of the rest of your life with any kind of peace or true happiness. What sucks is not being able to maintain eye contact with your wife as her face swirls and distorts... Or not being able to chat to your parents without crippling anxiety. Or going to a job interview feeling like you are on acid. You'll only realise how amazing peaceful sobriety is when it is no long an option.
  36. 2 points
    Twelve days isn't much time. You may just be experiencing the remnants of your recent experience. I'm not a doctor or a medical professional. That being said, in my opinion, you're going to be fine because your symptoms sound mild. I realize it may not feel that way because it's happening to you, and I'm not trying to minimize what you're going through. Hppd can be debilitating and it sounds like you're doing pretty well. Stay clear of psychedelics and cannabis. Try not to put too much focus on the symptoms you're experiencing. Instead, focus on your daily tasks, challenges, and fun. Take care of yourself, and hang in there.
  37. 2 points
    As we all know psychedelics work through the 5HT-2A receptor, and one of the features of this is that they disrupt signal coupling in the thalamocortical feedback pathways which basically means it desyncs multisensory data input and stops the ability to discriminate and gate incoming signal flow to the cortex. This destabilization leads to "subtle flickering or pulsing of light intensity; geometric grids and matrices; the perception of halos or auras around light sources; increased luminosity of reflective objects; the softening of line and texture resolution; and the inability to hold sharp focal contrast between foreground and background in depth perception." So it's possible that psychedelics lead to persisting destabilization of this feedback loop giving us some of the symptoms listed here additionally this feedback pathway fills in our peripheral vision and even if it's "the rate of multisensory frame saturation or neutralization was slowed or interrupted by even a few milliseconds, incoming sensation would begin to layer over itself with increasing levels of smoothing, liquidity, and phantom frame echo decaying in the wake of sensation." This may explain why people with HPPD see things move in their peripheral, additionally the fact that psychedelics "stop the ability to discriminate and gate incoming signal flow" might explain visual snow since it's basically the inability to filter out what we'd normally see in our imperfect vision. I have no degree in neuroscience or in pharmacology I am merely making assumptions based on the article I'm reading, If there are any faults in my theories please let me know I would like to improve my knowledge and understanding of pharmacology. Article I'm referencing http://psychedelic-information-theory.com/5HT2A-Agonism-and-Multisensory-Binding
  38. 2 points
    One more important fact is MORE PSYCHEDELICS WILL MAKE IT WORSE! This makes sense and most people here will tell you this. I'm not trying to tell you what to do but you have to be careful. I love tripping but I have lost my right to because I overdid it and that's okay. Trust me on this one; you want to stay away from mushrooms, DMT and LSD. I made the mistake of recovering pretty much completely then years later I started taking mushrooms again and it brought back my old symptoms. Anyway good luck and take care!
  39. 2 points
    As you read through this site you will likely hear similar suggestions from people who have been dealing with this disorder. First off, from what I have experienced and read visuals are not a reflection of 'brain damage' they are likely some optical disorder that we have yet to pinpoint; a sensitivity to light or whatever you want to call it. However the cognitive impairment that I have experienced I am almost certain that it is due to anxiety. Anxiety brought on by the visuals and the regret and guilt they bring. Anxiety is a powerful driver that can be debilitating. So my advice to you is to cut back on the weed (trust me it's only going to exacerbate the symptoms) and make yourself busy. Find a hobby that you can throw yourself into, could be school, instrument, anything healthy. Get plenty of sleep, eat well and exercise regularly. All of these things will reduce anxiety. If the visuals don't go away immediately it's okay, you have to give it time. The important thing is to not dwell on it because there's nothing you can do but try and get better, you can't undo the past. Plus you can take solace in the fact that you're very young and from what I can tell mature since you've identified the problem early. I myself took significant doses of LSD around your age for extended periods and didn't realize I had HPPD for a few years. But once identified I followed the above recipe and eventually they diminished greatly. Please reach out if you have any questions, concerns or just want to chat. Take care and be well.
  40. 2 points
    When I was dosing, I used to dose frequently. Sometimes for weeks at a time. I also never really had a bad trip. You say that dosing so often over a short period of time was irresponsible. Learn from what you've experienced and don't beat yourself up. The important thing is you've learned that, for you, perhaps lsd isn't doing you any favors. As for your experience with cannabis, it's very common. I used to smoke all day every day. Quite suddenly it made me feel dosed, after that I started getting panic attacks. I had to quit all together. I took a pharmaceutical free approach to dealing with this disorder. Then again, I discovered I had a problem back in the 70s and you just couldn't talk to a doctor about using psychedelics. The one time I did the doctor basically told me I got what I deserved. As others have mentioned, take some time off from using cannabis. Let your mind level out and assess how you're doing. Hang in there and take care of yourself.
  41. 2 points
    I used drugs during the 1970s. There were two messages. The message from the older generation was drugs would kill you or you would end up in jail. The message from the younger generation was that they were basically harmless. Both viewpoints were ill informed. Regarding productive lives, I'm nobody special. Just a regular Bozo making his way through "this" (whatever this is). I contracted hppd after taking psychedelics for six years. I managed to get through college, got married, raised two amazing kids (adults now), and have a profession that I enjoy. As I said, I'm nobody special but I never gave up. I picked goals and went after them one step at a time. Sometimes tiny little steps. All I'm saying is that it's possible to have a productive and happy life. Never give up, take small steps toward what you want to do do and who you want to be.
  42. 2 points
    Hi Harry,.. very sorry to her about your you mum dying, must be heart breaking. Stress is a huge factor in HPPD and grief is the worst stress you can get. As the grief slowly passes, the stress will too, which will help your dp/dr. I would chat to your business partner about having some time off, or at least lessen your hours. Dealing with your grief and mental health is the most important thing now. I'm sure something can be arranged, but you need to begin to talk about things with people near and dear to you (even if you don't mention hppd specifically). Are you trying any medication?
  43. 2 points
    Hey man! Greetings! First off, i know this is a scary and traumatic experience and I am very sorry you are having to live with this disease. It is debilitating but i think we can all agree there are a few cool things about it. Maybe. Sometimes. Lol. So, I developed my HPPD after three months of tripping nearly three times a week and then going off to Amsterdam and doing the “strongest shrooms on the planet”— this is what the shop adversities in March of 2018. It has now been almost a year and i am WORLDS bettter. Which is lucky, yes, but not necessarily uncommon so hold onto to HOPE and make sure to TRUST the universe. The only thing that will heal you and help you is quitting drugs completely. I know, this sounds terrible, i get it, I am addicted to many different substances, sadly. Anyway, i do not want to speak so much on myself and rather, more about what you can do to help yourself: -Eat healthy. Fresh fruit, chicken, salmon, smoothies, kale chips and lots of water were my main focuses when it came to food. And still are. I could barely eat the first two months and would have to force food down my throat. But make sure to eat. -Workout. It does not have to be something super strenuous or anything. Go for a stroll in the park or walk your dog or go swimming. -STOP SMOKING WEED. And doing other drugs. I continued to smoke weed for about a week and a half after my trip thinking it was helping me but it was only intensifying my visual snow, floaters, halos and paranoia. -talk to someone IRL (in real life). These forums are helpful but can also be quite disheartening — so go talk to someone. Whether it be a counselor, a friend, honestly anyone. You’d be shocked at how many people are accepting of this disease. It is real and it is valid and there is a lot of info online. Good luck. You’ve got this
  44. 2 points
    Just try to relax and see how you heal over the next few months... Don't do any more drugs, try to eat well and exercise and just do things that take you mind off hppd (films, tv, books, sports... whatever works)
  45. 2 points
    I bet if you bought up the fact that you are considering suicide, you would quickly discover that you are far from a burden. I've seen too many people kill themselves thinking they are worthless, when in fact everyone around them loves and cares for them
  46. 2 points
    Hey guys, Just wanted to report on what my experience with dosing with both Abilify and Levetiracetam (Keppra) has been like for me. I know most people have had bad experiences with Abilify. What I began noticing back when I was in the hospital, was that after they started me on keppra, the antipsychotics I would take (primarily Seroquel or Olanzapine at the time) would no longer cause adverse reactions to my hppd. They began having what I felt like was their intended effect - sedation. This was strange to me because for example, every time I took Seroquel prior to being on keppra, it would cause an exacerbation in my visual symptoms. With all of that being said; im one of the unlucky ones with HPPD, who upon getting HPPD developed a psychotic concurrent disorder somewhat on par with schizzoaffective disorder. Because I had HPPD I wasnt able to effectively use any antipsychotics to quell these symptoms. So then I remembered that after being on keppra, I was able to dabble with antipsychotics. So I figured I'd talk to my doctor about trying out Abilify. (Aripiprazole) The first 3 days, it made me feel really good and calm, then for the next two weeks it kind of made my HPPD a little but worse. I figured I'd try it out for at least a month before making a final decision. Anyways, that whole hypothesis about keppra enabling the use of antipsychotics proved true for me with Abilify as well. It's been about a month, and basically what happened was that the visual symptoms of HPPD basically got worse for a little while, but then returned to baseline after about two weeks. This is great for me, because IMO Abilify is one of the best antipsychotics out there. What's great is after my hppd returned to baseline, I've been able to keep the antipsychotic properties that Abilify has to offer - which so far is working really well for my psychotic/schizzoaffective symptoms. Just thought I'd post this little blurb, as maybe this could prove useful to those out there who suffer from *just a little bit more than hppd* TL;DR - keppra has allowed me to use Abilify effectively without causing my hppd to become worse, and has been helping my schizzoaffective symptoms while the keppra helps my hppd along side it. ?
  47. 2 points
    I've seen some threads on this forum decompose into insults and shouting matches. We all have opinions, perspectives, experiences, and information we've obtained from various sources. If someone posts something you don't agree with, pisses you off, or seems like misinformation, please reply in a constructive and courteous manner. Before you post, think about what you might say if you were talking to the person face to face, and don't forget to be kind. We're all struggling with a difficult disorder. Remember, we all have the goal of being well. Let's help each other get there. Thank you.
  48. 2 points
    Here is my success story. I really hope this helps people because when I first got HPPD almost 4 years ago at age 23 I was a total train wreck and thought I would never get my life back. I am certain that this forum played a huge role in saving my life because for a long time I was seriously worried that I would have no other way out than to take my own life. This was definitely my darkest time and it makes me a little sick to think about it but I feel like I owe it to all the kids out there who are suffering. I'll get to the point. I took mushrooms for the first time ever and I flipped out. There seems to be a pretty standard story to this...total fear, a feeling that the trip will never end, it was a feeling I had never felt before. In my mind, I went to hell if it does exist. I woke up the next day feeling wierd, just off, sort of empty. I didnt think it anything serious until a week later, on new years day, I woke up after a night of partying in Las Vegas, and I knew something was wrong, I was sick, I was throwing up, and I was terrified, my vision was changing before my very eyes, everything was moving, and I knew something was wrong, the first thing I thought when I got up...the mushrooms were coming back to get me. I tried to tell myself it would be ok, that I was just sick from drinking, but it didn't stop. I didn't eat for almost a week, and I went to the hospital to get an I.V. to rehydrate me. In the ER, there was a true psychotic woman having an episode, It terrified me, because I felt I could somehow relate to her. I thought I had really lost it and I would never be the same. I'd heard of people "freaking out" and stories from the 60s, musicians like Brian Wilson going nuts on acid ect. and I starting thinking I was one of them now. I went home and felt so empty, but I couldn't even cry. My parents came back from a trip they were on, and it was like I didn't even know them, I was in my own little world. Things that were familiar were foreign to me, nothing was the same. As I worried more, things got worse, I started having panic attacks daily, I couldn't sleep, and my visual symptoms got worse. I had horrible headaches, nausea, paranoia, depression, visuals, the whole nine yards. At this point I think i was pre depersonalized, the panic was very strong, and it drove me deeper into a state of numbness. I was having terrible nightmares when I did sleep, finally, I think my mental anguish drove me into a state of numbness, where I couldn't feel anything around me, just like a zombie. I would say this was about 4-6 months into it. I started seeing therapists, and it helped a bit to have someone I could talk to because I didnt have anyone. None of my friends got it, and I was scared to tell my parents. At that point I wasn't even sure if they were real. I started reading on the forums, and this was a real game changer. I started to learn about some of the things that were happening, like the depersonalization/derealization, anxiety, ect. But more than that, I learned that there were people just like me, that I could talk to and would understand me, and even better that some people had survived it. This gave me what I needed, a little hope. Something to AIM for, a light at the end of the tunnel. Of course I was unsure and skeptical that I would get better, but at this point, in what seems like a rather odd reasoning, I decided that I couldn't be any worse off, and that the only choice I had was to get better, I really had nothing to lose. I knew it wouldn't happen soon but I thought, hell, I've survived this long (it was probably a year in) I can keep going, so I kinda just put my life on autopilot. I bought myself some time, I said, hey I'm just gonna deal with this day to day, not try to push myself too hard, and maybe in a few years I'll at least be able to function. That was a big deal, I accepted my situation, that it was gonna suck now, and that it would be a long time before I got better. During this time I had a lot of bad days, I also had some good ones. But every time that I had a good day, I kinda put that in my mental bank. Like saving pennies at a time. They add up. I made habit of doing things that would promote overall well being. That meant regular exercise programs, eating better, meditation, and yoga. I began to make steady improvements, I started having more good days, and things looked better for me. Someone once described HPPD as sort of like throwing a stone into the water, a huge splash, then lots of waves, ups and downs, and the slowly get less and less intense and I would totally agree. There was a long period of about 1 1/2- 3 years into HPPD that I began to get frustrated because I would feel great and think I finally beat it, then relapse again, I just wanted to be better, but again, time heals. This coming New Years day will be my 4 year anniversary of the day HPPD and I can say that this is behind me. In fact, I look back on it and I almost don't believe myself. It's almost like it was just a terrible nightmare. Which is how I had hoped I would look back on it some day. I want to put it behind me and never look back. But at the same time I want to help the kids that are on here because I know how terrible they feel and they need help just like I did. I owe it to someone because I survived and I want people to know that you can beat it but it takes work and commitment. I still feel a little lost, like I'm not sure who I am as a person, but I at least feel like I know where I am (haha). I just spent 4 years in a nightmare and now I'm awake. So I will try to offer some advice. The forums are great for helping you out, but don't spend too much time here. Don't spend hours on hours reading about peoples problems, about mental disorders. Education is good but at some point it will only make you more obsessive. Also, there is a lot of negativity here that will bring you down, because people that are on here are mostly here because they are having problems, not because they are doing great. For every 1 success story you will read about 20 horror stories. It's like watching the news, they only report on the bad stuff, you will never turn it on and have the reporter say "hey, everything is great." Again, do stuff that promotes good health, a healthy body is a healthy mind. Get outside and enjoy nature. I found it easier to connect with natural objects. Try to feel the sun, or the breeze on your face, little things like that. They can help you feel alive. Stop doing drugs, alcohol, tobacco, or limit your intake if you can. Smoking weed really made things worse for me. Talk to someone that can offer something positive and will understand your situation. If anyone ever wants to talk, on the phone, email, whatever, hit me up. Believe you can get better.
  49. 1 point
    I recently put up a post indicating that May 6th, 2019 was the last day to take the Visual Snow/HPPD survey. This was an error. The survey will be closed a week from today. If you haven’t taken it please do it ASAP! The more data that’s collected, the greater the chances of more research being done on these two terrible conditions. Remember, the survey can only be accessed via desktop computer. NO MOBILE DEVICES! Access the survey here: https://twitter.com/simonsaryazdi/status/1125798943873470464?s=21 #CureHPPD #CureVisualSnow
  50. 1 point
    Another lesser known symptom, though others have mentioned it.... I used to get very horrific CEVs, like scenes from hell. Death, mutliation, rape etc I stopped watching any porn, horror movies etc and that seems to have fixed it.
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