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  1. 2 points
    Important Please Read: I've been reading a lot and I think that there may be a possibility and link to a nutritional deficiency in HPPD, which realistically would assess the strange variable nature of this condition. If you at immediate glance question the severity of nutritional deficiencies just look up Pellagra and Scurvy, they eventually die if its not corrected. Most vitamins are antioxidants and neutralize free radicals, and hallucinogens stimulate neuronal metabolism leading to excess free radicals. When free radicals are excessive and deficiencies have occurred of said nutrients, the free radicals can no longer be controlled and spiral out of control, damaging surrounding tissues. These tissues in turn become inflamed and even due to their neuronal nature start becoming demyelinated, this is the explanation for the very mild incidence rate of white matter hyperintensities in HPPD MRIs, however not in all. These demyelinations under the given uncorrected circumstances cannot or very difficulty be repaired, unless the deficiency is corrected. The deficiency would also explain why some people never get HPPD, even with extreme doses of LSD use, they have plenty of reserves of the free radical neutralizing vitamin necessary. It would also explain why some people only get it after multiple uses of hallucinogens, eventually they deplete the vitamin, whichever it may be. It would also explain the relationship with alcohol initiating HPPD in people who did hallucinogens a month or two beforehand, alcohol also may variably deplete the vitamin. It also could explain the spontaneous recovery of some few individuals that have reported it. It would also explain why multiple different drugs initiate HPPD, from alcohol, to weed, to hallucinogens, they all stimulate neuronal metabolism by excitation and or drain certain vitamins that are vital to neuronal functioning and maintenance, hence the symptoms. Also some of these vitamins are absolutely crucial to proper neuronal function and a deficiency only of some, like Vitamin B3 can lead to psychosis. I could elaborate further on this but will refrain for the sake of brevity. If anyone in the slightest bit thinks this to be a complete impossibility, like i said look up pellagra and the mental health issues they have, and even vitamin b12 deficiencies cause demyelination of axons. And even some may argue that the nutritional RDA is met by common foods, this assuredly isn't true, and proven not to be true, especially in the cases of drug use and alcoholism, there are definitely related deficiencies common with these habits. I think that this possibility has some of the most merit than any of my other ideas, so if anyone would like to try and experiment as to whether a treatment will work, then they should get a full spectrum b vitamin complex(All B-vitamins known). and also Vitamin C. The B complex should be higher than the average listed RDA, as typically it wouldn't be enough. And the vitamin C needs to be at the very least 1000mg a day. Treatment should be carried out for 6 months. I wont get in to all the details as to everything correlative with vitamins, their deficiencies, and their importance, but if anyone cares to know more, they can read "How to Feel Better and Live Longer" by Linus Pauling, two time Nobel Prize winner and profession chemist. Even if the treatments don't work, at the very least it will certainly improve the health of the person taking these vitamins. If its not that then we may have some genetic defect. If you do try this treatment please report that you are trying it, and also please absolutely follow up with your results in the future. Thank you! Edit: I also forgot to add that I read that taking large doses of vitamin B3 will end an LSD trip within roughly 30 minutes, which shows a specific relationship with it and hallucinations, but not however with LSD diectly as far as I can conjecture, as LSD usually is metabolized within 30 minutes of hitting the blood stream. However the hallucinations continue for hours, which shows that the actual cause of hallucinations are downstream from LSD metabolism, and have a direct correlation with Niacin(b3) if thats true. I didn't read it from what I would consider an absolute reliable source, but there very well may be some merit and truth to the statement, as it wasn't an unreputable source either. If anyone else knows more feel free to share.
  2. 2 points
    This is what your argument actually looks like to @TryingToHelp
  3. 2 points
    You are yourself saying it's a mystery, so why do you keep saying that the only solution pretty much is linked to anxiety ? What makes you say that ? Research suggests that bad trips could make HPPD more likely to appear, but again, it's just speculation. Many people have HPPD without any anxiety or caused by a traumatic event. This sentence applies to you as well. Your answers make it look like you are the one with the solution. Mean-fucking-while, there are people who have looked into every single possible explanation, anxiety, neuronal, immune etc etc etc, dasitmane and others are no exception. Trust me, we are open to all ideas, even the weirdest ones, but being so stubborn to say that the only way out of this mess is by focusing on anxiety and anxiety only is stupid imo. Even actual research, people who know what they are talking about, found no proof of anxiety triggering HPPD. It can worsen it, but not cause it.
  4. 1 point
    Like three weeks or so, anyway my case its not steady, somedays its like im on 100Ug of lsd some others is less noticeable, i had to quit pot too
  5. 1 point
    Antidepresant use to make symptoms worse, i took Mirtazapine or Remeron and it made my symptoms sky rocket, i passed trough VS to double image and trails in vision, it helped me to disminish anxiety though, but made visuals worse, then i stoped the use, and my HPPD is starting to be on vase line again. its better if you look for natural remedys like lion mane, to say at first i didnt realize i was sufering HPPD and continue to smoke weed while using the antidepresant wich made everything worse. Try to meditate and be patient, its seems like only time and natural healing is the path with this living hell. Keep in mind that this is only a disorder, it wont let you blind or make you lose your mind completely, although is harsh the most of the time, let the disorder do wharever it wants with your vision and dont resist it, like Carl Jung said, what you resist it persists, i hope your HPPD gets to a bearable level and stays steady so you will be able to heal completely. my best wishes, keep up bro. 5 months with this unpleasant partner HPPD.
  6. 1 point
    Well its hard to tell, it changes from one person to another, many people can stand drugs of any kind anymore (not even alcohol), some others keep smoking weed with ligth use, but definetly my advice for you its to satay sober for a while at least, let the hppd show its face for you, cause this disorder its so fucking unpredictable its better not to mess with it, i was at the same point at the beginnig afraid of not be able to smoke weed again cause i just loved it so much, but man we can live a completely happy life with out substances, at the end you will do what you want, but keep in mind HPPD its very unpredictable, what may have worked for somebody may not work for you and vice versa, stay safe and i hope your HPPD stays steady and you can recover completely. Hope
  7. 1 point
    @Stuie I'm not a doctor or any sort of hppd expert. I'm just an old guy who has had this disorder for a long time. Keep that in mind while reading this When I was dosing, like you, I dosed frequently and I tended to take high doses. Unfortunately, I kept dosing after I noticed my visuals weren't going away after I came down. What I ended up with is visuals for life. Some of my other symptoms subsided like CEVS and anxiety, but it took decades. It's interesting that your symptoms come in bursts. Is there anything that seems to trigger them? Stressful situations, is it random, something else? Do the visuals always come with the anxiety? When you don't notice anxiety/visuals, do you otherwise feel OK? As for suggestions, I can only tell you what I did. I don't take medications, but there are people in here who have had success with them. For me, I noticed that when my mind is focused, I don't notice my symptoms. I meditate daily which helps with mental focus, lessens anxiety, and helps me control that internal mental chatter. I stay as busy as possible which is basically being focused. Exercise helps me a lot as does eating a clean diet. That's me, everyone is different. Most importantly, stay away from psychoactive chemicals. If you keep dosing, it probably will get worse. Please understand that if you do have hppd, it's very possible to live a wonderful, happy, and productive life. Hang in there, and take care.
  8. 1 point
    Very interesting information. I'll do some research as well in the next few days. However I'm also 75% sure we have a genetic, maybe not defect, but weakness at the very least if you know what I mean. We have a history of vision issues in the family, both with the brain and eyes.
  9. 1 point
    This magnificent disorder has been introduced to me around the end of 2017. I took throughout my "psychonaut" part of life 4-5 tabs of LSD. These didn't trigger any HPPD. The disorder kicked in once I started microdosing. I have probably microdosed around 5 times, not more than once per week. Now, we could debate about how bad it was for my brain to microdose but the real issue was the weed + microdose mix. Since microdosing boosts your brain to unimaginable levels (I have ADHD as well), it was difficult to sleep each day I'd microdose. To ease myself into sleep, I'd smoke a joint, usually from a strain that was 15-20% THC. After 2-3 microdose + weed mixes, I started to notice Visual Snow and small tracers when under the effect of THC. I thought it was cool and part of the microdose, didn't think much about it. Between the 4th and 5th microdose, I noticed that the Visual Snow and tracers would not go away, they would be there 24/7. Again, didn't think much of it since, well, I was taking many drugs, partying, and quite often. Last microdose, the visuals (no THC involved yet) started to freak me out and thought they just could not be normal since the dose of LSD I was ingesting was under the threshold dosage. But because I was an idiot back then, I still smoked the usual joint in the evening after the microdose. Visual Snow was VERY strong, it was broadband and pulsating as well. Since that day, I decided to stay sober. But the visuals stayed. The symptoms at first worsened, partly because the visuals were getting objectively worse, partly because I was obviously obsessing over them. Then they have stabilized and never really changed in intensity, maybe slightly worse for some visuals and slightly better for others. So what's going on with my vision as of today ? After-images, VS, bad night vision (well, bad daytime vision as well 😂), tracers though not very noticeable, among the other typical HPPD visual symptoms. The one that appeared much later than the other ones is what I'd call bouncy vision. It only happens when I'm calmly sitting reading a book or looking at my computer screen, suddenly my vision would bounce up and down rapidly just as if my eyes were looking up and down uncontrollably. Visuals aside, how's it going psychologically wise ? Not too bad. Mind you, I never had huge anxiety or DP/DR, only mild anxiety during the first year or so. It took a good year to stop obsessing over the whole story and to get (partially) rid of the guilt. I still think about HPPD all day every day and will probably for the rest of my life since the visuals are distracting. I consider myself lucky since I view my HPPD as pretty mild compared to reports from other members on this forum. I am also very resistant psychologically. I do not plan to seek medical help, doctors here usually just want to make a profit off the drugs they prescribe and do not really care about the patient's well being. I'm pretty sure most of the members here can relate to this. I have to confess, I did use a moderate amount of drugs even when affected by HPPD, and I have to say, it usually comes back to baseline after a few days. Still, not a reason to abuse drugs or alcohol. So what's next ? Party only a few times a year, no drugs except alcohol and cigarettes when out partying, get a reasonable amount of sleep, and go for a jog every now and then. I will look for a new job since the company I work for is making me go crazy and this actually increases my symptoms. Recently redeveloped OCD and hardcore ADHD because of the stress I endure in this place. The OCD + ADHD symptoms sort of vanished a few years ago but are now back stronger than ever. I should also start looking for a girlfriend since I spend most of my time alone. Even though I like this way of life, I realized it cannot be a good way to carry on with stuff. There's still a long way to go, but I believe that with some good will as well as with future experiences in life, things can only go for the better. Even if one day the disorder leaves my brain, I will always stand beside this wonderful community that, quite frankly, didn't deserve all of this. I wouldn't wish HPPD to anyone, even on my worst enemies. I wish everyone the best. Never give up ! P.S.: English is not my mother tongue and it's currently almost 3AM here, so do not mind ze somtims wierd inglish :p.
  10. 1 point
    Yes, as the brain tries to filter out the snow you see on the screen, it also tends to ignore the actual snow you're seeing. It works for a minute, maybe more if you stare at it for a long time. There was one person (maybe on this forum ? Not sure) which claimed that, by watching it for hours on end, this on the course of many months, got rid of Visual Snow. I doubt this has actually happened, but hey, it's the internet, no one knows what's true and false. But if someone on this forum is willing to try this method and spend their time to let the community know if it works, I will be the first to encourage that person.
  11. 1 point
    And here we go. @dasitmane dragging someone else into his web of despair. Guy just needs to deal with his mental health issues and here you go trying to convince him he has 'hppd'. Nothing could be less helpful.
  12. 1 point
    Hey guys, just wanted to drop in and post an update on my HPPD recovery... In another six months I'll have my five year anniversary of when I first got HPPD. I've posted every year on that day and I plan on doing so again in six months but something just triggered me to want to post now. Basically I'm updating a lot of stuff on my computer and I went through old notes I made when I first got HPPD. I hadn't read them in three years. It was surreal to see how far I've come. So much of my notes were about how painful life was each day, how I could barely make it through, how HPPD was like hell and how I thought of suicide constantly. I also had severe depersonalization which I wouldn't wish on anybody. I literally couldn't tell whether I was alive or not when I first got it. It was really bad. Though I'm not fully healed and still have minor symptoms of HPPD (mostly visual snow, occasional tinnitus, some afterimages at night, etc.) I'm also at the place in my recovery where I'm able to move on with my life, and that's truly a miraculous thing to say considering where I was even two years ago. This point I've arrived at is all I ever wanted when I was living in a 24-7, Alice-In-Wonderland hellscape of a constant lowgrade acid trip. I would have given anything to be where I'm at today. And yet, here I am, and it doesn't seem so special because HPPD takes so many years to heal from. As many of you know this disease is not something that just disappears overnight. It takes many years of backbreaking work to improve, but I'm proof that if you're willing to put in the work you can get to that place. If I could impart any advice on those who are suffering right now and don't have much hope I'd really emphasize the power of natural healing. The body is a healing machine. It's designed to repair itself at all times. The main hindrance is of course interfering with this process by causing your body even more damage than it can handle and our modern world is essentially a barrage of micro and macro insults to this repair system. My true healing journey began when I put down the fast food, spent countless hours in nature and in sunlight, always kept my body moving, nourished myself with natural foods and medicinal plants, embraced the power of love and took steps to face my own personal demons and confront my childhood trauma that manifested in the anxiety that got me HPPD in the first place. If you're at all stuck or just wondering how you go about navigating a healing journey I really hope you'll consider getting back in touch with nature and letting evolution do what it's been doing for billions of years on this planet. I don't mean for this to sound too woo woo but I just know it works because I tried everything and natural medicine in combination with time is the only thing that gave me actual results. Please stay hopeful if you're able. I understand as much as anyone how distressing and hopeless this disease can be so I'm not gonna lecture anyone on how they should see things, but I do believe there's almost always reason for hope with anything, even this bastard condition. If anyone needs help or advice or just someone to talk to please don't hesitate to reach out. -- K.B.
  13. 1 point
  14. 1 point
    This is the same kind of bullshit that I've dealt with when trying to get help for this from "doctors". It's anxiety its all in your head. Stop thinking about it it will go away. Everyone that has to deal with HPPD/Brainfog/Depersonalization knows the frustration. I've tried to accept that this is all anxiety, but it's still here. It's a neurological disorder, plain and simple and I bet an FMRI can measure this. Has anyone ever heard of Pseudobulbar affect? Pseudobulbar affect (PBA) is a condition that's characterized by episodes of sudden uncontrollable and inappropriate laughing or crying. Pseudobulbar affect typically occurs in people with certain neurological conditions or injuries, which might affect the way the brain controls emotion. So is MattyHouseMouse suggesting that people with this Pseudobulbar affect can actually control there symptoms with shear will power? It doesn't work like that. If it could then what does that tell you about consciousness itself? Does the mind exist beyond our reality? And if it does then I guess with enough will power we could override any problem confined to our material world. I could literally grow a fucking leg back, or a brain.
  15. 1 point
    You might have better luck on reddit at /hppd There are plenty of idiots there who also had some ultra mild hppd and want to believe that severe hppd is just a myth so they can carry on drug taking.
  16. 1 point
  17. 1 point
  18. 1 point
    If HPPD worked like how you claimed it does then how would symptoms continuously effect unaware/indifferent individuals, sometimes even getting worse over time? Personally after my emergence of symptoms I had no clue that my past drug usage could have caused this condition for awhile. Even then I wasn't hyperfixated on visual changes, etc. and despite the obliviousness nothing went back to "normal". For the longest time I really didn't care, until things progressively became worse on their own... however I've never had severe anxiety, and still don't. I didn't find out what HPPD was until much later.
  19. 1 point
    I think you just want to justify your psychedelic consume because you already have mild HPPD but you still want to trip. However, if you continue to trip it will probably result in severe HPPD.
  20. 1 point
    One very severe counter-argument against your "theory": In 11 of 12 cases, taking phenothiazines worsens HPPD severely. For "normal" anxiety patients, they just work as a sedative. Many of the usual anxiety patients are also extremely worried about their health, so why don't they get HPPD when taking phenothiazines? It just does not make sense, there would have to be much more non-hallucinogen-induced cases. Even if not "trained" well, at least a small number of anxiety patients should notice the increase of visual phenomena caused by phenothiazines, get worried about it and falling into the "HPPD loop". But there are, as far as I know, 0 cases of people developing HPPD after phenothiazine usage without a past hallucinogen exposure. During my psychedelic expieriences, I completely didn't notice any of my HPPD symptoms. They suddenly occured more than a month after my LSD exposure, so I definitely did not have any "training". Some people suddenly get HPPD from one day to the next, years after hallucinogen exposure. How do you explain that? Why do many people exist who have very(!) strong visuals, but no anxious or emotional component at all? Why do some people have a sudden remission of visual symptoms from one day to another after years of "training"? My visual symptoms are not correlated in any way with anxiety. Sometimes I feel anxiety and visual phenomena are weak, and sometimes visual phenomena is strong and I don't feel any anxiety. For 3 months, I didn't feel any anxiety at all and barely put any attention on visuals, but visual phenomena was still getting worse with the same speed as befor and afterwards. Why do I have extreme mood swings from anxious to deppressive and (rarely) even euphoric expieriences which are very trippy. Do usual anxiety patients feel strong euphory just as under drug exposure? It was also normal and acceptable for me to take hallucinogens and I felt completely no anxiety about the use of the drug. During my bad trip and afterwards, within the first 3 months of my condition, there was not a single moment where I was not 100% sure that I'm safe and will be cured very, very soon. So why did I get HPPD? So many questions that cannot be answered by your claim. But I'd bring a counter theory into the discussion: People whose HPPD symptoms fade fast, persuade themselves that it was just imagination. No it was not. It was real for you, but you can't believe it as soon as you can't feel or see it anymore. You don't want to believe it. Your mind is rewriting the story in a way that you feel that everything is / was under your control. Because it doesn't want to accept that control is an illusion. And of course your mind favorites the explanation allowing you to continue hallucinogen use and having the control whether to develop HPPD or not. It's hard to admit that you don't have any control whether to develop this disorder or not. Everyone here knows that HPPD highly interacts with anxiety. There are people understanding this connection from the first day of their condition trying to work against their anxiety. "Stop being anxious" is a very good advice, but not a cure. Nobody knows if there is a brain damage or not. If someone suffers 40 years from this condition, and yes, there are such cases, I don't know what's the difference to a brain damage. You may say "the difference is that you can escape the loop", but remission can happen in cases of brain damage as well because the brain has the capability of working around the damage. Anyhow, you can assume that many patients do everything they can to get rid of anxiety. In the end it does not matter which theory is right. You cannot cure HPPD by saying it's anxiety-based just as you cannot cure depression by saying it's sadness-based. This discussion is damned to end in the middle of nowhere. There is no key and there will always be patients who are completely therapy-resistent, even if they are working harder on their cure than 99% of the other patients. Anyone can be cured, but not everyone.
  21. 1 point
    You're not a scientist, you don't know what the members of this forum experience visually and cognitively, you do not add anything constructive to the forum, therefore I think you posting here is totally useless and undesirable. If it was only anxiety, we would all be healed since most of of the people who seek medical help get misdiagnosed as having anxiety.
  22. 1 point
    June 11, 2019 SUBJ: Faces of HPPD Survey/Research Published – RESULTS! Dear HPPD Online Community: As a mom with a grown son with HPPD, I was so fortunate to come across this forum several years ago for information and support. David Kozin, who runs this board, is an amazing man to have created and maintained this website and kept up his work/studies over the years – all the while suffering with HPPD. I would like to thank him for this platform, and well as thank those of you who participated in the survey that I launched four years ago to collect data about individuals who had received an official diagnosis of the disorder. Fast forward…. Here it is June 2019. Long overdue for the published report, however, I lingered – always hoping to gain a larger sample of subjects. I am fortunate to have a PhD in psychology, experience in research, and a heart to try to make a difference. Instead of publishing a book, it only made sense to get the results in the hands of the scientists and medical professionals through scientific writing. I am so happy to tell you… the peer-reviewed medical journal, Addictive Disorders & Their Treatment, published by Wolters Kluwer publishers, has reviewed and accepted my manuscript for publication in an upcoming issue. Last week the article completed rounds of publication editing and formatting. The article is posted at their website for advance release. Lewis, DM, Faces of HPPD: Hallucinogen Persisting Perception Disorder Patient Survey Results and a Descriptive Analysis of Patient Demographics, Medical Background, Drug Use History, Symptoms, and Treatments. Addictive Disorders and their Treatments. Forthcoming 2019. The link is here: https://journals.lww.com/addictiondisorders/Abstract/publishahead/FACES_OF_HPPD__Hallucinogen_Persisting_Perception.99733.aspx (NOTE: This direct link will change probably in a month or two when the article is given a print-issue date – right now, it is advance copy, undated. In the future, you can search the article at https://journals.lww.com/addictiondisorders/ . While the article is available for immediate download, many of you know that publishers charge money for copy downloads (this one is $49), and authors cannot give away their copy. This, I know, is not a good thing for some within the community who do not have the funds. However (here’s the good news 😉), I contacted the publisher and obtained permission to publish a summary of the results (the important data!) and I created an infographic that provides you all the results. I am including it here as a .pdf file, attached. It’s reader-friendly, and I hope it provides insight. I want to mention some findings that particularly concern me: the high rate of suicide ideation (among other co-morbid psychological/psychiatric symptoms reported), and the significant number of individuals who reported being unable to work due to HPPD. I feel strongly that HPPD needs recognition as potentially disabling – and I believe there are some individuals who may need government assistance (eg, Social Security Disability benefits). My future work leads me in the direction of carving a path for HPPD as a qualifying mental disorder for eligibility for assistance. I will keep you posted on that. Again, thank you so very much for those who partook in the survey. My best wishes to each of you for good health and peace of mind, Doreen M. Lewis, PhD https://www.facesofhppd.com https://www.vellichorresearch.com Faces of HPPD Infographic - LEWIS.pdf
  23. 1 point
    One of causes thar are supposed in headhache is inflamation, and ibuprofen is an antinflamatory, so, it can help you. I had suffered since I was a child, and ibuprofen was my best friend a lot of weekends (more than any human, lol)
  24. 1 point
    FUCK that. glad i dont have it
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