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Hallucinogen Persisting Perception Disorder (HPPD) Support Forum

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Showing content with the highest reputation on 05/31/2018 in Posts

  1. 1 point
    Onset of HPPD - April 2009, psilocybin mushrooms RADIOLOGY REPORT FACILITY: REDACTED UNIT/AGE/GENDER: D.5ES IN AGE:26 Y SEX:M PATIENT NAME/DOB: MYTHOS, THE 03/01/1989 UNIT NUMBER: REDACTED ACCOUNT NUMBER: REDACTED ACCESSION NUMBER: REDACTED EXAMINATION: MRI of the brain without and with contrast. DATE: February 19, 2016 at 1710. COMPARISON: Head CT scan of February 18, 2016. CLINICAL HISTORY: Visual disturbances and delusions. The bilateral facial paresthesias. Initial encounter. TECHNIQUE: Standard multisequential multiplanar magnetic resonance imaging study of the brain was performed prior to and following the administration of 10 ml Gadavist. FINDINGS: Diffusion weighted images show no evidence of acute infarction. The CSF spaces are of normal size and configuration. No mass effect, midline shift, or acute intracranial hemorrhage is present. Punctate areas of increased signal on T2 and FLAIR images are noted in the periventricular and subcortical white matter of the frontal regions bilaterally. The overall appearance of the remainder of the brain parenchyma is within normal limits on all sequences, including the gray-white differentiation. Images obtained following injection of contrast demonstrate no abnormal enhancement patterns. There is mucosal thickening within the maxillary, sphenoid, ethmoid, and right frontal sinuses, most prominently affecting the left maxillary sinus. However, no air-fluid levels are present. The mastoid air cells are aerated. IMPRESSION: 1. No evidence of mass, hemorrhage, or acute infarct. 2. Punctate T2 signal abnormalities within the periventricular and subcortical white matter of the frontal regions bilaterally. This is a nonspecific finding, but can be associated with demyelinating or dysmotility processes, vasculitis, chronic migraine headaches, microangiopathic changes, etc. 3. Multifocal sinusitis. Dictated by: REDACTED, M.D. Images and Report reviewed and interpreted by: REDACTED, M.D. <PS><Electronically signed by: REDACTED, M.D.> 02/19/2016 1928 D: 02/19/2016 1925 T: 02/19/2016 1925 Component Results There is no component information for this result. General Information Collected: 02/19/2016 7:25 PM Resulted: 02/19/2016 7:30 PM Ordered By: REDACTED Result Status: Final result
  2. 1 point
    Hi Guys, i just woke up and started thinking about this forum. Since my relapse/worsening in november 2017 i didn’t visit this forum a lot anymore because it isn’t very good for my mental health. I’m trying to focus as less as possible on the HPPD. But this morning i thought that i at least could give an update about how i’m doing now, since some members have helped me a lot. Well, compared to november 2017 (see posts above) i’m doing a lot better. On the other side i still have a long way to go because my symptoms are still quite severe (but have lessened a bit) and are hard to deal with from day to day. My HPPD is a disability right now because i can’t do the same stuff as “healthy” people are doing. Lets start with my symptoms right now: - pretty bad visual snow, in daytime not very noticable but in dark situations it’s pretty heavy. It’s like there is a layer of VS before my normal vision. I can handle it but it’s sometimes hard to deal with. - trails when looking at fast movements (like waving hands, a phone screen waving before my eyes gives a light trail, etc.). Also pretty long afterimages when i look directly into a light source (like more than a minute or so). Sometimes in notice a bit of floaters but it isn’t that bad. These symptoms have improved a bit and i’ve gotten used to it so it isn’t a very big deal anymore. - sometimes my entire vision looks “too bright”. Don’t know if that’s DR but when that happens i feel a bit disconnected. This symptom is very hard to deal with. Luckily this doesn’t happen very often because i would go crazy if this was permanent. - head pressures and brain zaps. Are often not noticeable anymore but when i have a busy day or week these come back. - some brain fog / cognitive issues / fatigue. Especially my memory is not very good. It has improved so i’m hoping it will slowly get better. - quite severe anxiety, but on the other side i’m able to deal with the anxiety a lot better due to my coaching and the meds i’m on right now. I think that’s about it. Due to all these symptomps, it’s a disability and i can’t do a fulltime job now because my symptoms get worse when i have a too busy day or week. When that happens they get better in de next couple of days but it’s really looking for a good balance in work / socialising / rest. I think i also have found the best treatment possible in the Netherlands. - i visit a psychologist once every 2 weeks to help me deal with the HPPD and slowly building up my life again. I now can work 2 mornings a week and deliver good quality work. This feels good and i’m hoping i will be able to work more in the future. - in the same clinic as the psychologist, there is a psychiatrist who prescribes me meds to help deal with the HPPD and anxiety. This psychiatrist is advised by HPPD specialist dr. Alderliefste. Meds i’m on right now: 2x Clonidine a day, 3x Clonazepam (Klonopin) a day. I’m tapering the Klonopin very slowly (over a lot of months), because it’s helping me pretty good but i can’t stay on this med for the rest of my life. - sometimes i have direct contact with HPPD specialist dr. Alderliefste. He’s helping me very good (the best way possible), mostly he advises me what to do. - now the most interesting part: like the most of you guys, i had an MRI scan from my brain to check if there is no other cause for the symptoms. As expected, the result from the MRI scan was good and there were no abnormality’s. With this result i am sent to a hospital connected to a university, where neurologists are researching and studying visual snow / HPPD. Dr. Alderliefste also helps and supports this research. When everything goes to plan, i will see a neurologist there (with knowledge of VS / HPPD). He will medicly examinate me and hopefully can give advise on optimising my treatment. Also there is a possibility for me to help the research / study as a patient. So i’m very curious about how this will work out, and if the doctors understand whats happening in my / our brains. I definitely will keep you guys updated if there is any interresting information to share. Well, that was quite a story to write. Overall i’m doing / dealing a lot better, but there is a long way to go. Hope you guys are also doing OK! Looking forward to the responses.
  3. 1 point
    People that have never had to deal with mental problems or brain issues in their life will usually be dismissive because they've never experienced it. "You don't have anything to be sad about" is classic mental health ignorance. You should try to go out and hangout with your friends whenever you get the opportunity though.
  4. 1 point
    You've been posting this for weeks now. Why not just post it when you post it.....
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