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Showing content with the highest reputation on 04/13/2018 in all areas

  1. 3 points
    Great advice. I know months can feel like decades in that early stage. I vividly remember it myself... But it is essential to give yourself the best possible chance to recover... Try and remove as much stress from your life as possible. If you need to take time off, do it... If you need to lock yourself in your room, do it... Whatever helps with stress... You can quickly get your life back on track once you recover or learn to deal with this. I would also add that self blame/self loathing is great fuel for stress and anxiety. If at all possible, forgive yourself for taking risks with drugs and realise that no amount of wishing you hadn't done something will ever make it so... It's wasted energy and added stress, so just forgive yourself for doing something that millions of others do, learn and move on. (easy said than done, i know!).
  2. 2 points
    Danjoking, you're right. I apologize for my behavior. The above response by mane isn't worthy of a response. He's clearly on a tear. I pray for his, mine, and all of our healing. Good night. Hope you guys get over this illness in due time.
  3. 1 point
  4. 1 point
    I'm already effed up enough because of HPPD and my many other disorders. Now the last thing I want is some guy on a forum insulting people saying they're wrong when, in fact, that same person has nothing to offer apart from insults to back up his "claims". There are ways of defending your ideas, and sure, go defend them. This is a forum after all, you're welcome to do that. But shitstorming, especially on a forum like this one, is childish.
  5. 1 point
    I first dosed shortly before my 14th birthday. I've also wondered if dosing so young might contribute to getting this disorder. The thing is, the "kids" I dosed with didn't seem to contract hppd. I believe they see the world through a stranger lense than most even as adults, but no hppd. Granted, the "people i dosed with" is rather a small sample size and not statistically relevant. I did have one friend who became very depressed and checked out early. I'll never know if dosing/hppd contributed to her depression or prompted her early departure. I'm just happy to be here today.
  6. 1 point
    My favorite part about these responses is you just berate everyone, but then completely fail to back ANYTHING you said or cover the flaws that were mentioned of your ridiculous theories. LMAO. Also you poor comprehension is extremely evident in most of what you say. To be completely honest, you haven't done a single thing productive in the research for HPPD, so you have literally no room to talk. Im easily aeons beyond you in understanding, you cant even see the flaws in your own reasoning, I dont think you can even see past your nose frankly. Based on everything you have had to say here, and your extremely negative derogatory and degenerative attitude, I dont think anyone appreciates you here on this forum. I can debase all the points you said easily, too easily, but I can tell you wont comprehend any of it, so I wont be wasting my time, I think the other members are fairly intelligent enough to see it for themselves. Especially the ones who actually make a progressive effort in trying to cure the disease, instead of ignoring it(lmao). Basically what im trying to say is, your words here are completely worthless. PS. Oh noes i got the HPPD cause brain OVERHEATED hahahahha I know for certain that with your hands, we will never see a cure. Your next thread will probably be "Hey guys i ate baking soda last night I think im cured!" You have literally nothing to offer here.
  7. 1 point
    I was listening to a podcast yesterday where someone with a brain injury was talking about how suicidal ideation is a common symptom or outcome of brain damage and I thought it was interesting given I had severe ideation through about the first year and a half of dealing with HPPD. It was also remarkable how similar her symptoms and story were to mine, which is often the case when I hear or read about brain injuries. I've long held HPPD is a brain injury but of course I can't prove it and neither can anyone here until more research is conducted, which unfortunately isn't likely anytime soon. That said, here are some similarities between common brain injury symptoms and my experience with HPPD: -- A "normal" life that abruptly changes after the occurrence of an incident resulting in complete life upheaval (state of abnormality if you will) -- Painstakingly slow recovery over the course of years following a balance of mostly rest with some mental and physical exercise (this would explain why stimulant substances and sometime even exercise often exacerbate HPPD symptoms; a damaged body needs rest, not stimulation) -- Compromised brain cell metabolism and glucose (explains brain fog head pain from sugary foods) -- Headache and head pain -- Difficulty with balance -- Blurred vision -- Visual disturbances -- Fatigue -- Changes in sensory perception (DP-DR could certainly qualify) -- Memory loss and forgetfulness -- Delayed mental processing -- Trouble speaking -- Disoriented sleep patterns -- Poor attention -- Depression and anxiety -- Light and sound sensitivity -- Nausea -- Irritability and mood changes --Inappropriate behavior -- Difficulty with reason, logic or focus -- Personality changes -- Normal MRIs As my condition has improved so have all my symptoms, however what I find striking about the list above is how many of these symptoms I had when I first got HPPD. In fact, I don't know that there's any I did not have, outside of perhaps nausea. I also never got around to taking my MRI but given the normality of those who have and the fact mild brain injuries don't show up in the scans it's also another similarity that shouldn't be overlooked. Part of the problem with identifying HPPD as a "brain injury" is that most of us have seen doctors who aren't trained in identifying subtle injuries outside the pervasive "Traumatic Brain Injury (TBI)" category which is mostly defined as injuries sustained through force. However, there are other forms of brain injuries, including mild brain injuries, that break down into many different categories and classifications which could very well correlate with HPPD. The most likely I've found is what's called "toxic anoxia," which is when the brain doesn't get enough oxygen due to toxic chemical interference. According to the Honor Society of Nursing, illegal street drugs are considered culprits of toxic anoxia. Another interesting field of study involving brain injury is that of impaired cellular function and metabolism in the immediate aftermath of the sustained injury. Regardless of what exactly leads to HPPD there can be little doubt that our brains are underperforming, which could be a result of abnormal and impaired cellular metabolism -- essentially, the normal processes of healthy cellular functioning have been interrupted for whatever reason. If you're someone who takes issue with the idea of necrosis then perhaps you will be more comfortable with the idea that the cells in our brains still exist but are simply shocked and unable to perform in high-potency environments. I'm enjoying reading about this stuff so I'm going to continue to see what I can find and will post here if anything piques my interest, however I do think it's important to plant this seed and get the HPPD community open to thinking about brain injuries specifically. If we continue to maintain the attitude HPPD is a beyond our understanding simply because we don't understand it then we likely won't make any progress in getting the medical attention we deserve. I think if we can at least adopt a general acceptance of some from of brain injury it would at least help push us in the right direction medically and away from the much stigmatized psychiatric route we've often pursued. If we push the narrative that toxic drugs lead to brain injury by talking with neurologists rather than that hallucinogens unlock some form of deep-seeded emotional imbalance by seeking out psychiatrists I think we'll have more luck in at least getting some attention to be honest. I really do think the way we phrase our condition can have an affect on how soon we're treated or whether we're treated at all.
  8. 1 point
    Hey everyone, my first post around 9 months ago had me completely in shambles, wondering how I'm gonna be and what's gonna happen.Looking at how I'm feeling and what I see, I feel fine. I do get some bad DP, other than that, I feel fine and my visuals are getting better. My CEV's are almost completely gone. Thanks for reading and let me know how you guys are doing! Love you guys, helped me a lot when I needed it Originally
  9. 1 point
    Back in the early 70s it was referred to simply as "burnout". Most recovered from burnout, some didn't. Strangely enough, out of all the people I knew who used acid heavily for a long time, I was the only one who reported hallucinations that never went away. Go figure. Then again, a friend of mine who just seemed burned out became dysfunctional and passed away quite young. I suspect he had hppd symptoms.
  10. 1 point
    Us humans can often feel guilty about things we've done that we're not proud of, failures, missed opportunities, etc. Feeling guilty about using drugs may be directing your focus toward your symptoms. One of the ways I've dealt with this disorder is to set my focus away from my symptoms. If you think in a religious framework perhaps focusing on self forgiveness and prayer may help.
  11. 1 point
    I have only done about 10 hours of research on this, which is not much. Ideally I would like a couple more weeks to wrap my head around something before I recommend it and I need time to see the long-term effects for me also. But I have a strong inclination to quickly get this information to the group, so perhaps this will help someone else suffering. Maybe this works, maybe it doesn't. I cannot recommend this as a cure, but I can only say this has helped me. However, I am not sure if it placebo. Anyways, I did an 18 hour fast and it helped with my HPPD. I will keep the anecdote short, because anecdotes never matter. What really matters is science and peer-review. I did this short-fast because I saw someone on here mention in a success story of curing HPPD on a 3 day fast. Someone commenting suggesting that it has to do with "neurogenesis". I did research on neurogenesis and it happens throughout our lives, such as during exercise or sex, so it doesn’t seem very significant. But, I stumbled upon a term called "autophagy" ah-ta-fa-gee. Researching this process gave me motivation to try a 18 hour fast. My HPPD since then has gotten better. On a scale of 1-10 my symptoms have been at a 5 since Saturday, when they usually average about 7 or 8. I am theorizing my symptoms decreased because fasting induces autophagy. Here is Autophagy from an article . "Short-term fasting induces profound neuronal autophagy" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3106288/ Autophagy is a key homeostatic mechanism whose physiological importance is reflected by its preservation throughout the eukaryotic phylogenetic tree, from yeast to mammals. In recent years, autophagy has been recognized as a crucial defense mechanism against malignancy, infection and neurodegenerative diseases Here is another definition. "Autophagy: cellular and molecular mechanisms" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2990190/ Autophagy is a self-degradative process that is important for balancing sources of energy at critical times in development and in response to nutrient stress. Autophagy also plays a housekeeping role in removing misfolded or aggregated proteins, clearing damaged organelles, such as mitochondria, endoplasmic reticulum and peroxisomes, as well as eliminating intracellular pathogens. Thus, autophagy is generally thought of as a survival mechanism. Autophagy is strongly induced by starvation and is a key component of the adaptive response of cells and organisms to nutrient deprivation that promotes survival until nutrients become available again. Stay with me here. But it pretty much takes out damaged cells from our brains and recycles them in the liver. This process is activated via fasting. "Neuronal autophagy: going the distance to the axon." https://www.ncbi.nlm.nih.gov/pubmed/18000396/ Furthermore, our study implicates dysfunction of axonal autophagy as a potential mechanism underlying axonopathy, which is linked to neurodegeneration associated with numerous human neurological disorders Let me know what you think, I am always prepared to be entirely wrong. There is no research on a link between autophagy and HPPD obviously. So I am assuming a causal relationship that bad neurons are the cause of HPPD. Here are more articles. I am hoping someone can partner and help me with this. "Disruption of Neuronal Autophagy by Infected Microglia Results in Neurodegeneration" http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0002906 "Constitutive autophagy: vital role in clearance of unfavorable proteins in neurons." https://www.ncbi.nlm.nih.gov/pubmed/17332773/ I found 2 posts of anecdotal claims. 2013 bluelight.com post about fasting curing hppd. http://www.bluelight.org/vb/archive/index.php/t-688613.html 2017 Reddit.com hppd forum success story about fasting curing hppd https://www.reddit.com/r/HPPD/comments/6ybbcs/success_story/ You can do an easy 18-hour fast by not eating after dinner at 5pm, and then not eating until noon the next day. Make sure you are healthy and talk to your doctor. I would like a couple people to try this to see if this actually works. I am going to start another fast today and I will report back in a week or so. Hopefully it works. Potential adverse effects for women. there are claims that fasting can cause missed periods. Also, unfortunately it seems autophagy is less profound with females. https://www.ncbi.nlm.nih.gov/pubmed/19036730/ In other words, the damaged neurons have a harder time dying off. For men, fasting will temporary lower testosterone. Do your own research and talk to your doctor.
  12. 1 point
    http://www.tandfonline.com/doi/abs/10.1080/15569527.2018.1423620 This could certainly explain mydriasis and a lot of the visual aspects of HPPD, but not all of course. What about DP, anxiety and all the other crazy mental stuff that goes along with it? I wonder if the nerve damage is widespread, effectively running from the eye to the back of the brain where other visual processing occurs. This could certainly explain the DP feeling of viewing the world from the far back of your head I guess...
  13. 1 point
    Wow nice find. This information needs to get out there
  14. 1 point
    In short, mostly the same thing anyone should do with serious health problems: eat whole foods, eliminate fast food, cut way down on added sugar and sugar in general, drink more water, fast here and there (as you point out), eat a balanced diet, etc. There are foods that specifically benefit brain health (turmeric, wild salmon, berries, nuts, a little dark chocolate here and there, tea, etc.) but as long as you're eating whole foods that come from the earth and not a factory you're gonna be alright. It's also important to not overdo anything. I've learned this the hard way, but essentially you can eat too much of anything and cause yourself problems. This is especially true for HPPD. In my experience aiming for a light ketogenic or paleo diet has been beneficial too, but again, following these sorts of trends religiously will only get you in trouble. They're best used as a rough guideline.
  15. 1 point
    Thanks for posting and I hope everyone here considers some form of fasting for their overall health even if they find no immediate benefits in relation to HPPD. I'm highly skeptical of the idea that fasting alone can "cure" HPPD. In fact, I'd go so far as to say it's not possible but because I'm no scientist I can't entirely rule it out. That said, fasting is a well-known agent in fostering neurogenesis. I don't know why but lately I've been coming across all sorts of articles and podcasts about the benefits of fasting and this post is of course no exception. I've done many 18-24 hour fasts over the last few years and though I've generally felt better afterwards it's quite clear they don't have the power to rapidly alter the HPPD state -- just as is the case with anything. HPPD recovery is a long, slow, arduous process that often lasts years. Though fasting of some kind should act as a tool in everyone's arsenal -- just like healthy eating, exercise, meditation, therapy, etc. -- I think it's wise not to get carried away with the idea it's going to act as a miracle cure. Eating healthy food can also be just as beneficial as fasting. Same with rigorous exercise, sleep, learning a new language and so on down the line. If there's anything I've learned over the last few years it's that there is no current cure for HPPD; however, there are many activities and natural processes by which, if repeated in a healthy manner, can drastically reduce HPPD over time and eventually heal your brain entirely. But again, these take repetitive practice day after day over the course of years. The brain has an incredible power to heal but it does not heal overnight.