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  1. 30 points
    Everything in our universe is quite simple, Push/pull concept, up down black white red blue north pole south pole day night sun black hole etc etc etc... well with our receptors its the same concept, agonist inverse agonist, I was thinking that maybe these very potent agonist of the 5ht2a receptors cause such an extreme push that things become out of balance, just like if you decreased suns gravity the earth would fall away, maybe we can utilize inverse 5ht2a agonists to accomplish the rebalancing of our receptors. unfortunately these dont exist that are on the market today, only in clinical trials, for the treatment of insomnia. Anyone have any ideas? Update: Full documentation of this disease can be found on page 24 post #478
  2. 3 points
    This was only posted a week ago: What always amazes me is the comments section, reading people who say HPPD is fun and they enjoy it. I'm happy to swap them their mild HPPD for my severe HPPD and DP-DR and see how much fun they have!
  3. 3 points
    Good one. Although my response would have been slightly different to Jay's edited post. That's also a strange comment from someone who just wants supportive comments on this thread. It doesn't add to the debate, either. You're just try to goad me.
  4. 3 points
    Couldn't agree more. It's ruining several otherwise helpful threads. All I'm advocating - and have been advocating all along - is that everyone: refrains from belittling the symptoms of others refrains from derailing threads by posting utter nonsense. Maybe I could have been more diplomatic, but I do admit that it gets on my nerves. This forum is a veritable goldmine - interesting thoughts and ideas are posted here every day. To see thread after thread derailed by the same person(s) is quite frustrating!
  5. 2 points
    Is someone blogging about structured water the best you can do? Maybe their argument was or wasn't flawed but what does that prove? Same for the other studies. And if you are going to continue to search out bloggers to discredit rather than actual 'sceptical' scientific studies themselves can you at least try someone like Ben Goldacre and stick to energy healing for the time being? If you think the placebo effect can be the only problem with these studies then you can't have read the whole thing, or have chosen to ignore that which may be troubling. "Also, I can experience and quantify energy medicine in real time by tracking my heart rate variability. All I have to do is simply look at something, say a picture, and there is a distinct and lasting effect. I can think of something, then the same thing occurs." - Seriously? Is some kind of 'energy' the only explanation for this? I honestly don't know how you can offer up a subjective experience like that and expect it to prove anything. It's barely even an anecdote. And of course, I don't take any of this personally nor should anything I say be taken personally; I enjoy a spirited debate- even at one in the morning after several glasses of wine.
  6. 1 point
    Best thing that helped my anxiety was diet. I'm convinced I had underlying inflammation which triggered anxiety my whole life and played the key role in getting HPPD. Once I went paleo, stopped eating processed foods and added sugar, my anxiety completely disappeared. Recently I have been diagnosed with inflammation in my stomach and what do you know, anxiety was back again like clockwork. Also, meditation and therapy worked wonders for me. If you do a combination of all those, plus exercise and stay active socially you won't need pills. Whatever you do, if you do decide to go the pill route, stay away from benzos unless you're really disciplined and can handle it.
  7. 1 point
    There is not much that I know of, these are two links I had stored: http://amrglobal.powweb.com/category/hppd https://www.theravive.com/therapedia/hallucinogen-persisting-perception-disorder-dsm--5-292.89-(f16.983)
  8. 1 point
    Don;t let doctors dictate your condition... If you think you have hppd, keep changing doctors until you find one that believe you and is willing to learn about it. Doctors will often say you are psycotic or depressed, it is easier for them to understand and "treat" (even if it makes you worse)
  9. 1 point
    Does she know you are going through this? Just let her know that if you are ever distant and unresponsive, it is not due to her, it's just an unfortunate part of the condition ... Generally though, just carry on with normal life as much as possible, you do learn to cope, even with dpdr
  10. 1 point
    Impossible to say, i'm afraid. My personal view is stress is probably responsible for belated symptoms, which will tie in with anxiety too.
  11. 1 point
    Welcome. Agreed. Stay away drugs including weed. Because you haven't dosed too many times chances are good that you'll see improvement over time. For many the anxiety is the hardest thing to deal with. Address that sooner than later. Try to stay focused and keep moving with life. I don't know enough about your situation to answer your question about DP/DR. Nor am i really qualified. That being said, anxiety can do a lot of strange things both physical and mental. Good luck!
  12. 1 point
    Yes, if you are getting VS after drug use, that is very likely to be a form of hppd. Usual advice applies... stay away from all drugs (inc weed)... avoid caffeine and alcohol, where possible, minimise stress, eat healthy, do some excerise, do things that will take your mind of the symptoms. All the best, Jay
  13. 1 point
    I don't get it. If it cured you in 2012 why are you just posting now?
  14. 1 point
    Yes. However, It always gave me an uneasy feeling knowing that stuff was tampering with my dreams. Dreaming is an essential part of our mental maintenance and disrupting it never felt right. I could only sleep on a very purified acid taken in rather low doses. The dreams were strange .... very strange. Personally, I'd just go for a clean and sober sleep. You'll be happier in the morning.
  15. 1 point
    So about a month ago I found out my family friend met the head of Neurology at columbia presbyterian in NYC at a party; his name is Dr. Fink. He has 75 neurologists working under him and is going to assign two of them to me. I meet with him on Jan 10th so hopefully I'll get some good news. At least I can maybe I can garner some interest in the disorder.
  16. 1 point
    You sent me a PM but I like to reply to people in public for others who come searching for the same answer you are looking for. One should treat HPPD as if you have a concussion---don't drink or use drugs while recovering. It will only delay your recovery or possibly make your state permanent. It sucks but your future self will thank you I find full spectrum CBD used in a vape is helpful as an alternative to pot and can help ween oneself off chronic smoking. I can't say whether all ppl with hppd will have this same reaction since everyones etiologies can be so varied but i thought i should put it out there.
  17. 1 point
    Bacopa has so many neuroprotectant, antioxidant, and neurogenesis effects its unbelievable. https://selfhacked.com/blog/bacopa-monnieri-4/ It also increases blood flow to the brain.
  18. 1 point
    Yeah, if unrelated claims from some nutty broad in a tabloid newspaper don't prove the usefulness of meditation with regards to HPPD I don't know what will.
  19. 1 point
    I'm just going off what you said. The highlights: "Ive tried to be positive with you and ignore your blatantly shitty attitude multiple times, but seriously? Its no wonder you havent recovered." "It just saddens me to see that this condition has made you such a bitter person." Possibly the worst, and insulting to many people other than myself: "I dont mean to sound rude, but how the hell did it take you 10 fucking years to figure this out? I had this figured out within a week and knew what was going on with me. I figured most people had the sense enough to look on the internet and at least try to figure out what was wrong." - Again, how can you reread this and say I am the one with a higher than thou attitude? Feel free to quote any instances where I was similarly insulting. I reacted angrily, especially initially, to your insults, but essentially continued to try and debate the matter at hand - something I hope we can stick to if this must continue.