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Hallucinogen Persisting Perception Disorder (HPPD) Support Forum

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  1. 2 points
    Just try to relax and see how you heal over the next few months... Don't do any more drugs, try to eat well and exercise and just do things that take you mind off hppd (films, tv, books, sports... whatever works)
  2. 1 point
    [Edit 2016.03.24:] Poll added http://hppdonline.com/index.php?/topic/5124-thiamine-cocarboxylase-the-poll/ Over the years have taken various B complex supplements. But recently tried Thiamine Cocarboxylase (one of several forms of B1) with notable benefit for fatigue. Then ran across this article: The Beneficial Role of Thiamine in Parkinson’s Disease http://www.neurores.org/index.php/neurores/article/viewFile/155/155 Am clueless as to why this form seemed more helpful ... and will experiment Aside from HPPD or PD, Thiamine has long been understood to be vital for neurological health. And its deficiency is detrimental, such as seen in alcoholics. But this leads to the question: Has anyone else noticed help from Thiamine (in general) or Thiamine Cocarboxylase? Please share your experiences and thoughts. Edit: The source of thiamine cocarboxylase that I am trying is this particular product: Bio-3B-G. http://www.bioticsresearch.com/sites/default/files/productlabels/1137-web.pdf Have tried 100mg of Thiamine mononitrate (very common version sold) but didn't notice it. However just 3mg of Thiamine Cocarboxylase is helpful.
  3. 1 point
    I realize this thread is old, but I found it through a Google search and registered to thank VisualDude for creating the post. I also thank him and everyone else for the many pages of questions and comments. While I do not have HPPD, I have other challenges and spent the past several years visiting doctors, having lab tests, and spinning my wheels with little progress. One of my lab tests (NutrEval Plasma) reported I'm low in B-vitamins -- particularly B1. Though I've tried various methylated B-complex products (I have a single C677T gene mutation), I've never noticed any benefit. After reading this thread, however, I'm planning to try the Bio-3B-G product from Biotics Research. Though I have no idea if the product will make a difference, at least I have something new to try. Doing something is usually better than doing nothing. So, I now have something for which to be hopeful. From what I've read, this is a pretty amazing forum with some really smart, supportive, and caring people. I wish you all health and happiness. Sincerely, Simon
  4. 1 point
    That "doctor" is a Bunghole (fake policeman with lots of political power).
  5. 1 point
    Warning: We gonna find that little fuck doctor after all, because he is worse than Joseph Mengele...
  6. 1 point
    Hey! Im form Bulgaria too! Actually quite weird you came across lsd there, is quite rare or that's what I think so. I dont live there anymore tho. https://www.reddit.com/r/HPPD/comments/9ui20d/i_cured_myself_from_hppd/ http://hppdonline.com/topic/5967-so-i-cured-my-hppd-using-indutrial-bleach-wtf/ There are the posts where I explain my case. I cured it using high doses of MMS/CDS. DM me if you have any questions. Peace!
  7. 1 point
    My advice is to go completely sober of everything that can affect hppd (negatively or positively) so that you get to know and understand your baseline. If you just jump straight into meds that will hide your symptoms, you might then start doing things that are making you worse without really noticing it. Give it 2-3 months and see what happens with your baseline. You might start naturally recovering... If you don't, then look into meds. If the hppd gets really bad during that time though, then yes, benzos can really help.
  8. 1 point
    The Visual Snow Syndrome study carried out by Dr Goadsby is close to starting a treatment phase of research . Yesterday Jen Ambrose posted an update ongofundme : https://www.gofundme.com/visual-snow '' Hello Eye on Vision Supporters!I'm sorry that there was such a long delay in hearing from me, but I sustained an eye injury in Feb and am only recently returning to limited computer use. I do have an update from London to share with you. Patients have begun to be qualified and scheduled for testing. Scans are scheduled for May and June at King's College. This is an important phase of research, because what is learned from these scans will determine how we enter into a treatment phase of research. Without this phase of research, we will not be able to proceed to medication testing. With that being said, I've been approached about funding for Dr. Puledda's salary for another year. Dr. Puledda works under Prof. Goadsby and is the primary doctor assigned to the Visual Snow research at King's college. As stated in previous updates we need approximately $70,000 USD per year to employ her. Currently we have only raised $20,000 USD which is a far off sum from what is actually needed to secure her. Almost all of you reading this who have VS have likely undergone an MRI. You have likely seen the very high bill to your insurance, or you have paid out of pocket. It's not uncommon to see bills over $1000. We are very fortunate that King's College covers all of these costs towards VS research. We need to assist them though by being able to pay Dr. Puledda for her time and efforts on our behalf. We would love for you to become a monthly donor and help us achieve our research funding goals. You can sign-up as a monthly donor here:http://eyeonvision.org/donate-to-the-eye-on-vision-foundation.htmlThank you, Jen Ambrose Please everyone make donations!! I know you guys got visual snow syndrome from drugs ( just as the forum info section itself says : drug induced visual snow syndrome ) but the symptoms are the same . A cure could be on the horizon if we start making donations!!! I've posted links about few other rare diseases that have found cures( or are close to finding one) purely by making large donations and not giving up . This is what patient determination and donations can do : https://www.hippocraticpost.com/innovation/gene-therapy-nervous-system-disorders/ https://www.technologyreview.com/s/603832/determined-parents-are-moving-the-needle-on-gene-therapy/ there are some other articles I came across a while back but I don't have the time to search for all of them again . However I hope that the above articles will inspire you to make donations for the visual snow syndrome research. It's the only option we all have left now !!!
  9. 1 point
    PharmacodynamicsEdit Pimavanserin acts as an inverse agonist and antagonist at serotonin 5-HT2A [5]receptors with high binding affinity (Ki 0.087 nM) and at serotonin 5-HT2Creceptors with lower binding affinity (Ki 0.44 nM). Pimavanserin shows low binding to σ1 receptors (Ki 120 nM) and has no appreciable affinity (Ki>300 nM) to serotonin 5-HT2B, dopamine (including D2), muscarinic acetylcholine, histamine, or adrenergic receptors, or to calcium channels.[1][6] Pimavanserin has a unique mechanism of action relative to other antipsychotics, behaving as a selective inverse agonist of the serotonin 5-HT2Areceptor, with 40-fold selectivity for this site over the 5-HT2C receptor and no significant affinity or activity at the 5-HT2B receptor or dopamine receptors.[2] …………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………… It’s like playing Russian roulette . look at its mechanism of action . it is working on 5-ht2a which is responsible of visual phenomena . It’s known that visual cortex has a-lot of 5-ht2a receptor and activating or deactivating this receptor will play a rule in how you see things .In the end it’s your choice.you take the drug experiment or stay away till they make more studies on hppd .
  10. 1 point
    My hppd and dp went away today. I used thianine and valerian root and my meds. meditating, I resolved a lot of unresolved issues after therapy. Meditated for 5 hours to deal with some ptsd and psychosis and dp and straightened my posture
  11. 1 point
  12. 1 point
    Hi Jason, it sounds like you have a good attitude. That goes a long way in helping one be well. You're also avoiding psychedelics and weed, that is another important step to getting well. You mentioned how your heart rate spikes. I dealt with that for a solid decade. You're practicing meditation. Stick with it! I used to have panic attacks until my doctor sent me to meditation training at a local teaching hospital. It's powerful medicine if you practice. It takes time for the deeper benefits to kick in, but it leveled me out. I practice daily anywhere from 30 to 60 minutes daily, rain or shine. The other thing that helped me was throwing myself into life. Going to school, raising kids, my profession, hobbies, etc. Keep busy, keep focused, keep moving. Perhaps it's worth mentioning, I've never taken prescription medication to treat hppd. I realize medication helps many people in this forum so I'm not knocking it. It just wasn't my path I guess. That, and few doctors had ever heard of this disorder during 80s or 90s. I'm an old guy who took a truck load of psychedelics when I was a kid. I stopped when I turned 20 after 6 years of heavy use. Life can be wonderful even with this disorder. Don't let it define you. Perhaps that's easy for me to say after all the decades I've had to get used to hppd. You mentioned "life is forever". It goes by in a flash. Either that or it just seems that way as the decades tick by. To me, it's gone by fast! I hope what I've written is at least somewhat coherent. Take care.
  13. 1 point
    Great post, thanks. Just to add to the clonazepam section.... Here is a system that I use which allows a lot of relief with minimal risk of addiction/tolerance (it's worked now for 10+ years). I use a 4 days on, 3 days off benzo treatment with 14 days off every 3 months to further clean the system: Clonazepam (1mg) - Thursday 6pm Clonazepam (1mg) - Friday 9am Clonazepam (1.5mg) - Saturday 9am Clonazepam (1.5mg) - Sunday 9am Please note that if I feel ok on any of these days and have no social situations, I often skip the dose that day. And, of course, you could pick and choose any days, but they need to be in blocks, eg, mon, tue, wed, thu. This works for me, but tread carefully as these are crazy addictive drugs... Maybe try 3 on, 4 off first and never skip the 2 weeks off part. This is essential to test your tolerance and addiction.
  14. 1 point
    Hey guys, Just wanted to report on what my experience with dosing with both Abilify and Levetiracetam (Keppra) has been like for me. I know most people have had bad experiences with Abilify. What I began noticing back when I was in the hospital, was that after they started me on keppra, the antipsychotics I would take (primarily Seroquel or Olanzapine at the time) would no longer cause adverse reactions to my hppd. They began having what I felt like was their intended effect - sedation. This was strange to me because for example, every time I took Seroquel prior to being on keppra, it would cause an exacerbation in my visual symptoms. With all of that being said; im one of the unlucky ones with HPPD, who upon getting HPPD developed a psychotic concurrent disorder somewhat on par with schizzoaffective disorder. Because I had HPPD I wasnt able to effectively use any antipsychotics to quell these symptoms. So then I remembered that after being on keppra, I was able to dabble with antipsychotics. So I figured I'd talk to my doctor about trying out Abilify. (Aripiprazole) The first 3 days, it made me feel really good and calm, then for the next two weeks it kind of made my HPPD a little but worse. I figured I'd try it out for at least a month before making a final decision. Anyways, that whole hypothesis about keppra enabling the use of antipsychotics proved true for me with Abilify as well. It's been about a month, and basically what happened was that the visual symptoms of HPPD basically got worse for a little while, but then returned to baseline after about two weeks. This is great for me, because IMO Abilify is one of the best antipsychotics out there. What's great is after my hppd returned to baseline, I've been able to keep the antipsychotic properties that Abilify has to offer - which so far is working really well for my psychotic/schizzoaffective symptoms. Just thought I'd post this little blurb, as maybe this could prove useful to those out there who suffer from *just a little bit more than hppd* TL;DR - keppra has allowed me to use Abilify effectively without causing my hppd to become worse, and has been helping my schizzoaffective symptoms while the keppra helps my hppd along side it. ?
  15. 1 point
    I really want to thank those who've posted on this site and in this thread advising me to avoid Cipro. This is why it's important to keep a database like this on the Web. I instead elected to see a naturopathic doctor who prescribed me natural antifungals which are much safer than fluoroquinolones. For those contemplating which antibiotics are safe I'd recommend using the search bar at the top of this site to see what comes up.
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