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Hallucinogen Persisting Perception Disorder (HPPD) Support Forum

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  1. 2 points
    Important Please Read: I've been reading a lot and I think that there may be a possibility and link to a nutritional deficiency in HPPD, which realistically would assess the strange variable nature of this condition. If you at immediate glance question the severity of nutritional deficiencies just look up Pellagra and Scurvy, they eventually die if its not corrected. Most vitamins are antioxidants and neutralize free radicals, and hallucinogens stimulate neuronal metabolism leading to excess free radicals. When free radicals are excessive and deficiencies have occurred of said nutrients, the free radicals can no longer be controlled and spiral out of control, damaging surrounding tissues. These tissues in turn become inflamed and even due to their neuronal nature start becoming demyelinated, this is the explanation for the very mild incidence rate of white matter hyperintensities in HPPD MRIs, however not in all. These demyelinations under the given uncorrected circumstances cannot or very difficulty be repaired, unless the deficiency is corrected. The deficiency would also explain why some people never get HPPD, even with extreme doses of LSD use, they have plenty of reserves of the free radical neutralizing vitamin necessary. It would also explain why some people only get it after multiple uses of hallucinogens, eventually they deplete the vitamin, whichever it may be. It would also explain the relationship with alcohol initiating HPPD in people who did hallucinogens a month or two beforehand, alcohol also may variably deplete the vitamin. It also could explain the spontaneous recovery of some few individuals that have reported it. It would also explain why multiple different drugs initiate HPPD, from alcohol, to weed, to hallucinogens, they all stimulate neuronal metabolism by excitation and or drain certain vitamins that are vital to neuronal functioning and maintenance, hence the symptoms. Also some of these vitamins are absolutely crucial to proper neuronal function and a deficiency only of some, like Vitamin B3 can lead to psychosis. I could elaborate further on this but will refrain for the sake of brevity. If anyone in the slightest bit thinks this to be a complete impossibility, like i said look up pellagra and the mental health issues they have, and even vitamin b12 deficiencies cause demyelination of axons. And even some may argue that the nutritional RDA is met by common foods, this assuredly isn't true, and proven not to be true, especially in the cases of drug use and alcoholism, there are definitely related deficiencies common with these habits. I think that this possibility has some of the most merit than any of my other ideas, so if anyone would like to try and experiment as to whether a treatment will work, then they should get a full spectrum b vitamin complex(All B-vitamins known). and also Vitamin C. The B complex should be higher than the average listed RDA, as typically it wouldn't be enough. And the vitamin C needs to be at the very least 1000mg a day. Treatment should be carried out for 6 months. I wont get in to all the details as to everything correlative with vitamins, their deficiencies, and their importance, but if anyone cares to know more, they can read "How to Feel Better and Live Longer" by Linus Pauling, two time Nobel Prize winner and profession chemist. Even if the treatments don't work, at the very least it will certainly improve the health of the person taking these vitamins. If its not that then we may have some genetic defect. If you do try this treatment please report that you are trying it, and also please absolutely follow up with your results in the future. Thank you! Edit: I also forgot to add that I read that taking large doses of vitamin B3 will end an LSD trip within roughly 30 minutes, which shows a specific relationship with it and hallucinations, but not however with LSD diectly as far as I can conjecture, as LSD usually is metabolized within 30 minutes of hitting the blood stream. However the hallucinations continue for hours, which shows that the actual cause of hallucinations are downstream from LSD metabolism, and have a direct correlation with Niacin(b3) if thats true. I didn't read it from what I would consider an absolute reliable source, but there very well may be some merit and truth to the statement, as it wasn't an unreputable source either. If anyone else knows more feel free to share.
  2. 1 point
    I'm not qualified to determine if you have hppd. Some of your symptoms do sound "hppd like", but they sound mild. I'm sure they don't seem mild to you, and I'm not trying to downplay your symptoms. The advice most people will give you is "stay clean". Trust me, hppd can be truly debilitating. If you stay clean and give it some time your symptoms will probably improve. If you keep using chemicals MDMA, you're tempting fate. Hang in there.
  3. 1 point
    I'm gonna relay my own experience with trails and afterimages, and some things I've realized about it which I think could possibly be a lead to some treatment. Of course this is completely personal and probably won't apply exactly to other people, but it might have something valuable. So first of all, I developed palinopsia before I used any drugs. It was not very strong though. It didn't bother me too much. Then I started smoking weed and it became significantly worse. It happened particularly from two heavy smoking sessions, getting worse on each one. It became very depressing and difficult to manage. A few years after that, I tried Gabapentin, though I didn't take it therapeutically. As other people have reported is an effect of the drug, the palinopsia got worse. However, it returned to baseline after the drug left my system. Just recently I took a large amount of DXM in order to cope with an opiate withdrawal. The palinopsia got permanently worse again. Since then, I tried Gabapentin again, and once again the palinopsia got worse, but it returned to baseline after I stopped taking the drug. However, this time the trails I saw on Gabapentin were worse than the previous times I had taken it, before the DXM, so basically Gabapentin makes the trails worse in comparison to your baseline, whatever that is. If I never had any trails to begin with, it would probably result in an effect similar to what I see anyway. So I have a couple of things to takeaway about this: 1. Some drugs induce a long-term effect of worsening my afterimages, as if the brain, after experiencing the effect on some drug, comes to think of it as normal, and doesn't return back to my previous vision. However, some drugs don't do that, namely Gabapentin. There's something about certain drugs such as weed and DXM, which makes the brain retain the visual phenomenon and not go back to normal, while Gabapentin induces the trails differently, in a way that doesn't foo the brain in that way. 2. My brain seems to really think that this vision is normal, because even after taking another drug that would induce palinopsia, it makes the symptoms worse, rather than just leaving it at baseline. 3. If I could understand the mechanism by which drugs like weed and DXM affect my vision in a way that makes it not go away, vs. the way that Gabapentin affects the brain, I could determine a couple of things. One would be which drugs would be safe to take and which would be harmful, and two would be that I could possibly find a drug which affects the brain oppositely, reducing the afterimages. Also, if I could understand the mechanism by which the effect stays with persistence, I could possibly find a drug that has that same mechanism, but in reverse. 4. My palinopsia isn't just some sort of illusion which is induced by my own neurochemistry alone, it's the result of a very specific effect on the brain, which certain drugs apply in the exact right way to make the brain think that this new perception of vision is normal, and to make it the baseline. So hopefully that's interesting to someone. I don't know how I would go about pursuing any further research into this, but maybe it will help someone else. I'd be curious to know how much other peoples' experiences line up with this.
  4. 1 point
    Like three weeks or so, anyway my case its not steady, somedays its like im on 100Ug of lsd some others is less noticeable, i had to quit pot too
  5. 1 point
    Antidepresant use to make symptoms worse, i took Mirtazapine or Remeron and it made my symptoms sky rocket, i passed trough VS to double image and trails in vision, it helped me to disminish anxiety though, but made visuals worse, then i stoped the use, and my HPPD is starting to be on vase line again. its better if you look for natural remedys like lion mane, to say at first i didnt realize i was sufering HPPD and continue to smoke weed while using the antidepresant wich made everything worse. Try to meditate and be patient, its seems like only time and natural healing is the path with this living hell. Keep in mind that this is only a disorder, it wont let you blind or make you lose your mind completely, although is harsh the most of the time, let the disorder do wharever it wants with your vision and dont resist it, like Carl Jung said, what you resist it persists, i hope your HPPD gets to a bearable level and stays steady so you will be able to heal completely. my best wishes, keep up bro. 5 months with this unpleasant partner HPPD.
  6. 1 point
    Well its hard to tell, it changes from one person to another, many people can stand drugs of any kind anymore (not even alcohol), some others keep smoking weed with ligth use, but definetly my advice for you its to satay sober for a while at least, let the hppd show its face for you, cause this disorder its so fucking unpredictable its better not to mess with it, i was at the same point at the beginnig afraid of not be able to smoke weed again cause i just loved it so much, but man we can live a completely happy life with out substances, at the end you will do what you want, but keep in mind HPPD its very unpredictable, what may have worked for somebody may not work for you and vice versa, stay safe and i hope your HPPD stays steady and you can recover completely. Hope
  7. 1 point
    @Stuie I'm not a doctor or any sort of hppd expert. I'm just an old guy who has had this disorder for a long time. Keep that in mind while reading this When I was dosing, like you, I dosed frequently and I tended to take high doses. Unfortunately, I kept dosing after I noticed my visuals weren't going away after I came down. What I ended up with is visuals for life. Some of my other symptoms subsided like CEVS and anxiety, but it took decades. It's interesting that your symptoms come in bursts. Is there anything that seems to trigger them? Stressful situations, is it random, something else? Do the visuals always come with the anxiety? When you don't notice anxiety/visuals, do you otherwise feel OK? As for suggestions, I can only tell you what I did. I don't take medications, but there are people in here who have had success with them. For me, I noticed that when my mind is focused, I don't notice my symptoms. I meditate daily which helps with mental focus, lessens anxiety, and helps me control that internal mental chatter. I stay as busy as possible which is basically being focused. Exercise helps me a lot as does eating a clean diet. That's me, everyone is different. Most importantly, stay away from psychoactive chemicals. If you keep dosing, it probably will get worse. Please understand that if you do have hppd, it's very possible to live a wonderful, happy, and productive life. Hang in there, and take care.
  8. 1 point
    Very interesting information. I'll do some research as well in the next few days. However I'm also 75% sure we have a genetic, maybe not defect, but weakness at the very least if you know what I mean. We have a history of vision issues in the family, both with the brain and eyes.
  9. 1 point
    This is what your argument actually looks like to @TryingToHelp
  10. 1 point
    You are yourself saying it's a mystery, so why do you keep saying that the only solution pretty much is linked to anxiety ? What makes you say that ? Research suggests that bad trips could make HPPD more likely to appear, but again, it's just speculation. Many people have HPPD without any anxiety or caused by a traumatic event. This sentence applies to you as well. Your answers make it look like you are the one with the solution. Mean-fucking-while, there are people who have looked into every single possible explanation, anxiety, neuronal, immune etc etc etc, dasitmane and others are no exception. Trust me, we are open to all ideas, even the weirdest ones, but being so stubborn to say that the only way out of this mess is by focusing on anxiety and anxiety only is stupid imo. Even actual research, people who know what they are talking about, found no proof of anxiety triggering HPPD. It can worsen it, but not cause it.
  11. 1 point
    And here we go. @dasitmane dragging someone else into his web of despair. Guy just needs to deal with his mental health issues and here you go trying to convince him he has 'hppd'. Nothing could be less helpful.
  12. 1 point
    Hey guys, just wanted to drop in and post an update on my HPPD recovery... In another six months I'll have my five year anniversary of when I first got HPPD. I've posted every year on that day and I plan on doing so again in six months but something just triggered me to want to post now. Basically I'm updating a lot of stuff on my computer and I went through old notes I made when I first got HPPD. I hadn't read them in three years. It was surreal to see how far I've come. So much of my notes were about how painful life was each day, how I could barely make it through, how HPPD was like hell and how I thought of suicide constantly. I also had severe depersonalization which I wouldn't wish on anybody. I literally couldn't tell whether I was alive or not when I first got it. It was really bad. Though I'm not fully healed and still have minor symptoms of HPPD (mostly visual snow, occasional tinnitus, some afterimages at night, etc.) I'm also at the place in my recovery where I'm able to move on with my life, and that's truly a miraculous thing to say considering where I was even two years ago. This point I've arrived at is all I ever wanted when I was living in a 24-7, Alice-In-Wonderland hellscape of a constant lowgrade acid trip. I would have given anything to be where I'm at today. And yet, here I am, and it doesn't seem so special because HPPD takes so many years to heal from. As many of you know this disease is not something that just disappears overnight. It takes many years of backbreaking work to improve, but I'm proof that if you're willing to put in the work you can get to that place. If I could impart any advice on those who are suffering right now and don't have much hope I'd really emphasize the power of natural healing. The body is a healing machine. It's designed to repair itself at all times. The main hindrance is of course interfering with this process by causing your body even more damage than it can handle and our modern world is essentially a barrage of micro and macro insults to this repair system. My true healing journey began when I put down the fast food, spent countless hours in nature and in sunlight, always kept my body moving, nourished myself with natural foods and medicinal plants, embraced the power of love and took steps to face my own personal demons and confront my childhood trauma that manifested in the anxiety that got me HPPD in the first place. If you're at all stuck or just wondering how you go about navigating a healing journey I really hope you'll consider getting back in touch with nature and letting evolution do what it's been doing for billions of years on this planet. I don't mean for this to sound too woo woo but I just know it works because I tried everything and natural medicine in combination with time is the only thing that gave me actual results. Please stay hopeful if you're able. I understand as much as anyone how distressing and hopeless this disease can be so I'm not gonna lecture anyone on how they should see things, but I do believe there's almost always reason for hope with anything, even this bastard condition. If anyone needs help or advice or just someone to talk to please don't hesitate to reach out. -- K.B.
  13. 1 point
    Hard to answer that question, but you recovered once before.. So I think it can happen again, probably take a similar amount of time, maybe less. Don't beat yourself up over it, this happens to most everyone on here. Just make sure to learn from this set back.... Your brain/body is telling you that you are not built for drug taking, it's gonna be difficult saying no... But trust me, that difficulty is nothing compared to a life of madness that hppd brings. There is plenty of fun still to be had... You can enjoy some beers, get laid, go travelling etc etc ... meditation/yoga if you feel a spiritual void is lacking when you stop the drugs. Hell, in a few years you might even be able to light up a mild joint without any problems. Good luck, Jay
  14. 1 point
    One of causes thar are supposed in headhache is inflamation, and ibuprofen is an antinflamatory, so, it can help you. I had suffered since I was a child, and ibuprofen was my best friend a lot of weekends (more than any human, lol)
  15. 1 point
    FUCK that. glad i dont have it
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