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  1. Yesterday
  2. It didn’t in my case. I was on clonazepam for a year. It did, however create some new cognitive issues that are very slowly going away (but may be permanent)
  3. Last week
  4. I know some people who were safely doing Keto for a long time. Is it really that dangerous?
  5. I have done MDMA twice since onset of HPPD and it did nothing for my HPPD and visual snow symptoms (didn't make it worse or better). I think my HPPD and visual snow is strictly linked to psychedelics (although the only psychedelic I have ever done was LSD). I would actually be willing to try this new MDMA therapy under the guidance of a professional. There has been new evidence showing that it is very effective in treating post traumatic stress disorder. The link to the new study is below: Effects of MDMA-assisted therapy for PTSD on self-experience However I would be weary of most drugs nowadays since a lot of them seem to be laced with fentanyl and other synthetics. So many people have died from drugs in recent years because of this.
  6. You can get much, much worse... I can't emphasise this enough. MDMA is arguably the worst drug you can take if you have HPPD. It turned my hppd from something manageable to something that made me want to die.
  7. What can happen if you have HPPD and use ecstasy? What symptoms can occur? Does anyone have any experience?
  8. Earlier
  9. Hey, thanks for sharing your Keto experience! It sounds like you've been on quite the health journey. Considering the side effects you mentioned, have you ever considered giving VR fitness a shot (you can read more at https://fitnessown.com)? It's a fun and engaging way to stay active without some of the challenges of strict diets like Keto. Plus, it can be a great way to mix things up and keep your workouts exciting. Just a thought! Keep exploring what works best for you.
  10. sorry to hear about your struggles with HPPD. it's tough when meds seem to help with sleep but worsen other symptoms. Have you discussed this with your doctor?
  11. Hey, that is tough. Have you talked to your doctor aboHey, sorry to hear about your struggles with HPPD. It's tough when meds seem to help with sleep but worsen other symptoms. Have you discussed this with your doctor? They might have insights on adjusting your dosage or exploring other options, like pregabalin (you can buy pregabalin uk here). It's always good to keep the communication open and find the best solution for you. Take care! ut it?
  12. Maybe there is a way to cure or treat HPPD by replicating what happens in the brain during mania without actually inducing full blown mania? Functional neuroanatomy of mania
  13. Very interesting and the first time I heard of it. I remember watching this schizophrenic on YouTube who also had HPPD and he never mentioned that and he would say he could tell the difference between his schizophrenic hallucinations and HPPD pseudohallucinations.
  14. Hi John, that's an interesting observation and one i'd never heard of before. I can only assume certain chemicals are being released during those episodes that help with visuals, (Gaba?). Hopefully some of the more scientifically minded posters can add their thoughts.
  15. I'm around the same time frame as you (11 years). It gets a lot better but it's still very distracting for me at least. Like just now I felt like I was semi tripping again and at night the headlights from bicycles, motorbikes, scooters, cars, etc are like overwhelming. Sometimes certain noises become like overbearing. Thank you and I wish you the best as well!!
  16. It's been 12 years since I got dpdr and hppd now. I still have symptoms like afterimages, especially during nighttime and when I get tired. And dpdr occurs from time to time. Even though some symptoms are still there, they are no longer the focus of my day as they used to be during the first 3-5 years with the disorders. It is a blessing to wake up and not have my dpdr/hppd to be the first thing I think about in the morning. To anyone who is in the beginning of this suffering journey: you will get through it. Life will get easier. I still haven't returned to how I was pre-disorders. But I have accepted that I might never again feel "normal" as I was before. I honestly don't even remember what it feels like to feel normal. This has become my new normal and I no longer feel fear in being this way. I do grieve the loss of my old normal, but life feels much easier now that time has passed. I wish everyone luck and strength on their journeys. And once again. Forever thankful to this forum and people here who comforted me in my biggest time of need.
  17. AmitV

    VSS or HPPD?

    Yes SSRI trintellix started it. As far as I’m aware trintellix is a glutamate agonist and was modelled as an antidepressant after mushrooms.
  18. A bit more on it: https://pharmatimes.com/news/neurona-secures-120m-to-advance-lead-cell-therapy-candidate-for-epilepsy/ But sadly only 30-35% get past phase 3 trials, and this is a loooong process, we're talking a minimum of 5+ years. https://g.co/gemini/share/a5bfbd1240f9
  19. Whoever this person is, is trying to imply that HPPD is a functional neurological disorder. Which comes with hypervigilance and severe anxiety. The problem with this theory is drug induced akathisia and parkinsonism is 80% of times diagnosed as hypochondriac or FND. When in fact it is a real condition.
  20. bomb exploding in the head is this: https://akathisiaalliance.org/wp-content/uploads/2024/01/Guide-for-Clinicians-012224-editable.pdf https://rxisk.org/pyridoxal-5-phosphate-and-akathisia/
  21. I'm bipolar 1 and I have had two manic episodes one at 30 and one last year at 38. When I'm manic all my HPPD symptoms go away. When I come down from the mania and shoot down into depression they are back really bad. Thoughts?
  22. Thanks for sharing your experience with Russian peptides like Pinealon, Cortexin, Cerluten, and Cortagen. It's intriguing to hear how they've had positive effects on you, especially in reducing afterimages and cognitive enhancement. Your brief but insightful post sheds light on potential treatments that others might find beneficial. I appreciate you bringing awareness to these peptides, and it's always valuable to hear personal experiences with different supplements. By the way, I came across some info about Protein Overload in hair recently, which you might find interesting.
  23. I started active vitamin b6 (p5p) for treating drug induced akathisia. Turns out it increases production of the liver enzyme that delivers brain gaba. An immense relief from anxiety, agitation. Noticed my visuals improved 40% over 2 months. Still have some crazy stuff. Who knows someone might get a bigger benefit out of it. No side effects. I’m up at 500mg/day. Split into 3 doses per day. Some people report nausea and headaches over 100mg doses. But my understanding is in some people 50mg is enough for an impressive improvement. Thought it was worth sharing here.
  24. Central Scotland here, where we are terrified of the men who terrify men and sheep.
  25. You need to taper very slowly if you decide to get off. The taper might even take a few years. My flare up from Phenibut is slowly baselining, though. It is a voltage-gated calcium channel blocker but has some GABA-b agonism.
  26. Hppd seems to be a functional neurological disorder. Symptoms can morph between range on any FND symptoms including head pressure and dizziness. anyhow my best suggestion is the steady coach program on YouTube. It’s free. You will understand the core concept of stress and past trauma, how to resolve in order to resolve symptoms. https://www.nhsinform.scot/illnesses-and-conditions/brain-nerves-and-spinal-cord/functional-neurological-disorder/
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