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Yes the one time I had an iv, when I had the pneumonia and e coli and hypoxia and dehydration in 2011, the iv helped specifically with comprehension and alertness and it raised my blood pressure. It has only been since 2011 that I've been inactive. I think there are two things going on. A problem with my cholesterol converting to the other hormones, and possibly a blood vessel issue in my brain. I've had high ldl cholesterol since 90s but I have had fluctuating deficiencies & hyper functioning of the hormones down the chain.

Looks like it will be a helpful test. Hope it goes well and you learn a lot!

What is a qeeg?

And I'm very much deconditioned due to symptoms are aggravated when I'm not laying down. I spend 18-20 hrs laying flat. As an example, I carried 6 light boxes down flight of stairs in 6 trips. By the 3rd trip, I was very shaky. By the 6th I almost fell from whole body trembling. I was too sore to walk for 3 days and remained so sore I was walking funny for another 3 days. Extremely deconditioned

Photophobia constant. Headaches of one variety or another constant. Other visual symptoms random and seem to correlate to blood pressure, blood sugar, and obviously stress.

I've been tested for both Cushing's disease and Addison's, because I have symptoms of both and labs that are either normal or not abnormal enough to be diagnostic. I also began taking the fludro because of high renin with low normal aldosterone. I also salt waste. I have not been genetically tested for cah or Addisons but I do not have adrenal antibodies. I have tests to do to check for carcinoid syndrome and pheochromocytoma. Part of that will test urine dopamine but because I'm a cigarette smoker it will skew the result. I also have the one c6t77 mthfr mutation which the high dose l methylfolate I was given I believe caused the mouth ulcer to appear that has been biopsied and said to be an autoimmune reaction of oral lichen planus. I'll be rechecked for autoimmune stuff again soon. Sjogrens, lupus, and Bechet's have been suggested but not confirmed, so I was labeled as fibromyalgia instead. The neuro opthalmologist summary said diagnosed with photophobia, exophoria, migraine, and other visual distortion with dystonic phenomenon and his recommendation was entirely focused on migraines and chronic headaches. Also my most recent brain MRI from october that was normal will now be amended to include I have a right sided VR space in basal ganglia and asymmetrical lateral ventricles. Oh and my iris color is washing out and I've got dots appearing on iris. Lische nodules are a sign of neurofibromatosis but they won't give a name to the iris color change or dots because I'm 34 and they think NF would be evident at my age, even though I know there are more then one type and its not always outwardly evident if you have one of the types that manifests as internal nerve tumors. I've taken a lot of meds and most react badly. I think with fludro to help with my electrolyte balance, xanex might help better. As for mj, I'm a half a hit and quit person. It calms my trembling, anxiety, headaches, muscle twitches, and helps me sleep. It also helps me eat since I'm chronically nauseous and will end up with low blood sugar. I have reactive hypoglycemia as well, so high carb foods a big no no. I smoke and drink coffee. The amount of both really varies based on symptoms. I quit smoking for 7 years and that's when all the additional non eye symptoms started. If I try the gum or patch it starts eating holes in my skin. If I don't have coffee I literally don't get out of bed. I've been prescribed birth control of various types at least 6 different times since 92 all with bad side effects such as migraines lasting weeks, rapid mood swings, chronic anemia, losing weight/underweight, and insomnia. I've also taken lexapro, sam e, st johns wort, amytriptalyne, nortriptaline, 5htp, lamotragine and wellbitrin. Xanex and lamotragine worked best. The rest worsened my symptoms or gave me worse new symptoms. I also always have bad reaction to antibiotics and narcotic pain meds so Tylenol and pot are the only two I can take and tolerate but only lesson pain. My anxiety really feel induced by shitty medical drs. I'm not anxious all the time or at every appointment. I'm anxious I think from the trauma of being sick so long with little improvement. The psychiatrist I saw, who still has been the most helpful Dr I've ever had, stopped seeing me because meds weren't helping and he determined that while I had bipolar 2 symptoms, they were from an underlying medical condition. (He was first to test adrenals and mthfr and hormones). Which he wrote in my disability application. Which was validating to one degree, but sucky in another because I am now thrush back into full time Dr appointments and red tape of medical records, etc. :/ like on top of being physically ill, these drs are stressen me out. I'd almost rather be sick in peace then be sick and continue to be put through the medical ringer. Especially when ever abnormal is dismissed as "MY normal" and every borderline abnormal is not diagnostic. Thyroid, adrenal, pituitary, kidney, ovaries, pancreas, skin, digestion, cognition, behavior and eyes. All with issues and labs that are ambiguously abnormal or equivocally normal results. That's the source of my stress I believe.

Hmm interesting. the brain. Its a silly creature.

Have you been checked for toxoplasmosis or cat scratch fever? Not sure about your manparts but the other symptoms and timing of cat scratching you made me think of it http://www.nlm.nih.gov/medlineplus/ency/article/000637.htm http://en.m.wikipedia.org/wiki/Cat-scratch_disease

Try electrolyte drinks like smart water. Dehydration is not something to take lightly. And yes humid weather is a lot like being in a sauna so it can suck moisture out of you through your sweat. If you're craving salt, having low blood pressure symptoms, etc, and water alone isn't doing the trick, eat a salty snack with lots of water. Dehydration can dilate pupils and I'm guessing that can distort vision.

Maybe dormant. Its definitely worth considering. I'm just not sold on it yet.

To clarify, valentines 2011 I was hospitalized for 4 days with strep pneumonia, antibiotics resistant e coli, hypoxia and dehydration. I also had h pylori eating holes in my stomach. The treatment for the infections were giving me lots of cognitive, bp, and digestive probs and it resulted in 5 months of being bedridden and losing 40 lbs. I'm better now comparatively but still struggling to function. Honestly the visual symptoms aren't even the hard symptoms to deal with anymore. There, but overshadowed by other more unbearable symptoms

I have started taking my old xanex script again in lue of med mj, I have high salt diet so fludro works right. Supplements of l glutamine powder, liquid iron, vit d, and b vitamins if I can tolerate (internal bleeding, low heart rate, and GI upset so I can't take daily), liquid Tylenol, aleve gel caps as tolerated (works best for pain but aggrevates peptic ulcers so I only take it when I'm desperate), and restarted oral steroid paste for oral lichen planus. I do want to say that the visual symptoms im complaining of have not been noticably better or worse from pot use and mine was not triggered from a specific episode of using it. Like compared to many people here with the stories of pot being the tipping point, or trigger. I really believe mine triggered after a climax of infections combined with work environment. Working in dim light staring at large high def high res large video monitors 45-80 hrs a week with long commutes during graveyard shift. Thats when these symptoms appeared. Sober, at work, straining my eyes, fighting off multiple infections. Pot very well might end up being behind it but I'm just not sold on that yet.

I want to do the DNA test but will it actually help with drs (do they take the 23&me results as hokus pokus) if a mutation pops up? I already know I'm heterozygous for ct677 mthfr and a family history full of neuroendocrine and neurodegenerative diseases but I'm accused of connecting too many "arbitrary" dots. I disagree. I don't and never have claimed that I know for sure what's wrong. All my inquiries are from actually researching, already ruling out what doesnt fit. I am an analytical, logical minded person who reads research articles for fun. My brain likes and needs the tickle lol so when I'm reading research articles published by NIH that contradicts a Dr who is rigid and outdated on a rare illness, I can't understand how they ARENT connecting the same dots I am. Medicines... I had reduced but still bothersome visual snow when I took lamictal, 300 mg. Dr put me on that because i felt seizurish and i was (still am) having frequent panick attacks from anxiety. It didn't improve the anxiety so He also had me on xanex which helped but eventually I developed low blood pressure and couldn't even tolerate the 2.5 mg dose. I weaned off to be tested for cyclical Cushing's and learned of the adrenal issues so was put on Fludro cortisone, which has almost eliminated visual snow. No meds were ever prescribed for visual symptoms but those two, lamictal but most importantly florinef, have helped with that one particular symptom. Do you mean what medicines I've taken in general?

I was an audio editor working in low light conditions in a building full of machines, staring at multiple high def high res large monitors when my visuals symptoms became too much to bare. I have not recovered. The height of the symptoms started in 2011 after a difficult recovery from pneumonia which had me hospitalized. Now that I take fludro cortisone visual snow has mostly gone but the other symptoms remain. I no longer work, still fighting disability, and am basically a behavioral and autonomic mess if I leave my house. I'm mostly a shut in who stays in bed and it sucks. I miss my old career. ):

I'm new. Just posted my introduction. Yes I tried hallucinogens a few times in 92-95 and yes I've used medical marijuana off and on with no lingering or significant visual problems. I do have a lot of other physical symptoms that seem endocrine, neurological, and autoimmune in nature, but still no solid diagnosis to tie things together. I'm wondering if any of you were diagnosed with it as a result of chronic migraines or neurological disorders such as Parkinson's or endocrine disruption dealing with your kidneys and adrenals?