When i had my onset i got an add diagnose by the doc. The HPPD was confirmed much later and the also the real issue. However, since keppra and clonazepam o started sinemet like 2012 (?) and it really changed my life. I basiacally wnt from being a functional veggie to a point living person again. However, as I got better i started to do more stuff. Work and study hard and while i was able to become functional again the last years, the feeling of "being" from sinemet has faded. I strongly believe this is attributed to stress. Stress deplete dopamine and voila, back in limbo.
So know when I am writing my theisis i basically crashed. There was just too much stress and i couldnt do anything. I remembered the ADD diagnose and that i tried concerta for that which is an amphetamine derivate of some sort. At that time it was a major problem because it amped my HPPD ten folds. However since then i have been on keppra. Another member, 415_style who i had some contact with since we come from the same country, said that he could take concerta (i guess adderall would be similar) only when on keppra or some other anti seizure med. He said then that he felt great and everything was fine, never heard from him again (tried to contact him by pm).
So, i gave it a try and its really amazing what it does. I been calling my family and friends and crying about all the lost years and the burden i felt i have been. Its like everthing is back in place. Today when i am writing this I am out of my med, only got one jar from the doc. and she went on vacation. I feel so depressed of being back to the same state as before the med. I just wanna go to bed and wait for the appointment to get more.
Dopamine meds have been discussed to a great extent and a lot of people here say the same thing, stimulants, can make the HPPD better while taking it but much worse when it leaves the system. To me I feel great but only because of keppra. Dont know if this is because keppra inhibits the dopamine firing like crazy.
What kinda scares me a bit is that some people on VS-sites report that they got it from ADD/ADHD meds. At the same time some people on ADD/ADHD boards say they get visual snow and tinnitus while on the med but not off. That would be a transient effect. The key word here is "some" as in anecdotal.
Anyway, i feel like i need to keep taking this for a while. Except the HPPD it helps me organize myself. Even if it isnt a long term solution, i now what is and that is to not put myself in stress. That is easier said then done with ADD.