HBB Posted February 14, 2012 Report Share Posted February 14, 2012 This post has been promoted to an article 3 Link to comment Share on other sites More sharing options...
Buddikaman82 Posted February 17, 2012 Report Share Posted February 17, 2012 Thanks for this, im going to try getting a prescription for keppra today. 1 Link to comment Share on other sites More sharing options...
gobigorgohome Posted October 22, 2012 Report Share Posted October 22, 2012 Thanks a lot. Feeling more hopeful. A bit worried, as the psychiatric side effects sound real and dangerous (rage, depression, etc.) but with such positive reviews it's definitely worth a shot. 1 Link to comment Share on other sites More sharing options...
Sammywalker2009 Posted October 23, 2012 Report Share Posted October 23, 2012 I spoke to 2 doctors here in the uk they were my gps who said they couldn't prescribe it to me due to them not understanding hppd and said the drugs wernt liscenced for use with hppd 1 Link to comment Share on other sites More sharing options...
r.trudeau Posted October 23, 2012 Report Share Posted October 23, 2012 I spoke to 2 doctors here in the uk they were my gps who said they couldn't prescribe it to me due to them not understanding hppd and said the drugs wernt liscenced for use with hppd Did you show them the actually study?? 1 Link to comment Share on other sites More sharing options...
r.trudeau Posted October 23, 2012 Report Share Posted October 23, 2012 Thanks a lot. Feeling more hopeful. A bit worried, as the psychiatric side effects sound real and dangerous (rage, depression, etc.) but with such positive reviews it's definitely worth a shot. My doctor said only a small percent of people get the infamous "keppra rage", and if you do perhaps experience negativity, the side effect should dissipate within a month. It's just your bodies way of getting use to the medication. 2 Link to comment Share on other sites More sharing options...
mgrade Posted October 23, 2012 Report Share Posted October 23, 2012 r. trudeau, did you go through the keppra rage? 1 Link to comment Share on other sites More sharing options...
Sammywalker2009 Posted October 24, 2012 Report Share Posted October 24, 2012 Did you show them the actually study?? I said there's been a study by an American doctor and they said do I know any uk doctors that are studying it or aware of it my doctors are useless they have been no help with my stomach trouble either I had to go to the hospital to get help 1 Link to comment Share on other sites More sharing options...
gobigorgohome Posted October 24, 2012 Report Share Posted October 24, 2012 That's shit your doctors can't help you out, Sammy. I think we definitely have a problem with over prescribing here in the U.S., but for stuff like this, there needs to be more support. Might be a while before I can try it myself- have to figure out insurance, find a doc, etc. In those who have tried it, how long did it take for side effects to mellow out? Definitely have a history with depression, so do not want to aggravate that (obviously that's an issue right now, due to my current quality of life). What I am really seeking relief from our the cognitive problems (short-term memory, processing information, attention/focus) and the DR (not sure how much longer I can stand feeling like I'm being tossed around in a dreamy boat). The snow and what not I can definitely learn to live with, as long as I have a sharper mind with which to do so. 1 Link to comment Share on other sites More sharing options...
Sammywalker2009 Posted October 24, 2012 Report Share Posted October 24, 2012 Yeah it's mainly my local gps who are being obtrusive I read they can prescribe off label prescriptions which basically means they can prescribe a medication which is liscensed for a particular condition if it might help so they were basically chatting rubbish when they said they can't prescribe it for me because it's not licensed to treat that medical condition I need a lawyer just to get my docs to prescribe me meds lol haha Link to comment Share on other sites More sharing options...
r.trudeau Posted October 25, 2012 Report Share Posted October 25, 2012 r. trudeau, did you go through the keppra rage? No, not really. I only experience "keppra rage" when I forget to take it for a day or two. I wouldn't even call it rage though. Link to comment Share on other sites More sharing options...
r.trudeau Posted October 25, 2012 Report Share Posted October 25, 2012 Did you show them the actually study?? I said there's been a study by an American doctor and they said do I know any uk doctors that are studying it or aware of it my doctors are useless they have been no help with my stomach trouble either I had to go to the hospital to get help Yea, I printed it out along with a few other studies. Link to comment Share on other sites More sharing options...
John Smith Posted October 26, 2012 Report Share Posted October 26, 2012 This thread convinced me to go on it...i always wanted to get better on my own, but fuck it, im an instant gratification kinda guy...why suffer longer than i have to? I just hope it works for me...i remember on the old board there were many successful keppa/keto testimonials Link to comment Share on other sites More sharing options...
r.trudeau Posted October 26, 2012 Report Share Posted October 26, 2012 This was the thread that swayed me to get on it, too. Link to comment Share on other sites More sharing options...
Sammywalker2009 Posted October 26, 2012 Report Share Posted October 26, 2012 This was the thread that swayed me to get on it, too. So how is the keppra working out for you ? Link to comment Share on other sites More sharing options...
r.trudeau Posted November 2, 2012 Report Share Posted November 2, 2012 So how is the keppra working out for you ? It's working great! As of now I've been on Keppra for approximately five months and all my visuals are non existent. I don't see "sky worms" or snow in the dark anymore. It truly is quite nice! Also, my pdoc and myself thought it would be a good Idea for me to go back on wellbutrin, because the medication has helped me with my ADHD issues and anxiety in the past. I've been on that med for a month now, and it did the trick once again. It has helped a lot with speech issues too; stuttering, mixing up words, saying words backwards, ect ect, ect! Also, the wellburtin hasn't had any impact on my visuals. 1 Link to comment Share on other sites More sharing options...
myrslingerbult Posted November 2, 2012 Report Share Posted November 2, 2012 A friend of mine with HPPD here in Sweden recently started on keppra and it made her much better. I will also start taking keppra soon. 1 Link to comment Share on other sites More sharing options...
r.trudeau Posted November 2, 2012 Report Share Posted November 2, 2012 Good, hope it helps! I don't know why people are so reluctant to try it seeing how it helps so many. Link to comment Share on other sites More sharing options...
Sammywalker2009 Posted November 2, 2012 Report Share Posted November 2, 2012 Ah wow that's sO good I'm glad it's working wonders for you r.Trudeau hopefully when I see the neuro I'll be able to persuade him to try me out on it I'll print off the study :-D Link to comment Share on other sites More sharing options...
r.trudeau Posted November 2, 2012 Report Share Posted November 2, 2012 Thanks I really hope your neuro writes you up a prescription!!! By the way, just remember not to get discouraged if you do not see results right away! It took me about a month to really notice a drastic change. Link to comment Share on other sites More sharing options...
Sammywalker2009 Posted November 2, 2012 Report Share Posted November 2, 2012 Yeah I've read peoples accounts where it has taken over a year r.Trudeau do you think if you stopped keppra your visuals would return or does the keppra have a lasting effect that would truly be amazing if it has cured them :-) Link to comment Share on other sites More sharing options...
r.trudeau Posted November 2, 2012 Report Share Posted November 2, 2012 Honestly, I am not too sure yet. During the year and 1/2 mark my pdoc wants to start tapering me off it slowly. If the hppd starts to come back during the taper I will continue taking it for a longer duration of time...then try tapering off it once again, and if it returns I'll most likely be on it for life. Link to comment Share on other sites More sharing options...
Sammywalker2009 Posted November 2, 2012 Report Share Posted November 2, 2012 Well fingers crossed for you Hun hopefully it all works out for the best Link to comment Share on other sites More sharing options...
r.trudeau Posted November 2, 2012 Report Share Posted November 2, 2012 Thank you! I have my fingers crossed for you as well! Link to comment Share on other sites More sharing options...
John Smith Posted November 3, 2012 Report Share Posted November 3, 2012 how much do you take daily rene Link to comment Share on other sites More sharing options...
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