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hope1

HPPD Non Profit Status Update

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I have been putting the time and effort in the development of the website, changing the layout a bit, adding content. Could really use some feedback and advice. I'm not scientifically inclined about this condition but reading up as much as I can and trying to articulate it in a manner that would educate the layperson as well as generate interest from the scientific community. The goal right now is to optimize the website and then send a pitch letter of invitation to put that board together. I really could use a hand. www.neurogroup.org

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good work, i have pinned this post.

 

Come on people, those of you that are good at the science side of HPPD, please PM hope1 and help him out.

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That looks awesome Hope 1 .. Truly Great Efforts..

 

I really do appreciete the time and effort this has taken you.

 

To be honest tho, Unfortunatley Science and web sites are not my strong point.

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The Neurosensory & Neuroregenerative Research Foundation has composed an advocacy and outreach letter to members of key Congressional Committees with the request in the allocation of funding for HPPD. Understand that any action that leads to research begins with the patient, their family and friends. Please be proactive and get as many letters sent as humanly possible. A cure can one day be found and you are the key.
Click the link below:

http://www.neurogroup.org/HPPD_ADVOCACY_%26_OUTREACH.html

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After nearly a year, I've finally managed to get pro bono work provided by an attorney who will file the necessary forms to help us acquire 501c3 status. This is truly remarkable news thanks to a team of dedicated HPPDers who are taking control over their condition in the pursuit of finding a cure.

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