Guest Posted March 3, 2015 Report Share Posted March 3, 2015 Unfortunately they probably don't know hppd even exists. http://publications.mcgill.ca/reporter/2015/03/its-all-about-the-wiring/ Link to comment Share on other sites More sharing options...
Guest Posted March 3, 2015 Report Share Posted March 3, 2015 Oh my someone else! Clueless bastard probably never heard of HPPD.. https://newsoffice.mit.edu/2015/mcgovern-institute-awards-prize-vision-scientist-charles-gilbert-0302 Link to comment Share on other sites More sharing options...
VisualDude Posted March 3, 2015 Report Share Posted March 3, 2015 It is hard to know what they know. Focus is usually on more common disorders and people are quiet about HPPD and, to some extent, other 'weird' visual problems. Perhaps people feel shame if their problem isn't mainstream like cancer or heart disease. Link to comment Share on other sites More sharing options...
brake Posted March 4, 2015 Report Share Posted March 4, 2015 (edited) Unfortunately they probably don't know hppd even exists. http://publications.mcgill.ca/reporter/2015/03/its-all-about-the-wiring/ Someone should maybe mention HPPD and visual snow syndrome to them? http://muhc.ca/research/dashboard Although you might only be able to reach administration Edited March 4, 2015 by brake Link to comment Share on other sites More sharing options...
Guest Posted March 5, 2015 Report Share Posted March 5, 2015 The problem is that there is tremendous effort going on out there but not for us because we have no voice, no advocate or representation anymore. Just this board where we talk, talk, talk... Link to comment Share on other sites More sharing options...
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