Vino Posted February 14, 2015 Report Share Posted February 14, 2015 Thank you so much for the answer. Just wondering how would i get a doctor to do do these tests? What should one say to get these tests done and motivate a test like these? Thank you again. What i have Done so far: major eye check. Checked the "yellow spot", colorsight and so on. Nothing wrong there. IF i don't remember it wrong i've Done a CT and an MR. Looking for a tumor. Nothing wrong. They have teated medications on me for migraine and got me to psychologists who prescribed other meds. Worsening the symptoms. Link to comment Share on other sites More sharing options...
Shadowplay Posted March 9, 2015 Report Share Posted March 9, 2015 Thank you so much for the answer. Just wondering how would i get a doctor to do do these tests? What should one say to get these tests done and motivate a test like these? Thank you again. What i have Done so far: major eye check. Checked the "yellow spot", colorsight and so on. Nothing wrong there. IF i don't remember it wrong i've Done a CT and an MR. Looking for a tumor. Nothing wrong. They have teated medications on me for migraine and got me to psychologists who prescribed other meds. Worsening the symptoms. Sorry for a late reply. I think that I've answered your question already through PM. But just for the sake for the discussion I'd say that the easiest way to get effective help for HPPD is to simply asked to be escalated to a neurologist and claim that if nothing is wrong with your eyes nor mental health, it has to be neurological, which is true in this case. Link to comment Share on other sites More sharing options...
OldSchoolAr Posted April 1, 2015 Report Share Posted April 1, 2015 Australia.. was seeing Professor Harry Mconnel at St Vincents Brisbane, he is one of the TOP Neuro Psychaitrist in Australia Link to comment Share on other sites More sharing options...
Kristina Posted July 6, 2015 Report Share Posted July 6, 2015 Anyone around the Washington DC/Maryland/Northern Virginia area? Preferably more toward Virginia. Link to comment Share on other sites More sharing options...
Tooch83 Posted September 1, 2015 Report Share Posted September 1, 2015 Hi I live in the Northwest Suburbs of Illinois....about 30-40 minutes away from Chicago. I am on Suboxone....Busbar, Propanol..... Link to comment Share on other sites More sharing options...
TheGman6072 Posted September 1, 2015 Report Share Posted September 1, 2015 I am in Huntington Beach, California, United States. I talked to my doctor and he knew what HPPD was but I have since forgotten that entire conversation which sucks. Link to comment Share on other sites More sharing options...
tlehmbecker Posted September 2, 2015 Report Share Posted September 2, 2015 Spokane, WA I'm seeing Dr. W. L. Brown. When I first started seeing him, he hadn't heard of HPPD until I told him about it and gave him some literature. After that, he became interested in it because he remembers treating patients who had used psychedelic mushrooms before with similar symptoms, what treatments he used though he can't remember. Since then, he's been researching it much in the same way I have, scouring literature, looking at the pharmacological profile of drugs and how they might treat HPPD, etc. So, we're taking things experimentally. So, I would say he's a good fit for me at least. I still want to see a neurologist though to get some of the other, more detailed tests (already had a CT scan which yieleded nothing and ruled some of the more scary disorders like CJD or cancer), like a qEEG and scintography. I may be able to convince him to order the tests though considering the experimental nature that we're approaching with this. Link to comment Share on other sites More sharing options...
Onemorestep Posted January 6, 2016 Report Share Posted January 6, 2016 I am in Stamford Connecticut. I have a doctor who is so so about what HPPD is but with studies and logical choices I have been able to get him to prescribe Sinemet and keppra. He also has prescribed me strange drugs such as high doses of baclofen when I told him I had been prescribed it for a physical issue and experienced intense psychological stability for the first time since getting HPPD (effect lasted 6 mo on baclofen, had side effects don't recommend it. Took care of most of my addictive personality/may have cured a brief stint with alcoholism. this effect has lasted after discontinuation) he is a smart man and willing to try new things within reason. He is however pretty expensive (300-350 a visit) Link to comment Share on other sites More sharing options...
Kellen Posted January 8, 2016 Report Share Posted January 8, 2016 London Ontario Canada. My psychiatrist is Dr Watling at Victoria hospital. He's worked with me and has prescribed me keppra, lamictal, sinemet, LDN and he is open to exploring new Meds if he feels they will help. You have to get into see him by referral. Link to comment Share on other sites More sharing options...
argentino Posted January 12, 2016 Report Share Posted January 12, 2016 Rosario, Argentina if anybody on argentine read this, mp please Link to comment Share on other sites More sharing options...
umit Posted January 14, 2016 Report Share Posted January 14, 2016 People from Netherlands and Belgium can go here he is a doc knows lot of hppd Gerard Alderliefste, verslavingsarts, Brijder Verslavingszorg Kees Boekestraat 20 1817EZ Alkmaar 088-358 29 40 Link to comment Share on other sites More sharing options...
ddiddy66 Posted February 3, 2016 Report Share Posted February 3, 2016 Walnut Creek, CA Dr. Robert Sosa Kaiser He said that he may be the only doctor there that is familiar with HPPD Link to comment Share on other sites More sharing options...
256 Posted May 22, 2016 Report Share Posted May 22, 2016 Dr. Patrick Tapia in Birmingham Alabama. Probably the only guy in the state who has heard of HPPD. Very open minded and helpful. Stay away from older docs, they don't believe in HPPD. Link to comment Share on other sites More sharing options...
fruitgun Posted June 7, 2017 Report Share Posted June 7, 2017 (edited) Dr Abraham recommended Dr Prashant Gogia from Münster, Germany. I didn't try to consult him so far but it might be worth a shot. Edited June 7, 2017 by fruitgun Link to comment Share on other sites More sharing options...
bigron 7 Posted August 13, 2017 Report Share Posted August 13, 2017 Anyone know of a good doctor to goto in England Link to comment Share on other sites More sharing options...
Onemorestep Posted December 25, 2017 Report Share Posted December 25, 2017 So about a month ago I found out my family friend met the head of Neurology at columbia presbyterian in NYC at a party; his name is Dr. Fink. He has 75 neurologists working under him and is going to assign two of them to me. I meet with him on Jan 10th so hopefully I'll get some good news. At least I can maybe I can garner some interest in the disorder. 1 Link to comment Share on other sites More sharing options...
umit Posted December 26, 2017 Report Share Posted December 26, 2017 You only can beat your hppd to comfortably state there is no pill no body can do it for you if you keep searching for meds you only feed your disorder and yea your noth the only one buth how much time that past how much you geth weakened and how much you lose hope. Look to me 3 years past and still everthing under control, because why? I beat it and i learned how to deal with it to keep everything cool. Link to comment Share on other sites More sharing options...
Onemorestep Posted December 28, 2017 Report Share Posted December 28, 2017 I don’t think it’s a good idea to encourage people to not see doctors lol Neither way this is a post for people and their doctors. Link to comment Share on other sites More sharing options...
Actionbastard Posted January 3, 2018 Report Share Posted January 3, 2018 (edited) I want to know if anyone knows any good doctors in the Los Angeles/Southern California area that is aware or knows about hppd and depersonalization/derealization . I am in need of it Edited January 3, 2018 by Actionbastard Link to comment Share on other sites More sharing options...
Ming Xiao Posted January 28, 2018 Report Share Posted January 28, 2018 Hi, I'm moving to netherlands and would like to find a doctor knowing a lot about HPPD. I've seen some ppl from Netherlands posting some details about dutch doctors but I can not figure where is surname, name, address, how to find such doctor. I will be grateful for sending me or in this post details about experienced with HPPD doctors from Netherlands. Link to comment Share on other sites More sharing options...
Ming Xiao Posted January 30, 2018 Report Share Posted January 30, 2018 I'm inclining rather to the psychiatrist. Link to comment Share on other sites More sharing options...
Naltrexonewonderdrug4me Posted June 28, 2018 Report Share Posted June 28, 2018 On 9/1/2015 at 6:44 PM, Tooch83 said: Hi I live in the Northwest Suburbs of Illinois....about 30-40 minutes away from Chicago. I am on Suboxone....Busbar, Propanol..... Suboxone has naloxone in it. So does my naltrexone. I wonder if narcan is the real treatment for my HPPD. On 1/5/2016 at 9:30 PM, Onemorestep said: I am in Stamford Connecticut. I have a doctor who is so so about what HPPD is but with studies and logical choices I have been able to get him to prescribe Sinemet and keppra. He also has prescribed me strange drugs such as high doses of baclofen when I told him I had been prescribed it for a physical issue and experienced intense psychological stability for the first time since getting HPPD (effect lasted 6 mo on baclofen, had side effects don't recommend it. Took care of most of my addictive personality/may have cured a brief stint with alcoholism. this effect has lasted after discontinuation) he is a smart man and willing to try new things within reason. He is however pretty expensive (300-350 a visit) Hey I live in Easton Connecticut. My psychiatrist didn’t even know what HPPD was. He’s the chief of staff at silver hill hospital btw. Link to comment Share on other sites More sharing options...
Dedalus Posted April 16, 2019 Report Share Posted April 16, 2019 Any recommendations for Southeastern Michigan? Link to comment Share on other sites More sharing options...
Vicki Posted April 19, 2019 Report Share Posted April 19, 2019 I’m looking for a doctor around dfw area that can help with someone that I believe has hppd PLEASE HELP for a 20 year old that is so confused. Thanks Link to comment Share on other sites More sharing options...
Vicki Posted April 19, 2019 Report Share Posted April 19, 2019 I’m in Texas. Any doctors ?? 1 Link to comment Share on other sites More sharing options...
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