andrewcb

People's locations and their doctors

39 posts in this topic

Thank you so much for the answer. Just wondering how would i get a doctor to do do these tests? What should one say to get these tests done and motivate a test like these? Thank you again.

What i have Done so far: major eye check. Checked the "yellow spot", colorsight and so on. Nothing wrong there. IF i don't remember it wrong i've Done a CT and an MR. Looking for a tumor. Nothing wrong. They have teated medications on me for migraine and got me to psychologists who prescribed other meds. Worsening the symptoms.

0

Share this post


Link to post
Share on other sites

Thank you so much for the answer. Just wondering how would i get a doctor to do do these tests? What should one say to get these tests done and motivate a test like these? Thank you again.

What i have Done so far: major eye check. Checked the "yellow spot", colorsight and so on. Nothing wrong there. IF i don't remember it wrong i've Done a CT and an MR. Looking for a tumor. Nothing wrong. They have teated medications on me for migraine and got me to psychologists who prescribed other meds. Worsening the symptoms.

 

Sorry for a late reply. I think that I've answered your question already through PM. But just for the sake for the discussion I'd say that the easiest way to get effective help for HPPD is to simply asked to be escalated to a neurologist and claim that if nothing is wrong with your eyes nor mental health, it has to be neurological, which is true in this case.

0

Share this post


Link to post
Share on other sites

Australia.. was seeing Professor Harry Mconnel at St Vincents Brisbane, he is one of the TOP Neuro Psychaitrist in Australia

0

Share this post


Link to post
Share on other sites

Hi I live in the Northwest Suburbs of Illinois....about 30-40 minutes away from Chicago.

 

I am on Suboxone....Busbar, Propanol.....

0

Share this post


Link to post
Share on other sites

I am in Huntington Beach, California, United States. I talked to my doctor and he knew what HPPD was but I have since forgotten that entire conversation which sucks.

0

Share this post


Link to post
Share on other sites

Spokane, WA

 

I'm seeing Dr. W. L. Brown. When I first started seeing him, he hadn't heard of HPPD until I told him about it and gave him some literature. After that, he became interested in it because he remembers treating patients who had used psychedelic mushrooms before with similar symptoms, what treatments he used though he can't remember. Since then, he's been researching it much in the same way I have, scouring literature, looking at the pharmacological profile of drugs and how they might treat HPPD, etc. So, we're taking things experimentally. So, I would say he's a good fit for me at least. I still want to see a neurologist though to get some of the other, more detailed tests (already had a CT scan which yieleded nothing and ruled some of the more scary disorders like CJD or cancer), like a qEEG and scintography. I may be able to convince him to order the tests though considering the experimental nature that we're approaching with this.

0

Share this post


Link to post
Share on other sites

I am in Stamford Connecticut. I have a doctor who is so so about what HPPD is but with studies and logical choices I have been able to get him to prescribe Sinemet and keppra. He also has prescribed me strange drugs such as high doses of baclofen when I told him I had been prescribed it for a physical issue and experienced intense psychological stability for the first time since getting HPPD (effect lasted 6 mo on baclofen, had side effects don't recommend it. Took care of most of my addictive personality/may have cured a brief stint with alcoholism. this effect has lasted after discontinuation) he is a smart man and willing to try new things within reason. He is however pretty expensive (300-350 a visit)

0

Share this post


Link to post
Share on other sites

London Ontario Canada. My psychiatrist is Dr Watling at Victoria hospital. He's worked with me and has prescribed me keppra, lamictal, sinemet, LDN and he is open to exploring new Meds if he feels they will help. You have to get into see him by referral.

0

Share this post


Link to post
Share on other sites

People from Netherlands and Belgium can go here he is a doc knows lot of hppd

Gerard Alderliefste, verslavingsarts,

Brijder Verslavingszorg

Kees Boekestraat 20

1817EZ Alkmaar

088-358 29 40

0

Share this post


Link to post
Share on other sites

Dr. Patrick Tapia in Birmingham Alabama. Probably the only guy in the state who has heard of HPPD. Very open minded and helpful. Stay away from older docs, they don't believe in HPPD.

0

Share this post


Link to post
Share on other sites
Dr Abraham recommended Dr Prashant Gogia from Münster, Germany. I didn't try to consult him so far but it might be worth a shot.
 
Edited by fruitgun
0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now