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Found 5 results

  1. In 2011, during a month, I developed a lot of neurological symptoms (I was 20 and then only marijuana several times in my life) - visual snow, palinopsia after images, floaters and tingling of the whole body (24/7), muscle fasciculations. In 2011-2014 I was diagnosed comprehensively (MRI, cerebrospinal fluid, evoked visual potentials, blood etc.). It only turned out that I was infected with Bartonella. I treated myself for several weeks according to ILADS, but finally I gave up. I have learned to live with these symptoms since accepting treatment failure in 2014. Now some of the symptoms are gone, some are still present (like VS, body tingling). Now to the point. A week ago I had the opportunity to take half a pill of ecstasy/mdma (it was my first time in my life, I only thought that LSD can cause permanent vision problems, so under the influence of alcohol I took half a pill). That night I also drunked a loooot of vodka and beer. And I don't remeber second half of the night. The next day I sobered up and read that MDMA may also cause/worse with HPPD/ VS. I got stressed and think my visual symptoms have got a little worse. But I wonder if it's not that under stress and paying attention to visual snow, palinopsia - I just see them more...? 1. Is there anyone here who caused (or worsened) visual snow, palinopsia - after images by ONLY ONE (1st) USE ecstasy / mdma ? I took a half a pill and drink a lot of alcohol (Does alcohol weaken the effect of ecstasy in the brain?) 2. Does it pass someone or is it permanent forever?
  2. Anna

    NEED HOPE

    Hello, my name is Anna, I am 29. I have HPPD for 2,5 months, my life has become hell. Before I was dynamic, enthusiastic and funny, now I can no longer function normally, I am only a shadow of myself. I have very little hope due to my age, I'm afraid of never recovering. I am depressed and suicidal for the first time in my life. My story : I used cannabis daily for 10 years, from my 19 years to my 29 years, I stopped everything for 4 months this year, I felt so healthy and happy ! The last week of August I stupidly smoked every night while beeing on Prednisone (Corticoid) for a flu, until Monday the 28th when I woke up and nothing was like before. I did no bad trip. I also used small doses of Mdma (7), excstazy (20), mushrooms (2), LSD (1), cocaine (5) during the years 2018/2019 and only twice LSD in 2020. My symptoms started with a feeling of hangover that wouldn't go away but I knew there was something else, then derealization, dizziness, blurred vision and three days later I started experiencing all the symptoms of VSS. I didn't sleep for more than a month, I had to quit my job and go back to live with my parents (few days before the onset I had a promotion and find the house of my dreams). I passed all the tests, MRI, EEG, blood tests etc. All clean. Today I live daily with these symptoms: Full VSS (visual snow, static, pattern glare, afterimages, blue entoptic field, floaters, night blindness etc...) Constant dizziness Constant nausea Derealization Head pressure Tinnitus Anxiety/Depression Constant feeling of being high I have read many posts and I have already talk to people from this website, but I feel so hopeless that I wanted to post my story in order to know if a severe ça se like me had good chance of recovery, if some who recovered recognize himself. I feel so guilty, one joint too many and boom. I'm tapering off benzo because if think it's slows down my recovery and I didn't want to take other meds for the moment. I am just taking supplements and homeopathy. I walk 1 hour per day, meditate and do yoga sometimes, read some books, watch TV and cry a lot...
  3. Hello guys, i am very curious. Do neck exercises and overall posture exercises help hppd sufferrers by reducing symptoms? I came across this because hppd is related to visual snow and by developing a good posture and doing daily neck stretches, visual snow will be reduced.
  4. my afterimages have been getting worse and now i have severe trouble focusing or "taking it all in" does this get better? i got hppd a year ago from weed and it started as a slow onset of symptoms like months inbetween, first floaters 2 months later tinnitus, then visual snow, then afterimages. is it going to keep progressing? is this normal? i haven't done any drugs. i'm getting really sad.
  5. anyone who got HPPD or Depersonalisation , got headaches as well ? i have derealization and visual snow, and i get terrible headaches, which seem to move around. thanks
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