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Found 14 results

  1. Hello! I can't believe I've been having HPPD for 1,5 years and never even thought of googling whether there's a specialist in Holland. And I never really did. I just did a search on 'hppd'... Via a Dutch bodybuilding forum I got linked to the "drugsinfoteam". Seriously! That I didn't think of it before! I feel so stupid. Anyway, apparantly there's a "Medical Consultation Hour for Partydrugs". I've translated the text to English, please read the second quotes for English. Translation: The following is quoted from: http://www.drugsinfoteam.nl/drugsinfo/xtc/xtc-depressie/ Translation: Again.. How the hell did I overlook this? What? Does not compute. Well I found it now, right?! Anyway I'm glad to find that there is some sort of "expertise" with HPPD in this country. I'll be making a phonecall soon, and see if I can make an appointment. Feeling somewhat releived to know this, albeit not knowing the extent of there helpfulness yet. At least there are people who have experience with HPPD!!! My day can't get any better. I hope that by posting this, current, and future HPPD sufferers in the Netherlands (and surrounding countries perhaps) will be able to get acute help with their HPPD. May you all be well
  2. This is interesting.... Was browsing some medical things today and came across this med that came out recently. It made me think it may be beneficial to this underserved area due to its unique mechanism of action. It's essentially an add on antipsychotic BUT it doesn't work like any other antipsychotic on the market. It targets 5HT2A almost exclusively as an inverse agonist and to a much lower extent at 5HT2C. You guys probably know that LSD, psychedelics, ect, target 5HT2A as an agonist, this is essentially a down regulator at that site in other words calming overexcitability. That's kind of simplifying it but it look interesting and nothing else seems to help much other than time. The side effect profile is suppose to be low because it does not effect dopamine receptors that cause Parkinsonism, Tardive dyskinesia. Its used to treat hallucinations in Parkinson's because it doesn't mess with dopamine. I know there's some people on this board that know about all the pharmacology and this looks like it's hitting where it needs to, and a new avenue, there is no other inverse agonist on the 5HTA2 receptor on the market, might be worth a shot, best of luck to all of you, give it a look. https://en.m.wikipedia.org/wiki/Pimavanserin https://en.m.wikipedia.org/wiki/Inverse_agonist https://en.m.wikipedia.org/wiki/5-HT2A_receptor http://www.parkinson.org/find-help/blogs/whats-hot/april-2016 ^^^^^ bullet points sum up above link ^^^^^ Best
  3. I've had what i believe to be HPPD for about 3 years now, after a slew of mushroom trips around age 15. I cant pinpoint exactly when i started showing symptoms because i feel they came on very subtly and gradually, and after 3 long years, seem to still be worsening. I remember the first thing i noticed was a light visual snow or static fuzziness that i could only see at night or in dark places, then slowly it started becoming more noticeable with time. I would start then seeing the visual snow or static fuzziness during the day time, most noticeably when looking at something solid and with minimal detail, like a wall or a cloudless sky. The trend of it getting worse continued, i would start getting progressively stronger tracer vision, beginning with things like car and street lights at night. As before, over a few months these symptoms began to translate over to during the day time. Now its to the point where i get tracers as simply as slowly running my hand past my eyes, and the visual snow is strong like what you see on a television that isn't getting any signal. The visual snow even forms into psychedelic shapes sometimes, spirals and things that look like your phone screen when there is grease on it. This is most often at night and in the morning when i am tired, but is not limited to that. When i close my eyes all i can see are these weird colorful randomly moving shapes and images. If i do something like read a book or read something on my computer, when i close my eyes i just see randomly occurring letters and numbers, and this lasts for 15 minutes or so. Florescent lights make all the symptoms particularly strong, so you can imagine school was quite difficult.There are halos around almost everything i look at, especially letters and numbers. My memory and ability to think straight and clearly feels like its degenerating. I cant focus on anything, and having ADHD doesn't help aha. I've also dealt with things anxiety and depression and depersonalization and severe migraines so that cant be helping. Ive completely stopped all substances except alcohol, the occasional cigarette and the occasional joint to help deal with the stress. But i used all 3 of these things and more up until about a year ago. none of it was hallucinogenic though My point of posting this was not to for attention or plead my case on how hard it is to live with. I know there are people on here that have it worse than i do, but i rather just posted this to see if anybody can relate to my experience so far and has dealt with a similar situation. I haven't read many stories of people with HPPD that seems to be progressively getting worse, so i'm just seeing if someone can confirm its HPPD and not something else. I've been to countless doctors across Toronto and most of them have even heard of HPPD, let alone how to treat it haha, so i kind of gave up on the medical route. Ive had brain scans that all came back negative for anything so HPPD seems to be the only thing i have found that matches my symptoms. Its a scary thought thinking about what it might amount to if the symptoms keep exaggerating like they are doing now. Its only been three years so its pretty debilitating thinking about what it might be like after 10...20...years etc if it doesnt stop, as i only just turned 18 aha. This is my first post so any replies or support really helps, thanks. -Cal
  4. Should I just avoid it and not take it? My doc prescribed it because, as some of you may know, I have/am developing a psychotic disorder. I know it's primarily a dopamine antagonist and that HPPD seems to primarily be linked to the serotonin system. But as I've read on this forum and elsewhere, anti-psychotics should be avoided. However, it seems like most people are talking about atypical anti-psychotics, which are both dopamine and serotonin antagonists, rather than typical anti-psychotics like haloperidol. In my research, I haven't found many reports of using haloperidol to treat HPPD or using haloperidol to treat comorbid psychosis with HPPD. I've read the Moskowitz study, but in that cases it was used to treat flashbacks, not necessarily HPPD since before the diagnostic criteria were introduced into the DSM, flashbacks and HPPD were lumped together, so it isn't exactly clear whether they were treating flashbacks or HPPD. I haven't seen many anecdotal reports either. The ones I have seen are mixed in that they say it either 1) helps, 2) does nothing, or 3) makes HPPD worse. What's disappointing about these anecdotal reports is that the authors don't include much information such as their particular dose, other comorbid disorders, hallucinogen that most likely caused their HPPD, other medications and dosage, etc. They just say whether it worked, didn't, or made things worse. So, if there is anyone on this forum that has tried haloperidol and is willing to give a detailed description of their experience, I would very much appreciate it if you could post in this thread and help me determine whether I should try this med or not. I obviously want to treat the psychotic symptoms, but at this point, my HPPD is what's causing me the most distress, worsening it simply for the sake of treating another disorder that isn't causing me much distress would just push me over the edge. Here's my detailed report: Comorbid disorders: Major depressive disorder, panic disorder, schizophrenia/psychosis NOS Current psychiatric medications: 1mg clonazepam twice daily (helps with anxiety), 100mg lamotrigine twice daily (some improvement of visual symptoms) Current non-psychiatric medications: Albuterol, 2 puffs as needed for asthma Past medications tried for HPPD/other disorders: Escitalopram (stopped at 2.5mg once daily, made HPPD worse, 3 day trial), risperidone (stopped at .5mg twice daily, made HPPD worse, only lasted 1 day) [NOTE: These were taken in roughly the same time period] Drug(s)/hallucinogen(s) most likely to have caused HPPD: DPH (diphenhydramine aka Benadryl), used on a nightly basis for ~2 years at doses of 150mg+, potentially MDMA (only ever tried once), potentially THC (only ever tried once, had a severe panic attack) Proposed dose of haloperidol: 2mg once daily tapering up to 5mg once daily Other proposed medications/supportive agents: Benztropine 1mg twice daily to control EPS of haloperidol The main reason I want a detailed report is so I can make a better judgement as to whether it will worsen it or not and thus whether to take it or not. The detailed report gives me an indication of what the underlying cause is and what system is affected in particular. Knowing the drug that caused it and what drugs made it worse/better gives me an idea of the neurotransmitter system that's affected the most by your HPPD. In my case, it seems like mine is primarily linked to the serotonin system and acetylcholine system considering that my drug of choice was DPH, a well known anticholinergic, and that serotonin antagonists made it worse. In particular, for me, it seems like I likely have an acetylcholine deficiency and something funky with my serotonin system (potentially a sort of serotonin toxicity since risperidone blocks serotonin from being absorbed and escitalopram increases it, thus highly increased levels of serotonin). Thanks in advance
  5. I finally saw Dr Plant at KCH (specialist in ophthalmology and neurology) in London yesterday. What he said to me surprised and kind of confused me, and as the appointment cost a lot (first time using private), I thought I'd share online with you guys so you don't have to cough up. He started by writing down my symptoms - visual snow, floaters, after images, constant low level migraine, tinnitus, anxiety, brain fog. Then I did a peripheral field of vision test. When I got the results for that (all normal, though I felt that the swooshing colours and snow that I got in the dark room had really damaged my score before he told me the result, interestingly enough) he told me what he knew about the condition. He said that he's seen hundreds of people with these symptoms, some who call it HPPD, some who consider it a migraine disorder (apparently there is a whole online community of these people - wish I could remember what he said the disorder was called), linked with the 'aura' that some people with migraines get, and some who have neither migraine problems, or have come into contact with psychedelic drugs. He said the most common group of people that he sees for this condition is people who just have moved out to college or university, and are living alone for the first time in their lives, studying a lot etc. As I developed my HPPD in early 2014, half way through my dark and depressing first year of university, this definitely resonates with me. With regards to treatment, he basically said that I have to take a holistic approach - treat my whole body right, put on some weight (I'm underweight), wake up early, go to the gym, make sure that I am living a healthy and active life. This will give me the platform upon which I can recover - by relaxing into the condition, accepting it and freeing myself of the anxiety and stress that it causes me. He poo-pooed the use of "those epilepsy drugs" by which I think he meant Keppra, and also advised that I steer clear of benzodiazepines. He said that many people who have the condition make a full recovery this way, while also ceding that some don't, and that some recover and then, years later, pick it up again (which sounds absolutely awful) I have strictly regimented my diet and lifestyle so that I do not consume any ethyl alcohol at all, even in cosmetics or food products (vinegar for example) in a desperate attempt to halt the progression of my HPPD - alcohol is as harmful as drugs like weed or MDMA to me in terms of exacerbating my condition. He said that this was unnecessary and that my "obsessive" behaviour was impeding my recovery, which left me confused as to his stance on drugs and alcohol - when I said that I felt I'd found some slowing in the progression of my HPPD as a result of this new lifestyle, he claimed it was a placebo effect. All in all I'm very confused about this. I think I will visit some NHS doctors and ask for Keppra to be completely honest, but maybe that's just my weakness after having been given no solid plan of action. Thought? Questions?
  6. Haven't been here in a long time, just browsing and thought I would throw something out there that kind of comes up every now and then but should probably be elaborated on some more. At least in my case, I also had vestibular issues along with HPPD. It comes up on here every now and then from someone and I'm pretty sure David has said HPPD people show vestibular dysfunction, not that I'm trying to use him to advocate a point I'm just pretty sure without going and looking back, shit it even says it in wikipedia. I had to go through vestibular rehab awhile back and I figured I might elaborate so that it might help somebody else, it could probably help some people with orientation and possibly reduce trailing phenomenon. An easy way to kind of tell if you've got something going in that area is to stare at an object, a point, something small say like a neon timer on a oven clock, or something that just sticks out like that. Stand about six feet away from it and shake your head back in forth slightly fast, not quite as fast you can and see if the object "trails" or blurs more to one side or both more than you remember it use to, kind of like when a kid is saying NO when they're shaking their head assertively, that speed. If it does, then it's probably there. The constant illusion of movement disorganizes your properception or sense of where you are in space and so on, anyway, there is a way to fix this or in the least greatly improve this aspect. To save you the trouble of having to set up with on these rehab guys(mine was a real douche and a fucking prick, just sayin), and going through the doctor and maybe embarrassing yourself, have someone give you the blank stare, or feel like your begging for some dickhead doc's mercy, this is what they're going to ask you to do(after about $2000+ btw). : ) So when I went through the guy basically had a WHITE business card, so you'll need something that size, You'll also need a black marker/sharpie/or just a black pen with some ink, some tape, and a blank White background, preferably a wall. Here's what you do, just follow what I'm saying, it'll come together. Draw an uppercase Z on the blank side of the business card. You need to make this the full size of the business card meaning write the Z long way on the card. The horizontal lines of the Z go to the ends of the card and the diagonal line goes across the longer height of the card. You basically make it big enough to cover the whole fucking card, trust me you'll see it. This is best done with a black sharpie, it needs to be about that thick, black, don't ask me why, that's just what I had. Next, on the Z, you put a black line horizontally in the middle of the Z about half the length of the top and bottom horizontal lines, so it's like a - with a Z superimposed on it. Don't ask me why, that's just what it was. After that, you will need the tape, scotch tape works fine, any tape really. Tape the other side of the card and place the card at EYE LEVEL against a BLANK WHITE WALL/BACKGROUND, make sure everything lines up straight. Once you've done this, you stand about six feet or so away from that background. Once there, you simply shake your head back and forth fast enough that it blurs just a little bit, don't do it as hard as you can at first. Make sure, you are completely turning your whole head, you will probably have a tendency to just want to maybe move your chin back and forth instead of your whole head so try to make note of it, you'll see what i'm saying. Do this for about thirty seconds or so and once the thirty seconds are up, stop shaking your head and stare at the Z for about thirty seconds, you will feel a little dizzy, try to concentrate while you do all of this. You should notice that when your shaking your head back and forth that the little blurs of the Z start to dissappear, it's hard to explain, it's like that bad information gets taken out, you'll see this rather soon and you'll know what i'm talking about. Give yourself a couple of minute and repeats the exercise about five times. Do this three times a day, you will notice that the "blurs" start to disappear and are not as pronounced when you begin the exercises after awhile. Do that for a couple of weeks and see where your at. Some asshole charged me over $2000 for that and they were real dickheads, so fuck them, everybody can get it for free. I looked online and had a hard time finding that so I guess it's under lock and key. Hahahaahha There's also variations of that exercise, You can stand further away and walk towards the Z, and walk backwards, that's enough for now, you should really give it a try. People do this after car accidents, concussions, ect after their vestibular system gets out of wack. I don't think it will be a cure all, but it should help in some aspects for some, and every little bit helps. There was also another exercise where they wrote an A on a business card and asked me to hold in my hand at arms length and move it back in forth in my hand while moving my head in the opposite direction but i never really followed through with that one(being a dumbass), the dude really pissed me off, real dickhead, I'm sure it would help, hopefully now someone else doesn't have to deal with that ever. The doc that sent me that way was a Neuro Ophthalmologist. The test I took that I failed that sent me there was a Videonystygmagraphy, and a caloric test, where they blow hot and cold air in your ear and record your reaction. It was crazy when they blew the air in my ear, I felt like I was falling through a tornado, everything was spinning, but it's just for a couple of seconds. Since all you dudes are seeing these doctors, you might want to ask for one, an ENT, and primary can probably get you one too. My asshole doc never even gave me the results, asked for them, never saw them, just sent me to rehab, I guess I'd probably be a detached asshole too if I saw all these people all day with brain problems that I could only do so much for. Anyway, I hope somebody gets some help from this! : ) Provide some feedback if you do and maybe it should get tagged.
  7. hey guys, im new here, so i have been suffering from this thing for about 2 months now, but i actually don't know what it is ? whether DP/DR ? or HPPD ? or something else. i got all this from smoking weed, out of a printing paper (A4). havent touched LSD, MDMA etc ever. ohh!, and i never had that 'i am going to die feeling, when i was high'. and i believe i have a bit of social anxiety. i'm a 22 year old male, with no history of mental illnesses. here is what i have:- visual snow (mostly in darkness and dim lights) very sensitive to all kinds of light. (even sunlight) very intense migrainous headaches at the base of skull slight halos around streetlights, and starbursts from distant lights. only negative afterimages faint ringing in ears, ear pain and popping in the right ear from time to time some sounds feel amplified floaters in white backgrounds changed visual perception the vision where u feel ur still high, or stoned. (is this derealization ?) anxiety (along with the 1001 symptoms that come with it) a strange thing which occurs to me is that, i see streaking/starbursting on lights which are far away, but if the same light source comes close, the streaking goes away! here is what i don't have:- trails/tracers blue field entoptic phenomena colour confusion movement in objects and walls geometric patterns size distortions i saw, both eye doctors and neurologists, got an MRI scan, and everything seems to be normal, according to the doctors! i've yet to see a mental doctor. i got prescribed klonopin, took it a few times, for me it doesn't do much, other than making me sleepy. sorry for making such a long post. any help is greatly appreciated. thanks
  8. Hello ... i just tried a research chemical named "Diphenidine" (http://en.wikipedia.org/wiki/Diphenidine) ... Wiki: ... "Diphenidine and related diarylethylamines have been studied in vitro as treatments for neurotoxic injury and are antagonists of the NMDA receptor." ... it helped me a lot ... i m feeling more alive than ever ... i dont wanna say, u should take this stuff too... research chemicals are not approved for human consumption so take care if u use it, i must say ... u got experience with this stuff or with other nmda antagonists? just post it! i m very interested in ... best greets
  9. Hey everyone. Ok I tryed a lot of meds. And I will do it again, for the moment I can have a kind of normal life with : Parnate (50mg but I'm increasing the dose) ; Lamotrigin (600mg) ; Mirapex (5mg/day) and Klonopin when I need. I have some difficulties to absorb the treatment so, I often need large doses. This treatment increase my motivation and give to me a little bit more energy. But my DP/DR is still the same. So I want to try nootropics, I have the following stuff : - Aniracetam : I will cite examine.com : "It also increases blood flow and activity in the area of the brain known for this action, the association cortex." And I searched, it is the only racetam acting like this). So I think it can be interesting, but alone he's may be too weak. Hence the presence of the second ingredient. - Vinpocetin : Vinpocetin increase the capacities of the blood rapidly and easily enters the brain ; which could allow the Aniracetam reach the associative cortex more easily, I hope. - DMAE : In the brain, DMAE is instead bound to phospholipids in place of choline to produce phosphatidyl-dimethylaminoethanol. This is then incorporated into nerve membranes, increasing fluidity and permeability, and acting as an antioxidant. Its role, in my idea, is to facilitate the passage of other molecules, especially the Aniracetam. - Citicholine : Because Aniracetam is cholinergic, Citicholine is there to support him. I don't like Alpha-GPC because I found too much choline can reduce (for me) efficacity of racetam. And citicholine as to Alpha-GPC is able to cross blood-brain barrier but not fully. And produce Uridine. Citicoline has also been shown to elevate ACTH independently from CRH levels and to amplify the release of other HPA axis hormones such as LH, FSH, GH and TSH in response to hypothalamic releasing factors. It is one of his qualities. And Daphne Simeon published a study on the hypothesis in DR/DP there may be have a malfunction in the HPA axis. I take 5g/day of creatine, 1g during each meal and 2g after the sport. Citicholine can reduced ATP by glutamate so it will preserve my stock of ATP, very important for body but for brain too. I have in stock : a lot of Nootropyl (piracetam) maybe adjunct to the stack to strengthen the AMPA allsoteric positive reinforcement ? (Need advices). I have Modafinil too but it doesn't seem help me (400mg/day). I have also Inositol. And Choline bitartrate, but it is for an other use. But all advices that can help me can help you. After my stack be ready, I'll keep you informed of my evolution. I don't think it can be a true treatment for ever but I wish it can maybe help for the "fog" of vision that induced by DR/DP. Help us together ! (sorry for my poor english, I'm from Paris in france).
  10. File Name: Coluracetam for HPPD File Submitter: onedayillsailagain File Submitted: 18 Aug 2013 File Category: HPPD Research Articles Here's the PDF version of the Coluracetam article.. Haha why didn't I think of this earlier? Oh well. Click here to download this file
  11. coluracetam

    Version 1

    81 downloads

    Here's the PDF version of the Coluracetam article.. Haha why didn't I think of this earlier? Oh well.
  12. Eh, just got off my first phone call trying to schedule an appointment to be seen. Incredibly painful. After explaining/describing the situation: "...So you want to be checked into our drug rehabilitation/ substance abuse program?" "No, no, I'm not addicted and I don't abuse drugs. Never have. I mean, I've used drugs, but only a handful of times, and I was never addicted or anything..." Irritated silence. "Okay, so you're hallucinating?" "No, like I said before, it's not hallucinations...just visual disturbances. I repeat, I do not have, and have never had delusions or symptoms of pychosis. Anxiety and depression, yes, but they are ancillary to the other symptoms." Irritated silence. "Um, I'll leave a note, but I don't think anyone will be able to see you without a recommendation/consultation..." And so it begins! So looking forward to this. Any 'interesting' doctor horror stories to share? Or, on the positive flip side, support/success stories?