Welkom
Good to see things are moving forward with your much appreciated efforts, and thank you for taking the time to explain the much misunderstood differences and overlappings between HPPD and VS(S). Not sure I entirely agree with it, but that doesn't really matter much, as both conditions clearly share much in common; therefore any data from either diagnosis will be useful. Would be interesting to see both conglommerate I guess, but then of course; where does one draw the line? Where would DPD/DRD fall in? What about cognitive disruptions? Just something to provoke thought; not necessarily seeking an answer currently personally.
Please remind me; was it hypo- or hypermetabolism of the Lingual Gyrus? And did they mention whether it was any specific metabolism? Also, I recall there being a lateral specifier, though I can't recall whether it was right or left. Because I don't know what research Goadsby have in mind, and despite the valuable data, it would of course be worth entertaining the possibility of pursuing (theoretical) treatment based off of this observation (putting it bluntly: to cut to the chase). I'm sure there are ways to locally alter the metabolisms of the lingual gyrus somehow; perhaps that deserves a focus as well? In no way is this intended to devalue any of the studies performed so far, yet having your fate rest in someone else's hands entirely requires a lot of faith. Hmm, I just watched your interview with Dr. Abraham. Many thanks to both of you; it was very informative and it will especially serve as a great resource to those new to the conditions. And I must confess; he is correct about the necessity of a more accurate understanding of the pathophysiology involved.. Though I'd think given the current data it's still possible to derive potential treatments, which then may or may not be implemented clinically depending on invasiveness, finances, etc. Anyhow, I'm tired, so off to bed. Sorry if it was a bit deranged, and best wishes to you!
P.S. Just checked; apparently I can only donate via credit card.. Is there a way to pay with PayPal or BitCoin? If not, I'll have to do so later. Is there a deadline?