onelovez

@fruitgun I think you are like me - whatever I take or used to, take before (relaxing, stimulating, good for brain, improving mitochondria/cell metabolism etc etc) - it either makes me feel bad and it just keeps getting worse with every dose OR sometimes it makes me feel GOOD in the first place like Lion's Mane!!! and then after few days taking it i was becoming worse and worse and right now if I take a tenth of a dose I was taking before - it makes me wired. That happens with most substances I develop some weird sensitivity to them... Before I took few grams of Vit C- it overexcited my brain.. now if i take a pinch - i will feel really bad. It seems that I am mercury toxic as the only thing that has been helping me ever is DMSA - a mercury chelating agent - I am doing Andy Cutler's chelation protocol - it is fucking genious regarding removing heavy metals.. Alpha lipoic acid is meant to chelate mercury from the brain then (while DMSA only from the body), but I cannot tolerate Alpha lipoic acid - smallest doses make feel bad for looong time. But I advice anyone to try it and if you do, DO IT ONLY BY ANDY CUTLER'S PROTOCOL. You can find lots of info on it on Andy Cutler Think Tank facebook group. So if you feel similar to me maybe you should look into mercury toxicity.. you can find out if you have mercury by doing a hairtest and interpreting it in a right way or simply by chelating with DMSA and ALA and seeing your reaction to them (good or bad - it means the same thing - mercury toxicity). Lot of people in that group experience Multiple Chemical Sensitivity.. some of them, just like me, also cannot tolarate fish oil, omega 3 , magnesium, vitamin C and some other things.. Good luck.

Both VS and anxiety as well as many other symptoms. Thats what happened to me. I cannot tolerate it.. But I will consider taking smal pinch of it everyday, cause two pinches is already too much for me personally.

Hello fellows, I am starting construction of a new website about Hallucinogen Persisting Perception Disorder and Visual Snow. Having this website online, will bring a lot of opportunities in terms of spreading awareness, working towards the future research and making associations with other institutions, doctors and scientists. There are few of us behind this project - it is not a one man operation, so we have good chances of succeeding. The website will additionally serve as census and will include a map of all doctors, researchers and institutions dealing with HPPD, people affected by HPPD and VS - something that will improve our position during any dialogs between the community/foundation and other medical/governmental institutions - HPPD and VS are still considered to be extremely rare conditions - we NEED to prove them otherwise! By showing them real numbers of the occurrence of these conditions, we stand higher chances of getting governmental funds for the research. There are also plans to add certain tools to the website like scientifically designed surveys which will collect important data, from which number of candidates will be picked to participate in a reviewed study to look for any patterns and draw out certain conclusions. I have been in this community for a while now, actively researching HPPD, pushing the community towards organisation of our work force and trying to come up with different treatment and research ideas and so on - if you are not sure of my credibility - feel free to ask Jay the forum's admin/moderator about me. I would like to ask you if you would consider a donation for the website. We need around 600-800 euro to have it professionaly built (the price depends on our expectations which depends on how much money can we collect). I will be conducting the work with the a professional web developing company g2team.pl myself. If we get any extra funds above that goal, even better - doing it once properly will be much better than having it done cheaply and then having it to be rewritten/rebuilt at later stage, when we want to expand the website. Before any donations being made - all the donators would have a group skype meeting with me to answer all questions and express all doubts and also to know how much money all of us together are transfering for this cause - so everything is transparent and clear to everyone as possible. An invoice from g2team.pl will be issued, for everyone to see. So far there is as much as 5 people donating so far including myself, we need few more. Please contact me at hypnoticaz@wp.pl or skype: pawel.kaluza10 We are very committed to this project and we will not stop working on it until we come up with good news for HPPD and VS communities in terms of research, treatments and cure. Please consider this post carefully, Yours faithfully, Pawel Kaluza

I heard it can increase symptoms x100, but in the longterm it can help to people with lyme (its an experience i heard from one guy with lyme). Lyme by the way can be strikingly simmilar to some HPPD cases (there is a suspection that it could cause HPPD for some).. Anyway - if you are to take it, start with small doses.. maybe even 1 mg and increase, to see with what dose do you feel comfortable with, then take it for few weeks/months and don't try to push it / increase the dose to fast. See if there is any long-term benefit. That is my advice. All the bests

I believe HBOT treatment holds a promise in reduction of our symptoms. Hopefully treatment too. This girl has done a supervised study with a SPECT before and after 68 treatments of hyperbaric oxygen chamber therapy. The results are pretty good, neurologically and symptom wise - she told me personally she feels much better with her symptoms now. http://puu.sh/qgFeO/a00719d18a.jpg

http://neurosciencenews.com/social-behavior-immune-system-4679/ Guys let's start a discussion - what ways do you know to improve your immune system? Brake from the forum mentioned that there is some bacterial strain that can improve social interactions in autism.. I am very interested although my time is limited on carrying out any research. I also heard of a guy that controlled/fought his candida by having home made yoghurts everyday for few months. I think we should try this kind of treatments too - maybe it can speed up the recovery or help in some other desirable ways.

hello, please pass me on the contact details.. do you think they would interview an english speaking person?

It has made me really "stressed", felt some burning inside my chest ad my head. Felt like just before some recreational drug was about to kick in (the unpleasant feeling). I think im worse since that day slightly, but take a note - I drank tea (coffeine I guess) lately that worsened my hppd "permanently", still feel the effects of it 3 weeks later... I took an 8mg pill ... I think injections of Vit B12 also caused worsening in the past (even though I was Vit B12 deficient before the injections..) I am planning to do metal chelation with Andy Cutler's Protocol (fb group, highly recommended). Many people there report Multiple Chemical Sensitivity to same things as me (magnesium, vitamin C, fish oil and some others), same as people there report tinnitus, brain fogs and so on.. After the chelation, I hope that my Chemical Sensitivity will be improved and I will be trying few supplements again.

iI experience worsening with magnesium too. Same with Vit C, any type of Omega acids in any form, any relaxing or waking up herb/tea.. basically anything that calms down the nerves and anything that excites them. It could be the magnesium for you too. Try lowering the dose by 10 or more and stick to it for a longer time. One guy from a chelation group on facebook claims he is intolerant to Vit C and magnesium in a same way as me (no hppd though, just Multiple Chemical Sensitivity, maybe cause of toxic metals in his body). He became tolerant to it by using very low doses continously from what he says, took him very long time though, like few months or so.

I have made an edit with new tests that a friend has sent me. He did a hair test for metal toxicity and a stool sample for infections. "Anonymous user no. 2 Metal toxicity test Test for pathogens, bacterias, viruses, fungi. https://www.dropbox.com/sh/zsef01c6avnum34/AACrpP-AkppqTREkHiRW6z19a?dl=0 By now I can say I have read a lot about the link between metal toxicity and the presence of bacterias/viruses like lyme/candida etc. You will not get rid of lyme virus if you don't remove toxic metals from your body. I am shaping a new theory where the infection could underlie some cases of VS/HPPD. As percentage of people with lyme get exact VS/HPPD symptoms, who apparently happen to have metal toxicity in all/most cases, people with autism/aspergers also happen to experience VS/HPPD symptoms, who as you might guess by now are commonly suspected to be metal toxic. See the correlation? Evidence for VS in aspergers: https://www.dropbox.com/s/j4kenci5ljok410/ss%20%282016-03-05%20at%2011.21.54%29.png?dl=0 https://www.dropbox.com/s/y7vkpofx62qdq3r/ss%20%282016-02-11%20at%2011.46.39%29.png?dl=0"

no more medical tests in the whole community?

i gonna try finasteride soon and report back

No drugs with HPPD , simple as.... try it and regret it. My opinion.

Recently i tried clonodine which reduces adrenaline turnover.. it made me feel really chilled, its something that I needed.. I really enjoyed the effect of the reduction of adrenaline on my HPPD... however after 2-3 days taking it I already felt the rebound effect as the drug is wearing off and the adrenaline goes high up then and i can't think straight... i decided to get off clonidine, it feels dangerous to me to get my body used to it.. there are some studies warning about its rebound effect too. The effect of clonidine made me think though.. If there was something natural that acts similar, reduces adrenaline, with no such strong rebound effect.. Then sustaining that thing for few weeks or months could improve HPPD. Im sure exercise and yoga can reduce adrenaline too. I have read about lavender oil - im trying it today, but all anxiolytics make my hppd worse in the end so I don't have any high hopes. After trying it I already have a bad feeling about how I gonna feel tomorrow.. However Trip To Hell got good results with lavender oil improving sleep.. So guys can you think of any other supplements/ways of decreasing adrenaline or calming down in any other way than working on GABA receptors?

My advice for two of you: 1. everything that visual said 2. try ketogenic diet.. it is bound to make you feel better, calm your brain down and possibly reduce the seizures (keto diet has been used for people with seizures). its a hard diet to sustain, if you are a carbs/love craving person like me, but if you got symptoms as bad as seizures, im sure it will give you the motivation to keep up the diet. let us know how these work for you