mistake87

Also known as Keppra x10, new epilepsy drug only recently approved. Will be starting a trial today...

I actually stopped the magnesium and my symptoms continue to get worse, daily. I'm tapering off Keppra too to establish a baseline. Still, what's going on is just crazy. Scared as hell.

Can wearing prescription glasses make symptoms worse? I started wearing them for short sightedness and astigmatism around 3 months ago, since then my vision (after being v mild for around 10 years) has gone absolutely insane. Does anyone have any thoughts/input? Do you wear glasses? If so does it affect your symptoms at all?

Have your symptoms ever got worse, on a daily basis? I simply have no idea what's going on and can barely cope.

I'm seeing a neuro tomorrow. No MRI but I think it may be necessary, I basically can't look at anything anymore, feel practically blind. I've never taken Klonopin, does it help? I do have bad anxiety, but I guess that's to be expected seeing my vision deteriorate every day...

Many thanks for the support, I really need it right now. The only thing I can think of is that I smelt quite a lot of weed being smoked outside my flat around the time this started, could this possibly cause such a severe increase in symptoms? I honestly went from having no noticeable symptoms whatsoever to my entire field of vision bring an absolute shitstorm. I've only been on Keppra for 3 years, not 10, but I think tapering off is a good first step. Are there any other instances of severe flare ups lasting for months? And ever getting better?

Please guys I urgently need advice. My symptoms were mild for 10 years - only drug used is weed and I don't even know if this caused it, may have been there my whole life... Anyway, the last 3 months have been torturous. My symptoms increase on a daily basis, my VS is so thick and covers everything, even people's faces. I can barely look at a PC screen, my starbursts are huge even during the day, and I get double vision of everything. I am suffering unbearably every day, and the symptoms keep increasing. I had a mind increase in symptoms 10 years ago and started Keppra, do you think if I taper off things will calm down? I don't know how to do this though and cannot contact my neuro. I cannot bear another day of this, advice sorely needed. Has anyone else ever experienced such a severe increase in symptoms? Without a known trigger?

Hi all, I feel like I'm repeating the same post here but I simply have no idea what is going on. I've been taking Keppra for 3 years plus and it killed my symptoms (albeit minor) completely. For no reason the past 2 months they've just imploded, and are still getting worse every day. I'm not even sure if the Keppra helped in the first place tbh, I may have just got used to them. Do you think there's any chance that coming of Keppra could get things back to normal?

600 mg a day My neuro also wants me to add riboflavin and coenzyme q10. Surely supplements can't worsen the condition? My symptoms were getting worse on a daily basis anyhow so I guess it's just a continuation of that?

My neuro has recommended I stay on Keppra, and take magnesium, riboflavin and co enzyme q10, praying this calms things down a bit

I actually find it better being at work than at home, at least there is something to occupy me. Do you think this disorder can get progressively worse over the years without any drug use? I've drank over the years (stopped now) and still smoke cigs but can't help thinking in my case it's just constant and progressive. Literally going through hell. I work in central London and see two copies of Big Ben on top of each other the ghosting is that bad, even during the day... Thanks for the support guys, I really need it atm

I started Magnesium 2 weeks ago (with no improvement) and my symptoms are getting progressively worse. They have been doing so for months now, but could the supplement be affecting this? I'm still on Keppra too, could this maybe be affecting the worsening? Please help guys, I'm desperate. As I've posted b for, I've had minor symptoms for over 10 years (maybe from smoking weed), but since Jan it's become absolute hell, I can barely look at screens anymore, and it's getting worse every day. How do you manage to function with such severe symptoms? It can't keep getting worse.

Nothing at all. I'm going through absolute hell and have no idea why. The severity of my symptoms are insane, static vision by far the worst, covers everything, people's faces are just fuzz, even in broad day light. So so desperate. I've been taking Keppra for 3 years since a past flare up, maybe it's stopped working?

Thanks guys, my symptoms have gone from minimal to absolutely crazy over the past 2 months. No psychedelic use at all (I've had minor VS) for 10 years and this is terrifying me... Trying magnesium but think I'll go for thiamine, seems like a good option to try. Feel so close yet so far if that makes sense...

Hi all, Do your symptoms stay stable, or get worse over time (with no further drug use)? In short, do you think HPPD can progress and develop new symptoms over a period of years, for no apparent reason?