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Jay1

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Everything posted by Jay1

  1. You can get much, much worse... I can't emphasise this enough. MDMA is arguably the worst drug you can take if you have HPPD. It turned my hppd from something manageable to something that made me want to die.
  2. Hi John, that's an interesting observation and one i'd never heard of before. I can only assume certain chemicals are being released during those episodes that help with visuals, (Gaba?). Hopefully some of the more scientifically minded posters can add their thoughts.
  3. Jay1

    VSS or HPPD?

    Do you mean the SSRI was what started your illness or you have now started on SSRIs to try to help the issue? If it was an SSRI that caused your issues, you could probably class that as HPPD... but really, it makes no difference what you call it.. The treatment, things to avoid etc are all the same, from what I have read.
  4. Sadly, probably not. The only test i've heard of to show anything is a qEEG (not a normal EEG). The only success I ever really get with doctors is to calmly explain what hppd is, show them research from other doctors and try to guide them to the correct conclusion (basically letting their ego think it's done some of the work). It's a fucked up system, but it is where we are currently at, in the UK at least.
  5. Yea, there's a few of us from the UK here... I'm from the midlands Welcome to the board
  6. Just a side note, anyone thinking about the blindness thing (we've all thought it)... Just try wearing a dark blindfold for 24 hours. It's way harder than you think!
  7. Do you guys not drop into the dark web or similar when you can;t get benzos? That's how I used to do it before getting a script.
  8. Do you have a link to the research?
  9. Yea, keep on fighting... I know you've been through the ringer lately, but you are a very strong person and will get through this
  10. Welcome to the forum, some great points in your post and you sound like you have a very good outlook to this. I find having creative outlets (music, writing and design for me) have been so beneficial to keep the stress and depression of this disorder at bay.
  11. That sounds very promising, if I understand it correctly... Great find, thanks for sharing!
  12. It's possible that it is all interconnected through drug use.. At this point though, i would not think of it as hppd unless your mild visuals are still there too? Even hppd itself should probably be divided and treated as sub issues (anxiety, depression, visuals, dpdr etc)... I think grouping it all into one condition is a bit limiting.
  13. I think there's more possibility of it being linked to the prozac, or it is a combination of both. The timing is almost exactly the timing when an SSRI starts to "work". Also, the initial three weeks where you felt ok, the prozac would have been doing nothing, which makes me think you were naturally recovering. I would strongly suggest going med free and seeing where your baseline is (Speak to your doctor, of course). I am absolutely baffled as to why they put you on such a medication after one week of anxiety, unless you were already suffering from that before the trip?
  14. I've tried various CBD products, post HPPD, including smoking CBD weed... Nothing has an effect on me, negative or positive. I'd say it is safe enough to try, as long as there is zero or trace amounts of THC content. As with anything new, just take it slowly and up the dose as needed.
  15. Hey, welcome to the forum... Sadly, there's no way to tell, you just gotta try and ride it out as best as you can. The worst flare up i ever had lasted a couple of months.
  16. Jay1

    Drug types?

    Same generation... there were pretty much 2 strengths to any drug you bought... mellow or strong. With acid, the designs on the tabs tended to get a reputation.. Strawberries were mellow, raving testtubes were strong, etc etc
  17. I'm tired of Siren's constant negativity and trying to bring others down to his misery levels. I wish him luck in his recovery, but have put him on a long time out from here. If anyone disagrees with this decision, please let me know... I really don't like banning people.
  18. You can start chatting to a doctor at any point, especially if this is causing you severe worry/anxiety. My personal view is to not go on any medications for at least a month though, ideally three months... UNLESS you are in a very, very bad place and thinking of doing something. Most people I chat to get better naturally after around 1-3 months... But a lot of people jump straight on meds and think the meds healed them, they often then stay on said meds scared that HPPD will come back.
  19. Way too soon to tell.. Just try not to give it any more thought right now and do all the suggested stuff (zero drugs, alcohol, caffeine... minimise stress.. try and get good sleep etc). I know it is hard, but try not to read anything more about HPPD and try not to anylise your vision to the nth degree.
  20. I get a bit of a hangover for a few hours the next day... Bit like that feeling after smoking dope all night then waking up groggy (in the good old days, of course). I try to use it for a few weeks to get a sleep pattern back, then put it away until my next insomnia spell.
  21. I definitely have elements of OCD, though not sure if it's HPPD related (I work as an app designer, where being precise is very important, so is OCD like).
  22. Thanks for the post, it's great to hear these success stories! It really does seem like a lot of people who join do get better, to one degree or another, but having actual posts to back that up will really help any new sufferers that arrive here.
  23. None of us are ok... I've had severe, life crippling HPPD since 1995. But there is a way of speaking to each other that just encourages conversation. Jumping onto a small, well intention post about not giving up to shout your agenda is just not the way the world works. As you can see, i haven't banned you and you are welcome to post whatever you want on here as long as it's not spam or causing extreme problems for others. I think creating your own post is the better approach. BTW - I have sent every bulk email request i've ever received via PM here... If it was emailed or sent to reddit, then it is more likely it went through the cracks, so always PM me here. Also note that people are actively doing things... lots of things... Damn, this forum costs me $45 a month and that's come out of my pocket for maybe the last 10 years now... That's $5k+ right there, just because I feel we need a "home" that is not as frenzied as social media. There are people here doing various things for various societies and research groups... I struggle to keep track of which is which, but people are actively trying to do things.
  24. You haven't tried to do anything here... You came on, bad mouthed people for not doing one very specific thing, yet did nothing yourself... Posted no articles, no links to fundraisers, no mention of what you are doing that might inspire people. Rethink your approach and channel your energy in the right way and things might happen.
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