hope1

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hope1 last won the day on October 3 2015

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About hope1

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  1. The Neurosensory Neuroregenerative Research Foundation needs resident agents, one per state, to accept mail in the foundations behalf. This is a service that we could pay a third party provider had we any money so I'm asking for volunteers to lend a hand. I can be contacted at info@neurogroup.org.
  2. There are plenty of neurology seminars where you pay to participate and promote your organization, foundation, etc.
  3. To TheMythos: The site went down for a few hours after I posted the message. It's been back up for a while now. Mgrade: You can find me on FB under the handle GhiGho SevenOh. IM me.
  4. In becoming a non profit able to solicit donations, most states require forms be filed and resident agent able to accept mail on behalf of the foundation. I'll be putting up a seperate post looking for volunteers interested in being resident agents as this service ordinarilly costs money which we currently have none.
  5. Hello Everyone. In an attempt to get a rough unofficial census as to how many of us there are, I have created a link on the NNRF website that will take the user to a map that serves as a census for HPPD. As stated it is not official but the map servers a variety of functions. 1. It allows us to communicate with one another. 2. It displays our general locations and that of specialists who deal with HPPD. 3. It performs a census (however unofficial) of how many people suffer from this condition 4. The census might serve as a means to get more researchers interested in HPPD To view the map and please do, you may click here: http://www.neurogroup.org/map/hallucinogen-persisting-perception-disorder-worldwide-map/ The more of us that appear, the greater the odds that we may get some much needed attention paid to this disorder. All the best Hope1 *Admin Please Pin and if possible send a mass email blast to all registered users on this site.
  6. So I found my 4, we have an attorney filing our non profit status, new website is up, needs some minor edits but we are making progress. Wish it wasn't taking so long...
  7. New website is up. Needs some minor edits that are being worked on. The donation button won't be up until we acquire non profit status. Don't know what to make of the future but we are working hard at having one with HPPD being resolved.
  8. I can always use a hand. info@neurogroup.org
  9. I would like to encourage all of you to please create an account and join the HPPD disease map at https://www.diseasemaps.org/hallucinogen-persistent-perception-disorder/map/ This is an unofficial attempt at creating a census of people who have this disorder which could potentially lead to patient recruitment for basic research studies. Please take a few minutes and join the map. Thank you. www.neurogroup.org
  10. Our board was finally formed and satisfied the requirements to have an attorney help us file for non profit status on a pro bono basis through the help of an organization that assists budding non profits. Its been a very long and hard journey but my team and I are dedicated to carry on the fight and help find a cure for HPPD.
  11. Hi everyone, After several years of putting together an HPPD non profit, it looks like it's going to happen. Took me several years but I finally found an attorny who will be filing the necessary forms to help us attain 501c3 status with the intent on finding a cure for HPPD and quite possibly Visual Snow as the two seem very interrelated. I should have some more news in the first quarter of 2017 barring any hangups. If anyone would like to get involved, we can certainly use your help. This is afterall a patient powered organization. I can be reached at info@neurogroup.org Best
  12. After nearly a year, I've finally managed to get pro bono work provided by an attorney who will file the necessary forms to help us acquire 501c3 status. This is truly remarkable news thanks to a team of dedicated HPPDers who are taking control over their condition in the pursuit of finding a cure.
  13. PM me on FB with the handle Dr. FutureMed
  14. I'm in need of 4 board members for the foundation who must meet 3x by the end of 2016 by virtual meeting and one 1x per year thereafter. The work load is beyond minimal unless you want to take a participatory lead. Please contact me if interested at info@neurogroup.org.
  15. I'm in the process of starting an HPPD non profit and need four board members. Interested parties can reach me at info@neurogroup.org. The work required in minimal at best. Need to meet at least 1x per year on skype or other virtual meeting modality. Need to meet at least 3 times for the remainder of 2016. The sooner this is done, the sooner I can file for non profit status.