Hey my symptoms are. I have breathing walls but only when i Think alot about it. And i Feel dizzy AS if im on a boat. And some vertigo. And some afterimages. Visual snow. And alot of dpdr. And alitle tracers but that are my only symptoms. My doc says it probably just was the dpdr Doing it. But i kep beeing affraid that i have hppd.... DO I?
There won't be a cure in 5-10 years most probably. Only if we achieve some kind of singularity in which most problems can be solved.. but if we keep at the same speed then most probably we won't have a cure in even 40 years. How much has changed since 2003 for HPPD? I would say almost nothing. Why would be expect to change much in the next 10-20 years? A self-inflicted mental problem which occurs to a very small amount of people who is unlucky enough. There is bigger fish to fry.
Exercise, diet, maybe some supplements, therapy, treating comorbid problems like depression or anxiety, mindfulness, maybe medication, acceptance.. There isn't much more you can do. I also have constant suicidal thoughts, but I would say that that is because of depression rather than HPPD. So many years lost.
Best of luck.
Sorry for asking this and being such a pain in the ass but I'm a bit desperate. When do u think there will be a cure for hppd/vs ? 5 years from now ? 10 years? Or 20? And what will this cure be like ? A pill that can undo these symptoms? Or something expensive and complicated like gene and stem cell therapy ?
some ppl here believe that hppd/vs are caused by neuronal death others think hyperactivity.
on the fb visual snow group Jen Ambrose had said that Dr Goadsby told her vs is treatable and if the research continues a treatment can be available soon . Some vs patients who visited dr Goadsby's fellow researchers at UCFS were told the treatment can be available in just 5 years if everything goes well !! However there aren't enough donations so the research will most likely stop😭.
I'm constantly having suicidal thoughts and I just want to know whether there is light at the end of the tunnel or not .
Ur one of the experts on hppd and vs I hope u can answer my questions.