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  1. 3 points
    This was only posted a week ago: What always amazes me is the comments section, reading people who say HPPD is fun and they enjoy it. I'm happy to swap them their mild HPPD for my severe HPPD and DP-DR and see how much fun they have!
  2. 2 points
    Help The NNRF By Donating To HPPD Research! The Neurosensory Neuroregenerative Research Foundation (NNRF) is please to announced that is now officially an non profit 501c3 entity and can receive tax deductible donations to fund research into Hallucinogen Persistent Perception Disorder (HPPD) and Visual Snow (VS), disorders that historically have been grossly understudied and go under diagnosed. Our work is twofold; awarness & research. The NNRF currentlly has a donor who will match your donation dollar for dollar up to $100,000 for HPPD research. Research proposals and recruitment information will be posted in the first quarter of 2018 and will involve utilizing state of the art neuroimaging and genomic testing modalities. The planned sites are multinational with three in the United States, one in the United Kingdom and one in Australia. Such a collaborative effort to study HPPD has never happend which means your contribution will help tremendously in fully elucidating the neurobiological underpinnigs of HPPD which we hope will lead to a cure so if you, someone you love, a family member or friend has HPPD, please help donate and spread the word. This research will save lives and one day prevent psychedelic drug users the horror of EVER having to experience HPPD. Please Donate Today Thank You! *We are still working on developing a research team for Visual Snow so stay tuned for updates and fundraising information. http://www.neurogroup.org/donate/
  3. 2 points
    Don;t let doctors dictate your condition... If you think you have hppd, keep changing doctors until you find one that believe you and is willing to learn about it. Doctors will often say you are psycotic or depressed, it is easier for them to understand and "treat" (even if it makes you worse)
  4. 2 points
    I feel like psychologists don't understand hppd because it varies, not one person's hppd is the exact same. My personal belief is that hppd is mental illness or brain damage done by rcs. The brain is obviously wired differently for people who are susceptible to hppd as opposed to the people that aren't. There's a reason for that. People are born with these hallucinations not knowing what the hell they are so they say oh i have hppd. My brother has severe autism, sees static, and weird hallucinations, whose to say I am not on the spectrum just because I haven't been diagnosed, at this point it might make sense.
  5. 1 point
    -My grandmother died October 13. We were close. -Nov 3, quit cigarettes, got on Nicorette spray. Quit nicotine November 15. -November 20, start drinking coffee all day every day, too lethargic from quitting smoking and felt like I had a constant dopamine deficiency. -HPPD got so much worse after quitting smoking. It's been 3 months, no urges or cravings to smoke whatsoever. Images got worse and became more body-centric. I'll see my ribcage in my head, my stomach, feel weird and trippy sensations. -I'll fluctuate between feeling horrible for a week or two to feeling 70-80%, one day I felt 90-95. The fluctuation and plateauing is worrying me. I just want to get better and stay at a constant 80%. I could live the rest of my life comfortably at 80%. -Sleep schedule the past 2 weeks has been insane. Staying up all day and night, and the next day to fix it. Staying up for 2 days straight. Getting 4 hours, 6, 12, 4, 6, 4, you get the picture. I feel when I'm at a consistent week at 8 hours a night I'll feel better. -Fixing my diet because I have GERD. Eating less, better, cut out sugar. -Attempting NoFap. -Applying to jobs. Looking for something that I can handle. ******** My life is still very, very stressful and there's a lot of family stuff going on that I didn't mention. I feel like if a lot of this external stress diminished my symptoms would get better. Sometimes I feel like I need a 3rd party perspective because I can't see all the issues at once. Hope you guys are doing alright.
  6. 1 point
    Hey guys, I discovered this forum about 5 months ago upon acquiring HPPD, but just now decided to create an account and share my experience. It's one that I'm rarely able to relate to others'. My intent is not only to recount my own personal story, but to provide some of the valuable insight I have garnered in that time, be it information known to many here or not. This might be somewhat lengthy, but I want to write it out for those who may not fully understand what's happening in their minds as much as I can now, with what I've come to find out. To preface, and out of respect for those here who have it the worst, I'd like to state that as per the DSM-5 criteria for the disorder, I wouldn't truly say that I have an official case of HPPD, which is a term so scarcely understood by medical professionals and lends itself to be used as a misnomer. As it doesn't cause me significant distress or impairment, I am precluded from a certain diagnosis from a technical standpoint. However, I do have a form of the same condition everyone on this board shares, which I believe lacks a broader and more proper denotation. I have what you could describe as long-term effects from psychedelic use reminiscent of the trip that incited them. It is my opinion that there is little distinction between the positive effects reported by people in clinical trials involving psychedelics, and the hellish effects experienced by the unlucky few, at least in regards to the substance's mechanism of action in the brain. I believe these long term effects, benign or disruptive, are in essence the same thing, at different degrees of intensity and character, caused by the same long term neurological changes incurred by the human mind when treated with psychedelics. Just over 5 months ago, I took my 5th and 6th LSD trips only 2 days apart. ~300 and ~375 respectively. Up until then I had had great trips, and even tried a few micro-doses, all in the span of one summer. Those last two trips were good as well, but needless to say, I overdid it. After that last trip, a day or so went by where I felt relatively normal; then after smoking weed the next night, symptoms quickly appeared. What's odd is that they were much more mental than visual. As far as visuals are concerned, I had some mild tracers, and everything was sharper and brighter, with a strobe-like appearance to fast moving objects, and smoother motion to slower moving objects, which seems analogous to the shutter speed of a camera, or at least a biological equivalent in the human mind. My conjectural view of this is that the intensity of electrical signals in the visual cortex may increase due to a lack of inhibition, whereas their frequently decreases, accounting for the aforementioned phenomena. Mentally and even physically speaking, I felt like I was tripping on and off for over a week. I had an almost constant body high, my thoughts were somewhat erratic along with the feeling that part of my mind was still turned off or subdued, as happens during a trip. Namely, this decrease in mental acuity, which has often been described as brain fog, can be associated with a reduction of electrical activity in the DMN, or default mode network of the brain (specifically in the medial prefrontal cortex and anterior cingulate cortex), responsible for higher level intellectual processing. As this part of the brain becomes subdued, other areas begin to interact in ways they normally wouldn't, which brings about the trippy head space and the altered state of mind experienced during the acute effects of the drug. The way LSD binds with receptors in the brain is by becoming temporarily lodged in 5-HT2a (serotonin) receptors largely located on GABA releasing neurons. GABA is an inhibitory neurotransmitter. After the experience, these receptors are reabsorbed back into the cell and in average individuals take an average of a week or a bit longer to regenerate. This accounts for tolerance to the substance, but also has more drastic implications. I find it possible that in certain circumstances, such as when abusing psychedelics or possibly using them before the brain is done developing at the age of 25, these receptors may not be fully regenerated--possibly ever. Upon researching the role of 5-HT2A receptors I found that not only the higher their prevalence, the more prone you are to the effects of LSD, but more importantly, that in and of themselves, too vast an amount can actually be a cause for anxiety, depression, mental disorders such as OCD, etc. It makes sense to me that getting rid of a number of them can be therapeutic to the right kind of person with these circumstances, but can wreak havoc on someone else, depending on their own mental predisposition and how many of those receptors you're ultimately doing away with. Additionally, and most relevant to the visual symptoms so commonly reported, is the fact that without enough GABA being released, there is less inhibition in the visual cortex as well as other areas of the brain, causing hallucinations. This is likely why benzodiazepines, which cause the release of GABA, often help people with HPPD. A clinical trial with participants taking a single dose and reporting back a year later is much more conducive to remove only a small number of these 5-HT2A receptors long-term and improving the subject's state of mind compared to using the substance recklessly and causing too drastic of a change to be considered beneficial. As with anything psychological, an adequate balance in neural functioning and biochemistry is key, and complexity is the biggest piece of the puzzle in understanding this or any other mental alteration. There are other factors involved such as calcium and glutamate, but those I know less about. I'd appreciate anyone's contribution to scientific literature or publications about the matter. In my case (and I don't mean to encourage anyone to follow along my footsteps), I can somehow say that my condition was more beneficial than it was detrimental. Don't get me wrong, the first week was unnerving and felt like a constant microdose, with the mental effects in the following months being still very apparent, although they have mostly declined by now. I've come to realize a lot of the thought disruptions we get with this condition are due to an increase in mental entropy, which some people may find disconcerting and others derive creativity and different perspectives from. That distinction would be largely dependent on the intensity and scope of the change, and the person's reaction to it. However what happens is old thought patterns can be weakened and the potential for brain plasticity increases, leading many to view the world differently and have inexplicably different perception for a variable amount of time after the last dose. I took a 2 month sobriety break from everything after my onset. After that I cautiously started smoking weed again, until I realized I was fully able to and it had no ill effects on my mental or visual effects, even when I stopped again and took another break to make sure I wasn't merely deferring the symptoms--that being said, I can't say it hasn't prolonged their abatement. My visuals, however have only diminished ever so slightly. I tried salvia and it definitely exacerbated my symptoms, so I will be refraining from its use. What I've found in this time is that my mood had increased; I gained a better appreciation for the little things in life, and for several months I kept getting this great euphoric feeling, subtler than on a trip but noticeable and undoubtedly peaceful. For some time, I would also feel the expansion of my mind come and go, sometimes becoming incredibly apparent, which was honestly one of the biggest upsides to the whole thing since it felt incredibly pleasing. I was able to feel the inside of my mind at will, and I'm curious if anyone else here has experienced that. Of course, I don't mean to belittle those of you whose long term effects have been mostly or entirely negative, and offer my condolences with the knowledge that I can't fully imagine what that kind of severity would be like. The point I'm trying to make is that when taking a psychedelic there is a definite change that happens in most people's brains, if not everyone's, which can range from subtleties in mood and perception, to full-blown deleterious effects. I've experienced my share of cognitive dysfunction and DP/DR, but it's all mostly gone by now. I felt disconnected from reality for a while, but that too went away slowly. I feel as though my case fell somewhere between a positive and a negative long-term result from using psychedelics. My advice for anyone dealing with mild to moderate forms of HPPD is the same as anyone else on this forum will profess. Abstinence and patience. Also exercise. Hell when this first hit me I started eating healthy and exercising every other day. That along with the positive effects I was getting from from LSD use pretty much cured my depression for an entire quarter. All in all, I think the therapeutic merit that exists in psychedelics, of course not without it's very real risks, is entirely and incontrovertibly linked to responsible and moderate use, and on the individual's neurology. No, not their state of mind; granted, that can cause a bad trip, which can lead to PTSD, but I strongly believe there is a clear distinction between PTSD and what we call HPPD, even if they happen to be often co-morbid. In my case, I've always had an overactive mind, and being that the cause of most of my mental issues, LSD helped tackle the core of my problems. I have a high IQ, but I also consider myself slightly sociopathic. LSD in fact helped me regain some emotions that were all but foreign to me since childhood, such as empathy and affection. I have no doubt that if I'm not extremely careful with my drug use now, these positive effects may turn into unwanted ones, and just to reiterate, I'm advising the utmost caution to anyone who has had any indication of HPPD. Lastly, what I'm saying is that the change LSD has on the brain is obviously not just psychological but neurological, and more complicated than the few dedicated scientists studying it can fully comprehend, let alone all of us here on this forum. For that reason I think it would be a good idea to contribute what knowledge we have, which is obviously more anecdotal than rigorously scientific, and compile it somehow to create potentially useful data. Perhaps by creating surveys to find out exactly what circumstances led to which degrees of HPPD in this community, cross referenced with age and drug use history, frequency and amount of use, and duration of symptoms. TL;DR: At least read the last 2 sentences.
  7. 1 point
    It's not uncommon for really strong cannabis to give people panic attacks. From what I've seen and experienced that can come on quite suddenly. It's hard to say what's going on with the symptoms you've described. That being said, "black floaters" are pretty common especially as we age. You might want to have your eyes checked. The symptom of concern is seeing things like a person actually being a tree. Does this happen all the time or every once in a while? I'm curious, have you ever taken any drugs besides alcohol and cannabis? I've read in this forum about people getting hppd like symptoms from weed. For me, it was over use of psychedelics that gave me this disorder. My symptoms are quite different from what you're describing. So, I can't say if you have hppd or not. I'd refrain from any drug use and see if the symptoms start to moderate or go away. It sounds like you're already doing that which is great! Hang in there!
  8. 1 point
    I have been on the forum for about 10 years now and it seems the answer is a clear YES.... not only can it come back, but it can come back much worse. Say no to drugs, y'all.... Avoid stress as much as possible, double check with the forum, facebook etc about any new meds you get prescribed.
  9. 1 point
    I suspect if you're lucky enough to have your symptoms clear up, and you resume taking psychedelics, then the chances of it coming back are very high. For whatever reason some of us are predisposed to this disorder and I doubt that vulnerability just dissapears along with the original symptoms.
  10. 1 point
    Since we don't know the pathophysiology of HPPD it's not sure if it can come back or not. I would not recommend going back to whatever drug gave u HPPD if u got it and now symptom free. It's like playing with fire.
  11. 1 point
    Hi... I'm not a subscriber to the idea that it is psychological, as I never had a bad trip, hppd also shows on a qEEG scan, which would suggest neurological issues... though I don't think it will hurt in any way to talk it out with your psychologist... Just back it up with a visit to a neurologist too. Make sure to stop the weed and lsd trips... No more drugs. Keep on fighting man, if you have seen slight improvements, that is already a good sign.
  12. 1 point
    Best thing that helped my anxiety was diet. I'm convinced I had underlying inflammation which triggered anxiety my whole life and played the key role in getting HPPD. Once I went paleo, stopped eating processed foods and added sugar, my anxiety completely disappeared. Recently I have been diagnosed with inflammation in my stomach and what do you know, anxiety was back again like clockwork. Also, meditation and therapy worked wonders for me. If you do a combination of all those, plus exercise and stay active socially you won't need pills. Whatever you do, if you do decide to go the pill route, stay away from benzos unless you're really disciplined and can handle it.
  13. 1 point
    I started on x2 500mg tabs a day. I don't think we need more than that for HPPD because it's a low end dose for Keppra but now I take as needed which is either X1 500mg day or x2 but I would say start with x2 or atl at work your way up to that dose. I have zero side effects but initially I hear it can have some. Those will go away. Klonomopin or xanax both would work well since she might feel comfortable doing klonomopin over xanax I would say 1-2mg per day should be ok on either. print out the study's on this site showing her th science of it th xanax family of drugs affects the region of brain and calms the HPPD and together I find they managed my symptoms completely. I printed articles from this site showing the science and user experience to let my doc try maybe that will help you. Also for Keppra make sure you demand name brand. It's more expensive but makes world of difference. Worst case you can try for a while than try generic and see if still works. But if you try generic you will never know if bad effects are from generic or drug itself. Hope that helps good luck.
  14. 1 point
    Even before I had HPPD I was able to see patterned surfaces morph and swirl just by staring at them for a few seconds. I don't think the power of the mind can be understated -- if you're consciously looking for visuals, you'll often end up finding them (or synthesizing them subconsciously). My advice to you would be to try to break the habit of "testing" your vision and to stay away from HPPD forums. Reading about other people's symptoms and over-analyzing is a vicious cycle.