Jump to content

Leaderboard

Popular Content

Showing content with the highest reputation on 07/13/2015 in all areas

  1. Recently started this med. There is much to say but my trial is new, time is needed, and thoughts difficult to express clearly. Nevertheless, wanted to ask: Has anyone here tried this medication? History: Cabergoline is an ergot derivative that mainly increases D2 receptor activity. [ Bromocriptine is a similar med ] It has been used to help with Parkinson's but is no longer used that way in USA because the effective doses for PD for long term use can cause pulmonary and/or heart valve problems. It's main use is to shrink pituitary tumors (thus eliminating brain surgery). Its action reduces prolactin. It is also used as a female fertility drug and to shrink 'man-boobs'. You will see this med talked about on muscle forums, as they sometimes get hormone problems with all the things they take to get bigger. Cabergoline is also used recreationally to facilitate men achieving multiple orgasms. The standard dosage is one 0.5mg pill twice a week. This reports to be a safe dose with people taking it for life if needed. 'Dangerous' dosage is 3mg or more per day with accumulated amount exceeding 1000mg (at this level, a person has a 0.2% chance per year of the above mentioned problems) My interest: Starting in 2008, many symptoms researched often would tie to possible D2 receptor damage/problems. Recent genetic testing also showed weakness with this specific receptor. Finally, after over 6 years of asking, I got a prescription for this. Expectations were low, in part being it has been several years, but thought there would be some slight visual improvement. My goal was simply to try this for diagnostic information. Results: The initial effects caught me by surprise, as a lot more happened. Here it gets difficult to express coherence, so a jumbley list. Dosage is 0.25mg (1/2 pill) varying from every couple days to twice a day Initial surge in testosterone for a number of days (this is always expected) Vision sharper and more natural (less DR) Feel more 'connected' to living things. (for example, amitriptyline make me feel 3rd person instead of being 1st person. this one is more 1st person) More energy, able to focus (initially hyper-focus) Focal length changed [eye glass prescription] (unexpected. My lenses always feel spasmed. Anticholiergics help for a few days) Increase tinnitus (negative [warning!], unexpected) but this is improving as I adjust Complete relieve of asthma and back muscle spasm - nice, clean, easy breathing (at higher doses, unexpected) First time in over 20 years. The sense that some lasting improvements will remain even when no longer taking med. Reduced sexual function (opposite of what was expected) though initial T surge was 'good' Somewhat calming. Often there is a 60 minute series of effects after each pill (though lessoning) calm, sinus congestion then clearing, sensation on top of head Requires Sinemet to work well, otherwise overall negative experience Issues: Very expensive: $10-20 per pill even though it is generic. My insurance will only cover enough for 2 months of each year. While improving, tinnitus is a warning sign for me Works better with Sinemet and with small amount of Amantadine - don't wish to increase the total number meds I take Effects evening out, both good and bad are less so. This med has answered some questions but also raise more questions. Still adjusting and evaluating. Overall a useful med for me. Those interested in trying it for HPPD should first try Sinemet at evaluate its effect ... suspect that if you don't benefit from the levodopa at all, then you would not from this med. Again, this is early reporting (6 weeks in) and subject to changes in opinion. But it seemed important to let members know, and see if anyone else has tried it (weight lifters, hyperprolactimia, etc...) As they say, 'Drive safely'
    2 points
  2. I have been prescribed lorazepam for over a year now at 2 mg/day. I recently developed HPPD symptoms after taking fluoxetine for 9 days. These are mainly visual in nature but come with anxiety and depression. My question is what is the rationale behind taking clonazepam versus other benzodiazapines? Is there a pharmacological superiority in its effects that help with some of the symptoms? I find the lorazepam helps with the anxiety and I'm grateful to have the script but if a similar type of drug can actually relieve some symptoms rather than just blanket them, that would be an improvement. The reason I'm asking is because I am thinking of asking my psychiatrist to switch me over to clonazepam due to what I've read on this forum and across the Internet. It seems to help people and actually provide some relief from the constant visual distortions. Thanks for your time and interest.
    2 points
  3. Not to sound like a broken record here- Magnesium has been a tremendous success for me. 90% reduction in perceptual "glitches"... 25-50% reduction in visual symptoms. Great effect on my mood and cognition and brain fog. No more DP/DR. Better sleep. It's dramatically improving my quality of life. Please watch this video- I hope it will help people: Get a high absorption formulation and give it a try. What do you have to lose?
    1 point
  4. Hello all, I've had HPPD all my life. I've never used hallucinogens except for marijuana however I had HPPD before that, since my earliest memories. It's quite bothersome and depressing but I'm perhaps lucky in comparison to you who know an alternate experience. The fact that I've had this since birth may be due to other mental conditions. I've been diagnosed with several psychiatric and neurological conditions including: NLD (non verbal learning disorder), ADD, clinical depression, schizoid PD, psychotic personality organization, potentially dissociative disorder NOS, potentially aspergers/PDDNOS/autism spectrum disorder (gonna get tested in a while, though likely negative). Twice I experienced marijuana induced severe depersonalizion/derealization and commorbid panic disorder for 4 months and 6 months respectively, which was the worst time of my life hands down, although I always still feel a bit depersonalized and as far as I remember I felt depersonalized all my life. However the experience with DP/DR did not as far as I know had any impact on HPPD. I initially registered to this forum because I wanted to get my experience out since I think the fact that I and perhaps some other people were born with this disorder can be of neurological relevance. Hopefully I can learn here to better deal with and medicate the condition and reduce symptoms.
    1 point
  5. Hello! i write this thread for say all the possitive things i win through HPPD. I tart first with beginig: I meet HPPD in my first time with 25x NBome as the 15 years old (i ever was impulsive, just really bad set & setting) , after really bad trip i go to a hospital and after the administration of "medication" the bad trip loss anxiety but.... the visuals no left. I say before the trip with 25x Nbome i taste Salvia divinorum (very strong trip, to much respect now), coke , Benzo's and weed , but i not have any secuels for that (except the salvia , a seriously existencial doubt jeje ) really bad firsts months, with strong medication, i left that after 1 month, slowy, because i try left it fast and have a ugly abstinence syndrome (from antypsychotics and benzos) ,with a strong up from synthomps after that i tried with a long list of medication, but i left that and after it, i NOT go back to use medication, just benzos fro recreational use NOW , 1 3/4 year after left the medication, im feel good, really good, "taming" the hppd, the syntoms really back with the time, for moments was like never will progess , but the aceptation was the solution. After left the medication, i never will ahve anxiety, i really think the cause of the anxiety, is the medication, the fear to the future, u must just accept u life, like in salvia trip, i forget my self, i was think "who i am?" "whare are i am?" "what is this?" but in a moment i think "mmm.... ok, this my home now" or something like that, nothing of desesperation NOW i can smoke weed, six months ago i was know i cannot smoke weed ,the visuals are to stronger, but and i moment i think "i can with this, i can TAME this" , and in a real trip (i was in a trip for my country, travel picking up cars, i not know the traduction for that, backpag travelist? maybe) in a natural place, in 3 days, i managed to tame the weed, to tame the visuals, to tame my self, because with hppd, weed are really more psychedelic than before, The hppd was a advantage, why? because with DP/DR i was can decide what to do with my life without any conditioning, without the senses of "good or bad" "yes or not" "real or ilussion" , i was think in a neutral point, because the badtrip of 25x NBome was a real disconection of reality and a hard reset of my brain. Now i think , why live in this society? in this anti-natural place? in this not spiritual place, in this big folly? why this globalited people? product of the occidental society, in a little world, with limited posibilities, with conditionings , in a false world , fishbowl, snowbowl, i this matrix when the real world, the world with 100 milions years old, the natural world, that world which is being sacrificed to maintain modern Western society, because in 200 years of "modernity" we destroy most than the 100.000 years old of human existence, for maintein a little false world, than just exist humans and cities. Next year is time to let know the world, the real world, to travel, too feel,to learn, to discover... ...to live sorry if i use bad english, i speak spanish thanks for read Salut.
    1 point
  6. You're feeling better... and I think you're one of the lucky ones who's HPPD will get better/subside. That's great! I think when you're having really bad HPPD symptoms or a panic attack (at least for me) your brain isn't really processing memory in the normal manner. It's processing it like it would a traumatic event. Traumatic memory can only be experienced... not remembered. I think you might not be remembering how "wrong" everything felt when you were having the severe HPPD symptoms (or they weren't as severe as some in the group here) or you wouldn't be posting things like this. Try saying these kinds of things when you're experiencing full blast HPPD like some of the people here (myself included). You wouldn't be able to. It's completely debilitating.
    1 point
  7. I just bought a bottle and waiting for it to arrive, it was the tablet form. I read that using powder has a stronger effect, but this was cheap so I thought i would try it. Has anyone tried it? Did it help? I'm hoping if i use it long term it will heal my brain..
    1 point
  8. I didn't know who that guy was in the reflection of the mirror of myself. I couldn't understand who I was when looking on any picture of me taken pre or post-HPPD. I couldn't recognize my family's faces. I saw everyone human being as fierce and dangerous with their worst expressions. I was a floating head on an empty bed every night. I don't have anything of this anymore. It's 100% gone. I don't even think about DP/DR anymore. LethargicAcid linked me this: http://www.psychforums.com/depersonalization/topic80021.html I can't relate more or agree more with this guy or girl. This is kind of how it went for me too except for the religious and spiritual parts as I tend to relate to physics instead. DP/DR is not a part of HPPD. It is, and has been proven, a secondary psychological symtom, which is treatable. I've talked to so many doctors, psychologists and psychiatrist that have cured many sufferers without medication. Keep fighting, talk to people, live your tragic but different life. Accept your pain and let go. This worlds owes us nothing. It's all about what you create.
    1 point
×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.