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hey so I just joined. I kind of like this forums set up, because it's just like another forum I visit often (for an eating disorder). so I already know how to use everything. I feel like if you're a regular here then you probably see a lot of people posting here like 'I don't know if I have hppd', and that might be a bit annoying but this is basically another one of those posts lol. My names Megan, and I'm 16. I'll be 17 on the 23rd though. I've taken LSD 2 or 3 times depending on how you look at it. the first time I had one hit, nothing happened. I don't know what went wrong with that. but I had bought 4 hits, so I still had 3 left. a week or so later I (ignorantly) decided to take all 3 hits at once and I tripped like crazy and for the longest time ever. this is the first drug I've ever done, never drank, never smoked, nothing. then a couple months later my friend bought and we both had one hit each and I didn't like whatever she had bought. it wasn't 'right' at all. so that's just a little background on my drug use. I would like to ask all of you about how you found out you had HPPD? or when you realized it? when you started to notice symptoms? what symptoms were there? the more information you could give me, the more it would help and the more I would appreciate it (: I've been doing my own research on HPPD as well as schizophrenia. but I think it's really cool in a way that I can talk to people who actually experience HPPD. I think it'll help me figure out if I have it, and just a lot of other things. I can talk about the reasons why I think I may have it, but that would be quite long and this post is already very long lol. thank you for reading (:

so I have personally been doing my own research on HPPD to see if I have it myself. but really it's only been on this website that I have seen lots of 'terms' that I don't quite understand. I've had to search to figure out what the terms meant. like visual snow, I didn't quite understand that one. plus I know there's terms I haven't even heard of yet. so I was just wondering if someone could explain to me all the terms that are commonly used to describe symptoms of HPPD. that would be really helpful because then I can put words to what I've been experiencing. sorry if there's already a thread like this. but if you respond, thank you so much (:

hey! so I'm new here. I have an iPhone 6 so I just have to view this from Safari. it's not my preferred way of doing things. I visit another community online very often as well. the website is the exact same set up as this one, it's just for eating disorders instead lol. Tapatalk is an app that allows you to easily access any online forums. I have the one for eating disorders and you can follow threads, follow sections, and you get alerts directly to your phone. it's amazing. so is there a way to find this website on tapatalk? if not then I really suggest the creators of this site figure out how to go about getting their site on tapatalk! because I'm not sure how all that works lol. but I think it'd be super useful for all of the users here. I'm gonna attach screen shots of how the app looks. I didn't want to show it with the community I'm apart of for personal reasons, so I just clicked a random forum and took screen shots lol. but like especially with the community I am apart of, we weren't able to get apple or anyone to make an app especially for what the site is about because well it's basically promoting actions of eating disorders. so this tapatalk app is like amazing because we basically get an app anyway (: hope this all makes sense I'm typing this while I'm really tired and I'm too lazy to go back and proof read lol.

I don't understand, what is the app? I have apple but I'm curious (:

sup. I have some news for you guys. Doctor Rafael Higashi in Rio De Janeiro, who is a neurologist, nutritionist and a specialist in TMS/tDCS that I have started consultations with. He seems to be a very decent person with a great approach towards his profession. After the first consultation I received a 25 pages long and in-depth form to fill out with many very detailed questions about my body and mental health. This is first time I came across such detailed examination. Every doctor that consider his job serious should be doing the same. Doctor Rafael got me to do scintigraphy examination before proceeding with tDCS. It is similar to SPECT/PET, but from what he said - Scintigraphy only shows underactivity in the brain. I think he said SPECT - can show both over and underactivity. I did the examination and this is what came up (in portuguese): A analise das imagens tomograficas (cortes transversais, sagitais e coronais) e da reconstrucao tridimensional obtidas apos a administracao EV do radiotracador (99m Tc - ECD) evidencia areas de hipoperfusao na projecao do lobo front-paretial superior (bilateral) e fronto temporal (esquerdo, discreta), bem observado nos cortes tomograficos transversais nos 11 ao 13, coronais 16 ao 18 e sagitais 7 ao 10, bem como nas reconstrucoes tridimensionais. Translation by google: The analysis of CT images (cross sections, sagittal and coronal) and three-dimensional reconstruction obtained after the administration of EV radiotracer (99mTc - ECD) evidence of hypoperfusion areas in the projection of the upper front-paretial wolf (bilateral) and fronto temporal (left , discrete) and observed in cross-sectional tomographic cuts 11-13, coronal and sagittal 16-18 7-10 as well as in three-dimensional reconstructions. Hypoperfusion for those who don't know is a decreased blood flow through an organ. Since I showed him the studies about HPPD and VS and he assumes that I do have overactivity in the occipital area as shown in one of the studies, hence the visual hallucinations. Doctor Rafael explained to me one of the affected parts of the brain is responsible for language, but he indicated that its to do with the thoughts we hear/think to ourselves and the other area being responsible for planning (and so I guess critical thinking). I am not sure what fronto temporal stands for, but I will find out later (looks like wrong translation). I am going to be treated with tDCS - he said this could activate those areas. I asked him what he thinks about HPPD, why those areas have less activity, is it that some receptors became damaged? He answered that he doesn't think its a damage of receptors - if that was the case I would not be functioning properly (biologogically I guess). He added that it's more to do with insufficient production of neurotransmitters and that tDCS could increase it. He picked a protocol for me of tDCS. The anode (+) will be located at FZ point (between front and middle of the head) and the cathode somewhere at the back of the head. The anode will stimulate one part/increase the activity and the cathode will lessen the activity in occipital area. Fingers crossed ! I am starting the treatment tomorrow. Will let you know of the progress. A friend got a very bad reaction with one session of tDCS, his hppd worsened so that he felt like after taking ayahuasca (in terms of hppd symptoms) for day or two, but I think it went back to normal after few days. He discontinued the therapy. He had a different protocol though. It was for depression instead of for the parts affected by hppd specifically. I also asked the doctor to prescribe me Sinemet which I will make another post about, because I have some worries about it and how it can affect me. Regarding the evidences - I haven't heard about hypoperfusion in any person with HPPD. Is my case different or am I the first one to have this kind of examination done? I hope this will shine some light on our understanding of HPPD. New things to wonder about.. why those parts of the brain undergo hypo/hyper perfusion and what mechanism could cause it? How could it be dealt with? I hope tDCS is some kind of answer to the last question.

I'm not sure if anxiety is relevant for how strong HPPD/VSS symptoms are. Is it a factor? In any case, here are a list of supplements and herbs I used for anxiety in order of effectiveness from personal experience. Erythrina Mulungu, A combination of l-arginine/l-lysine, l-theanine (you should get: suntheanine ®), Scutellaria Galericulata (I used this in high doses, however expensive), magnesium (400mg daily), -- 5-HTP l-tryptophan ashwaganda, passionflower, california poppy, valerian, lemon balm, hops, gingko biloba, GABA rhodolia rhodesia, If this helps anyone that's good, What are your supplements you have used against anxiety? Also if someone can provide an answer to the question if anxiety plays a role in HPPD/VSS symptoms that would be much appreciated.

Brain fog and DP/DR are close relatives.. I have ADHD and mild autism, motoric dysfunction and dysarthria http://en.wikipedia.org/wiki/Dysarthria. But since I got HPPD and DP/DR I must say the speech problems got even worse. Keppra has increased my ability to articulate words and form sentences a bit but the problems are not completely gone..

I tried to pass the driving test in my condition. After one hour driving around the city I couldn't even say two words properly.

I really wanted to participate on this trial but unfortunatelly travelling to boston is out of question for me. I would really like to know what is the drug used so I can talk to a local doctor. I think it's unfair that only those who live next to boston or that have the time and resources to travel to it can have the chance of participating.